Topic: Parents & Caregivers

Created By: ttj384 | 2015-09-22 14:29 | 205 Views | 1 Comment

Hi! My son was recently diagnosed with absence seizures. He is 6 years old. His doctor prescribed Ethosuximide(zarontin) and I'm wondering, how well does this medication works? Has any of your...

Created By: mime4jesus | 2015-09-20 12:01 | 215 Views | 2 Comments

A year ago, our six year old son had an eight hour episode of continuous seizures that landed him in the ICU at Yale for a few days.  They put him on Keppra twice a day, and he hasn't had another...

Created By: Lovekaden | 2015-09-18 22:13 | 245 Views | 0 Comments

Hi does anyone know how much genetic testing for epilepsy runs? Ive heard it's very expensive 

Created By: Lovekaden | 2015-09-15 08:23 | 243 Views | 0 Comments

Hello my son is almost 4 and has been diagnosed with epilepsy for a little over a year now..for the past two months he's been having a seizure mainly non convulsive every week but he has had two...

Created By: Cam's Mom | 2015-09-14 12:00 | 220 Views | 1 Comment

Hello All,

My 9 year old son has absence seizures and in his second week of medication for them. Can anyone tell me if the seizures themselves or the medication cause bad headaches? He's...

Created By: momofhope | 2015-09-14 10:51 | 198 Views | 2 Comments

Hi! I'm a little confused and hope someone can help. In the last week my  9 year old daughter has had what she calls a "vision". It is recurring and is very frightening and violent. It doesn't...

Created By: dessieh7 | 2015-09-12 14:23 | 249 Views | 1 Comment

Hi,

My son is 4 years old, he was diagnosed with epilepsy about a year ago after having about 4 seizures (grand-mal) and an EEG. Since then he was put on Keppra which did very well for him...

Created By: krismar3 | 2015-09-10 22:52 | 202 Views | 0 Comments

My daughter is 10 years old. Since she was around two she's had behavior issues. She has been diagnosed with ADHD, ODD (she's now outgrown this), anxiety, and has OCD tendencies. The medications...

Created By: jlewinthal | 2015-08-31 18:59 | 243 Views | 1 Comment

Have any of you had a history of Colic or Prolonged Crying as an infant? To the parents, did your epileptic child have or had colice or prolonged crying? 

 

 

Created By: Rjhsteel | 2015-08-28 03:59 | 241 Views | 0 Comments

Edward was born 2 weeks ago. It was supposed to be a time of joy. We, are children and friends and family were looking forward to seeing him.
Now, after 14 days, (we are still here in Great...

Created By: Chasingpirates | 2015-08-16 23:15 | 297 Views | 1 Comment

I hope some of you can provide insight to a worried mama! It's long so bear with me!

My daughter was recently seen at ACH through the ER. Her pediatrician sent her there for an MRI to rule...

Created By: lauralove5 | 2015-08-16 12:45 | 264 Views | 0 Comments

Hi,

 

I hope that somebody might have an idea as to why my daughter keeps dropping out of "large" ketosis (per keto sticks) and into "small" ketosis.  

 

She is 5 and...

Created By: aarchie21 | 2015-08-14 00:46 | 241 Views | 0 Comments

It's so hard watching my daughter go through this! She started having seizures when she was 2 days old. She is now almost 5 months and the doctors still have no answers for me or a way to control...

Created By: mykal_t45@yahoo.com | 2015-08-12 14:52 | 319 Views | 0 Comments

Dear all,

Just wanted to see if any other parents' have had a similar experience. Our daughter has had 4 episodes in the last 10 months. Basically, every time it has happened it's been when...

Created By: Lovekaden | 2015-08-12 08:04 | 265 Views | 0 Comments

Does anyone do anything specific or have a certain machine to help your child during a seizure to keep them from losing oxygen during the seizure   or while waiting for the ambulance to come

...
Created By: momofboyz | 2015-08-07 10:26 | 357 Views | 3 Comments

Looking for some input.  My 6 year old son was recently diagnosed with absence seizures, our neuro believes they are genetic since my husband had them growing up.  My husband was never propery...

Created By: momtothree | 2015-08-05 11:21 | 382 Views | 2 Comments

My two-year-old son had his first unprovoked tonic-clonic seizure in April, then he had a febrile (clonic) in June, and another unprovoked clonic just a few days ago. We made an appointment with a...

Created By: LJS | 2015-08-04 00:15 | 302 Views | 1 Comment

My 8 year old daughter is on Depakote. It makes her very emotional & lately, very hormonal. She seems obsessed with boys & kissing (not acting on it, just thinking & talking about it...

Created By: mbarkl03 | 2015-08-03 12:15 | 302 Views | 0 Comments

My 6 year old grandson was just diagnosed with Epilepsy a few months ago. He has been on Valproic Acid, but was still having seizures so his Neurologist wants to add Lamotigine. After doing some...

Created By: susiep0424@verizon.net | 2015-08-01 08:33 | 278 Views | 0 Comments

3 weeks ago my daughter had her first convulsive seizure and has since been diagnosed with having absence seizures. As the days go on it is getting harder and harder to get her to take her...

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