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Topic: Parents & Caregivers

Created By: Bugaboosmom | 2014-12-31 23:28 | 187 Views | 1 Comment

HELP HELP HELP! My daughter will be 5 January 10th. On January 3, 2011 just shy of her first birthday she had her first tonic clonic. The initial ones were diagnosed as Febrile but now...

Created By: mommyLeBay | 2014-12-31 12:46 | 214 Views | 1 Comment

My daughter is now 10 months old. At 8 months she was admitted to the hospital with what we thought were seizures. After many tests, including and eeg, it was confirmed she had abnormal activity...

Created By: Beans2008 | 2014-12-29 12:15 | 142 Views | 0 Comments

My son is 6 and scheduled to have a VNS on the 15th.  I am hopeful it might help with some of the autistic behaviors as well.  Have any of you seen an improvement in this?  He is 6, nonverbal,...

Created By: jmom2gs | 2014-12-27 12:03 | 252 Views | 2 Comments

My daughter was diagnosed with Epilepsy when she was 10 years.  She did fairly well with only occassional seizures for a long time.  When she was 14 she had a bad two months, but was placed on...

Created By: SleepyParachute | 2014-12-18 15:50 | 242 Views | 2 Comments

Well we're new here, yesterday my 7 year old son was diagnosed with epilepsy...the diagnosis seems sudden to me (not unusual given his medical history just sudden). I'm wondering if there are...

Created By: SleepyParachute | 2014-12-18 15:49 | 179 Views | 0 Comments

Well we're new here, yesterday my 7 year old son was diagnosed with epilepsy...the diagnosis seems sudden to me (not unusual given his medical history just sudden). I'm wondering if there are...

Created By: natz68 | 2014-12-18 08:55 | 107 Views | 0 Comments

I have some KetoCal 4:1 vanilla flavored I would like to donate. I have one unopened can and one almost full case (missing only 2) of the 8oz liquids. The expiration is March 2015. I am hoping to...

Created By: scarter1231 | 2014-12-15 22:43 | 168 Views | 2 Comments

My 4 1/2 old son has been potty trained since a month or so before his 3rd birthday. Never had accidents or even bedtime accidents. He was on lamictal & ethosuximide but had to come off with...

Created By: mammak | 2014-12-15 00:58 | 218 Views | 0 Comments

For those of you who use a sleep monitor with your child, which brand do you use? Any recommendations would be helpful. My daughter's epileptologist recommended one but had no preference of a...

Created By: tanya.leigh13@gmail.com | 2014-12-14 21:44 | 164 Views | 1 Comment

Our son Garrett was diagnosed with absence seizures a month ago.  He was immediately put on the lowest dose and the seizures have been controlled for a few weeks, which is great.  Before starting...

Created By: dramasign | 2014-12-11 11:30 | 261 Views | 1 Comment

We lost our 26 year old son this past Friday due to complications following a seizure. just looking for any other parents who have had to deal with this.

Created By: Chanchan | 2014-12-08 22:29 | 304 Views | 2 Comments

Hi everyone. I was on this site back in May when my 13 year old son had his first seizure (tonic-clonic). His EEG showed clear eliptiform activity. I decided to hold off on meds in hopes we could...

Created By: yadirtrye | 2014-12-07 21:11 | 175 Views | 0 Comments

Hello 

I am a newby here looking for advice, suggestions, help.. My daughter was diagnosed with birth hypoxic ischemic encephalopathy and took seizure medication until she was 3 years old....

Created By: mammak | 2014-12-07 14:20 | 217 Views | 1 Comment

Hi everyone,

My 9-year-old daughter had her first seizure on Oct. 1, 2013, and her second on Nov. 26, 2014. The second took place in her sleep, and I only knew because I had laid down with...

Created By: heartzlove | 2014-12-06 18:50 | 193 Views | 4 Comments

My daughter had her first seizure at 7,it was the beginning of summer and we were having parties that weekend. She was drinking ssips ice tea juice boxes like they were water, not sleeping and...

Created By: lucidendeavor@aol.com | 2014-12-06 00:09 | 213 Views | 1 Comment

My son had his first Complex Partial seizure at the age of 10. I took him to the neurologist and after lots of testing and a million questions, we knew they stemmed from the left side of his brain...

Created By: virgodoglvr | 2014-12-05 18:07 | 178 Views | 1 Comment

Ok I have a lot going on and I need some help. My daughter was diagnosed with petit mals when she was 6 and they have been controlled on zarontin for 4 years. She started having tonic clonic...

Created By: jacquelinekinton@aol.com | 2014-12-05 13:15 | 482 Views | 1 Comment
Created By: elizabeth7 | 2014-12-05 12:44 | 172 Views | 0 Comments

Hi, my 7 year old has suffered with epilepsy since 5 months of age. She had brain surgery as a baby, things appeared to improve but with her last EEG a lot of subclinical activity showed up, 6...

Created By: StephHowwood | 2014-12-04 14:42 | 217 Views | 0 Comments

My lovely daughter is 3 yo. She has never been much of a sleeper; she woke every 20-30 mins until she was 2 yo. She now often sleeps til 1 or 2 am before waking which seems great to me but most 3...

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