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Topic: Parents & Caregivers

Created By: PhiltheDad | 2015-11-14 05:00 | 153 Views | 0 Comments

Another wave of seizures tonight for my D. Back in the hospital. Just short of status epilepticus. Dose of ativan is the only thing slowing it all down. I'm half a continent away. Flying in a few...

Created By: wawadehut | 2015-11-10 09:30 | 193 Views | 3 Comments

First a little background:  My daughter (10) has been through a variety of medications in the five years since she started having absence seizures.   She still has a number of...

Created By: PhiltheDad | 2015-11-09 06:56 | 172 Views | 2 Comments

But this time it's worse. 

We are into year 7 with this.  Our daughter is now in college (a good thing) but after some years of good control, she has fallen off the wagon.  Several recent...

Created By: Abpie | 2015-11-08 11:05 | 102 Views | 0 Comments

My son has had approximately a dozen episodes that resemble seizures in the last 3 years. He is four. They occur when he hurts himself. They last only 10 to 20 second. He typically cries, then...

Created By: cindy.lou | 2015-11-06 19:11 | 109 Views | 1 Comment

6 year old with MRI showing MTS, but the EEG is showing generalized activity.  Does that mean the MTS definitely isn't causing her seizures? 

Created By: emilyb0429 | 2015-11-06 01:50 | 117 Views | 1 Comment

Hi, my 6 mo old was diagnosed about 2 months ago with ADNFLE.  This came after an 11 day NICU stay for seizures.  Luckily my career has given me plenty of experience with seizures.  However, I...

Created By: Ashlee076 | 2015-11-04 11:55 | 123 Views | 1 Comment

My 18 month old daughter has had horrible diarrhea since starting her medication. Coincidentally her 2.5 yr old brother is vomiting from the stomach flu so  i am wondering if anyone experienced...

Created By: poonam | 2015-11-04 05:43 | 133 Views | 2 Comments

Hello Everyone

My 5 year old son has been diagnosed with absence seizures

Doctor had prescribed Depakene for him where we found that seizures had increased

when we went to...

Created By: chaire | 2015-10-29 21:34 | 104 Views | 0 Comments

My son is 5 1/2. He had a perintal stroke, which caused damage to the right temporal lobe of his brain; PET also confirmed his left dorsal thalamus is not functioning properly. He has autism,...

Created By: Wterry | 2015-10-28 23:57 | 139 Views | 1 Comment

We have a 6 year old taking ethosumuxside 250ml twice a day. Seizure free for 3 years. We go next month for overnight EEG, if results are still good, weaning medication will be discussed(as told...

Created By: jotting | 2015-10-28 14:37 | 109 Views | 0 Comments

Has anyone used anything like My IHR or any of those other digital medical record services?  My understanding is that you create the online account and provide all the pertinent medical data to...

Created By: aparente001 | 2015-10-26 22:51 | 135 Views | 2 Comments

Hi, I tutor my friend's child in math, as a volunteer, three times a week.  We'll call my friend M., and her child A.  A. has epilepsy and is ten years old.  He has been struggling in math in...

Created By: jotting | 2015-10-22 14:16 | 170 Views | 6 Comments

So we did the MRI and that came back with no obvious abnormalities in the brain.  That's terrific news!  Not dealing with cancer or a brain mass or anything like that.  However, when he woke up...

Created By: Cam's Mom | 2015-10-20 10:19 | 163 Views | 4 Comments

Hello. My 9 year old son was diagnosed with Absence Seizures about 1.5 months ago. He's currently on medication and seems to be doing well (despite the side effects). He's very active in baseball...

Created By: Momofteenboy75 | 2015-10-19 16:34 | 150 Views | 2 Comments

Hello,

My son was diagnosed with epilepsy at the age of 6 years old, which was very hard for me to handle and accept at first. As we started the doctor visits, the dr had me hopeful he...

Created By: Miss | 2015-10-15 16:47 | 180 Views | 6 Comments

Hi, my son had his first seizure at 6 months of age. It was chalked up to a febrile seizure and we moved on. When he was 11 months old, he had a cluster of seizures that resulted in us being...

Created By: jotting | 2015-10-14 10:42 | 145 Views | 2 Comments

We are building a home in the near future and now knowing that my 8 year old has seizures (which have been tonic in nature in their most extreme form) I thought what an awesome opportunity to...

Created By: nelliepers | 2015-10-13 09:34 | 147 Views | 4 Comments

My son became epiletic at the age of ten he Is now 21 and on oct the 6th after being absent from his meds for about one week (depakote er) he had a grand mal seizure playing basketball. I had been...

Created By: kristicain12@gmail.com | 2015-10-12 11:05 | 178 Views | 2 Comments

Before I start, I need to disclose that my daughter did not have a "life sentence" diagnosis, her age of onset was not after puberty, and there are no incurable physical issues with her brain to...

Created By: Uzumay | 2015-10-11 20:27 | 103 Views | 5 Comments

Hello, the basis for my posting here is to see if anyone has more information on this. I was diagnosed with Adhd at the age of 5 ( i am now 36). For as long as I can remember I have had moments of...

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