Topic: Parents & Caregivers

Created By: Cmayne69 | 2015-10-04 20:33 | 221 Views | 2 Comments

Hi everyone I'm new to everything around here, my now 1 year old son was just recently diagnosed with epilepsy he had his first seizure may 28(8 months old) and 5th September 13th and he started...

Created By: Kristen614 | 2015-10-02 14:46 | 220 Views | 2 Comments

My daughter is now 7 and had her first seizure at 5 and we are on our third medicine change. She is now on Lamictal and so far it has been keeping the seizures at bay. I was just wondering if any...

Created By: rysmom8821 | 2015-09-30 08:25 | 575 Views | 0 Comments

Does anyone have any experience with Accutane starting seizures in someone with no previous history of seizures OR making seizures worse in someone with existing seizures? I am considering putting...

Created By: TONY RANA | 2015-09-29 22:38 | 243 Views | 2 Comments

dea all, my daughter 6 years old has been diagnosed as having abasece seizures, doctors have asked to take Zarontine, wondering has any body not taken medication and managed this condition, as...

Created By: Footballmommy34 | 2015-09-28 21:46 | 244 Views | 1 Comment

Hey everyone! My name is Nicole and my beautiful little girl amiyah has been having febrile seizures since she's about 7 months old. Now for the past year she's been having these staring spells...

Created By: cindy.lou | 2015-09-27 20:53 | 197 Views | 0 Comments

She's never been sick, never had trauma, never had seizures until August. She's now had three complex partial seizures since August.  Never even had a high fever in her life. 

The only time...

Created By: kelly3 | 2015-09-27 20:38 | 218 Views | 0 Comments

My healthy third year old son had his first seizure while we were driving about a month ago. It lasted for about 8 mins (approx). We took him to the emerency and they did some blood work and said...

Created By: Christina K | 2015-09-27 15:21 | 191 Views | 0 Comments

Would love some advice from you guys.  My son is 5 with a diagnosis of severe autism and very severe learning disability.  He has been unable to focus or engage to even learn the simplest of tasks...

Created By: ttj384 | 2015-09-22 14:29 | 222 Views | 1 Comment

Hi! My son was recently diagnosed with absence seizures. He is 6 years old. His doctor prescribed Ethosuximide(zarontin) and I'm wondering, how well does this medication works? Has any of your...

Created By: mime4jesus | 2015-09-20 12:01 | 236 Views | 2 Comments

A year ago, our six year old son had an eight hour episode of continuous seizures that landed him in the ICU at Yale for a few days.  They put him on Keppra twice a day, and he hasn't had another...

Created By: Lovekaden | 2015-09-18 22:13 | 269 Views | 0 Comments

Hi does anyone know how much genetic testing for epilepsy runs? Ive heard it's very expensive 

Created By: Lovekaden | 2015-09-15 08:23 | 270 Views | 0 Comments

Hello my son is almost 4 and has been diagnosed with epilepsy for a little over a year now..for the past two months he's been having a seizure mainly non convulsive every week but he has had two...

Created By: Cam's Mom | 2015-09-14 12:00 | 236 Views | 1 Comment

Hello All,

My 9 year old son has absence seizures and in his second week of medication for them. Can anyone tell me if the seizures themselves or the medication cause bad headaches? He's...

Created By: momofhope | 2015-09-14 10:51 | 212 Views | 2 Comments

Hi! I'm a little confused and hope someone can help. In the last week my  9 year old daughter has had what she calls a "vision". It is recurring and is very frightening and violent. It doesn't...

Created By: dessieh7 | 2015-09-12 14:23 | 270 Views | 1 Comment

Hi,

My son is 4 years old, he was diagnosed with epilepsy about a year ago after having about 4 seizures (grand-mal) and an EEG. Since then he was put on Keppra which did very well for him...

Created By: krismar3 | 2015-09-10 22:52 | 221 Views | 0 Comments

My daughter is 10 years old. Since she was around two she's had behavior issues. She has been diagnosed with ADHD, ODD (she's now outgrown this), anxiety, and has OCD tendencies. The medications...

Created By: jlewinthal | 2015-08-31 18:59 | 264 Views | 1 Comment

Have any of you had a history of Colic or Prolonged Crying as an infant? To the parents, did your epileptic child have or had colice or prolonged crying? 

 

 

Created By: Rjhsteel | 2015-08-28 03:59 | 259 Views | 0 Comments

Edward was born 2 weeks ago. It was supposed to be a time of joy. We, are children and friends and family were looking forward to seeing him.
Now, after 14 days, (we are still here in Great...

Created By: Chasingpirates | 2015-08-16 23:15 | 313 Views | 1 Comment

I hope some of you can provide insight to a worried mama! It's long so bear with me!

My daughter was recently seen at ACH through the ER. Her pediatrician sent her there for an MRI to rule...

Created By: lauralove5 | 2015-08-16 12:45 | 287 Views | 0 Comments

Hi,

 

I hope that somebody might have an idea as to why my daughter keeps dropping out of "large" ketosis (per keto sticks) and into "small" ketosis.  

 

She is 5 and...

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