Topic: Parents & Caregivers

Created By: Miss | 2015-10-15 16:47 | 6 Comments

Hi, my son had his first seizure at 6 months of age. It was chalked up to a febrile seizure and we moved on. When he was 11 months old, he had a cluster of seizures that resulted in us being...

Created By: jotting | 2015-10-14 10:42 | 2 Comments

We are building a home in the near future and now knowing that my 8 year old has seizures (which have been tonic in nature in their most extreme form) I thought what an awesome opportunity to...

Created By: nelliepers | 2015-10-13 09:34 | 4 Comments

My son became epiletic at the age of ten he Is now 21 and on oct the 6th after being absent from his meds for about one week (depakote er) he had a grand mal seizure playing basketball. I had been...

Created By: kristicain12@gmail.com | 2015-10-12 11:05 | 2 Comments

Before I start, I need to disclose that my daughter did not have a "life sentence" diagnosis, her age of onset was not after puberty, and there are no incurable physical issues with her brain to...

Created By: Uzumay | 2015-10-11 20:27 | 5 Comments

Hello, the basis for my posting here is to see if anyone has more information on this. I was diagnosed with Adhd at the age of 5 ( i am now 36). For as long as I can remember I have had moments of...

Created By: Neda T | 2015-10-09 16:48 | 1 Comment

My son was diagnosed with Benign Epilepsy of Childhood with Rolandic Spikes when he was 7. His initial seizures were some of the scariest moments in my life, and after we got the diagnosis and...

Created By: traceymac | 2015-10-09 13:07 | 0 Comments

Hi,  My daughter has been seizure free for 8 years.  She had a grand mal seizure Sunday night right as she began to fall asleep.  She (nor I) can sleep - she is afraid to fall asleep.    She wants...

Created By: JennyS1 | 2015-10-09 10:50 | 0 Comments

Hi all,

I have temporal lobe epilepsy with complex partial seizures (with the odd grand mal) and lots of auras.

It took around 10 years to get properly diagnosed and I was...

Created By: momo8750 | 2015-10-08 22:50 | 1 Comment

My little girl Chloe turns 6 on October 30th.  It's supposed to be about birthday parties this month.  Instead, we went to bed last Friday and was awoken by an awful noise coming from her bedroom...

Created By: Borgesano | 2015-10-06 22:58 | 1 Comment

Hello,

I've been having the occasional grand mal seizure for about eight years now. This last time I had one I have some new issues that I'm not familiar with. I was in the kitchen and had...

Created By: jotting | 2015-10-05 17:05 | 4 Comments

I do not understand what is happening to me.  At 3 years old it was the Autism label which I greeted with a smile and had fun with my kiddo making visual schedules, tons of therapy, IEP meetings, ...

Created By: momofboyz | 2015-10-05 13:40 | 2 Comments

My 6 year old son was started on 4ml a day of ethosuximide on Tuesday, September 29th.  Saturday, October 3rd he developed a fever and a cough; his fever reached a high of 103.4 on Sunday.  I...

Created By: Stephanie84 | 2015-10-05 07:50 | 1 Comment

Hey everyone my name is Stephanie and my husband, daughter and step daughter all have juvenile myoclonic epilepsy. I would like to do a walk next month in my area but don't know how to go about...

Created By: Cmayne69 | 2015-10-04 20:33 | 2 Comments

Hi everyone I'm new to everything around here, my now 1 year old son was just recently diagnosed with epilepsy he had his first seizure may 28(8 months old) and 5th September 13th and he started...

Created By: Kristen614 | 2015-10-02 14:46 | 2 Comments

My daughter is now 7 and had her first seizure at 5 and we are on our third medicine change. She is now on Lamictal and so far it has been keeping the seizures at bay. I was just wondering if any...

Created By: rysmom8821 | 2015-09-30 08:25 | 0 Comments

Does anyone have any experience with Accutane starting seizures in someone with no previous history of seizures OR making seizures worse in someone with existing seizures? I am considering putting...

Created By: TONY RANA | 2015-09-29 22:38 | 2 Comments

dea all, my daughter 6 years old has been diagnosed as having abasece seizures, doctors have asked to take Zarontine, wondering has any body not taken medication and managed this condition, as...

Created By: Footballmommy34 | 2015-09-28 21:46 | 1 Comment

Hey everyone! My name is Nicole and my beautiful little girl amiyah has been having febrile seizures since she's about 7 months old. Now for the past year she's been having these staring spells...

Created By: cindy.lou | 2015-09-27 20:53 | 0 Comments

She's never been sick, never had trauma, never had seizures until August. She's now had three complex partial seizures since August.  Never even had a high fever in her life. 

The only time...

Created By: kelly3 | 2015-09-27 20:38 | 0 Comments

My healthy third year old son had his first seizure while we were driving about a month ago. It lasted for about 8 mins (approx). We took him to the emerency and they did some blood work and said...

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