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Topic: Parents & Caregivers

Created By: Ajaye | 2014-10-11 10:30 | 270 Views | 1 Comment

Thank you first if all for taking the time to read this as I am new to this community and need some support. With that said, here is my story and all replies are welcome.

my son has had one...

Created By: katiepablo@gmail.com | 2014-10-11 10:23 | 218 Views | 2 Comments

My little tiny 3 year old has been diagnosed with Epilepsy after a multiple seizures in one day, and the final seizure of the day being a 4 year SE. I am completely traumatized by the experience,...

Created By: Lainysmom | 2014-10-06 11:34 | 232 Views | 4 Comments

My 17 year old daughter is unable to wake for school. This started in January 2014. Extreme fatigue, unresponsive when trying to wake her, sleeps from about 10pm until 10-11am or later. Currently...

Created By: wandering1 | 2014-09-30 08:57 | 198 Views | 0 Comments

My 4 year old daughter was diagnoses with absence seizures. She's been put on liquid Zarontin since Sept. 11th and it a battle. We've tried it all. Every food item every drink. We've changed the...

Created By: Beans2008 | 2014-09-23 13:31 | 236 Views | 0 Comments

I've been doing this for quite some time and am looking for help again.  About us... my son is 6.  He's had seizures forever, since the day he was born.  Our story has been intractable seizures,...

Created By: carolynw4@yahoo.com | 2014-09-20 23:23 | 237 Views | 0 Comments

We are going to do another EEG for my almost two year old. She had one a year ago but would not nap during it.

 

The EEG lab said no more than 5 hours of sleep for her the night...

Created By: ketalovec@gmail.com | 2014-09-18 21:47 | 206 Views | 6 Comments

My daughter is 6 and so far has had two seizures since she was four. I found out after the first one that her brain is smoother than most children her age. To make matters worse I found that she...

Created By: brittneydulin@cableone.net | 2014-09-18 17:07 | 202 Views | 0 Comments
Created By: brittneydulin@cableone.net | 2014-09-17 19:21 | 255 Views | 8 Comments

At the beginning of the summer my daughter was diagnosed with atypical absence mad clonic seizures ( or epilepsy since the cause of the seizures is unknown.) We went for the first EEG scheduled by...

Created By: papabear299@yahoo.com | 2014-09-17 11:07 | 261 Views | 3 Comments
Created By: roxy33343@gmail.com | 2014-09-16 13:25 | 223 Views | 0 Comments

Hello! My 2 year old was just diagnosed with epilepsy. His last seizure happened during the day, but I am so worried another will happen when he is in bed and we aren't close by. Being that they...

Created By: tlc77 | 2014-09-16 11:38 | 318 Views | 1 Comment

My 8 year old son's seizures (mostly nighttime) are being controlled by Lamictal.  He takes 37.5mg (1 1/2 tablets) in the morning and 400mg (4 tablets) at night. Unfortunately he has terrible...

Created By: wandering1 | 2014-09-15 16:49 | 255 Views | 2 Comments

We are a bit overwhelmed to say the least.  Our beautiful healthy, month away from 4 yrs old, daughter just stared having unresponsive staring spells and her eye brows would twitch. A trip to the...

Created By: carolynw4@yahoo.com | 2014-09-15 15:08 | 238 Views | 3 Comments

Hi Everyone,

I'm new here.

My almost two year old either had her 2nd seizure or 2nd pallid breath holding spell last night, and was in tears last night because I know that means...

Created By: AngieHettinger | 2014-09-09 19:18 | 268 Views | 3 Comments

Hello all, I am all new to this and looking for some help, support, and guidance.

 

My daughter who is now 8 was diagnosed with adolescent absent seizures.  She would have multiple...

Created By: ashleyhavard01@gmail.com | 2014-09-06 20:48 | 261 Views | 2 Comments

Hi.. I am hoping someone can tell me what to expect as we try to get my daughter's seizures under control- she's 3 and started having complex partial seizures after a head injury.. A very mild...

Created By: mlgmom | 2014-09-04 10:46 | 261 Views | 2 Comments

Hello everyone,

My 17 y.o. daughter began having seizures 2 years ago. They were 30 minute grand mal seizures. She was finally put on Keppra this past April (2014). Her seizures are now...

Created By: pamela.swader@asu.edu | 2014-08-31 19:45 | 275 Views | 2 Comments

My daughter is 7 and was diagnosed with epilepsy about a year and 1/2 ago. I wanted to ask her neurologist if we could try a 3 day eeg test on her because they still dont know what sets off her...

LKS
Created By: shaylam | 2014-08-25 22:50 | 223 Views | 0 Comments

Hello all just wondering if there is a forum for LKS or if anyone has any resonse to our story? Have a great day!

Our son just turned 5 and developed and reached all milestones normally,...

Created By: seb123 | 2014-08-23 16:50 | 276 Views | 1 Comment

My 10 year old son is newly diagnosed with Epilepsy and is currently taking Kepra.  The medication level has put us to where the visible seizures have stopped, but he is having, 2 or 3 times a day...

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