Topic: Parents & Caregivers

Created By: Mcarm | 2016-01-29 15:40 | 0 Comments

my 3 yr old was diagnosed with myoclonic seizures. I that treatment rarely controls it fully. Does anyone else have a child diagnosed with this? What is their quality of life?

Created By: mammak | 2016-01-26 09:39 | 0 Comments

Hi all,

It has been a while since last I posted, but I would like to get more involved if this forum is active.

I need some insight. I would like to know if others' children have...

Created By: kurehahime | 2016-01-24 14:16 | 1 Comment

I am new t this.  My son is 7 and has been diagnosed with Epilepsy since he was a baby.

His seizures had been well controlled by Keppra until about 2 years ago.  He started having...

Created By: HBOZ89 | 2016-01-23 11:03 | 1 Comment

Hello.  My 40 year old son (unmarrried, lives at home) had been seizure free for 15 years on Neurontin and phenobarb.  He lived an active life, driving, MA degree, thesis work in England...started...

Created By: kiley37g | 2016-01-22 18:58 | 1 Comment

Hi. My son is 8 and has autism. Last year his doctor referred us to a pediatric neurologist at Akron Children's Hospital. It's the best hospital in our area. They asked me if my son had staring...

Created By: StallionHeart | 2016-01-21 00:06 | 1 Comment

Hello, everyone!  

I'm new here.  Father of 3 beautiful children.  A 12 year old little man, a 29 month old baby boy, and a 2 month old baby girl. 

Two Sundays ago at around 10pm I...

Created By: ChereeO | 2016-01-20 04:33 | 2 Comments

Hi everyone, 

This is my first post and I am desperate to hear from anyone else who has experienced an extended Tonic Clonic Seizure. 

3 months ago my son returned from a trip away...

Created By: DinaHB | 2016-01-16 18:40 | 2 Comments

My son, 18, was diagnosed three years ago.  He started on 500 mg of Keppra and over time iincreased his dosage to 3000 mg.  He had a med. increase with every seizure.  Five neurologist told us...

Created By: cm.lt.am | 2016-01-12 12:09 | 0 Comments

Hi all. Our daughter was diagnosed with epilepsy at 1.5 years old. She is now 3 years old. Her doctor is recommending to put her on phenytoin (Dilantin). My question is... Has any parents had a...

Created By: cdian | 2016-01-09 20:48 | 0 Comments

Hi- my son is 8. He had his first seizure at 5. His MRI shows slight brain damage in the visual correct. He had a knot in his cord and was slow to take his first breath. Although the neuro said...

Created By: Wterry | 2016-01-08 08:57 | 1 Comment

Has anyone ever experienced an allergic reaction or anaphylaxis to the EEG? 

Created By: Dgb123 | 2016-01-03 19:24 | 1 Comment

She began to have multiple seizures, but this time they where nothing I have wittnessed over the many she has had. After the third of the 9 she had last night she began to growl at me while making...

Created By: Dgb123 | 2016-01-03 19:07 | 0 Comments

Hello, everyone, I am new to sharing my thoughts and feelings, so please bare with me. Today I am writing because of image of my wifes most recent seizure. She is currently on disability and has...

Created By: TryingToCope | 2015-12-28 13:04 | 0 Comments

My girlfriend was diagnosed with Epilepsy a few years ago. She has had issues for most of her life but they were always passed off as panic attacks. We have been together for 4 1/2 years. We both...

Created By: krmalewicz | 2015-12-26 12:54 | 4 Comments

Hello, I am new to this forum. I need some advice plz. I have a 7 yr old who was diagnosed a year ago with absence seizures. She has been on Zarontin 3.5 ml in am and 3.5 ml in pm. She is a bit...

Created By: laura.day | 2015-12-23 15:24 | 1 Comment

My son (6 year old) was diagnosed with generalized epilepsy last May. He started out having absense seizures, and was put on depakote 2X a day.  Over the summer his seizures got seemingly worse...

Created By: momofboyz | 2015-12-23 11:09 | 0 Comments

My son's etho dose was recently increased to 6ml twice per day by his neurologist due to his 10ml per day dose not helping his seizure activity.  His doctor wanted to add Depakote, but we were...

Created By: kgrosser | 2015-12-18 13:56 | 0 Comments

Hello.

My nephew is 9 years old.

Brief history:

When he was 21 months old, he was diagnosed with stage IV/high risk Neuroblastoma.

He was NED in 2009.

He...

Created By: abhilasha | 2015-12-16 09:17 | 0 Comments

We are moving to Austin in the summer. I wanted to know who is the best neurologist for epilepsy in Austin Area. My daughter's had a complicated case since the last 5 years, and would like to see...

Created By: Concerned friend 12 | 2015-12-14 17:18 | 0 Comments

My best friends 3 year old was diagnosed 18 months ago. Originally her meds worked but caused serious side effects so a few months ago they started trying new meds. It has been hell for mom and...

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