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Topic: Parents & Caregivers

Created By: tanya.leigh13@gmail.com | 2014-12-14 21:44 | 127 Views | 1 Comment

Our son Garrett was diagnosed with absence seizures a month ago.  He was immediately put on the lowest dose and the seizures have been controlled for a few weeks, which is great.  Before starting...

Created By: dramasign | 2014-12-11 11:30 | 224 Views | 1 Comment

We lost our 26 year old son this past Friday due to complications following a seizure. just looking for any other parents who have had to deal with this.

Created By: Chanchan | 2014-12-08 22:29 | 262 Views | 2 Comments

Hi everyone. I was on this site back in May when my 13 year old son had his first seizure (tonic-clonic). His EEG showed clear eliptiform activity. I decided to hold off on meds in hopes we could...

Created By: yadirtrye | 2014-12-07 21:11 | 139 Views | 0 Comments

Hello 

I am a newby here looking for advice, suggestions, help.. My daughter was diagnosed with birth hypoxic ischemic encephalopathy and took seizure medication until she was 3 years old....

Created By: mammak | 2014-12-07 14:20 | 183 Views | 1 Comment

Hi everyone,

My 9-year-old daughter had her first seizure on Oct. 1, 2013, and her second on Nov. 26, 2014. The second took place in her sleep, and I only knew because I had laid down with...

Created By: heartzlove | 2014-12-06 18:50 | 160 Views | 4 Comments

My daughter had her first seizure at 7,it was the beginning of summer and we were having parties that weekend. She was drinking ssips ice tea juice boxes like they were water, not sleeping and...

Created By: lucidendeavor@aol.com | 2014-12-06 00:09 | 172 Views | 1 Comment

My son had his first Complex Partial seizure at the age of 10. I took him to the neurologist and after lots of testing and a million questions, we knew they stemmed from the left side of his brain...

Created By: virgodoglvr | 2014-12-05 18:07 | 145 Views | 1 Comment

Ok I have a lot going on and I need some help. My daughter was diagnosed with petit mals when she was 6 and they have been controlled on zarontin for 4 years. She started having tonic clonic...

Created By: jacquelinekinton@aol.com | 2014-12-05 13:15 | 380 Views | 1 Comment
Created By: elizabeth7 | 2014-12-05 12:44 | 137 Views | 0 Comments

Hi, my 7 year old has suffered with epilepsy since 5 months of age. She had brain surgery as a baby, things appeared to improve but with her last EEG a lot of subclinical activity showed up, 6...

Created By: StephHowwood | 2014-12-04 14:42 | 182 Views | 0 Comments

My lovely daughter is 3 yo. She has never been much of a sleeper; she woke every 20-30 mins until she was 2 yo. She now often sleeps til 1 or 2 am before waking which seems great to me but most 3...

Created By: kb0602 | 2014-12-03 17:58 | 224 Views | 1 Comment

Hi all,

My son was diagnosed with Epilepsy in August at the age of 15 months.  Long story short, he contracted a very nasty virus that brought out his underlying Epilepsy.  At first, the...

Created By: Missy D | 2014-11-22 14:12 | 181 Views | 1 Comment

hello ... this is my first time connenting with the foundation... hoping to connect with people who are going thru some of the same issues i am...   my 12 alomst 13 year son has had seizures since...

Created By: thavamani86@gmail.com | 2014-11-22 12:10 | 159 Views | 4 Comments

I am new to this forum. My 4 years old son having seizures from past one month.we have discussed with pediatrician he asked us to take EEG.The abnormalities found in the report. It seems like...

Created By: golden99 | 2014-11-21 15:21 | 144 Views | 0 Comments

Hello! I am brand ne to this site! My son who turns 5 next weeks was diagnosed with absence seizures with partial onset back in Oct '13. We did get them under control 3 medications later.... Does...

Created By: retiredwoman620@cfl.rr.com | 2014-11-18 13:44 | 148 Views | 0 Comments

 i have epilepsy, have had it for years, growing up, I had both Petit Mal and Grand Mal seizures, which inveriably got m into so pretty tight spots, over the years, 

  Now I 'm over 50,and...

Created By: wandering1 | 2014-11-17 06:56 | 193 Views | 1 Comment

We have a 4 year old daughter diagnosed with absenc seizures in September 2014 after an abnormal EEG.  She has been taking zarontin, the generic, since then.  I posted previously about the trouble...

Created By: For.My.Son.Miggy | 2014-11-13 12:43 | 154 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: For.My.Son.Miggy | 2014-11-13 12:42 | 106 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: robsaari | 2014-11-12 11:05 | 187 Views | 1 Comment

My wife and I have decided it's time to get a seziure alert dog for our 20 year old. We have started looking but don't want to just pick a random training outfit. Do you have an alert dog? Where...

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