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Topic: Parents & Caregivers

Created By: Neda T | 2015-10-09 16:48 | 163 Views | 1 Comment

My son was diagnosed with Benign Epilepsy of Childhood with Rolandic Spikes when he was 7. His initial seizures were some of the scariest moments in my life, and after we got the diagnosis and...

Created By: traceymac | 2015-10-09 13:07 | 128 Views | 0 Comments

Hi,  My daughter has been seizure free for 8 years.  She had a grand mal seizure Sunday night right as she began to fall asleep.  She (nor I) can sleep - she is afraid to fall asleep.    She wants...

Created By: JennyS1 | 2015-10-09 10:50 | 118 Views | 0 Comments

Hi all,

I have temporal lobe epilepsy with complex partial seizures (with the odd grand mal) and lots of auras.

It took around 10 years to get properly diagnosed and I was...

Created By: momo8750 | 2015-10-08 22:50 | 199 Views | 1 Comment

My little girl Chloe turns 6 on October 30th.  It's supposed to be about birthday parties this month.  Instead, we went to bed last Friday and was awoken by an awful noise coming from her bedroom...

Created By: Borgesano | 2015-10-06 22:58 | 102 Views | 1 Comment

Hello,

I've been having the occasional grand mal seizure for about eight years now. This last time I had one I have some new issues that I'm not familiar with. I was in the kitchen and had...

Created By: jotting | 2015-10-05 17:05 | 188 Views | 4 Comments

I do not understand what is happening to me.  At 3 years old it was the Autism label which I greeted with a smile and had fun with my kiddo making visual schedules, tons of therapy, IEP meetings, ...

Created By: momofboyz | 2015-10-05 13:40 | 124 Views | 2 Comments

My 6 year old son was started on 4ml a day of ethosuximide on Tuesday, September 29th.  Saturday, October 3rd he developed a fever and a cough; his fever reached a high of 103.4 on Sunday.  I...

Created By: Stephanie84 | 2015-10-05 07:50 | 86 Views | 1 Comment

Hey everyone my name is Stephanie and my husband, daughter and step daughter all have juvenile myoclonic epilepsy. I would like to do a walk next month in my area but don't know how to go about...

Created By: Cmayne69 | 2015-10-04 20:33 | 134 Views | 2 Comments

Hi everyone I'm new to everything around here, my now 1 year old son was just recently diagnosed with epilepsy he had his first seizure may 28(8 months old) and 5th September 13th and he started...

Created By: Kristen614 | 2015-10-02 14:46 | 121 Views | 2 Comments

My daughter is now 7 and had her first seizure at 5 and we are on our third medicine change. She is now on Lamictal and so far it has been keeping the seizures at bay. I was just wondering if any...

Created By: rysmom8821 | 2015-09-30 08:25 | 228 Views | 0 Comments

Does anyone have any experience with Accutane starting seizures in someone with no previous history of seizures OR making seizures worse in someone with existing seizures? I am considering putting...

Created By: TONY RANA | 2015-09-29 22:38 | 158 Views | 2 Comments

dea all, my daughter 6 years old has been diagnosed as having abasece seizures, doctors have asked to take Zarontine, wondering has any body not taken medication and managed this condition, as...

Created By: Footballmommy34 | 2015-09-28 21:46 | 156 Views | 1 Comment

Hey everyone! My name is Nicole and my beautiful little girl amiyah has been having febrile seizures since she's about 7 months old. Now for the past year she's been having these staring spells...

Created By: cindy.lou | 2015-09-27 20:53 | 132 Views | 0 Comments

She's never been sick, never had trauma, never had seizures until August. She's now had three complex partial seizures since August.  Never even had a high fever in her life. 

The only time...

Created By: kelly3 | 2015-09-27 20:38 | 131 Views | 0 Comments

My healthy third year old son had his first seizure while we were driving about a month ago. It lasted for about 8 mins (approx). We took him to the emerency and they did some blood work and said...

Created By: Christina K | 2015-09-27 15:21 | 113 Views | 0 Comments

Would love some advice from you guys.  My son is 5 with a diagnosis of severe autism and very severe learning disability.  He has been unable to focus or engage to even learn the simplest of tasks...

Created By: ttj384 | 2015-09-22 14:29 | 146 Views | 1 Comment

Hi! My son was recently diagnosed with absence seizures. He is 6 years old. His doctor prescribed Ethosuximide(zarontin) and I'm wondering, how well does this medication works? Has any of your...

Created By: mime4jesus | 2015-09-20 12:01 | 144 Views | 2 Comments

A year ago, our six year old son had an eight hour episode of continuous seizures that landed him in the ICU at Yale for a few days.  They put him on Keppra twice a day, and he hasn't had another...

Created By: Lovekaden | 2015-09-18 22:13 | 188 Views | 0 Comments

Hi does anyone know how much genetic testing for epilepsy runs? Ive heard it's very expensive 

Created By: Lovekaden | 2015-09-15 08:23 | 160 Views | 0 Comments

Hello my son is almost 4 and has been diagnosed with epilepsy for a little over a year now..for the past two months he's been having a seizure mainly non convulsive every week but he has had two...

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