Topic: Parents & Caregivers

Created By: agattka5 | 2016-02-02 04:10 | 198 Views | 0 Comments

Hi, my 9 years old son has dnet.He is after a surgery, with seizures. I'm from Poland. Is there anyone with experience with dnet? 

Created By: PBS99 | 2016-01-31 17:38 | 269 Views | 0 Comments

Hi everyone! I am not new to this forum, I am here a lot reading everyone's posts, but this is my first time posting for information and/or advice.

My son is 10.5 and was dx with absence...

Created By: amysueholloway | 2016-01-31 17:27 | 232 Views | 0 Comments

I have twin daughters who are 13.  One has just been diagnosed with juveline myoclonic epilepsy:  in the past year, she has had 2 clonic seizures.  We weren't sure the first one was a seizure as...

Created By: Kmonahan | 2016-01-31 09:41 | 201 Views | 0 Comments

Hi, 

Im new to this forum, my 9 year old son has generalized epilepsy. He also has high functioning Autism and is a sleep walker with parasanomas. We have a camera in his room because he...

Created By: Kmonahan | 2016-01-31 09:41 | 174 Views | 0 Comments

Hi, 

Im new to this forum, my 9 year old son has generalized epilepsy. He also has high functioning Autism and is a sleep walker with parasanomas. We have a camera in his room because he...

Created By: kazzy99 | 2016-01-30 01:14 | 209 Views | 0 Comments

We start weaning my son's Zonisimide tomorrow. He has been on 100mg a day + 3000mg a day of Keppra for almost 4yrs. And has been seizure free with it :) He wants to try and wean again. We got him...

Created By: looking for support | 2016-01-29 15:40 | 233 Views | 0 Comments

Good afternoon,

I'm very new to this group and forum.  I am hoping to find someone who has experienced what we have, although I know there are so many different types of seizures.  My...

Created By: Mcarm | 2016-01-29 15:40 | 190 Views | 0 Comments

my 3 yr old was diagnosed with myoclonic seizures. I that treatment rarely controls it fully. Does anyone else have a child diagnosed with this? What is their quality of life?

Created By: mammak | 2016-01-26 09:39 | 237 Views | 0 Comments

Hi all,

It has been a while since last I posted, but I would like to get more involved if this forum is active.

I need some insight. I would like to know if others' children have...

Created By: kurehahime | 2016-01-24 14:16 | 256 Views | 1 Comment

I am new t this.  My son is 7 and has been diagnosed with Epilepsy since he was a baby.

His seizures had been well controlled by Keppra until about 2 years ago.  He started having...

Created By: HBOZ89 | 2016-01-23 11:03 | 262 Views | 1 Comment

Hello.  My 40 year old son (unmarrried, lives at home) had been seizure free for 15 years on Neurontin and phenobarb.  He lived an active life, driving, MA degree, thesis work in England...started...

Created By: kiley37g | 2016-01-22 18:58 | 213 Views | 1 Comment

Hi. My son is 8 and has autism. Last year his doctor referred us to a pediatric neurologist at Akron Children's Hospital. It's the best hospital in our area. They asked me if my son had staring...

Created By: StallionHeart | 2016-01-21 00:06 | 216 Views | 1 Comment

Hello, everyone!  

I'm new here.  Father of 3 beautiful children.  A 12 year old little man, a 29 month old baby boy, and a 2 month old baby girl. 

Two Sundays ago at around 10pm I...

Created By: ChereeO | 2016-01-20 04:33 | 261 Views | 2 Comments

Hi everyone, 

This is my first post and I am desperate to hear from anyone else who has experienced an extended Tonic Clonic Seizure. 

3 months ago my son returned from a trip away...

Created By: DinaHB | 2016-01-16 18:40 | 246 Views | 2 Comments

My son, 18, was diagnosed three years ago.  He started on 500 mg of Keppra and over time iincreased his dosage to 3000 mg.  He had a med. increase with every seizure.  Five neurologist told us...

Created By: cm.lt.am | 2016-01-12 12:09 | 224 Views | 0 Comments

Hi all. Our daughter was diagnosed with epilepsy at 1.5 years old. She is now 3 years old. Her doctor is recommending to put her on phenytoin (Dilantin). My question is... Has any parents had a...

Created By: cdian | 2016-01-09 20:48 | 215 Views | 0 Comments

Hi- my son is 8. He had his first seizure at 5. His MRI shows slight brain damage in the visual correct. He had a knot in his cord and was slow to take his first breath. Although the neuro said...

Created By: Wterry | 2016-01-08 08:57 | 200 Views | 1 Comment

Has anyone ever experienced an allergic reaction or anaphylaxis to the EEG? 

Created By: Dgb123 | 2016-01-03 19:24 | 273 Views | 1 Comment

She began to have multiple seizures, but this time they where nothing I have wittnessed over the many she has had. After the third of the 9 she had last night she began to growl at me while making...

Created By: Dgb123 | 2016-01-03 19:07 | 223 Views | 0 Comments

Hello, everyone, I am new to sharing my thoughts and feelings, so please bare with me. Today I am writing because of image of my wifes most recent seizure. She is currently on disability and has...

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