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Topic: Parents & Caregivers

Created By: tobins_mom | 2015-04-21 22:28 | 364 Views | 4 Comments

My son had his first seizure in November 2014 and we were eventually sent home told that it was most likely a fluke. When his seizures continued he was eventualy started on Keppra but they still...

Created By: zion_hazel | 2015-04-18 18:56 | 260 Views | 2 Comments

hi my son zion had a seizure 8 weeks ago and they didnt put him on any medicine .they just gave him ipubrofen bc he gained a fever while having a seizure .HE DID NOT HAVE ONE BEFORE THE...

Created By: Jenny P | 2015-04-18 07:30 | 212 Views | 2 Comments

Hi, my 4 yr. old son doesn't talk at this time due to ADEM, lesions in the brain.  Before ADEM, he was articulate and spoke very well. 

Currently, he's on Topomax and is drowsy, sluggish...

Created By: Adutruch | 2015-04-16 23:53 | 319 Views | 1 Comment

 

Hi, I am new so please be patient. My 7 year old was diagnosed with epilepsy a few months ago and he is taking lamictal. He is developmentally delayed and has also been diagnosed with...

Created By: AngelaVA | 2015-04-16 17:32 | 265 Views | 1 Comment

My daughter has complex partial and secondary generalized seizures.  Twice in the last week she has asked me "Did I just have a seizure?" and she does seem very sleepy afterwards which is her...

Created By: Cbbaylis | 2015-04-14 22:15 | 303 Views | 3 Comments

My son 9 months old. He weighs 14 lbs. He's been on keppra since he was 4 1/2 months old. He started at 1ml then was upped to 1.5, 2, 2.5, and now 3ml. We went to the pharmacy today to pick up...

Created By: BlueSky87 | 2015-04-14 15:00 | 283 Views | 3 Comments

My 3.5 year old has been really scaring me lately, and I just don't know what to think about it. I know it could maybe be night terrors...but I am also worried it might be some form of seizures. I...

Created By: lesliekay81 | 2015-04-13 17:31 | 395 Views | 1 Comment

My son is 19 months old and started having complex partial seizures at 11 months (August 2014).  His seizures are the result of a stroke he suffered very early on in utero.  He has mild muscle...

Created By: Brenden06 | 2015-04-13 16:21 | 237 Views | 0 Comments

 

My 8 year old son has a generized seizure disorder.   He currently takes 150 mg of lamictal twice daily and 2ml of keppra twice daily ( was originally 3.5ml twice daily).    He has been...

Created By: Holly Marie | 2015-04-12 20:52 | 230 Views | 3 Comments

Hi everyone,

We are looking for advice/experiences with myoclonic absence epilepsy especially in children under 5.  Our daughter who is a twin and almost four years old experienced her...

Created By: jmoffitt09 | 2015-04-10 15:39 | 268 Views | 2 Comments

Hello all,

I am new to learning about seizures.  My daughter who is 23 months old had her first and only seizure on 2/28.  She woke up early in the morning seizing, unresponsive, rigid body...

Created By: nycmom | 2015-04-09 12:58 | 272 Views | 0 Comments

I am the parent of a 23 year old daughter who was recently diagnosed with MEAK after 13 years of rigorous testing, consultations with some of the top doctors in the country and many unsuccessful...

Created By: nycmom | 2015-04-09 11:01 | 206 Views | 0 Comments
Created By: brittandkailee@gmail.com | 2015-04-08 17:57 | 294 Views | 0 Comments

I have daughter about to turn two.  She was diagnosed with epilepsy after having many seizures and stopping breathing.  We have noticed a pattern in her seizures; her heart rate goes up really...

Created By: cnwll88 | 2015-04-08 15:15 | 281 Views | 6 Comments

Hi. I was just wanting to share our story and see if anyone can give some advice, or insight that a doctor wouldn't neccessarily think about telling parents that are just having to start dealing...

Created By: smriti22 | 2015-04-02 21:09 | 267 Views | 1 Comment

Hi. I live in the Los Angeles area and was wondering if anyone knew of a pediatric neuropsychologist familar with kids with epilepsy. My son's preschool is insisting I see a developmental...

Created By: tiffany_soergel@yahoo.com | 2015-04-01 17:10 | 229 Views | 0 Comments

Hello, I have a three year old son with epilepsy and CP, immune compromised, and a feeding tube..I live in Ohio and I have contacted everyone that I can think of. The state is telling me that I'm...

Created By: lagbfn@gmail.com | 2015-04-01 15:20 | 271 Views | 1 Comment

My 16 year old daughter was diagnosed late last summer with generalized epilepsy.  She has never had a tonic clonic seizure, only has had myoclonic episodes.  After being on meds for a short time...

Created By: crlanier | 2015-03-31 05:05 | 295 Views | 1 Comment

My 12 yr old daughter is taking Lamictal for her seizures.  She suddenly has become very moody and agitated, which is not her normal personality.  Also, I might add that she had been complaining...

Created By: rgh718 | 2015-03-30 09:56 | 230 Views | 0 Comments

Having some computer issues today please forgive my multiple post. My wife has had epilepsy for about 12 years now at the age of 38(no head trauma). I honestly believe they came about 2 years...

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