Topic: Parents & Caregivers

Created By: mamajess | 2007-06-29 12:49 | 7 Comments

I was wondering if anyone else has noticed a link between their child's seizure activity and allergy season. We went quading along the alphalpha feilds the other day and my son's eyes totally...

Created By: nicolerobles | 2007-06-29 04:17 | 0 Comments

hello...i was hoping someone could help me with a problem a 5 year child is having. he sucks his thumb while sleeping and most if not all of his seizure activity is during his sleeping, causing...

Created By: sugarsue | 2007-06-28 07:21 | 2 Comments

Hi, I was hoping you could comment on what you said about your child's fidgeting and cluttering. What did you mean by that?

My daughter has sensory processing disorder. She has a very...

Created By: sugarsue | 2007-06-28 06:49 | 4 Comments

My daughter just started this last night. She's 4.5 yrs. I see the post about the rash that some kids got. I'm worried about that but I guess we will see. She has tolerated it very well so far...

Created By: nikinak | 2007-06-27 17:55 | 1 Comment

hi ,i have just been told my 3 yr old has all left frontal lobe disfunction,due to a cyst,and periteal lobe difuntion ,but iam sure he seizureing during day we out me noticeing,he,s been doing...

Created By: EvsMom | 2007-06-27 15:22 | 1 Comment

Hi everyone.
Just looking around and seeing all the new parents to epilepsy like myself. When this all first started in April I was scared to death. I don't think I will ever forget the...

Created By: sugarsue | 2007-06-26 19:39 | 26 Comments

My daughter has just been diagnosed with something, I don't know for sure yet but assume it's absence seizures. She's 4.5 yrs old.

Right after diagnosis on Friday the neurologist went on...

Created By: Annabel | 2007-06-25 16:56 | 7 Comments

Hi, my daughter is 6 years old and has absence epilepsy. She is currently on two medications to control the seizures. The problem is that she seems to have gone off most of her food. She won’...

Created By: Tommysmom | 2007-06-25 03:54 | 1 Comment

Hello,
My son Tommy was diagnosed with IS at 4 months old. He is now 2 yrs old. We have gone through many many drugs including some out of Canada. Nothing has helped him. He is very...

Created By: kaitlynsmom | 2007-06-25 01:11 | 4 Comments

My daugther Kaitlyn is 2, and she started taking Zonegran on June 14th. I noticed a rash on her legs on the 21st and thought that maybe it was just a heat rash. It would slightly go away...

Created By: Momtoaboy | 2007-06-22 23:30 | 7 Comments

Hi all--

I have a quick question. My 4-year-old son has Lennox-Gastaut and is on 85mg of Lamictal. We are trying to bring him up to 90mg of Topamax a day (in addition to the Lamictal),...

Created By: stages mom | 2007-06-22 21:43 | 2 Comments

I am so excited to share the fact that my baby is doing so good!

We really thought that there was no hope. But now there is! I highly reccommend fish oil and chiropractic care. Read my...

Created By: mjcolenc | 2007-06-21 15:10 | 0 Comments

My son had a memory lapse of time today. My 18 year old daughter and I had gone to the bank and store with my daughter's boy friend, while my son was left home with my daughter's, boy friends, 19...

Created By: Paws1129 | 2007-06-20 23:57 | 0 Comments

When my ds is falling asleep for naptime he will twitch a little bit but about 10 minutes into his nap he will open his eyes and stare, and his arms and sometimes a leg will stiffen a little bit...

Created By: Paws1129 | 2007-06-20 23:53 | 3 Comments

Hi all,
I am so happy that I have found this board. My ds just turned 2 in May 2007 and began having seizures in Feb.2007 as a result of a virus. He also has been diagnosed with...

Created By: KyleighsMommy | 2007-06-20 23:52 | 1 Comment

Im new to the group my now 8mo old was dx with IS at 7.5 months tried B6 for 2 weeks the we are now on 20 units acth its been 2 weeks. All seizure activity has stopped and no seizures for 9 days...

Created By: cheryla | 2007-06-20 22:06 | 3 Comments

Hello
I am a new member. My 3 year old son was diagnosed with epilepsy a year ago. He has had mostly partial complex seizures and currently takes Trileptal. His last typical (for him)...

Created By: stages mom | 2007-06-20 16:05 | 13 Comments

I have a nine month old son diagnosed with severe intractable seizures. He has had no syndrome diagnosis yet and has been tested for many. The neurologist, Doctors, Epileptologists left me with...

Created By: mjcolenc | 2007-06-20 13:05 | 2 Comments

My son who is 12 had a seizure for the first time on May 30. His eyes were rolled back up into his head, he was drooling, and his whole body was jerking. He was taken to the ER. He had blood...

Created By: kaitlynsmom | 2007-06-20 11:26 | 14 Comments

Kaitlyn had another seizure of some sort yesterday. I am not sure what it was, but I am hoping that maybe one of you might have experienced something similar to what she is having so that way I...

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