Topic: Parents & Caregivers

Created By: kaitlynsmom | 2007-08-13 11:34 | 2 Comments

So Kaitlyn has been taking Trileptal for over a week and we are now giving her two doses a day, soon to be 3 doses a day. The day that she started it she started having a different kind of...

Created By: Alaine | 2007-08-13 06:22 | 2 Comments

my son is now 24 mos. old. diagnosed with epilepsy @ 12mos.
different types of seizures ie: absence, myclonic, tonic clonic.
Rylee is taking trileptal and topamax. until recently...

Created By: Baby Sam | 2007-08-12 18:41 | 12 Comments

Most likely my 10 month old son will be starting Zonegran later this week. He is currently taking Clonopin and Topamax. The Topamax was working for a few months but it seems to have stopped. Has...

Created By: SugarE26 | 2007-08-10 12:21 | 1 Comment

My 8 month old nephew is starting to exhibit some strange signs. He lifts his hands hands up and constantly moves his wrists around. He first started doing this a few months ago but it is...

Created By: terrimarie | 2007-08-09 22:29 | 4 Comments

Hi everyone, My 13 year old daughter got the diagnosis of epilepsy today after having 3 seizures in the past month. Even though I knew it was coming, hearing the doctor say it hit me like a ton...

Created By: ehutch79 | 2007-08-09 12:49 | 7 Comments

After tons of research and questions of my daughter's nuerologist and others, I have come to the conclusion that for the vast majority seizures are nothing more than an embarassment and an...

Created By: kaitlynsmom | 2007-08-09 01:53 | 7 Comments

I don't know if I am far off with this idea, but my daugther Kaitlyn (2) started taking Trileptal on Saturday and she has been having the hardest times falling asleep lately. Tonight it took 2 1/2...

Created By: tobby67 | 2007-08-08 22:31 | 1 Comment

my son was diagnosed with absence in December he is currently on keppra and lamictal I do see some decrease in seizures but would like to see none by now my son is a very active boy he played...

Created By: littlebug | 2007-08-08 19:38 | 2 Comments

My sister found a great web site for ID bracelets I thought I would share. The web site is IDTAGS.com The bracelets are only $20 and they have cute designs on the front of them.

Created By: Hope2007 | 2007-08-08 16:45 | 5 Comments

Has anyone's child had an EEG that showed "slowing" that was do to equipment or positioning of the child?

I am getting mixed information. I was told that slowing was most likely due to...

Created By: kaitlynsmom | 2007-08-08 13:30 | 9 Comments

So Kaitlyn started Trileptal on Saturday 8/4. She has been handling it better than previous medications that we have tried but on Saturday she had 2 seizures that were different than her "normal...

Created By: healinghope | 2007-08-08 11:50 | 9 Comments

I'm new to this, not sure how all this works. I'm a mom looking for others who have children with absence seizures. My son is 14. He was diagnosed last year.

Created By: Baby Sam | 2007-08-08 07:57 | 4 Comments

Our son has been on seizure medication for myoclonic seizures for apprx 4 1/2 months. We began Topamax and for two months he was doing great, no visible seizures and his development really took...

Created By: janellesmom | 2007-08-06 22:30 | 10 Comments

well in and out of hospital many test cameback negative few are still pending neur. suggesting janelle may have a metabolic problem has 'anyone out there' heard of such, and treatment wise.. any...

Created By: kaitlynsmom | 2007-08-06 14:51 | 3 Comments

I'm sure alot of you know Kaitlyn has seizures already, she is currently on Trileptal. My son Christopher will be 1 on the 23rd of this month. I am concerned about his behavior and wondering if...

Created By: violet23 | 2007-08-05 22:28 | 0 Comments

Hi to all moms and moms-to-be, I am new here and I would like to suggest to you all to be well prepared as a mom. For those who are planning to have a baby just be aware of your fertility cycle...

Created By: bradysmom07 | 2007-08-04 17:08 | 5 Comments

Does anyone have any information on Trileptal causing a drop in white blood cells? My son, Brady who is 2, had blood work which showed a drop in his white blood cell count. He has been on...

Created By: Hope2007 | 2007-08-04 02:15 | 4 Comments

My 22 month old daughter had two grand-mal seizures in April. She had very low blood sugar when we arrived at the ER, following her first, and had the second in the ER. We were admitted into the...

Created By: Amy here | 2007-08-03 12:10 | 1 Comment

My son has generalized seizure disorder. Absence seizures are what we have been unable to stop with medication. He has failed: Zarontin, Lamictal and topamax. Currently taking depakote 1250 mg...

Created By: kaitlynsmom | 2007-08-02 15:59 | 6 Comments

I am wondering if anyone one here has a seizure dog? Or is getting a seizure dog? I have been thinking about a way to sleep easier at night with Kaitlyn and I am wondering if a dog that would...

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