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Topic: Parents & Caregivers

Created By: cbrownwesandsons | 2007-01-26 17:58 | 416 Views | 11 Comments

My 12 yr old son was diagnosed with BRE 3 1/2 years ago. His EEG came out normal, but his symptons were classic for BRE. He had infrequent and mild sezuires (one side of his face would twitch,...

Created By: shanunlee | 2007-01-26 10:31 | 136 Views | 4 Comments

I am being impatient, I know, but somebody please read my post in the new to epilepsy section. I didn't think I should put the whole thing in here as well, but thought that maybe I chose to put it...

Created By: foakesfamily | 2007-01-25 17:13 | 323 Views | 6 Comments

Our 3-and-a-half-year-old daughter Anna was diagnosed with frontal lobe epilepsy in November. She started having seizures when she was a baby (we now think), although we did not realize it at the...

Created By: lisabdcat | 2007-01-24 16:02 | 84 Views | 1 Comment

My 18 year old daughter was put on an experimental trial of natural progesterone because her seizures frequently followed her menstral cycle. She has intractable generalized E and has grand mals...

Created By: Palaab | 2007-01-22 20:35 | 154 Views | 6 Comments

I am new here. I have 2 daughters each diagnosed with a seizure disorder. My 8 year old was diagnosed when she was 2 1/2. She did have speech and language disabilities but now is excelling in...

Created By: JulieS | 2007-01-21 20:56 | 145 Views | 2 Comments

10 yr old 1000 depokate a day. No sz for a year. has has some problems in school, but been working those out as they come along. The biggest problem is he does not want to eat hardly anything...

Created By: shrinisun | 2007-01-19 19:47 | 217 Views | 6 Comments

when my daughter was 19 months old, she had one occurrence of febrile seizure due to high fever. After a month (of recovering from fever), we noticed her rolling up her eyes for 3 to 4 seconds for...

Created By: JBishop | 2007-01-17 16:01 | 6098 Views | 20 Comments

I am new to the website and have really learned a lot in just a few days.

My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand...

Created By: rais93 | 2007-01-16 23:49 | 295 Views | 3 Comments

Just found out today during round the clock video EEG of my 15 year old daughter that there is indeed such a thingas tooth brush epilepsy. We always suspected that brushing her teeth triggered a...

Created By: Donna S | 2007-01-15 13:01 | 107 Views | 4 Comments

Hello all,
This is my first blog.
My 19 year old son had his first seizure on December 2, 2006. He was at his house near Boston where he attends college. Some of his 7 roommates...

Created By: stylzz | 2007-01-11 15:39 | 116 Views | 2 Comments

I am scared to death.My 18 month old has been having several types of seizures since he was 4 months old.they have been unsuccessful in controling them with meds.We did lots of testing and 2 days...

Created By: dosborn | 2007-01-09 18:48 | 94 Views | 2 Comments

My 17 year old son has had epilepsy for 12 yrs and despite some early problems has been seizure free for about ten years on dilantin. Life was great, playing sport, reasonlby successful at school...

Created By: Brandi516 | 2007-01-09 14:32 | 75 Views | 1 Comment

Has anyone else had this happen? They have upped her meds 3 times now & this itching has recently started. Any advice or epirience?

Created By: jolieweng | 2007-01-07 22:27 | 63 Views | 1 Comment

Does anyone know if a child's vestibular self-stimulation behaviors can be related to either having epilepsy or perhaps the meds?

My 2 year old is rocking, rolling and head banging an...

Created By: heather1 | 2007-01-06 21:28 | 149 Views | 1 Comment

Hi I just took my 13 year old in for his sleep eeg... he has had a previous eeg that showed adnormal spikes...so our family dr. ordered a sleep eeg given the fact that i have epilepsly... what has...

Created By: StormyDawn | 2007-01-06 12:52 | 93 Views | 2 Comments

I need help, ever since my daughter was diagnosed with epilepsy (complex partial seizures) and started on topamax she has been ripping her hair out in handfuls. Has anyone else seen this in their...

Created By: Jasons Big Sis | 2007-01-03 16:10 | 65 Views | 0 Comments

I would like to invite everyone to start the new year off with knowledge and power. There is a new non-profit out there whose mission is to speak up for those who can no longer speak. For those...

Created By: jacksmom | 2007-01-03 08:01 | 166 Views | 11 Comments

Hi, my 7 year old son has BRE. He has had 3 seizures. One a month ago and then two more within two days of eachother last week. His first two were tonic clonic's. 3rd one he was waking up and...

Created By: klhenry | 2006-12-29 00:35 | 95 Views | 4 Comments

Hi
3 years ago my son had his first seizure, walking around staring and then layed down and for 3 hours did not talk but could recognize. #2 while watching a portable dvd player started...

Created By: angelbaby | 2006-12-26 17:36 | 398 Views | 11 Comments

Dear Parents, I sure need some help. I have a 9 year old girl who has been diagnosed with absence seizures. she has been taking valporic acid now steady for 3 months and I have noticed the...

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