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Topic: Parents & Caregivers

Created By: Little angels | 2015-02-04 20:09 | 294 Views | 0 Comments

My daughter has SCN1A gene that is mutated and I'm not sure if I know what that means. I asked the neurologist some questions but I think it's still over my head. They said she has GEFS+. What...

Created By: jcano | 2015-02-02 17:58 | 304 Views | 1 Comment

Hi,
I am new to this site but after researching medical info. on epilepsy and seizures I thought a parent website with people who have or are caring with someone with epilepsy would be...

Created By: BrandySmith | 2015-01-31 20:58 | 358 Views | 4 Comments

Our 4 year old this week scared us at school. He threw up, would talk to his teacher then randomly stop and was so dizzy he had trouble standing. When i got him home he was dizzy again saying the...

Created By: SleepyParachute | 2015-01-30 17:07 | 306 Views | 0 Comments

My son was recently diagnosed with epilepsy and aortic stenosis...we've noticed that preceding EVERY seizure his legs start aching, then his feet tingle, and then he gets tired and wants to cuddle...

Created By: Vdelcarpio3 | 2015-01-29 03:31 | 312 Views | 1 Comment

Hi, are there other parents out there dealing with this mix of Epilepsy and Autism?

if any advise, please I would apreciated. My son is 10 yrs old now and non-verbal. His seizures are not...

Created By: Mom to Ember | 2015-01-28 23:43 | 302 Views | 1 Comment

my daughter - age 4 - has atonic seizures with myoclonic effect...generalized.  ember will have 60 to 70 per day; each lasting less then 3 seconds; some are drop seizures. currently not on meds,...

Created By: Abby'sHope | 2015-01-28 13:10 | 421 Views | 0 Comments

I'd love to hear how everyone handles school issues.  My daughter is now an 8th grader and is struggling this year.  She missed a lot of days last year and we are on track to miss an equivalent...

Created By: jeanat | 2015-01-27 12:36 | 328 Views | 0 Comments

Hi, we're new to seizures and I need to know if our local neurology clinic is behaving properly. The story is my 18 yo son had his first seizure on sept. 30 hit his head twice from a standing...

Created By: DeRidge | 2015-01-26 15:32 | 352 Views | 2 Comments

My son began having seizures at 4. He had one very long, tonic clonic seizure. Normal EEG at that point and no recurrence. At 7 he began again. After his first very long Grand Mal seizure he was...

Created By: brennan@troutoil.com | 2015-01-24 21:28 | 295 Views | 1 Comment

Hello, My four year old had a seizure while sleeping in October, and then had one a week the past three weeks. The last seizure he had was while he was napping for his sleep-deprived EEG — we were...

Created By: Jbonds0611 | 2015-01-23 15:28 | 320 Views | 4 Comments

Hi, my 6 year old daughter was diagnosed 13 months ago with absence seizues.  We've tried Keppra, Lamictal, Zonegran, Onfi, and are now on Depakote.  So far nothing seems to be working for her. ...

Created By: Missy D | 2015-01-22 18:59 | 226 Views | 0 Comments

my 13 year old son continues to have uncontrolled seizures just finished a round of a valium bridge to settle things down we are heading down to have a 3 day eeg and 2 different mri's trying to...

Created By: Jmcarls5 | 2015-01-22 09:19 | 255 Views | 0 Comments

Hello, My name is Jeffrey Carlson and I am a graduate student in psychology at Arizona State University. I am conducting research on how caring for a child with epilepsy effects parents and...

Created By: Barnes85 | 2015-01-18 15:49 | 281 Views | 2 Comments

My daughter first had a seizure on xmas day 2012 when she was 20 months then went on to have 27 more over next 3 days.  At first thought was febrile convulsion as she had temp caused by a chest...

Created By: Little angels | 2015-01-18 12:28 | 271 Views | 1 Comment

Is it common for a baby to have long seizures? Her seizures are never under 15 minutes, every time we end up in the ER, cause they are over 5 min.  When others have seizures how long do they last...

Created By: HollyLB85 | 2015-01-18 06:42 | 254 Views | 1 Comment

Hi, I am after some advice about my 16 month old daughter. About 2 months ago she was taken into hospital after a choking episode and had to receive first aid to get the food out of her throat....

Created By: Little angels | 2015-01-17 23:41 | 286 Views | 0 Comments

My daughter is 10 months .Her first seizure was the same day as her 4 month shots, it lasted 45 minutes. The emt had trouble pulling her out. The next month (5 months) she had 2 seizures in a week...

Created By: Vicky980 | 2015-01-15 22:20 | 291 Views | 0 Comments

Hi there!  Does anyone have a child with autonomic partial seizures?  My husband and I are taking our child to see neuro next week, but we strongly suspect these as the symptoms match up like a...

Created By: Sammigrant | 2015-01-14 17:00 | 236 Views | 1 Comment

Hi! I, Samantha and my 2.5yr old daughter suffers from seizures. She's had 8 in the past 14 months. She has a rare condition called neurofibromastios (nf1) too. 

Created By: melwang24275@yahoo.com | 2015-01-13 20:02 | 278 Views | 1 Comment

Well, I am back. Cannot remember my user name or password. So now this is who I am LOL. Have a son named Matthew who is 13. We started the journey of Epilepsy when he was 1. At first febrile...

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