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Topic: Parents & Caregivers

Created By: tetheridgefarley | 2015-02-10 21:30 | 343 Views | 4 Comments

Hello Everyone,

My 3 year old began having seizures in Nov 2014. He appears to have seizure clusters. He went 2 months seizure free. He began having seizure clusters again 3 weeks ago and...

Created By: Jbonds0611 | 2015-02-10 11:49 | 272 Views | 2 Comments

My daughter's neurologist has referred us to an epileptologist to discuss a VNS or the ketogenic diet as treatment for her absence seizures.  She's 6 years old and was diagnosed 14 months ago.  We...

Created By: mateeen2008@gmail.com | 2015-02-09 07:13 | 236 Views | 0 Comments

My 6 months old child is diagnosed with migrating partial seizures, anyone knows what is the best treatment for this?.

Created By: lisaB3 | 2015-02-07 18:38 | 323 Views | 1 Comment

Hello, this is the first time l've ever done this. My boy (3) has just been dignosed with epilepsy - unspecified. We are waiting on a brain scan to find out more. He's started on keppra. I'm...

Created By: Abby'sHope | 2015-02-06 16:31 | 412 Views | 2 Comments

For those of you who see an epileptologist, when did you make the switch from a regular neurologist?  Was it at your request or did the neuro suggest you go?  I would like a referral to take my...

Created By: clark_janes | 2015-02-04 23:26 | 429 Views | 1 Comment

I am hoping for some advice and support. I am really struggling with coping right now. I worry incessantly about my 7yo daughter's seizures, learning problems, and memory issues. On top of all...

Created By: Little angels | 2015-02-04 20:09 | 265 Views | 0 Comments

My daughter has SCN1A gene that is mutated and I'm not sure if I know what that means. I asked the neurologist some questions but I think it's still over my head. They said she has GEFS+. What...

Created By: jcano | 2015-02-02 17:58 | 273 Views | 1 Comment

Hi,
I am new to this site but after researching medical info. on epilepsy and seizures I thought a parent website with people who have or are caring with someone with epilepsy would be...

Created By: BrandySmith | 2015-01-31 20:58 | 331 Views | 4 Comments

Our 4 year old this week scared us at school. He threw up, would talk to his teacher then randomly stop and was so dizzy he had trouble standing. When i got him home he was dizzy again saying the...

Created By: SleepyParachute | 2015-01-30 17:07 | 280 Views | 0 Comments

My son was recently diagnosed with epilepsy and aortic stenosis...we've noticed that preceding EVERY seizure his legs start aching, then his feet tingle, and then he gets tired and wants to cuddle...

Created By: Vdelcarpio3 | 2015-01-29 03:31 | 286 Views | 1 Comment

Hi, are there other parents out there dealing with this mix of Epilepsy and Autism?

if any advise, please I would apreciated. My son is 10 yrs old now and non-verbal. His seizures are not...

Created By: Mom to Ember | 2015-01-28 23:43 | 275 Views | 1 Comment

my daughter - age 4 - has atonic seizures with myoclonic effect...generalized.  ember will have 60 to 70 per day; each lasting less then 3 seconds; some are drop seizures. currently not on meds,...

Created By: Abby'sHope | 2015-01-28 13:10 | 395 Views | 0 Comments

I'd love to hear how everyone handles school issues.  My daughter is now an 8th grader and is struggling this year.  She missed a lot of days last year and we are on track to miss an equivalent...

Created By: jeanat | 2015-01-27 12:36 | 300 Views | 0 Comments

Hi, we're new to seizures and I need to know if our local neurology clinic is behaving properly. The story is my 18 yo son had his first seizure on sept. 30 hit his head twice from a standing...

Created By: DeRidge | 2015-01-26 15:32 | 323 Views | 2 Comments

My son began having seizures at 4. He had one very long, tonic clonic seizure. Normal EEG at that point and no recurrence. At 7 he began again. After his first very long Grand Mal seizure he was...

Created By: brennan@troutoil.com | 2015-01-24 21:28 | 269 Views | 1 Comment

Hello, My four year old had a seizure while sleeping in October, and then had one a week the past three weeks. The last seizure he had was while he was napping for his sleep-deprived EEG — we were...

Created By: Jbonds0611 | 2015-01-23 15:28 | 296 Views | 4 Comments

Hi, my 6 year old daughter was diagnosed 13 months ago with absence seizues.  We've tried Keppra, Lamictal, Zonegran, Onfi, and are now on Depakote.  So far nothing seems to be working for her. ...

Created By: Missy D | 2015-01-22 18:59 | 204 Views | 0 Comments

my 13 year old son continues to have uncontrolled seizures just finished a round of a valium bridge to settle things down we are heading down to have a 3 day eeg and 2 different mri's trying to...

Created By: Jmcarls5 | 2015-01-22 09:19 | 231 Views | 0 Comments

Hello, My name is Jeffrey Carlson and I am a graduate student in psychology at Arizona State University. I am conducting research on how caring for a child with epilepsy effects parents and...

Created By: Barnes85 | 2015-01-18 15:49 | 255 Views | 2 Comments

My daughter first had a seizure on xmas day 2012 when she was 20 months then went on to have 27 more over next 3 days.  At first thought was febrile convulsion as she had temp caused by a chest...

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