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Topic: Parents & Caregivers

Created By: lotten lagerquist | 2006-11-07 00:29 | 61 Views | 0 Comments

Hi!My 9 year old daughter has not had seizures since very early childhood, other than the odd abscence one, which didn't seem to do anything to her. Emily is a part of a therapeutic swim program...

Created By: tsmrjv | 2006-11-03 22:27 | 125 Views | 2 Comments

My daughter is 7 years old and had petit mal seizures. WE have tried Depakote, Lamictal and Kepra. None of the drugs worked. SHe was getting were she was starting to have stronger and longer...

Created By: scaredmom | 2006-10-30 23:06 | 379 Views | 14 Comments

i have a few concerns with the school my 6 year old goes to.she developed epilepsy a year ago and we have now started treating it about a month and ahalf ago.Anyways when i told the teacher about...

Created By: epimom | 2006-10-30 18:40 | 120 Views | 5 Comments

My dd is 7 years old. She has been having Absense seizures for the past 14 months. She has been on Zarontin and Lamictal and neither of them are working. She is taking 200 mg twice a day and is...

Created By: carebear | 2006-10-28 02:24 | 91 Views | 3 Comments

my son is 16 years old now. he's been having seizures for 2 years to this month. 7 grand mals. 2 in the last 2 weeks plus 2 petit mals (also with bad dreams etc). they admitted him to hospital...

Created By: rhettr | 2006-10-26 17:47 | 2616 Views | 13 Comments

My 8 year old son was diagnosed with benign Rolandic epilepsy last year after 2 separate seizures during the early morning hours about a year a part. He recently had another, about nine months...

Created By: ScottM | 2006-10-23 07:48 | 111 Views | 3 Comments

thats how I feel. god knows how my 14yro daughter feels wont talk about it. you would think that since she is getting the VNS installed this wednesday she would have 50 million questins but she...

Created By: sophie_maddy | 2006-10-22 23:54 | 193 Views | 8 Comments

my twenty month old daughter began to have the type of siezure where the head is dropped forward, arms flung out, eyes rolling, and hitting the floor like a lead weight. we went to the hospital 4...

Created By: ekoorb | 2006-10-22 22:38 | 230 Views | 11 Comments

I am wondering if anyone else's child with epilepsy seems tired a lot. My 5 year old (soon to be six in November) takes 15 mg of Topomax at night. She seems tired so often. The minute she gets...

Created By: lipi | 2006-10-21 11:23 | 68 Views | 0 Comments

i have a 14 yrs on son who had epilepsy since he was 7 months old, my son has been on every drug you can think of about over 42 different types. at the moment he taking zonisamide. my son...

Created By: linda glasgow | 2006-10-21 09:18 | 50 Views | 0 Comments

We are taking my son Thomas to Disneyland, Florida in June next year. Due to his epilepsy, First Choice are charging us £90 extra for travelling insurance and Royal Mail said they would charge us...

Created By: linda glasgow | 2006-10-20 11:47 | 84 Views | 0 Comments

This might be of interest to those of you in/near Glasgow. Epilepsy Scotland, Govan, Glasgow have an open day on Thursday 26th October, 5pm till 8pm.

Created By: Averysmom | 2006-10-19 18:04 | 194 Views | 6 Comments

Hello, just trying to figure this website and my son out. I have a 3 year old with Myoclonic seizures and would love to talk to someone else experiencing this. Thank you

Created By: linda glasgow | 2006-10-18 12:50 | 96 Views | 3 Comments

My 22yr old son has just brought us great news. He is going to make his 4yr old brother an uncle. Although I am over the moon for him and his partner, It will take a bit of getting used to - being...

Created By: macsmom | 2006-10-18 09:42 | 268 Views | 9 Comments

My daughter was diagnosed with absence seizures in December 2005. She has been on Lamictal which did not control the seizures and has recently been switched to Depakote ER. However, school has...

Created By: alison4R | 2006-10-16 13:00 | 71 Views | 1 Comment

Hi. Our son was taking 500 mg/day of Lamictal and 500 mg/day of Zonegran. Beginning Jan. 1 of this year we starting weaning him off his meds since his neuro said after 5 years seizure free it...

Created By: Brandi516 | 2006-10-15 11:35 | 95 Views | 2 Comments

My 6 year old has E. All day today she has been complaining of stomache pains. She doesn't feel sick otherwise and has an appetite. But she keeps whining that her tummy really hurts, esp when she...

Created By: momschool | 2006-10-14 20:11 | 883 Views | 6 Comments

Hi,

I am so happy to find this board!!

I am very confused about my son. A few weeks ago he started seeing spots coming at him as he describes it,he then falls down when they...

Created By: wren58 | 2006-10-14 00:20 | 157 Views | 8 Comments

We had had problems with my son who is now4 since he was 18 months old. There have been many days of heartache. I thought he was throwing fits and ingoring me. There were many times where he...

Created By: alison4R | 2006-10-13 20:26 | 6389 Views | 3 Comments

Hi. My son had a generalized seizure at school this week. The teacher said he had a bloody nose. He did fall but he hit the back of his head. I was wondering if a nose bleed is sometimes...

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