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Topic: Parents & Caregivers

Created By: Karenx47 | 2015-03-11 19:20 | 334 Views | 0 Comments

My 7 year old son was diagnosed with benign rolandic epilepsy in February 2014. He had a seizure in late January (drooling, couldn't communicate, face twitching, arm was also seizing - sorry if...

Created By: JoyHaik | 2015-03-10 13:45 | 240 Views | 0 Comments

My 15 yr old daughter has JME. She has been on a plethora of medications and combos of meds. I have watched her  slowly transform over the last few years from a completely normal, healthy,...

Created By: Fiveten | 2015-03-08 20:22 | 260 Views | 0 Comments

 

 

My son is 18 months old, and has been doing this a few times a day for a couple of months.  It never lasts more than a second, and this is a very typical episode - they are all...

Created By: kaycecompton@gmail.com | 2015-03-05 21:06 | 369 Views | 2 Comments

My 11 yo son was recently diagnosed with generalized Seizure disorder. He is on meds but continues to have breakthroughs every few weeks. He loves video games and TV. He has never had a seizure...

Created By: Ske1107 | 2015-03-03 19:04 | 327 Views | 0 Comments

My son, who is 17, had a left temporal lobectomy and hippocampectomy almost three years ago after living with auras and a few large seizures all of his life.  The auras were very short but made...

Created By: Drama Therapy Project | 2015-03-02 15:29 | 238 Views | 1 Comment

To all Caregivers:

Let me begin by sharing that I have epilepsy. I had brain surgery in 2011 (part of my front, left temporal lobe removed), as well as a VNS (Vagus Nerve Stimulator)...

Created By: Mal_Johnson | 2015-03-01 19:20 | 235 Views | 1 Comment

My name is Mallory Johnson and I am studying Medical Choice as a Predictor of Self-Efficacy in parents of children with a chronic illness.

When your child is diagnosed with...

Created By: psygirl44 | 2015-02-26 19:20 | 346 Views | 1 Comment

Hi everyone.

I had dated someone with epilepsy for almost three years. Recently, we broke up, and it was awful. For the first two years of our relationship, we were happy, loving, mutually...

Created By: mochicrunch | 2015-02-20 13:18 | 354 Views | 1 Comment

Hi,

Our son, age 5, has been having tonic clonic and possibly complex partial with secondary generalization since being 11 months old. They are related to infection, so the timing is...

Created By: AngelaVA | 2015-02-20 11:03 | 284 Views | 0 Comments

Has anyone ordered one of these for their child https://www.indiegogo.com/projects/embrace-a-gorgeous-...

Created By: agnason | 2015-02-18 11:45 | 288 Views | 1 Comment

Hello, my son has been having unusual episodes in the morning for the last several months.  He had an abnormal EEG, clear MRI.  Put on Keppra 1000mg per day, which did not help.  Doctor increased...

Created By: lm_mom | 2015-02-16 19:24 | 359 Views | 2 Comments

My 11 year old son was diagnosed with epilepsy in July 2014.  He has been on seven different medications all of which have not helped and/or he experienced horrible side effects missing over 20...

Created By: jmoser | 2015-02-13 20:11 | 280 Views | 1 Comment

Hi. im new to this and dont even know if im on the right page. But ima try it anyways and hope to get some kind of feedback. My mom is having these Pseudoseizures. She is having like 5 to 10...

Created By: tetheridgefarley | 2015-02-10 21:30 | 371 Views | 4 Comments

Hello Everyone,

My 3 year old began having seizures in Nov 2014. He appears to have seizure clusters. He went 2 months seizure free. He began having seizure clusters again 3 weeks ago and...

Created By: Jbonds0611 | 2015-02-10 11:49 | 307 Views | 2 Comments

My daughter's neurologist has referred us to an epileptologist to discuss a VNS or the ketogenic diet as treatment for her absence seizures.  She's 6 years old and was diagnosed 14 months ago.  We...

Created By: mateeen2008@gmail.com | 2015-02-09 07:13 | 260 Views | 0 Comments

My 6 months old child is diagnosed with migrating partial seizures, anyone knows what is the best treatment for this?.

Created By: lisaB3 | 2015-02-07 18:38 | 355 Views | 1 Comment

Hello, this is the first time l've ever done this. My boy (3) has just been dignosed with epilepsy - unspecified. We are waiting on a brain scan to find out more. He's started on keppra. I'm...

Created By: Abby'sHope | 2015-02-06 16:31 | 447 Views | 2 Comments

For those of you who see an epileptologist, when did you make the switch from a regular neurologist?  Was it at your request or did the neuro suggest you go?  I would like a referral to take my...

Created By: clark_janes | 2015-02-04 23:26 | 465 Views | 1 Comment

I am hoping for some advice and support. I am really struggling with coping right now. I worry incessantly about my 7yo daughter's seizures, learning problems, and memory issues. On top of all...

Created By: Little angels | 2015-02-04 20:09 | 293 Views | 0 Comments

My daughter has SCN1A gene that is mutated and I'm not sure if I know what that means. I asked the neurologist some questions but I think it's still over my head. They said she has GEFS+. What...

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