Topic: Parents & Caregivers

Created By: csawilkens | 2016-07-11 15:22 | 0 Comments

Hi folks,
Our son is 7 months old and has been having seizures for at least two months. At first, we were only seeing tonic-clonics that were suppressed, but not stopped, with Trileptal. He...

Created By: rysmom8821 | 2016-07-08 13:50 | 1 Comment

Does anyone have the name of a good Epileptogist in Newport News, Virginia?

Created By: sroach10 | 2016-07-08 10:53 | 0 Comments

Our 6 year old son (going into 1st grade this coming Fall) was diagnosed with right frontal lobe cortical dysplasia epilepsy when he was 19 months old. His seizures have been controlled off and...

Created By: JessieHornyak | 2016-07-08 07:15 | 2 Comments

Recently a new neurologist looked over our daughter's EEGs and changed her from focal to generalized seizures. She had been on trileptal with no problems but new neuro explained that...

Created By: kmynar | 2016-07-05 11:42 | 0 Comments

Hi. I am new to this site but I am hoping to connect with others who are going through similar situations with their children as I am. My 14 yr old daughter was diagnosed with juvenile epilepsy...

Created By: kaysarv | 2016-06-30 23:25 | 1 Comment

Hi! Im new here. At 7 months old (dec 2015) my daughter had her first seizure which lasted 15 minutes long after being brought to the hospital they told us it was a febrile seizure. March 24th she...

Created By: Joybop | 2016-06-28 21:09 | 0 Comments

I'm new around here. My 10 year old was diagnosed with temporal lobe epilepsy in May during an inpatient EEG. He was having several seizures a day for several days then not again for several...

Created By: Stella16 | 2016-06-22 20:45 | 0 Comments

Hi. I have a question, but here's the background:
My 12 y.o. son had what I think we're 2 seizures a couple weeks ago. None since. He awoke with a headache that morning and said...

Created By: Stella16 | 2016-06-22 20:37 | 0 Comments

Hi. I have a question, but here's the background:
My 12 y.o. son had what I think we're 2 seizures a couple weeks ago. None since. He awoke with a headache that morning and said...

Created By: Dee_an | 2016-06-22 02:28 | 0 Comments

Hi everyone.
I'm a mom of a daughter. She is 19 years old now.
I'm very new with epilepsy. Last night my daugter fainted and still not wake up yet until today. It's been...

Created By: French Rose | 2016-06-21 01:44 | 0 Comments

Hello everyone,

My son is 11. He does not have a dx of seizures, but I may be talking to our ped at his next appointment. He has adhd, and with the way his attention comes and goes, I have...

Created By: Jordynsmom | 2016-06-19 07:24 | 1 Comment

Hello! Im new to this forum. My name is Renee and I have a beautiful 5 year old little girl.

She started showing odd symproms a year ago. Staring spells and odd behavior in her sleep. I...

Created By: Kshirola | 2016-06-13 17:02 | 1 Comment

Hi! I'm new to a lot of this and have a few questions. My eldest son has benign Rolando epilepsy and has for at least 5 years. He is 8 and has partial brain seizures. My 10 month old son had...

Created By: sydverne | 2016-06-01 21:26 | 0 Comments

Hi all. Any ideas besides baby gates for making stairs in your home safer?

Created By: SeekingSupport | 2016-05-31 04:53 | 1 Comment

My teen daughter is being treated for JME with Keppra and Topamax. Sometimes she wakes at night after hearing a high pitched noise and sometimes she sees shadows from the corner of her eye. Is...

Created By: KeeKee | 2016-05-29 09:14 | 5 Comments

My son is 19 and was just diagnosed a year ago with Epilepsy. He had been experiencing "zoning out" during school and was having weird occurrences during his sleep that he had told me...

Created By: GregsMom | 2016-05-27 15:58 | 3 Comments

My son developed epilepsy at age 20. All seizures have been during his sleep and all are grand mal seizures. There is no known cause. He has THANKFULLY now gone 13 months seizure free!! He lives...

Created By: iMurray.92 | 2016-05-26 05:02 | 0 Comments

Hey there! I'm a carer for a teenager with pecial needs including epilepsy and brain damage.
The strange issue we face daily is that my client can hace seizures (from head drops to full...

Created By: kcram12 | 2016-05-25 12:04 | 0 Comments

My 6 yr old son was diagnosed with epilepsy last year and has been on zonisamide since. He has done well with the meds until recently. We have noticed he seems to have a lot of anxiety around...

Created By: MKBoyd | 2016-05-20 17:49 | 2 Comments

I have a 22 year old son who was diagnosed with epilepsy at 11 months old. He is on multiple meds and has a VNS, but his seizures have never been controlled. In the past 9 months he has started...

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