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Topic: Parents & Caregivers

Created By: Sammigrant | 2015-01-14 17:00 | 236 Views | 1 Comment

Hi! I, Samantha and my 2.5yr old daughter suffers from seizures. She's had 8 in the past 14 months. She has a rare condition called neurofibromastios (nf1) too. 

Created By: melwang24275@yahoo.com | 2015-01-13 20:02 | 279 Views | 1 Comment

Well, I am back. Cannot remember my user name or password. So now this is who I am LOL. Have a son named Matthew who is 13. We started the journey of Epilepsy when he was 1. At first febrile...

Created By: Rosalvangel | 2015-01-12 08:44 | 286 Views | 1 Comment

My 10yrs old son had his 1st seizure last Nov. had a visit w the neuro. Dr. Said their was not much we could to not even meds till he had a second one. Well 2 month to the date my son had a second...

Created By: charliesmom | 2015-01-10 00:01 | 251 Views | 1 Comment

Hi there,

I'd love to hear from some parents whose kids have been on Depakote. Our doctor is prescribing it for our five-year-old son, as Keppra is no longer working to prevent his seizures...

Created By: Crickets_mom | 2015-01-04 13:03 | 266 Views | 0 Comments

It has been a really long time since I have been on here. Here is a little back story. My son (now almost 14) has epilepsy. He has since he was an infant. Most of his seizures are petit mal with...

Created By: tmmckinney | 2015-01-04 10:56 | 319 Views | 0 Comments

In 2011 at the age of 13 my daughter had 2 gran mal seizures within 8 months and was diagnosed with epilepsy. Since then, she has suffered memory loss-both short and long term and cogntive...

Created By: Bugaboosmom | 2014-12-31 23:28 | 306 Views | 1 Comment

HELP HELP HELP! My daughter will be 5 January 10th. On January 3, 2011 just shy of her first birthday she had her first tonic clonic. The initial ones were diagnosed as Febrile but now...

Created By: mommyLeBay | 2014-12-31 12:46 | 315 Views | 1 Comment

My daughter is now 10 months old. At 8 months she was admitted to the hospital with what we thought were seizures. After many tests, including and eeg, it was confirmed she had abnormal activity...

Created By: Beans2008 | 2014-12-29 12:15 | 259 Views | 0 Comments

My son is 6 and scheduled to have a VNS on the 15th.  I am hopeful it might help with some of the autistic behaviors as well.  Have any of you seen an improvement in this?  He is 6, nonverbal,...

Created By: jmom2gs | 2014-12-27 12:03 | 374 Views | 2 Comments

My daughter was diagnosed with Epilepsy when she was 10 years.  She did fairly well with only occassional seizures for a long time.  When she was 14 she had a bad two months, but was placed on...

Created By: SleepyParachute | 2014-12-18 15:50 | 347 Views | 2 Comments

Well we're new here, yesterday my 7 year old son was diagnosed with epilepsy...the diagnosis seems sudden to me (not unusual given his medical history just sudden). I'm wondering if there are...

Created By: SleepyParachute | 2014-12-18 15:49 | 311 Views | 0 Comments

Well we're new here, yesterday my 7 year old son was diagnosed with epilepsy...the diagnosis seems sudden to me (not unusual given his medical history just sudden). I'm wondering if there are...

Created By: natz68 | 2014-12-18 08:55 | 209 Views | 0 Comments

I have some KetoCal 4:1 vanilla flavored I would like to donate. I have one unopened can and one almost full case (missing only 2) of the 8oz liquids. The expiration is March 2015. I am hoping to...

Created By: scarter1231 | 2014-12-15 22:43 | 281 Views | 2 Comments

My 4 1/2 old son has been potty trained since a month or so before his 3rd birthday. Never had accidents or even bedtime accidents. He was on lamictal & ethosuximide but had to come off with...

Created By: mammak | 2014-12-15 00:58 | 367 Views | 0 Comments

For those of you who use a sleep monitor with your child, which brand do you use? Any recommendations would be helpful. My daughter's epileptologist recommended one but had no preference of a...

Created By: tanya.leigh13@gmail.com | 2014-12-14 21:44 | 299 Views | 1 Comment

Our son Garrett was diagnosed with absence seizures a month ago.  He was immediately put on the lowest dose and the seizures have been controlled for a few weeks, which is great.  Before starting...

Created By: dramasign | 2014-12-11 11:30 | 385 Views | 1 Comment

We lost our 26 year old son this past Friday due to complications following a seizure. just looking for any other parents who have had to deal with this.

Created By: Chanchan | 2014-12-08 22:29 | 426 Views | 2 Comments

Hi everyone. I was on this site back in May when my 13 year old son had his first seizure (tonic-clonic). His EEG showed clear eliptiform activity. I decided to hold off on meds in hopes we could...

Created By: yadirtrye | 2014-12-07 21:11 | 289 Views | 0 Comments

Hello 

I am a newby here looking for advice, suggestions, help.. My daughter was diagnosed with birth hypoxic ischemic encephalopathy and took seizure medication until she was 3 years old....

Created By: mammak | 2014-12-07 14:20 | 335 Views | 1 Comment

Hi everyone,

My 9-year-old daughter had her first seizure on Oct. 1, 2013, and her second on Nov. 26, 2014. The second took place in her sleep, and I only knew because I had laid down with...

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