Topic: Parents & Caregivers

Created By: mjcolenc | 2007-08-24 20:48 | 0 Comments

A little background.

My son gets up for school at 5:30 in the morning. At 6 he takes his 1 pill of Adderall XR 25 mgs, his 1 1/2 tablets of Trileptal 300 mgs that he started August 1,...

Created By: chiyoung27 | 2007-08-24 12:30 | 7 Comments

Jacob has been having trouble staying asleep throughout the night and is very restless. He takes melatonin (3mg) to help him fall asleep, which has been very helpful (asleep in 20 min. or less)...

Created By: valorie | 2007-08-24 10:37 | 3 Comments

I sent the message below to Oprah at oprah.com in the "suggest a topic" section. I wanted to share this with the my.epilespy community in hopes that you will do the same. With the recent seizure...

Created By: Mom of three | 2007-08-23 16:22 | 0 Comments

My 4 year old son has intractable seizures. They occur in more than one section of the brain and happen all the time. He is on the max of meds they can give him. They still do not stop the...

Created By: eanj | 2007-08-23 13:52 | 0 Comments

We take both of my children up to Children's Mercy in Kansas City. (We live in Topeka, Kansas) Our first neuro moved to New York and we were transferred to another guy. He is really nice, but we...

Created By: Madisonsmommy775 | 2007-08-22 20:27 | 1 Comment

My beautiful daughter just recently had a seizure..and than 9 days later she had another. We went to see a neurology doctor and he said he would run tests on her. And I'm sooo scared. Can anyone...

Created By: jensens mum | 2007-08-22 18:30 | 2 Comments

i have a 6 year old son who was DX with west syndrome at 4 months old he has never been seizure free he has various problems due to westsyndrome.i would like to get in touch with other parents...

Created By: rbenz | 2007-08-22 17:10 | 0 Comments

After 9 months of keeping our son in a pack 'n play in our room at night, we really wanted to move him to his crib where he sleeps better but were obviously scared. We purchase a portable video...

Created By: rbenz | 2007-08-22 16:59 | 0 Comments

My son is 10 months old and has had seizures since around 4 weeks of age. For months we thought he was having intestinal reactions but finally took him to the emergency room on Christmas while...

Created By: janellesmom | 2007-08-22 15:02 | 0 Comments

my daughter was recently put on the medication topamax, since this med was added to the rest it was been increased 3 times she takes a total of 3 25ml tabs a day she is very sleepy sz'z have cut...

Created By: Shar | 2007-08-21 13:01 | 6 Comments

Well its been a while since I posted about Ariana. It's been two months that she has been on Keppra alone after being weaned off trileptal and failing lamictal because of the rash. Since being on...

Created By: kaitlynsmom | 2007-08-21 10:32 | 6 Comments

My daugther Kaitlyn (2) is on Trileptal. She started it on August 4th. The day we started the medicine she started to have a different type of seizure where she did eye fluttering, she did this...

Created By: breenaibauer | 2007-08-18 05:00 | 4 Comments

First time here! One of my 15 month old twins had her first seizure 2 months ago and her second this week. (Maybe has had more at night, we are not sure) Abnormal EEG, normal MRI. Doc said it...

Created By: jayenmontana | 2007-08-17 12:30 | 2 Comments

It's been a year today since my daughter fell off a stool at a garage sale and went into full convulsions. I look back and remember that sickening feeling watching the ambulance cart my only...

Created By: laurynsmommy | 2007-08-15 22:31 | 8 Comments

My daughter has been having seizures since she was 5 months old. She has been on Topamax, Keppra, and Lamictal, none of which have stopped her seizures. She recently had another MRI which showed...

Created By: NoEsFacil | 2007-08-15 21:06 | 1 Comment

I just wanted to say that I have my arms wide open ready to give you a great big hug.

from me to you!

Created By: caris | 2007-08-15 08:23 | 6 Comments

Hi! My 6 year old had her first nocturnal seizure, (that we know of) a week ago. She's had partial facial seizures for three years, but this was the first seizure where she was completely...

Created By: healinghope | 2007-08-14 22:42 | 11 Comments

We were told by our son's doctor to tell his teachers and anyone that he may be spending a lot of time with--so they would not think it was something else and do or not do something that might...

Created By: kaitlynsmom | 2007-08-14 16:23 | 2 Comments

I am wondering how do you keep an almost 1 year old occupied for an EEG? With Kaitlyn it was a little eaiser but I am not sure how to do it with Christopher. He will be 1 this month and doesn't...

Created By: eanj | 2007-08-14 13:39 | 9 Comments

Good afternoon! My daughter has petit mal (absence) seizures that are fairly well controlled on Ethosuxamide. She has had these since at least the age of two. She is now five and is getting ready...

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