Topic: Parents & Caregivers

Created By: Breathholder | 2007-09-03 10:25 | 8 Comments

My son has been having seizures since he was 12 months. He has also been a breath holder since birth. Around 9 months he started holding his breath to the point of passing out, then at 12 months...

Created By: dksimo | 2007-09-01 20:46 | 5 Comments

Is anyone's child on Topamax? And if so are they having any side effects? My son takes Keppra 1500 mg a day and so far 150 mg of Topamax. He was so cranky on Keppra with horrible anxiety. So far I...

Created By: pravin123 | 2007-09-01 06:21 | 0 Comments

My son has first seizure at 11 months old, after that he had 2 major seizure and most of the minor seizure in first 3 yrs. After that everything is normal we had changed his drugs and he behave...

Created By: mjcolenc | 2007-08-31 18:37 | 2 Comments

Seeing as how the EEG wasn't conclusive because of my sons movements, and the only reason the neuro gave medicine is because of what I said, is that reason enough to think my son has Epilepsy?

Created By: Hope2007 | 2007-08-31 16:45 | 2 Comments

This morning I was given the official diagnosis for my almost two year old daughter. She had two grand mal seizures back in April with low blood sugar. She had odd behavior and episodes that lead...

Created By: joyfulmommy | 2007-08-31 09:26 | 4 Comments

Anybody hear of this? Anyone try it?
Just wondering. I dont like the sound of the side effects of the drugs, and was thinking of trying him on something different. However it is kinda of...

Created By: mjcolenc | 2007-08-30 16:24 | 0 Comments

This is what it says. Does this mean my son doesn't have Epilepsy?

Indications for EEG: This is a patient having episodes of memory loss.

Description of record: This is a 16...

Created By: mjcolenc | 2007-08-29 22:16 | 1 Comment

I am going to pick up the notes that were taken from my sons EEG he had done on August 1. Hopefully it won't all be medical mumbo jumbo.

Created By: joyfulmommy | 2007-08-29 22:07 | 10 Comments

Hi everyone,

I just found this site and am so happy to know there are other people who are going thru what i am going thru as a parent. Im sorry we have to go thru it though.

My son...

Created By: mommy2threenow | 2007-08-29 17:34 | 7 Comments

My son is 22 months old and was diagnosed w/ E when he was 18 months old. He currently has atonic and myoclonic-atonic seizures on a daily basis. We have started ST and OT. Now his OT and a PT...

Created By: littlebug | 2007-08-29 01:16 | 1 Comment

I have a friend who was unable to log in because we couldnt retrieve her pass word but she needs advice. My son is five years old, and has problems with his speech, the last seizure that i know of...

Created By: eanj | 2007-08-27 22:30 | 6 Comments

Ok Folks, please help me out here!! My daughter is on Ethosuxamide for Absence seizures. She has responded well to her meds.
My son who is eight years old has had grand mals/partials in his...

Created By: valorie | 2007-08-27 14:11 | 0 Comments

My daughter has spikes in the center of her parietal lobe, she has only had one seizure. It has been several months now and we are just waiting, only time will tell, however, I still want to know...

Created By: HedgesandHedges | 2007-08-26 16:52 | 0 Comments

Hi,
Our daughter is nearly 15 months old and has started taking Carbamazepine approx 1 month ago, she doesnt get any of the side effects like sleepiness, infact thats the problem, she doesnt...

Created By: kaitlynsmom | 2007-08-26 11:56 | 11 Comments

I am having a hard time with my daugther's neurologist and he is the 3rd one we have seen since March 2007. I hate to keep switching because I am worried that something is going to get lost in...

Created By: kaitlynsmom | 2007-08-26 11:56 | 0 Comments

I am having a hard time with my daugther's neurologist and he is the 3rd one we have seen since March 2007. I hate to keep switching because I am worried that something is going to get lost in...

Created By: littlebug | 2007-08-25 00:30 | 2 Comments

Well my daughter was doing really well for almost a month.The other night she started freaking out that there were bugs crawling all over her body bitting her.She was franticly trying to get them...

Created By: FrankiesMom | 2007-08-25 00:28 | 2 Comments

New to site. Looking for information on eye pain. My son is currently on Keppra 2000mg a day and Lamictal 75mg a day. Began with severe right eye pain approx. 2 weeks ago with no explanation....

Created By: mbmom | 2007-08-24 21:42 | 0 Comments

Hi! My daughter had her first seizure almost 3wks ago. Her first was a complex partial seizure. Since then, she's had 6 simple seizures, or at least that what we think they are. We went for...

Created By: mjcolenc | 2007-08-24 20:48 | 0 Comments

A little background.

My son gets up for school at 5:30 in the morning. At 6 he takes his 1 pill of Adderall XR 25 mgs, his 1 1/2 tablets of Trileptal 300 mgs that he started August 1,...

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