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Topic: Parents & Caregivers

Created By: nycmom | 2015-04-09 12:58 | 249 Views | 0 Comments

I am the parent of a 23 year old daughter who was recently diagnosed with MEAK after 13 years of rigorous testing, consultations with some of the top doctors in the country and many unsuccessful...

Created By: nycmom | 2015-04-09 11:01 | 181 Views | 0 Comments
Created By: brittandkailee@gmail.com | 2015-04-08 17:57 | 270 Views | 0 Comments

I have daughter about to turn two.  She was diagnosed with epilepsy after having many seizures and stopping breathing.  We have noticed a pattern in her seizures; her heart rate goes up really...

Created By: cnwll88 | 2015-04-08 15:15 | 256 Views | 6 Comments

Hi. I was just wanting to share our story and see if anyone can give some advice, or insight that a doctor wouldn't neccessarily think about telling parents that are just having to start dealing...

Created By: smriti22 | 2015-04-02 21:09 | 236 Views | 1 Comment

Hi. I live in the Los Angeles area and was wondering if anyone knew of a pediatric neuropsychologist familar with kids with epilepsy. My son's preschool is insisting I see a developmental...

Created By: tiffany_soergel@yahoo.com | 2015-04-01 17:10 | 208 Views | 0 Comments

Hello, I have a three year old son with epilepsy and CP, immune compromised, and a feeding tube..I live in Ohio and I have contacted everyone that I can think of. The state is telling me that I'm...

Created By: lagbfn@gmail.com | 2015-04-01 15:20 | 249 Views | 1 Comment

My 16 year old daughter was diagnosed late last summer with generalized epilepsy.  She has never had a tonic clonic seizure, only has had myoclonic episodes.  After being on meds for a short time...

Created By: crlanier | 2015-03-31 05:05 | 265 Views | 1 Comment

My 12 yr old daughter is taking Lamictal for her seizures.  She suddenly has become very moody and agitated, which is not her normal personality.  Also, I might add that she had been complaining...

Created By: rgh718 | 2015-03-30 09:56 | 209 Views | 0 Comments

Having some computer issues today please forgive my multiple post. My wife has had epilepsy for about 12 years now at the age of 38(no head trauma). I honestly believe they came about 2 years...

Created By: rgh718 | 2015-03-30 09:09 | 147 Views | 0 Comments
Created By: rgh718 | 2015-03-30 09:09 | 149 Views | 0 Comments
Created By: lisastaubly | 2015-03-30 00:49 | 270 Views | 2 Comments

Help! my son mri says he has cortical dysplaisa 2b with ballon cells. he's 2 1/2. what is prognois for this. he hasn't had seziues to my knowledge. 

Created By: andie.ballard@gmail.com | 2015-03-29 19:49 | 275 Views | 0 Comments

My daughter is 5, and caught the stomach virus. Apparently this was the "perfect storm" and on the second day she had a seizure. I was able to record just under 2 minutes (of more than 5) of it...

Created By: srubin81 | 2015-03-27 19:50 | 316 Views | 1 Comment

I am a pre-school teacher who has grand mal seizure that come on with very little or no notice. I have a very supportive administration. However, I am looking for suggestions where I would be able...

Created By: Rnole84 | 2015-03-27 13:54 | 270 Views | 0 Comments

Hi, my 6 week old daughter was recently diagnosed with focal seizures, she is currently on Topamax.  I am just learning about epilepsy.  We are unsure if she has any cognitive delays as of now,...

Created By: paffsew@yahoo.com | 2015-03-17 14:01 | 246 Views | 1 Comment

 

When caring for family members with epilepsy this is always a concern. I have to become a house hold investigator in a way. Always test to see witch chemical are right to bring into the...

Created By: paffsew@yahoo.com | 2015-03-17 13:36 | 204 Views | 0 Comments

When caring for family members with epilepsy this is always a concern. I have to become a house hold investigator in a way. Always test to see witch chemical are right to bring into the household...

Created By: christy1982 | 2015-03-16 22:02 | 319 Views | 0 Comments

My son is in 1st grade and he has primary generalized epilepsy and he has a 3 year old sister with autism.  He has had epilepsy since he was 4 months old.  It really didnt "effect" his life much...

Created By: milwrite | 2015-03-16 17:24 | 269 Views | 0 Comments

Hi everyone.

I am the mother of a 22 year old young man who was born with Early Myoclonic Encephalopathy Syndrome. It is a catastrophic infantile epilepsy with an average lifespan of 2...

Created By: crlanier | 2015-03-14 06:48 | 233 Views | 1 Comment

My 12 yr old daughter has complex partial seizures.  She has many symptoms of Aspergers.  Is it necessary to seek a professional diagnosis?  I realize getting a diagnosis for Aspergers would not...

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