Topic: Parents & Caregivers

Created By: kaitlynsmom | 2007-08-21 10:32 | 6 Comments

My daugther Kaitlyn (2) is on Trileptal. She started it on August 4th. The day we started the medicine she started to have a different type of seizure where she did eye fluttering, she did this...

Created By: breenaibauer | 2007-08-18 05:00 | 4 Comments

First time here! One of my 15 month old twins had her first seizure 2 months ago and her second this week. (Maybe has had more at night, we are not sure) Abnormal EEG, normal MRI. Doc said it...

Created By: jayenmontana | 2007-08-17 12:30 | 2 Comments

It's been a year today since my daughter fell off a stool at a garage sale and went into full convulsions. I look back and remember that sickening feeling watching the ambulance cart my only...

Created By: laurynsmommy | 2007-08-15 22:31 | 8 Comments

My daughter has been having seizures since she was 5 months old. She has been on Topamax, Keppra, and Lamictal, none of which have stopped her seizures. She recently had another MRI which showed...

Created By: NoEsFacil | 2007-08-15 21:06 | 1 Comment

I just wanted to say that I have my arms wide open ready to give you a great big hug.

from me to you!

Created By: caris | 2007-08-15 08:23 | 6 Comments

Hi! My 6 year old had her first nocturnal seizure, (that we know of) a week ago. She's had partial facial seizures for three years, but this was the first seizure where she was completely...

Created By: healinghope | 2007-08-14 22:42 | 11 Comments

We were told by our son's doctor to tell his teachers and anyone that he may be spending a lot of time with--so they would not think it was something else and do or not do something that might...

Created By: kaitlynsmom | 2007-08-14 16:23 | 2 Comments

I am wondering how do you keep an almost 1 year old occupied for an EEG? With Kaitlyn it was a little eaiser but I am not sure how to do it with Christopher. He will be 1 this month and doesn't...

Created By: eanj | 2007-08-14 13:39 | 9 Comments

Good afternoon! My daughter has petit mal (absence) seizures that are fairly well controlled on Ethosuxamide. She has had these since at least the age of two. She is now five and is getting ready...

Created By: NewYearsDayMom | 2007-08-13 20:52 | 3 Comments

My 2.5 year old is on Trileptal which he takes with his milk each day. We tried adding Keppra but the syrup was so strong in taste that he would not take it regardless of what we put it in. Then...

Created By: twinmami01 | 2007-08-13 13:53 | 2 Comments

I have 6 year old twins with generalized seizures. One of my boys started these wierd jerks back in February. We were a bit disappointed that the dr didn't do more to look into it. We got the idea...

Created By: NoEsFacil | 2007-08-13 12:53 | 4 Comments

Please anyone who has gone through this please help.

School starts next week and even though we started a 504 at the end of last school year, I need to write a new one... Molly's...

Created By: kaitlynsmom | 2007-08-13 11:34 | 2 Comments

So Kaitlyn has been taking Trileptal for over a week and we are now giving her two doses a day, soon to be 3 doses a day. The day that she started it she started having a different kind of...

Created By: Alaine | 2007-08-13 06:22 | 2 Comments

my son is now 24 mos. old. diagnosed with epilepsy @ 12mos.
different types of seizures ie: absence, myclonic, tonic clonic.
Rylee is taking trileptal and topamax. until recently...

Created By: Baby Sam | 2007-08-12 18:41 | 12 Comments

Most likely my 10 month old son will be starting Zonegran later this week. He is currently taking Clonopin and Topamax. The Topamax was working for a few months but it seems to have stopped. Has...

Created By: SugarE26 | 2007-08-10 12:21 | 1 Comment

My 8 month old nephew is starting to exhibit some strange signs. He lifts his hands hands up and constantly moves his wrists around. He first started doing this a few months ago but it is...

Created By: terrimarie | 2007-08-09 22:29 | 4 Comments

Hi everyone, My 13 year old daughter got the diagnosis of epilepsy today after having 3 seizures in the past month. Even though I knew it was coming, hearing the doctor say it hit me like a ton...

Created By: ehutch79 | 2007-08-09 12:49 | 7 Comments

After tons of research and questions of my daughter's nuerologist and others, I have come to the conclusion that for the vast majority seizures are nothing more than an embarassment and an...

Created By: kaitlynsmom | 2007-08-09 01:53 | 7 Comments

I don't know if I am far off with this idea, but my daugther Kaitlyn (2) started taking Trileptal on Saturday and she has been having the hardest times falling asleep lately. Tonight it took 2 1/2...

Created By: tobby67 | 2007-08-08 22:31 | 1 Comment

my son was diagnosed with absence in December he is currently on keppra and lamictal I do see some decrease in seizures but would like to see none by now my son is a very active boy he played...

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