Topic: Parents & Caregivers

Created By: Stephanie84 | 2015-10-05 07:50 | 1 Comment

Hey everyone my name is Stephanie and my husband, daughter and step daughter all have juvenile myoclonic epilepsy. I would like to do a walk next month in my area but don't know how to go about...

Created By: Cmayne69 | 2015-10-04 20:33 | 2 Comments

Hi everyone I'm new to everything around here, my now 1 year old son was just recently diagnosed with epilepsy he had his first seizure may 28(8 months old) and 5th September 13th and he started...

Created By: Kristen614 | 2015-10-02 14:46 | 2 Comments

My daughter is now 7 and had her first seizure at 5 and we are on our third medicine change. She is now on Lamictal and so far it has been keeping the seizures at bay. I was just wondering if any...

Created By: rysmom8821 | 2015-09-30 08:25 | 0 Comments

Does anyone have any experience with Accutane starting seizures in someone with no previous history of seizures OR making seizures worse in someone with existing seizures? I am considering putting...

Created By: TONY RANA | 2015-09-29 22:38 | 2 Comments

dea all, my daughter 6 years old has been diagnosed as having abasece seizures, doctors have asked to take Zarontine, wondering has any body not taken medication and managed this condition, as...

Created By: Footballmommy34 | 2015-09-28 21:46 | 1 Comment

Hey everyone! My name is Nicole and my beautiful little girl amiyah has been having febrile seizures since she's about 7 months old. Now for the past year she's been having these staring spells...

Created By: cindy.lou | 2015-09-27 20:53 | 0 Comments

She's never been sick, never had trauma, never had seizures until August. She's now had three complex partial seizures since August.  Never even had a high fever in her life. 

The only time...

Created By: kelly3 | 2015-09-27 20:38 | 0 Comments

My healthy third year old son had his first seizure while we were driving about a month ago. It lasted for about 8 mins (approx). We took him to the emerency and they did some blood work and said...

Created By: Christina K | 2015-09-27 15:21 | 0 Comments

Would love some advice from you guys.  My son is 5 with a diagnosis of severe autism and very severe learning disability.  He has been unable to focus or engage to even learn the simplest of tasks...

Created By: ttj384 | 2015-09-22 14:29 | 1 Comment

Hi! My son was recently diagnosed with absence seizures. He is 6 years old. His doctor prescribed Ethosuximide(zarontin) and I'm wondering, how well does this medication works? Has any of your...

Created By: mime4jesus | 2015-09-20 12:01 | 2 Comments

A year ago, our six year old son had an eight hour episode of continuous seizures that landed him in the ICU at Yale for a few days.  They put him on Keppra twice a day, and he hasn't had another...

Created By: Lovekaden | 2015-09-18 22:13 | 0 Comments

Hi does anyone know how much genetic testing for epilepsy runs? Ive heard it's very expensive 

Created By: Lovekaden | 2015-09-15 08:23 | 0 Comments

Hello my son is almost 4 and has been diagnosed with epilepsy for a little over a year now..for the past two months he's been having a seizure mainly non convulsive every week but he has had two...

Created By: Cam's Mom | 2015-09-14 12:00 | 1 Comment

Hello All,

My 9 year old son has absence seizures and in his second week of medication for them. Can anyone tell me if the seizures themselves or the medication cause bad headaches? He's...

Created By: momofhope | 2015-09-14 10:51 | 2 Comments

Hi! I'm a little confused and hope someone can help. In the last week my  9 year old daughter has had what she calls a "vision". It is recurring and is very frightening and violent. It doesn't...

Created By: dessieh7 | 2015-09-12 14:23 | 1 Comment

Hi,

My son is 4 years old, he was diagnosed with epilepsy about a year ago after having about 4 seizures (grand-mal) and an EEG. Since then he was put on Keppra which did very well for him...

Created By: krismar3 | 2015-09-10 22:52 | 0 Comments

My daughter is 10 years old. Since she was around two she's had behavior issues. She has been diagnosed with ADHD, ODD (she's now outgrown this), anxiety, and has OCD tendencies. The medications...

Created By: jlewinthal | 2015-08-31 18:59 | 1 Comment

Have any of you had a history of Colic or Prolonged Crying as an infant? To the parents, did your epileptic child have or had colice or prolonged crying? 

 

 

Created By: Rjhsteel | 2015-08-28 03:59 | 0 Comments

Edward was born 2 weeks ago. It was supposed to be a time of joy. We, are children and friends and family were looking forward to seeing him.
Now, after 14 days, (we are still here in Great...

Created By: Chasingpirates | 2015-08-16 23:15 | 1 Comment

I hope some of you can provide insight to a worried mama! It's long so bear with me!

My daughter was recently seen at ACH through the ER. Her pediatrician sent her there for an MRI to rule...

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