Topic: Parents & Caregivers

Created By: Lcpresser | 2016-05-17 20:44 | 3 Comments

My husband is epileptic with grand mal
Seizures. We are very lucky. His seizures are
well controlled. He has only had about 8 since he was 12 years old (33 yo old now). Last one was a...

Created By: beccap86 | 2016-05-16 14:57 | 0 Comments

HI,
I have a 16 month old who started 2.5mL of Keppra a day approx 8 months ago. He was having approx 50-100 absence seizures, or "upgazes" a day. Since starting the generic of...

Created By: Happycl8 | 2016-05-14 13:34 | 0 Comments

I have two kids with seizures 3 . 5 yrs and 14yrs. 3.5 yrs has complex seizures and my 14 yrs has juvenile Myoclonic epilepsy. Only my daughter is taking meds topamax. Looking to meet other...

Created By: Kaigirl08 | 2016-05-08 03:26 | 0 Comments

Hi my son sustained a head injury and frontal lobe damage 4 years ago he is now epileptic and having more than usual seizures where he is getting physically injured recently a broken nose this is...

Created By: caseysmommy109 | 2016-05-01 06:41 | 0 Comments

Hi everyone my son had tetralogy of ballot heart repair at one month old then suffered a stroke. he was left with complex partial seizures. He has been on Keppra since then and is now 12 years...

Created By: birdk | 2016-04-28 13:58 | 0 Comments

My husband has been experiencing seizures (or so we think they are seizures now) for two years. He was originally diagnosed with vaso-vagal syncope and was treated by cardiologists, but I have...

Created By: Adutruch | 2016-04-26 22:16 | 0 Comments

Hi, I have an 8 year old boy who has Complex partial seizures. He has tried keppra, trileptal, lamictal and zonsamide (sp?). He has been off seizure meds for about 8 - 9 months. During this time...

Created By: lagbfn@gmail.com | 2016-04-26 12:33 | 0 Comments

Asking this question for my college daughter. She will be graduating in a few weeks, and will be staying where she is currently attending college. Up until now, she has gone to the neurologist...

Created By: Suzamom | 2016-04-25 10:45 | 0 Comments

Hi!! Some background....I am the mom of an autistic son who was diagnosed with JAE in Oct, 2014 (aged 11) after a tonic clonic seizure upon waking. We now believe that he has been having...

Created By: Aviatornick | 2016-04-19 09:55 | 1 Comment

Morning. My son was recently diagnosed with epilepsy and has had complex partial or generalized seizures. His first seizure was due to a fever. His second one was not associated with a fever. He...

Created By: pathuv | 2016-04-18 21:11 | 1 Comment

Hi all! I have a 12 y o that has grand mal seizures & is on meds, but was wondering what he's going to do for summer. I only work part time right now so I can be home when he is....

Created By: popotitos4u | 2016-03-31 20:05 | 1 Comment

I am 7 weeks pregnant and want to see what my options are staying on my medication or getting off until I have my baby. Any researchers out there and options. I have not had an attack in over 3...

Created By: Dgb123 | 2016-03-25 05:43 | 0 Comments

Well, currently I have been up all night with my wife who suffers from partial complex seiezures. She a is scheduled for her first EEG in 8 hours, but they told her to sleep from 11pm till 5 am...

Created By: momtothree | 2016-03-24 22:38 | 0 Comments

I posted here just recently. My 2.5 year old son has developed new types of seizures recently (used to be only TC, but now complex partials and others). Since complex partials started, he...

Created By: Ksmama211 | 2016-03-21 22:41 | 0 Comments

My son, Kian, just turned 2 last month. He had his first fever seizure at 11 months old. It came out of no where and he stopped breathing during it. As I am sure other parents can imagin, it was...

Created By: momtothree | 2016-03-18 23:03 | 0 Comments

Hello,

I am trying to understand what simple partial seizures are. What is the difference between a simple partial and an aura? Are they the same? My 2.5 year old son showed signs of...

Created By: Aceking | 2016-03-18 08:50 | 0 Comments

My 18 month old son is being tested for petit mal seizures, he was asleep when they did the strobe part but from the 2nd lot of flashes his arms and legs started shaking (not like a startle reflex...

Created By: TropicalSerenade | 2016-03-17 17:02 | 2 Comments

Hi everyone,

My son's case is unusual and complicated, but I figured I'd post this somewhere where I have the chance of finding someone with some knowledge/experience. My 7 year...

Created By: Jule25 | 2016-03-16 18:54 | 0 Comments

My 3 1/2 year old son was just diagnosed with epilepsy this past Sunday. He has had 3 tonic clonic seizures since December 26 2015 so in the last 3 months. Prior to that he is/was a healthy strong...

Created By: rajkumarpb | 2016-03-16 03:10 | 0 Comments

My son is a month shy of his 3rd birthday. So far no milestones achieved, not even neck holding! We have been trying different drugs over past 2 years with out current neuro(before him couple of...

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