Community Forum

Topic: Parents & Caregivers

Created By: JessXX68 | 2017-01-23 23:46 | 0 Comments

Hi! I have been waiting to hear back from neurologist and pediatricians that just seem to take a ton of time off and rely on systems that glitch way to much. Can anyone help me with what the...

Created By: eperk84 | 2017-01-21 21:24 | 1 Comment

Sorry, this is going to be a long post, but we are at the end of our rope. My daughter is 4 years old. She is TPN dependent and has mild CP. The CP only causes left side muscle weakness. She...

Created By: Mommy4 | 2017-01-20 02:27 | 0 Comments

Hi. I was shocked last spring when the school called me to say my daughter was having a seizure. She started at trileptal all the way just slightly beyond her max dose (her blood levels were...

Created By: ajaynen | 2017-01-19 21:50 | 2 Comments

New to this group and looking for some support. It has been really good to read some of the posts and not feel alone. My 4 year old daughter had four seizures on Christmas Day (prior to this she...

Created By: Cheddar | 2017-01-18 21:27 | 8 Comments

Hi

My 3yo son was just diagnosed with Complex Partial Seizures. We are waiting on an MRI and a 72 hour EEG. We have had a really hard time catching the seizures and usually only see them...

Created By: cambee0513 | 2017-01-18 14:38 | 0 Comments

My 13 year old daughter was diagnosed with JME following an hour long repetitive episode on Christmas day. She was started on Keppra on January 4th. She has been on the full dose for a week now...

Created By: eveyaden | 2017-01-16 15:54 | 0 Comments

Hello,

I'm new here and new to this in general. My niece and nephew recently moved in with me. I became aware of my niece's situation last June. We had gone to the beach for the...

Created By: IamCeci | 2017-01-16 10:04 | 0 Comments

What are the rules regarding the Americans with Disabilities Act and strobe lights? My daughter, who has photosensitive epilepsy, wanted to go roller skating with her Girl Scout troop. The roller...

Created By: trinityrfrano | 2017-01-15 21:13 | 1 Comment

My son will be 18 soon and was diagnosed in July after his third grand mal. Medication seems to control well but he has had 5 since. Either due to forgotten medication or lack of proper sleep or...

Created By: REH214 | 2017-01-07 23:55 | 1 Comment

I brought my 4 year old daughter home from the hospital today. She had three grand mal seizures on Thursday. She had a previous history of absence seizures from March of 2015, right after she...

Created By: Lost1983 | 2017-01-05 14:34 | 1 Comment

Hi,

New to the forum but I need some help.
My other half suffers from epilepsy and when he has seizures my anxiety levels shoot through the roof.
I lose my appetite any small...

Created By: akmals02 | 2017-01-05 11:42 | 0 Comments

my daughter Maddy, 12 was diagnosed with Absence epilepsy two years ago. For years we just thought she wasn't paying attention and wasn't focused. When we found out she had epilepsy and...

Created By: Kbaer | 2016-12-29 03:38 | 0 Comments

My son (3) has been on keppra for 10 months now for febrile seizures. Since starting the medication he does not sleep through the night he will wake at 2 or 3 in the morning and seems fully awake...

New
Created By: Cedwards12 | 2016-12-19 22:24 | 1 Comment

HI, my 12 year old daughter was recently diagnosed with Simple Partial Epilepsy. I'm nervous all of her EEG's have not shown significant activity only slowing of the brain waves in her...

Created By: Grod | 2016-12-19 01:37 | 0 Comments

Hi,
I'm new to this site and just a father looking for answers. Recently my 15 year old son had his first seizure doing a workout for football at his high school. At first the...

Created By: scoseg | 2016-12-18 21:07 | 0 Comments

Hello,
First post and sincerely appreciate any thoughts, recommendations and advice. I know a formal diagnosis is not possible for a forum but know that many of you are going through the...

Created By: makiyas_mom | 2016-12-15 20:36 | 0 Comments

Hello. my 8 yr old daughter suffers from grand mal seizures that don't occur often but when they due they are very severe and lasts close to an hour. She is currently taking trileptal, keppra...

Created By: Hopefloats75 | 2016-12-14 20:54 | 1 Comment

I haven't been here in years. 10 years ago, I spent a lot of time here when I found my 14 year old daughter having a seizure. I was beyond devastated and here I am again. We have a history...

Created By: mfraterr | 2016-12-12 12:46 | 0 Comments

I am a published author at work on a young adult novel about an epileptic twelve-year-old boy who takes Keppra to prevent seizures and I have several questions regarding this. Can anyone describe...

Created By: Louis-m08 | 2016-12-09 11:58 | 0 Comments

My son has his left occipital lobe missing and has seizures they were partial and have him in keppra he had not had a siezure in two months then suddenly had a seizure that lasted 2 hours started...

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