Topic: Parents & Caregivers

Created By: emilyb0429 | 2015-11-06 01:50 | 245 Views | 1 Comment

Hi, my 6 mo old was diagnosed about 2 months ago with ADNFLE.  This came after an 11 day NICU stay for seizures.  Luckily my career has given me plenty of experience with seizures.  However, I...

Created By: Ashlee076 | 2015-11-04 11:55 | 260 Views | 1 Comment

My 18 month old daughter has had horrible diarrhea since starting her medication. Coincidentally her 2.5 yr old brother is vomiting from the stomach flu so  i am wondering if anyone experienced...

Created By: poonam | 2015-11-04 05:43 | 269 Views | 2 Comments

Hello Everyone

My 5 year old son has been diagnosed with absence seizures

Doctor had prescribed Depakene for him where we found that seizures had increased

when we went to...

Created By: chaire | 2015-10-29 21:34 | 248 Views | 0 Comments

My son is 5 1/2. He had a perintal stroke, which caused damage to the right temporal lobe of his brain; PET also confirmed his left dorsal thalamus is not functioning properly. He has autism,...

Created By: Wterry | 2015-10-28 23:57 | 282 Views | 1 Comment

We have a 6 year old taking ethosumuxside 250ml twice a day. Seizure free for 3 years. We go next month for overnight EEG, if results are still good, weaning medication will be discussed(as told...

Created By: jotting | 2015-10-28 14:37 | 215 Views | 0 Comments

Has anyone used anything like My IHR or any of those other digital medical record services?  My understanding is that you create the online account and provide all the pertinent medical data to...

Created By: aparente001 | 2015-10-26 22:51 | 260 Views | 2 Comments

Hi, I tutor my friend's child in math, as a volunteer, three times a week.  We'll call my friend M., and her child A.  A. has epilepsy and is ten years old.  He has been struggling in math in...

Created By: jotting | 2015-10-22 14:16 | 327 Views | 6 Comments

So we did the MRI and that came back with no obvious abnormalities in the brain.  That's terrific news!  Not dealing with cancer or a brain mass or anything like that.  However, when he woke up...

Created By: Cam's Mom | 2015-10-20 10:19 | 299 Views | 4 Comments

Hello. My 9 year old son was diagnosed with Absence Seizures about 1.5 months ago. He's currently on medication and seems to be doing well (despite the side effects). He's very active in baseball...

Created By: Momofteenboy75 | 2015-10-19 16:34 | 278 Views | 2 Comments

Hello,

My son was diagnosed with epilepsy at the age of 6 years old, which was very hard for me to handle and accept at first. As we started the doctor visits, the dr had me hopeful he...

Created By: Miss | 2015-10-15 16:47 | 358 Views | 6 Comments

Hi, my son had his first seizure at 6 months of age. It was chalked up to a febrile seizure and we moved on. When he was 11 months old, he had a cluster of seizures that resulted in us being...

Created By: jotting | 2015-10-14 10:42 | 259 Views | 2 Comments

We are building a home in the near future and now knowing that my 8 year old has seizures (which have been tonic in nature in their most extreme form) I thought what an awesome opportunity to...

Created By: nelliepers | 2015-10-13 09:34 | 256 Views | 4 Comments

My son became epiletic at the age of ten he Is now 21 and on oct the 6th after being absent from his meds for about one week (depakote er) he had a grand mal seizure playing basketball. I had been...

Created By: kristicain12@gmail.com | 2015-10-12 11:05 | 328 Views | 2 Comments

Before I start, I need to disclose that my daughter did not have a "life sentence" diagnosis, her age of onset was not after puberty, and there are no incurable physical issues with her brain to...

Created By: Uzumay | 2015-10-11 20:27 | 198 Views | 5 Comments

Hello, the basis for my posting here is to see if anyone has more information on this. I was diagnosed with Adhd at the age of 5 ( i am now 36). For as long as I can remember I have had moments of...

Created By: Neda T | 2015-10-09 16:48 | 291 Views | 1 Comment

My son was diagnosed with Benign Epilepsy of Childhood with Rolandic Spikes when he was 7. His initial seizures were some of the scariest moments in my life, and after we got the diagnosis and...

Created By: traceymac | 2015-10-09 13:07 | 225 Views | 0 Comments

Hi,  My daughter has been seizure free for 8 years.  She had a grand mal seizure Sunday night right as she began to fall asleep.  She (nor I) can sleep - she is afraid to fall asleep.    She wants...

Created By: JennyS1 | 2015-10-09 10:50 | 211 Views | 0 Comments

Hi all,

I have temporal lobe epilepsy with complex partial seizures (with the odd grand mal) and lots of auras.

It took around 10 years to get properly diagnosed and I was...

Created By: momo8750 | 2015-10-08 22:50 | 330 Views | 1 Comment

My little girl Chloe turns 6 on October 30th.  It's supposed to be about birthday parties this month.  Instead, we went to bed last Friday and was awoken by an awful noise coming from her bedroom...

Created By: Borgesano | 2015-10-06 22:58 | 207 Views | 1 Comment

Hello,

I've been having the occasional grand mal seizure for about eight years now. This last time I had one I have some new issues that I'm not familiar with. I was in the kitchen and had...

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