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Topic: Parents & Caregivers

Created By: paffsew@yahoo.com | 2015-03-17 14:01 | 220 Views | 1 Comment

 

When caring for family members with epilepsy this is always a concern. I have to become a house hold investigator in a way. Always test to see witch chemical are right to bring into the...

Created By: paffsew@yahoo.com | 2015-03-17 13:36 | 175 Views | 0 Comments

When caring for family members with epilepsy this is always a concern. I have to become a house hold investigator in a way. Always test to see witch chemical are right to bring into the household...

Created By: christy1982 | 2015-03-16 22:02 | 287 Views | 0 Comments

My son is in 1st grade and he has primary generalized epilepsy and he has a 3 year old sister with autism.  He has had epilepsy since he was 4 months old.  It really didnt "effect" his life much...

Created By: milwrite | 2015-03-16 17:24 | 227 Views | 0 Comments

Hi everyone.

I am the mother of a 22 year old young man who was born with Early Myoclonic Encephalopathy Syndrome. It is a catastrophic infantile epilepsy with an average lifespan of 2...

Created By: crlanier | 2015-03-14 06:48 | 210 Views | 1 Comment

My 12 yr old daughter has complex partial seizures.  She has many symptoms of Aspergers.  Is it necessary to seek a professional diagnosis?  I realize getting a diagnosis for Aspergers would not...

Created By: M.A.Barry | 2015-03-13 15:00 | 267 Views | 0 Comments

My 31 yr. old son has had anger issues his entire life. I don't think they are caused caused by his medication as much my the epilepsy itself. They have been progressively worse over time. I am...

Created By: Karenx47 | 2015-03-11 19:20 | 294 Views | 0 Comments

My 7 year old son was diagnosed with benign rolandic epilepsy in February 2014. He had a seizure in late January (drooling, couldn't communicate, face twitching, arm was also seizing - sorry if...

Created By: JoyHaik | 2015-03-10 13:45 | 217 Views | 0 Comments

My 15 yr old daughter has JME. She has been on a plethora of medications and combos of meds. I have watched her  slowly transform over the last few years from a completely normal, healthy,...

Created By: Fiveten | 2015-03-08 20:22 | 229 Views | 0 Comments

 

 

My son is 18 months old, and has been doing this a few times a day for a couple of months.  It never lasts more than a second, and this is a very typical episode - they are all...

Created By: kaycecompton@gmail.com | 2015-03-05 21:06 | 339 Views | 2 Comments

My 11 yo son was recently diagnosed with generalized Seizure disorder. He is on meds but continues to have breakthroughs every few weeks. He loves video games and TV. He has never had a seizure...

Created By: Ske1107 | 2015-03-03 19:04 | 293 Views | 0 Comments

My son, who is 17, had a left temporal lobectomy and hippocampectomy almost three years ago after living with auras and a few large seizures all of his life.  The auras were very short but made...

Created By: Drama Therapy Project | 2015-03-02 15:29 | 203 Views | 1 Comment

To all Caregivers:

Let me begin by sharing that I have epilepsy. I had brain surgery in 2011 (part of my front, left temporal lobe removed), as well as a VNS (Vagus Nerve Stimulator)...

Created By: Mal_Johnson | 2015-03-01 19:20 | 208 Views | 1 Comment

My name is Mallory Johnson and I am studying Medical Choice as a Predictor of Self-Efficacy in parents of children with a chronic illness.

When your child is diagnosed with...

Created By: psygirl44 | 2015-02-26 19:20 | 318 Views | 1 Comment

Hi everyone.

I had dated someone with epilepsy for almost three years. Recently, we broke up, and it was awful. For the first two years of our relationship, we were happy, loving, mutually...

Created By: mochicrunch | 2015-02-20 13:18 | 322 Views | 1 Comment

Hi,

Our son, age 5, has been having tonic clonic and possibly complex partial with secondary generalization since being 11 months old. They are related to infection, so the timing is...

Created By: AngelaVA | 2015-02-20 11:03 | 245 Views | 0 Comments

Has anyone ordered one of these for their child https://www.indiegogo.com/projects/embrace-a-gorgeous-...

Created By: agnason | 2015-02-18 11:45 | 260 Views | 1 Comment

Hello, my son has been having unusual episodes in the morning for the last several months.  He had an abnormal EEG, clear MRI.  Put on Keppra 1000mg per day, which did not help.  Doctor increased...

Created By: lm_mom | 2015-02-16 19:24 | 325 Views | 2 Comments

My 11 year old son was diagnosed with epilepsy in July 2014.  He has been on seven different medications all of which have not helped and/or he experienced horrible side effects missing over 20...

Created By: jmoser | 2015-02-13 20:11 | 256 Views | 1 Comment

Hi. im new to this and dont even know if im on the right page. But ima try it anyways and hope to get some kind of feedback. My mom is having these Pseudoseizures. She is having like 5 to 10...

Created By: tetheridgefarley | 2015-02-10 21:30 | 342 Views | 4 Comments

Hello Everyone,

My 3 year old began having seizures in Nov 2014. He appears to have seizure clusters. He went 2 months seizure free. He began having seizure clusters again 3 weeks ago and...

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