Topic: Parents & Caregivers

Created By: Ksmama211 | 2016-03-21 22:41 | 227 Views | 0 Comments

My son, Kian, just turned 2 last month. He had his first fever seizure at 11 months old. It came out of no where and he stopped breathing during it. As I am sure other parents can imagin, it was...

Created By: momtothree | 2016-03-18 23:03 | 248 Views | 0 Comments

Hello,

I am trying to understand what simple partial seizures are. What is the difference between a simple partial and an aura? Are they the same? My 2.5 year old son showed signs of...

Created By: Aceking | 2016-03-18 08:50 | 156 Views | 0 Comments

My 18 month old son is being tested for petit mal seizures, he was asleep when they did the strobe part but from the 2nd lot of flashes his arms and legs started shaking (not like a startle reflex...

Created By: TropicalSerenade | 2016-03-17 17:02 | 200 Views | 2 Comments

Hi everyone,

My son's case is unusual and complicated, but I figured I'd post this somewhere where I have the chance of finding someone with some knowledge/experience. My 7 year...

Created By: Jule25 | 2016-03-16 18:54 | 217 Views | 0 Comments

My 3 1/2 year old son was just diagnosed with epilepsy this past Sunday. He has had 3 tonic clonic seizures since December 26 2015 so in the last 3 months. Prior to that he is/was a healthy strong...

Created By: rajkumarpb | 2016-03-16 03:10 | 195 Views | 0 Comments

My son is a month shy of his 3rd birthday. So far no milestones achieved, not even neck holding! We have been trying different drugs over past 2 years with out current neuro(before him couple of...

Created By: Spuds_a | 2016-03-06 20:12 | 242 Views | 1 Comment

I do not know how to write this but I do know that I am struggling with the uncertainty of epilepsy. I have identical twin daughters ,Allie and Abbie, and Allie started suffering from tonic...

Created By: silent04211990 | 2016-03-06 03:55 | 157 Views | 0 Comments

Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier understanding I made this video for info/recovery http://youtu.be/...

Created By: Cam's Mom | 2016-03-02 11:54 | 263 Views | 1 Comment

Hello. My son was DX with absence seizures in September 2015. He was put on Ethosuximide after they saw 9 seizures during a 45 minute EEG. After 6 weeks, he had another EEG, which was clean!...

Created By: MariaVR | 2016-03-01 16:50 | 199 Views | 0 Comments

Hello everyone,

My sister has had encephalitis when she was 1yo, which left her with a sever brain damage and a constant epilepsy. We have tried a lot of medications however they do not...

Created By: kazzy99 | 2016-03-01 12:39 | 243 Views | 1 Comment

My son was diagnosed with epilepsy at age 10. He had febrile seizures from 1-3 and also had open heart surgery as an infant. Besides all of that he is like any other kid. I started the blog,...

Created By: maf | 2016-02-27 10:19 | 249 Views | 0 Comments

First post here. If I've missed good info already in the forums on my searches I apologize.

Background:
Our son is 2.5 yr old.
* First grand mal seizure at 2yr2mo in...

Created By: thesunrisesetsatnoon513 | 2016-02-24 12:10 | 174 Views | 6 Comments

hi! I'm new here and though I don't personally have epilepsy, my Dad does... I'm really concerned and confused and I'm just trying to learn a bit about all of this. I have read...

Created By: Lerner | 2016-02-17 14:02 | 216 Views | 1 Comment

So my nephew (15) has recently been getting these flashes of lights in his eyes lasting maybe a minute or so and then he just moves along tp whatever he was doing.    He was recently at the...

Created By: Tracey Lumley | 2016-02-13 04:34 | 218 Views | 1 Comment

Thanks for reading firstly. I am a mum from the UK with 4children. My eldest daughter (14) has been suffering hugely for over a year with 'headache/migraines' and after a long wait finally got to...

Created By: Love_My_Boxer_Girls | 2016-02-11 18:49 | 231 Views | 0 Comments

I am a new to epilepsy momma. I have three children, and one has epilepsy, another has multiple special needs. I am getting ready to do a training forum for first reponders, about what to expect...

Created By: kurehahime | 2016-02-07 14:34 | 895 Views | 0 Comments

Since my son's last seizure during his sleep, we purchased basis(like fitbit) to monitor or better understand his sleep pattern.
My son is 7 but also has CP. Although he is verbal and can...

Created By: mereloaded | 2016-02-07 09:04 | 305 Views | 2 Comments

 

 

Hello fellow parents, contributors and patients. Just wanted to provide an update for everyone that is so kind to read and ask about my son. My son was eligible for med....

Created By: FeelSunny | 2016-02-02 16:10 | 233 Views | 0 Comments

Hello, My name is Yena and I have a six years old girl with epilepsy. She had six episodes so far since she was two and a half years old. Every time when her seizure kicks in, it interferes with...

Created By: agattka5 | 2016-02-02 04:10 | 195 Views | 0 Comments

Hi, my 9 years old son has dnet.He is after a surgery, with seizures. I'm from Poland. Is there anyone with experience with dnet? 

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