Topic: Parents & Caregivers

Created By: brooklynjoe | 2007-07-07 23:34 | 4 Comments

My 9 1/2 month old daughter is in the hospital as I write after having her third seizure. I'm concerned about the amount of time it is taking her to recover and become fully alert since the...

Created By: djmlsu31 | 2007-07-07 21:03 | 4 Comments

14 weeks in counting. Tyler has been on Keppra ever since March when we found out he had the seizures. Keppra gave us no side effects at all but it helped NONE!! We were praying that the Keppra...

Created By: pabiabi | 2007-07-06 16:44 | 3 Comments

I am hoping some of you more experienced moms here can give me some help.

A week ago, on my daughter's 16th birthday, she had a grand mal seizure at home while doing her hair in the...

Created By: jeanNY | 2007-07-06 09:32 | 6 Comments

I am trying to get a sense of the longer term outcome of babies with epilepsy.

My daughter is 10 months and is my only child. She was diagnosed with infantile spasms at 7months (no cause...

Created By: vetmar41 | 2007-07-05 21:29 | 6 Comments

My son had febrile seizures as a baby, is now 16, and has begun to have seizures again. He is now undergoing tests, and is taking Keppra, 500mg, twice a day. The neurologist claims that a lack of...

Created By: mjcolenc | 2007-07-05 10:32 | 4 Comments

My son was out side and I went to get him to come in after being out side for 15 minutes on his bike. The neuro said it was okay as long as he wore a helmet and wasn't in traffic areas. Where we...

Created By: sarahandbray | 2007-07-04 16:41 | 3 Comments

(I'm going to try to make this as succinct as possible, but I have a feeling I'm going to fail miserably!)

My daughter will be 4 next week and has had one confirmed seizure with tonic-...

Created By: Keri Kennedy | 2007-07-03 16:33 | 1 Comment

My daughter is 2, so she is still at the age where I bathe her, and stay right by her side while she plays in the tub.

She has been afraid of the tub for a while, and its something we've...

Created By: Paws1129 | 2007-06-30 23:42 | 8 Comments

My son is 25 months and has been having seizures since Feb.He was also dx'ed PDD-NOS in April. He has been in and out of the hospital and is currently taking Keppra and Topamax. He has been...

Created By: heather1 | 2007-06-30 00:48 | 9 Comments

There has to be some way to educate Teachers on what to look for... not to ignore things..
It should come in with basic CPR.. and first AID training at this point..sigh...

My 14 year...

Created By: cheryla | 2007-06-29 17:58 | 0 Comments

Hi,

Anyone out there have a child that is on Risperdal (in addition to seizures meds)? I need info ASAP!

Thanks,
cheryl

Created By: mamajess | 2007-06-29 12:49 | 7 Comments

I was wondering if anyone else has noticed a link between their child's seizure activity and allergy season. We went quading along the alphalpha feilds the other day and my son's eyes totally...

Created By: nicolerobles | 2007-06-29 04:17 | 0 Comments

hello...i was hoping someone could help me with a problem a 5 year child is having. he sucks his thumb while sleeping and most if not all of his seizure activity is during his sleeping, causing...

Created By: sugarsue | 2007-06-28 07:21 | 2 Comments

Hi, I was hoping you could comment on what you said about your child's fidgeting and cluttering. What did you mean by that?

My daughter has sensory processing disorder. She has a very...

Created By: sugarsue | 2007-06-28 06:49 | 4 Comments

My daughter just started this last night. She's 4.5 yrs. I see the post about the rash that some kids got. I'm worried about that but I guess we will see. She has tolerated it very well so far...

Created By: nikinak | 2007-06-27 17:55 | 1 Comment

hi ,i have just been told my 3 yr old has all left frontal lobe disfunction,due to a cyst,and periteal lobe difuntion ,but iam sure he seizureing during day we out me noticeing,he,s been doing...

Created By: EvsMom | 2007-06-27 15:22 | 1 Comment

Hi everyone.
Just looking around and seeing all the new parents to epilepsy like myself. When this all first started in April I was scared to death. I don't think I will ever forget the...

Created By: sugarsue | 2007-06-26 19:39 | 26 Comments

My daughter has just been diagnosed with something, I don't know for sure yet but assume it's absence seizures. She's 4.5 yrs old.

Right after diagnosis on Friday the neurologist went on...

Created By: Annabel | 2007-06-25 16:56 | 7 Comments

Hi, my daughter is 6 years old and has absence epilepsy. She is currently on two medications to control the seizures. The problem is that she seems to have gone off most of her food. She won’...

Created By: Tommysmom | 2007-06-25 03:54 | 1 Comment

Hello,
My son Tommy was diagnosed with IS at 4 months old. He is now 2 yrs old. We have gone through many many drugs including some out of Canada. Nothing has helped him. He is very...

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