Topic: Parents & Caregivers

Created By: bradysmom07 | 2007-08-04 17:08 | 5 Comments

Does anyone have any information on Trileptal causing a drop in white blood cells? My son, Brady who is 2, had blood work which showed a drop in his white blood cell count. He has been on...

Created By: Hope2007 | 2007-08-04 02:15 | 4 Comments

My 22 month old daughter had two grand-mal seizures in April. She had very low blood sugar when we arrived at the ER, following her first, and had the second in the ER. We were admitted into the...

Created By: Amy here | 2007-08-03 12:10 | 1 Comment

My son has generalized seizure disorder. Absence seizures are what we have been unable to stop with medication. He has failed: Zarontin, Lamictal and topamax. Currently taking depakote 1250 mg...

Created By: kaitlynsmom | 2007-08-02 15:59 | 6 Comments

I am wondering if anyone one here has a seizure dog? Or is getting a seizure dog? I have been thinking about a way to sleep easier at night with Kaitlyn and I am wondering if a dog that would...

Created By: mjcolenc | 2007-08-02 11:29 | 0 Comments

Called Sean's neuro this morning. The receptionist looked up the doctor's notes, and the EEG wasn't for nothing. Even though he didn't go to sleep, or stop moving around, the doctor found enough...

Created By: lbkelly | 2007-08-02 03:56 | 1 Comment

My 10 month old son had me terrified when his eyes rolled up into his hesd &stayed for a couple sec.s He didnt seem to be playing...

Created By: kaitlynsmom | 2007-08-01 00:31 | 21 Comments

We finally got the results of the 24 hr VEEG. When we first went into the doctors appointment the first thing he said was "Promise me you won't be mad at me...." I didn't know what to say so I...

Created By: JennyM | 2007-08-01 00:18 | 1 Comment

Hi I am new here.

My 15 year old son has just been diagnosed with epelipsy. They are starting him on meds tonight. I thought at the beginning I was strong I could deal with this without...

Created By: amydmitchell1973 | 2007-07-31 22:56 | 4 Comments

I'll try not to make this too long.... My daughter had an a typical febrile grand mal seizure when she was 10 months old. She was on Tegratol for a year and no more seizures. At 10 she was...

Created By: nickaroo242 | 2007-07-31 19:17 | 0 Comments

Hello my son is 14 and had his first seizure 31 days ago.he was told he has epilepsy, that was until yesterday when we learned that the cause of his seizure was a brain tumor.I am looking for...

Created By: eanj | 2007-07-31 13:27 | 5 Comments

Good Afternoon! I am hoping to get some feedback from any parents out there who are dealing with more than one child having epilepsy. I have a son who has unexplained Grand Mals in his sleep and a...

Created By: mjcolenc | 2007-07-31 12:57 | 0 Comments

Sean wound up being up from 7 yesterday morning, and being up all night. Went and had the EEG done. Well, doctor comes in and says Sean never went to sleep, and was a wiggle worm. So I guess...

Created By: Nyree412 | 2007-07-30 23:22 | 7 Comments

I had a grand mal seizure 14 years ago when I was 7 months pregnant with my daughter. My seizures started at age 7, that is when I was diagnosed with Epilepsy. Well seven years after I had her she...

Created By: sarahandbray | 2007-07-30 22:57 | 10 Comments

I really need some help sorting through all of this--we just came back from 6 days in Children's Hospital Boston with my 4-year-old daughter, and I'm still a wreck. Worst week of my entire life,...

Created By: 143hayden | 2007-07-29 04:42 | 2 Comments

My son who just turned 4 was just diagnosed with autism spectrum disorder last month. He has had 2 seizures that I know of for sure. First one was at his 3rd Bday party where we found him lying on...

Created By: janellesmom | 2007-07-29 04:06 | 5 Comments

i'm a 22 year old mother i have 2 children justin 19 months and janelle almost 3 months justin is perfectly healthy, janelle on the other i believe was born with seizures she hasn't been diagnose...

Created By: sugarsue | 2007-07-28 18:35 | 3 Comments

I don't know how else to say it in the title of the post...

My daughter (almost 5 yrs) had had many seizures today (absence type seizures). She was in the pool a lot and tired which always...

Created By: bygrace11 | 2007-07-28 00:45 | 8 Comments

We have had a very bad week. My daughter is not doing well and had an 18 hour visual seizure (please read my other posts) which is totally new for us. We saw an ophtamoligist and everything was...

Created By: momneedinganswers | 2007-07-27 01:21 | 10 Comments

My almost 8yo son was diagnosed with complex partial seizures this past January. He was on trileptal at first, but had more seizures than ever. We changed medications to Keppra (and changed...

Created By: dksimo | 2007-07-25 02:42 | 0 Comments

Please let me know any information on this issue. The dr at Cleveland clinic also found poor white and gray differentation in his Left Temperoal pole. I am in a panic. Please respond. thanks...

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