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Topic: Parents & Caregivers

Created By: kasala | 2007-04-20 11:30 | 362 Views | 10 Comments

Any advise as I am new to this as to how not to become an over protective mother to my 10 year old with epilepsy? I seem to worry all the time about her though mostly I TRY NOT TO SHOW IT. DO YOU...

Created By: Kim F. | 2007-04-20 10:39 | 132 Views | 3 Comments

We recently met with an epilepologist to look into other options for treating our daughter's epilepsy. She recommended more in depth testing - one of which is the VEEG. We schedule one for the...

Created By: twinmami01 | 2007-04-20 08:00 | 90 Views | 1 Comment

Hello! I have 6 yr old twins w/epilepsy. One of the boys has recently developed myoclonic seizures. My husband and I decided to go see an epileptologist for a second opinion and she had us come in...

Created By: foakesfamily | 2007-04-19 17:49 | 143 Views | 1 Comment

Our daughter Anna was diagnosed with frontal lobe epilepsy in November last year. At that time she was having three or four clusters of seizures a day, and waking several times a night (often...

Created By: comomx3 | 2007-04-19 13:00 | 218 Views | 1 Comment

Okay- so I have one daughter who has partial simple seizures- mostly absence although the past few weeks they've changed to mood/rages and we've added lamictal to our trilepital- so helpful by the...

504
Created By: littlebug | 2007-04-19 12:06 | 647 Views | 3 Comments

I finally got my daughters 504 written.I had to go to the school district to get it done.When we sat down to do it I felt very verbally attacked.Her school always seemed to be understanding until...

Created By: NoEsFacil | 2007-04-18 15:00 | 150 Views | 5 Comments

My daughter is active in both soccer and swimming. But now that she is getting older, soccer isn't as cute. The girls are so rough and there is no safety gear. I'm thinking I want to steer her...

Created By: karissasmommy | 2007-04-17 22:58 | 2759 Views | 4 Comments

I've been searching all over the place for information on kids and epilepsy...a few references to gluten and dairy have popped up as triggers for seizures. Anyone tried a gluten-free and/or dairy-...

Created By: MindyRoy | 2007-04-17 16:18 | 161 Views | 2 Comments

Hi!
Well...today is has been 3 weeks that Shelbie started having 4-5 seziures a day. The are not the tronic clonic but myocloinc absence seizures. But she has had 2 tronic clonic this week...

Created By: kaitlynsmom | 2007-04-17 11:13 | 431 Views | 4 Comments

Hi everyone! So I just got a referrall to the St. Louis Childrens Hospital! I'm so excited! We finally have the chance to get a second opinion and deal with a hospital who specializes in seizures...

Created By: kaitlynsmom | 2007-04-14 13:23 | 348 Views | 14 Comments

So I have been reading some of the posts by other parents and I have seen alot that the younger kids aren't showing the "traditional" symptoms of seizures and some kids are just screaming or angry...

Created By: mom of T | 2007-04-13 14:04 | 112 Views | 2 Comments

My son, age 14, was Dx with generalized epilepsy - Dr. not sure if it's generalized epilepsy on awakening (not much info. on this) or juvenile myoclonic epilepsy. He had 6 tonic-clonic seizures...

Created By: kaitlynsmom | 2007-04-13 11:50 | 194 Views | 8 Comments

My daugther Kaitlyn is 23 months old, and will be 2 next month. She has had 3-4 seizures in the month of March so we finally got seen by her Neurologist and told us she was having seizures and...

Created By: hgolden | 2007-04-12 23:45 | 71 Views | 0 Comments

Please check out www.drmdk.com

This might be of some help.

Created By: Shar | 2007-04-12 14:36 | 765 Views | 9 Comments

My daughter Ariana had her appt. with neuro today and after discussing her behavioral problems at home and in school, he has decided that he is going start her on lamictal while weaning her off of...

Created By: kaitlynsmom | 2007-04-12 14:02 | 83 Views | 0 Comments

Hi everyone! So I am looking for a good pediatric neurologst in the area... I don't mind traveling some but it kind of has to be a day trip or so! I am getting desperate!! I am ready to drive to...

Created By: tink01223 | 2007-04-10 10:33 | 281 Views | 12 Comments

Hi my name is Kerri and my 10 month old daughter was diagnosed with complex partial seizures in the front right lobe when she was just 6 months old.

I am just wondering if anyone else has...

Created By: karissasmommy | 2007-04-09 13:59 | 274 Views | 7 Comments

Where do I start? I'm a homeschooling mom of twin 6 year olds (boy & girl), and we also have 2 girls ages 3 and 2 (almost 4 & 3--they are 15 months apart). My 3 year old, Karissa, had a...

Created By: kathypro | 2007-04-08 13:44 | 121 Views | 1 Comment

Hi,
My name is Kathy, I am not new to the Epilepsy world. My 7 year old son has been having seizures since he was 10 months old. He has generalized tonic clonic. He is on Phenobarb, Lamictal...

Created By: kaitlynsmom | 2007-04-07 01:16 | 262 Views | 8 Comments

So Kaitlyn (who will be two in May) had a bunch of blood work done (I'm not sure what they were all testing for, but I'm sure most of you have had your little ones have the same blood tests) all...

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