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Topic: Parents & Caregivers

Created By: RorysMommy | 2007-02-01 13:51 | 129 Views | 1 Comment

5,000 Walkers Expected at First-Ever National Walk for Epilepsy

Landover, MD, November 14, 2006 — The Epilepsy Foundation announced today the site of the first-ever National Walk for...

Created By: RorysMommy | 2007-01-31 16:04 | 14965 Views | 28 Comments

Epilepsy & vaccination

In 1998, federal public health officials at the National Vaccine Injury Compensation Program, Public Health Service (Pediatrics; March 1998) found that a causal...

Created By: cplog | 2007-01-31 10:36 | 103 Views | 1 Comment

My daughter has a tingle in her toes that started after her first seizure (attack, docs not calling them seizures yet). Some times she feels it but when she is busy she does not notice it. This...

Created By: tchaide05 | 2007-01-30 21:27 | 833 Views | 5 Comments

I received this in an email and thought that this fit so many of us so perfectly. I hope you enjoy it.

Dear Abby posted this some time ago. My mom cut it out and gave it to me. I
...

Created By: mama bear | 2007-01-30 05:35 | 95 Views | 1 Comment

Hi everybody,

I am sitting on the floor in the Children's hospital, as for some reason my boy Fletcher wanted to sleep in the parents bed instead of his own! It is 3:30 and I am feeling sad...

Created By: Keirahsmom | 2007-01-29 22:23 | 82 Views | 3 Comments

Hi everyone!
I apologise in advance, this will be a long post, but please read it!!
I'm new to the site, but far from new to having a child with e. Keirah is 8.5 yrs old, and had her...

Created By: abbysmom | 2007-01-28 15:14 | 163 Views | 1 Comment

My daughter is 9 years old. When she was 7 months old (on 02/05/98), she was diagnosed with a malignant brain tumor (glioblastoma multiforme). The next day (02/06/98), the tumor was removed...

Created By: cbrownwesandsons | 2007-01-26 17:58 | 443 Views | 11 Comments

My 12 yr old son was diagnosed with BRE 3 1/2 years ago. His EEG came out normal, but his symptons were classic for BRE. He had infrequent and mild sezuires (one side of his face would twitch,...

Created By: shanunlee | 2007-01-26 10:31 | 149 Views | 4 Comments

I am being impatient, I know, but somebody please read my post in the new to epilepsy section. I didn't think I should put the whole thing in here as well, but thought that maybe I chose to put it...

Created By: foakesfamily | 2007-01-25 17:13 | 343 Views | 6 Comments

Our 3-and-a-half-year-old daughter Anna was diagnosed with frontal lobe epilepsy in November. She started having seizures when she was a baby (we now think), although we did not realize it at the...

Created By: lisabdcat | 2007-01-24 16:02 | 90 Views | 1 Comment

My 18 year old daughter was put on an experimental trial of natural progesterone because her seizures frequently followed her menstral cycle. She has intractable generalized E and has grand mals...

Created By: Palaab | 2007-01-22 20:35 | 160 Views | 6 Comments

I am new here. I have 2 daughters each diagnosed with a seizure disorder. My 8 year old was diagnosed when she was 2 1/2. She did have speech and language disabilities but now is excelling in...

Created By: JulieS | 2007-01-21 20:56 | 159 Views | 2 Comments

10 yr old 1000 depokate a day. No sz for a year. has has some problems in school, but been working those out as they come along. The biggest problem is he does not want to eat hardly anything...

Created By: shrinisun | 2007-01-19 19:47 | 227 Views | 6 Comments

when my daughter was 19 months old, she had one occurrence of febrile seizure due to high fever. After a month (of recovering from fever), we noticed her rolling up her eyes for 3 to 4 seconds for...

Created By: JBishop | 2007-01-17 16:01 | 6321 Views | 20 Comments

I am new to the website and have really learned a lot in just a few days.

My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand...

Created By: rais93 | 2007-01-16 23:49 | 303 Views | 3 Comments

Just found out today during round the clock video EEG of my 15 year old daughter that there is indeed such a thingas tooth brush epilepsy. We always suspected that brushing her teeth triggered a...

Created By: Donna S | 2007-01-15 13:01 | 112 Views | 4 Comments

Hello all,
This is my first blog.
My 19 year old son had his first seizure on December 2, 2006. He was at his house near Boston where he attends college. Some of his 7 roommates...

Created By: stylzz | 2007-01-11 15:39 | 125 Views | 2 Comments

I am scared to death.My 18 month old has been having several types of seizures since he was 4 months old.they have been unsuccessful in controling them with meds.We did lots of testing and 2 days...

Created By: dosborn | 2007-01-09 18:48 | 98 Views | 2 Comments

My 17 year old son has had epilepsy for 12 yrs and despite some early problems has been seizure free for about ten years on dilantin. Life was great, playing sport, reasonlby successful at school...

Created By: Brandi516 | 2007-01-09 14:32 | 79 Views | 1 Comment

Has anyone else had this happen? They have upped her meds 3 times now & this itching has recently started. Any advice or epirience?

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