Topic: Parents & Caregivers

Created By: valorie | 2007-08-27 14:11 | 0 Comments

My daughter has spikes in the center of her parietal lobe, she has only had one seizure. It has been several months now and we are just waiting, only time will tell, however, I still want to know...

Created By: HedgesandHedges | 2007-08-26 16:52 | 0 Comments

Hi,
Our daughter is nearly 15 months old and has started taking Carbamazepine approx 1 month ago, she doesnt get any of the side effects like sleepiness, infact thats the problem, she doesnt...

Created By: kaitlynsmom | 2007-08-26 11:56 | 11 Comments

I am having a hard time with my daugther's neurologist and he is the 3rd one we have seen since March 2007. I hate to keep switching because I am worried that something is going to get lost in...

Created By: kaitlynsmom | 2007-08-26 11:56 | 0 Comments

I am having a hard time with my daugther's neurologist and he is the 3rd one we have seen since March 2007. I hate to keep switching because I am worried that something is going to get lost in...

Created By: littlebug | 2007-08-25 00:30 | 2 Comments

Well my daughter was doing really well for almost a month.The other night she started freaking out that there were bugs crawling all over her body bitting her.She was franticly trying to get them...

Created By: FrankiesMom | 2007-08-25 00:28 | 2 Comments

New to site. Looking for information on eye pain. My son is currently on Keppra 2000mg a day and Lamictal 75mg a day. Began with severe right eye pain approx. 2 weeks ago with no explanation....

Created By: mbmom | 2007-08-24 21:42 | 0 Comments

Hi! My daughter had her first seizure almost 3wks ago. Her first was a complex partial seizure. Since then, she's had 6 simple seizures, or at least that what we think they are. We went for...

Created By: mjcolenc | 2007-08-24 20:48 | 0 Comments

A little background.

My son gets up for school at 5:30 in the morning. At 6 he takes his 1 pill of Adderall XR 25 mgs, his 1 1/2 tablets of Trileptal 300 mgs that he started August 1,...

Created By: chiyoung27 | 2007-08-24 12:30 | 7 Comments

Jacob has been having trouble staying asleep throughout the night and is very restless. He takes melatonin (3mg) to help him fall asleep, which has been very helpful (asleep in 20 min. or less)...

Created By: valorie | 2007-08-24 10:37 | 3 Comments

I sent the message below to Oprah at oprah.com in the "suggest a topic" section. I wanted to share this with the my.epilespy community in hopes that you will do the same. With the recent seizure...

Created By: Mom of three | 2007-08-23 16:22 | 0 Comments

My 4 year old son has intractable seizures. They occur in more than one section of the brain and happen all the time. He is on the max of meds they can give him. They still do not stop the...

Created By: eanj | 2007-08-23 13:52 | 0 Comments

We take both of my children up to Children's Mercy in Kansas City. (We live in Topeka, Kansas) Our first neuro moved to New York and we were transferred to another guy. He is really nice, but we...

Created By: Madisonsmommy775 | 2007-08-22 20:27 | 1 Comment

My beautiful daughter just recently had a seizure..and than 9 days later she had another. We went to see a neurology doctor and he said he would run tests on her. And I'm sooo scared. Can anyone...

Created By: jensens mum | 2007-08-22 18:30 | 2 Comments

i have a 6 year old son who was DX with west syndrome at 4 months old he has never been seizure free he has various problems due to westsyndrome.i would like to get in touch with other parents...

Created By: rbenz | 2007-08-22 17:10 | 0 Comments

After 9 months of keeping our son in a pack 'n play in our room at night, we really wanted to move him to his crib where he sleeps better but were obviously scared. We purchase a portable video...

Created By: rbenz | 2007-08-22 16:59 | 0 Comments

My son is 10 months old and has had seizures since around 4 weeks of age. For months we thought he was having intestinal reactions but finally took him to the emergency room on Christmas while...

Created By: janellesmom | 2007-08-22 15:02 | 0 Comments

my daughter was recently put on the medication topamax, since this med was added to the rest it was been increased 3 times she takes a total of 3 25ml tabs a day she is very sleepy sz'z have cut...

Created By: Shar | 2007-08-21 13:01 | 6 Comments

Well its been a while since I posted about Ariana. It's been two months that she has been on Keppra alone after being weaned off trileptal and failing lamictal because of the rash. Since being on...

Created By: kaitlynsmom | 2007-08-21 10:32 | 6 Comments

My daugther Kaitlyn (2) is on Trileptal. She started it on August 4th. The day we started the medicine she started to have a different type of seizure where she did eye fluttering, she did this...

Created By: breenaibauer | 2007-08-18 05:00 | 4 Comments

First time here! One of my 15 month old twins had her first seizure 2 months ago and her second this week. (Maybe has had more at night, we are not sure) Abnormal EEG, normal MRI. Doc said it...

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