Topic: Parents & Caregivers

Created By: jadehickman | 2007-07-23 12:45 | 3 Comments

Hello,
My son had an overnight EEG last week to determine why he was still having lip smacking while he slept. He has BRE with a history of Status. We give him tipeltal. Which thus far...

Created By: parksidepet | 2007-07-20 11:25 | 0 Comments

Hello. I have a 4 month old daughter, who for the last 1 month has had an occasional head tremor lasting approx. 30 seconds to 1 minute, that occurs only while nursing or resting. My wife...

Created By: svagre3 | 2007-07-20 10:11 | 0 Comments

Hi Everyone,

Iam a parent of a child with Lennox-Gastaut Syndrome.I have not met anyone with this condition. I would like to get some advice regarding this condition.

I have an 8...

Created By: Morganjamie | 2007-07-19 22:36 | 7 Comments

My daughter has had seizure since day 9 of life. She has been on phenobarb since then and then she was on trileptal and keppra. She is now on phenobarb, topamax and lamictal. Ever since she...

Created By: sugarsue | 2007-07-19 15:09 | 0 Comments

Hi, I didn't see your post until today and thought I'd write back. I have since learned that my daughter is having so many seizures a day (hundreds) that I don't even see. Her seizures seem...

Created By: kaitlynsmom | 2007-07-19 14:54 | 1 Comment

Kaitlyn (2) has been telling us lately that she doesn't feel well or that something hurts... It's completely out of the blue for her and when she just did it again, she asked to go lay down after...

Created By: concerneddad | 2007-07-19 14:37 | 4 Comments

My daughter, who just turned 3yrs old has had seizures since she was 6 months old has been taking Keppra for 2 yrs and started Lamictal about a 3wks ago. Ever since we started the Lamictal she has...

Created By: Paws1129 | 2007-07-18 21:22 | 2 Comments

Hi
Well ds has his 48 hour Video EEG and it wasn't so bad. He basically was either watching his dvd's or wandering around the small room. We had a lot of company yesterday morning and that...

Created By: mjcolenc | 2007-07-18 11:57 | 3 Comments

I was just curious if anyone else's children have ADHD and seizures. My son who is now 12, was diagnosed with ADHD when he was in kindergarten. I know ADHD makes him forget things and have a...

Created By: mjcolenc | 2007-07-18 10:01 | 4 Comments

I got up at 8:20 and came out and Sean was still sleeping. I got on the computer, and about 10 minutes later, I hear him talking in his sleep again. Again, couldn't understand anything. He then...

Created By: Jessica3 | 2007-07-16 12:19 | 5 Comments

My 9 ID twin boys were diagnosed with absence seizures less than a year ago but have had them as early as 5-6. At first I just thought they were day dreaming/ spacing out. As they started adhd...

Created By: Paws1129 | 2007-07-15 16:18 | 6 Comments

Hi all,
My ds (25 months, PDD-NOS, non-verbal and tonic-clonic seizures) is going into the hospital tomorrow for a 48 hour video eeg. He started having seizures in Feb with a virus and was...

Created By: mjcolenc | 2007-07-15 10:01 | 0 Comments

Why is it when you are doing everything to keep your kids safe, they pull something dumb. My son was out riding his bike yesterday, and I was watching from the back door way. He came flying down...

Created By: kaitlynsmom | 2007-07-13 11:19 | 26 Comments

I am just curious if anyone has any experience or information about if Epilepsy is genetic, what is the possibility of it being in other children as well if you have a child with it already? Ever...

Created By: svagre3 | 2007-07-13 09:42 | 2 Comments

Hi all,

Iam a new member to this forum.I have an 8 year old daughter suffering from refractory epilepsy.She has complex partial seizures along with myoclonic epilepsy.She has seizures since...

Created By: sugarsue | 2007-07-12 20:02 | 2 Comments

to help their child sleep? I used it last year before I knew about he siezures and she was so much better then. Our neuro doc. sait it was OK to put her back on melatonin so she can sleep better...

Created By: sugarsue | 2007-07-12 18:58 | 2 Comments

She is having partial seizures that quickly move to general seizures, possibly 1000 a day! She has partial and general seizures from 1-30 seconds each. The MRI is to try to pin point where the...

Created By: eking | 2007-07-12 16:33 | 1 Comment

I have one of the greatest neurologists. He is so helpful and can actually show empathy towards my family because his family has also dealt with neurological problems. I just found that my...

Created By: littlebug | 2007-07-11 22:18 | 2 Comments

Over the last month or so my Daughter has been complaining of sharp pains in the left side of her head.She always holds her ear when its real bad.At first I thought with summer being here that...

Created By: Baby Sam | 2007-07-11 12:05 | 22 Comments

Our son began to have noticable seizures when he turned 6 months old. Previous to the seizure activity, his muscle tone is his legs was higher and he was having developmental delays. I.e. not...

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