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Topic: Parents & Caregivers

Created By: Crewby | 2014-08-14 19:53 | 220 Views | 1 Comment

We just had our second EEG in 3 weeks for my 4 yr old son. We got the report from his 23 hr EEG today and it says "extremely frequent independent bicentral temporoparietal BECTS like spike wave...

Created By: tashyluv | 2014-08-14 16:51 | 200 Views | 1 Comment

First of all let me tell you a bit of background.  Last year my daughter was diagnosed with generalised epilepsy and we figured it is more of the "myclonic" type.  She was put on sodium valporate...

Created By: ewilliams1979 | 2014-08-12 11:11 | 309 Views | 1 Comment

I was just curious if there's anyone else out there who has weaned their child off medication (per nuero's request).  We were supposed to wean my 8 year old off Keppra in April, but I have...

Created By: mssmoak07@yahoo.com | 2014-08-11 17:57 | 208 Views | 1 Comment

Hi I'm new to this group. I have a two year old son that has been battling with epilepsy since he was 9months. At one point my son was on six different medications, he's know on three. He's takes...

Created By: cassandran | 2014-08-11 01:35 | 208 Views | 2 Comments

My son was diagnosed with generalized epilepsy just over a month ago. He has t/c seizures and has gone t/c status. They put him on valproic acid, started at 150mg 2x a day and now he is up to...

Created By: Kate5 | 2014-08-10 20:20 | 195 Views | 0 Comments

Hi my name is Kate and my sister started having partial seizures that spread back in March.  Despite numerous trips to the doctors, testing, and medication changes she still is experiencing...

Created By: lagbfn@gmail.com | 2014-08-08 14:30 | 212 Views | 1 Comment

My elder daughter (19 years old) has Juvenile Mycolonic Epilepsy, she was diagnosed 3 years ago, now.  Younger daughter (almost 16) has been having some myoclonic type episodes since about May (...

Created By: skelsey268 | 2014-08-07 12:16 | 179 Views | 1 Comment

My son is 20yrs old and had a stroke in march 2014.  He has been c/o tingling or a buzzing feeling that starts in one part of his head and goes to another part and is gone.  It's really weird when...

Created By: angelhelper | 2014-08-01 15:58 | 225 Views | 1 Comment

My boyfriend, who is 26, was diagnosed with epilepsy roughly 3 years ago. Since we have been together I have been his caretaker. I have been documenting everything as of late, I had the idea to...

Created By: DinaHB | 2014-07-29 15:36 | 261 Views | 1 Comment

My son, 17,  was diagnosed with epilepsy two and a half years ago.  In that time period, he has had six seizures, five of them due to sleep deprivation.  Our current doctor is an epileptoloist at...

Created By: TiffanieJ | 2014-07-27 23:21 | 202 Views | 1 Comment

Hello.. My 5 yr old son was recently diagnosed with Doose Syndrome.. After his 1st Grand Mal seizure on March 20th.. He has between 15-20 head drop and drop seizures per day & his last Grand...

Created By: patches1202 | 2014-07-25 10:02 | 263 Views | 1 Comment

My boyfriend, 26 years old, was recently diagnosed with epilepsy. I found him having a convulsive seizure during his sleep one morning, and he had another seizure in the ER a few hours later. When...

Created By: cassandran | 2014-07-24 22:46 | 214 Views | 1 Comment

Tonight at dinner time my 3.5 year old son had what I think was a very short seizure. It's the first time this has happened, all his seizures before have been full tonic clinic seizures that last...

Created By: Moenjoejr | 2014-07-22 12:03 | 293 Views | 2 Comments

I'm new here.  My son who is 6, was diagnosed at 4 with generalized myoclonic seizures.  He's been on various meds, currently onfi and depakote though still having some seizures.  Hes very tired,...

Created By: cassandran | 2014-07-22 00:07 | 274 Views | 6 Comments

Posted in the wrong category the first time and I don't know how to change it. . . My 3.5 year old son was just diagnosed with epilepsy.

He had his first tonic clonic seizure back in March...

Created By: cassandran | 2014-07-21 23:23 | 195 Views | 0 Comments

My 3.5 year old son was just diagnosed with epilepsy. He had his first tonic clonic seizure back in March, but at the time we thought he had fallen and hit his head. They did an eeg and he had...

Created By: OKmama | 2014-07-20 22:21 | 219 Views | 2 Comments

A little over a week ago my 4 yr old had a grand mal seizure in her sleep. At the er she had a blood, urine and CT, all came back clear. We followed up with our pediatrician the following Monday...

Created By: eggzrliquidchikn@aim.com | 2014-07-16 22:30 | 241 Views | 6 Comments

My daughter will be 10 months in two days. 5 days ago she began to have, what I believe to be, seizures. When it began her jaw clenched and every muscle in her body tightened. It only lasted a...

Created By: Mschmitt75 | 2014-07-15 19:00 | 265 Views | 1 Comment

After 10 years of dealing with Petit Mal seizures with my son, he is now 15, Sunday night became a whole different game!! He had his first Gran Mal Seizure ever. Talk about a scary night. Knowing...

Created By: Adi | 2014-07-13 07:51 | 229 Views | 2 Comments

I am new around the forums here and I was hoping we can get some assistance.

Our girl (3.5 years old) was diagnosed with occipital epilepsy  / rolandic epilepsy , she had two seizures so...

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