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Topic: Parents & Caregivers

Created By: StephHowwood | 2014-12-04 14:42 | 337 Views | 0 Comments

My lovely daughter is 3 yo. She has never been much of a sleeper; she woke every 20-30 mins until she was 2 yo. She now often sleeps til 1 or 2 am before waking which seems great to me but most 3...

Created By: kb0602 | 2014-12-03 17:58 | 368 Views | 1 Comment

Hi all,

My son was diagnosed with Epilepsy in August at the age of 15 months.  Long story short, he contracted a very nasty virus that brought out his underlying Epilepsy.  At first, the...

Created By: Missy D | 2014-11-22 14:12 | 347 Views | 1 Comment

hello ... this is my first time connenting with the foundation... hoping to connect with people who are going thru some of the same issues i am...   my 12 alomst 13 year son has had seizures since...

Created By: thavamani86@gmail.com | 2014-11-22 12:10 | 313 Views | 4 Comments

I am new to this forum. My 4 years old son having seizures from past one month.we have discussed with pediatrician he asked us to take EEG.The abnormalities found in the report. It seems like...

Created By: golden99 | 2014-11-21 15:21 | 282 Views | 0 Comments

Hello! I am brand ne to this site! My son who turns 5 next weeks was diagnosed with absence seizures with partial onset back in Oct '13. We did get them under control 3 medications later.... Does...

Created By: retiredwoman620@cfl.rr.com | 2014-11-18 13:44 | 273 Views | 0 Comments

 i have epilepsy, have had it for years, growing up, I had both Petit Mal and Grand Mal seizures, which inveriably got m into so pretty tight spots, over the years, 

  Now I 'm over 50,and...

Created By: wandering1 | 2014-11-17 06:56 | 326 Views | 1 Comment

We have a 4 year old daughter diagnosed with absenc seizures in September 2014 after an abnormal EEG.  She has been taking zarontin, the generic, since then.  I posted previously about the trouble...

Created By: For.My.Son.Miggy | 2014-11-13 12:43 | 296 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: For.My.Son.Miggy | 2014-11-13 12:42 | 248 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: robsaari | 2014-11-12 11:05 | 309 Views | 1 Comment

My wife and I have decided it's time to get a seziure alert dog for our 20 year old. We have started looking but don't want to just pick a random training outfit. Do you have an alert dog? Where...

Created By: crlanier | 2014-11-09 10:13 | 357 Views | 1 Comment

My daughter has complex partial seizures and is currently unmedicated due to the side effects of keppra. She just broke out in terrible sweat, became completely flushed and said she had abdominal...

Created By: holland.marisa@gmail.com | 2014-11-07 14:29 | 324 Views | 1 Comment

My daughter will be starting middle school next fall on a campus of around a thousand students.  From her first day of kindergarten on, she has had an emergency walkie-talkie that she carries with...

Created By: wendylim1017@hotmail.com | 2014-11-06 08:23 | 326 Views | 3 Comments

My baby girl is in ICU now, because of epilepsy.

She can't breathe on her own!

She has been suffering seizures since she was 8 month , now she is 4 .WHY ? She!    Lord please save my...

Created By: brighteyes1977 | 2014-11-03 15:46 | 385 Views | 11 Comments

~~My daughter (7 ½) was diagnosed with Epilepsy last week. We have been battling with doctors and specialists for years! Most have said that her clumsiness and poor school work/behavior was all...

Created By: ehamdyzaky@gmail.com | 2014-11-02 03:23 | 317 Views | 2 Comments

My 7 year old daughter has been diagnosed with absence seizure 7 months ago and has been on Zarontin ever since. The medicine stopped the seizures completely within 2 weeks as the doctor said. So...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:18 | 308 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: Shannonpecchia | 2014-10-29 20:47 | 397 Views | 1 Comment

Hello! I'm new to this, so I guess I'll jump right in. 

My son,8, had a tonic clonic seizure in July. After much testing, he was diagnosed as having benign rolandic epilepsy. As I...

Created By: legal | 2014-10-29 08:16 | 272 Views | 0 Comments

I recently attended a India  foreign film showing in Hindi called Happy New Year that had a character called Tammy who had epileptic seizures for the cruel entertainment of the audience. I hope...

Created By: Cynthia21 | 2014-10-28 00:29 | 265 Views | 0 Comments

My son is 6 years old he also has Down syndrome in the past 6 years he has had 3 seizures the first one was 3 years ago and the 2nd one was 2 years ago he didn't shake on them just blank stares...

Created By: Lainysmom | 2014-10-27 12:42 | 319 Views | 2 Comments

My 17 year old daughter with generlized epilepsy recently completed a 3 day ambulatory EEG to try to determine why she is sometimes completely unresponsive when we try to wake her in the mornings...

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