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Topic: Parents & Caregivers

Created By: Missy D | 2014-11-22 14:12 | 267 Views | 1 Comment

hello ... this is my first time connenting with the foundation... hoping to connect with people who are going thru some of the same issues i am...   my 12 alomst 13 year son has had seizures since...

Created By: thavamani86@gmail.com | 2014-11-22 12:10 | 242 Views | 4 Comments

I am new to this forum. My 4 years old son having seizures from past one month.we have discussed with pediatrician he asked us to take EEG.The abnormalities found in the report. It seems like...

Created By: golden99 | 2014-11-21 15:21 | 222 Views | 0 Comments

Hello! I am brand ne to this site! My son who turns 5 next weeks was diagnosed with absence seizures with partial onset back in Oct '13. We did get them under control 3 medications later.... Does...

Created By: retiredwoman620@cfl.rr.com | 2014-11-18 13:44 | 215 Views | 0 Comments

 i have epilepsy, have had it for years, growing up, I had both Petit Mal and Grand Mal seizures, which inveriably got m into so pretty tight spots, over the years, 

  Now I 'm over 50,and...

Created By: wandering1 | 2014-11-17 06:56 | 261 Views | 1 Comment

We have a 4 year old daughter diagnosed with absenc seizures in September 2014 after an abnormal EEG.  She has been taking zarontin, the generic, since then.  I posted previously about the trouble...

Created By: For.My.Son.Miggy | 2014-11-13 12:43 | 235 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: For.My.Son.Miggy | 2014-11-13 12:42 | 185 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: robsaari | 2014-11-12 11:05 | 253 Views | 1 Comment

My wife and I have decided it's time to get a seziure alert dog for our 20 year old. We have started looking but don't want to just pick a random training outfit. Do you have an alert dog? Where...

Created By: crlanier | 2014-11-09 10:13 | 291 Views | 1 Comment

My daughter has complex partial seizures and is currently unmedicated due to the side effects of keppra. She just broke out in terrible sweat, became completely flushed and said she had abdominal...

Created By: holland.marisa@gmail.com | 2014-11-07 14:29 | 254 Views | 1 Comment

My daughter will be starting middle school next fall on a campus of around a thousand students.  From her first day of kindergarten on, she has had an emergency walkie-talkie that she carries with...

Created By: wendylim1017@hotmail.com | 2014-11-06 08:23 | 263 Views | 3 Comments

My baby girl is in ICU now, because of epilepsy.

She can't breathe on her own!

She has been suffering seizures since she was 8 month , now she is 4 .WHY ? She!    Lord please save my...

Created By: brighteyes1977 | 2014-11-03 15:46 | 326 Views | 11 Comments

~~My daughter (7 ½) was diagnosed with Epilepsy last week. We have been battling with doctors and specialists for years! Most have said that her clumsiness and poor school work/behavior was all...

Created By: ehamdyzaky@gmail.com | 2014-11-02 03:23 | 260 Views | 2 Comments

My 7 year old daughter has been diagnosed with absence seizure 7 months ago and has been on Zarontin ever since. The medicine stopped the seizures completely within 2 weeks as the doctor said. So...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:18 | 245 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: Shannonpecchia | 2014-10-29 20:47 | 319 Views | 1 Comment

Hello! I'm new to this, so I guess I'll jump right in. 

My son,8, had a tonic clonic seizure in July. After much testing, he was diagnosed as having benign rolandic epilepsy. As I...

Created By: legal | 2014-10-29 08:16 | 217 Views | 0 Comments

I recently attended a India  foreign film showing in Hindi called Happy New Year that had a character called Tammy who had epileptic seizures for the cruel entertainment of the audience. I hope...

Created By: Cynthia21 | 2014-10-28 00:29 | 209 Views | 0 Comments

My son is 6 years old he also has Down syndrome in the past 6 years he has had 3 seizures the first one was 3 years ago and the 2nd one was 2 years ago he didn't shake on them just blank stares...

Created By: Lainysmom | 2014-10-27 12:42 | 260 Views | 2 Comments

My 17 year old daughter with generlized epilepsy recently completed a 3 day ambulatory EEG to try to determine why she is sometimes completely unresponsive when we try to wake her in the mornings...

Created By: tobias | 2014-10-26 19:03 | 250 Views | 0 Comments

My husband and I have been married for 28 years.  He has been epileptic the entire time.  So nothing new there.  However, in the last few years it has gotten worse.  He can't drive, is depressed a...

Created By: Navywife16 | 2014-10-25 19:45 | 248 Views | 1 Comment

I currently have three children.... And one on the way. When it comes to a chronic illness, I thought our family Socrates  that off the list with my oldest son. He was born with a rare genetic...

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