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Topic: Parents & Caregivers

Created By: Toastita | 2015-05-07 15:10 | 241 Views | 0 Comments

I have a new positions called Pediatric Epilepsy Patient Navigator.  I work with parents who's children have been recently diagnosed with seizures.  I would appreciate any suggestions or...

Created By: mommyLeBay | 2015-05-06 18:28 | 202 Views | 1 Comment

My daughter is 14 months old. She had an eeg that showed seizure activity on the right side of her brain and since she was admitted for having possible seizures they put her on keppra immediately...

Created By: kerausmommy | 2015-05-06 02:35 | 216 Views | 0 Comments

I am interested in hearing experiences with infants. What kind of seizures did he/she have? If  they were more subtle seizures, how did they act? Crying, jerking, etc.? Did it affect their overall...

Created By: Dinessa1013 | 2015-05-05 22:03 | 175 Views | 0 Comments

Hello I am new to this website my four year old son was diagnosed with epilepsy at age 1 after a 45 min long seizure I am concerned its been three days he's been complaining of headaches an waking...

Created By: Laughandluv@q.com | 2015-05-05 17:53 | 172 Views | 0 Comments

My daughter just fractured her wrist. Last year she fractured her other wrist. She has been seizure free with Depakote for almost 6 years now. Should I be concerned about bone density problems or...

Created By: kerausmommy | 2015-05-03 23:05 | 296 Views | 3 Comments

Hi everybody!

I am new here. Our son started having seizures at 5 days old. He had an abnormal EEG and was put on medication until he was 6 months old after a normal EEG. At 8 months he...

Created By: Lovley44 | 2015-04-30 12:26 | 209 Views | 2 Comments

Hello my daughter was diagnosed with absence, drop, and just recently shes been partial full on seizures that last about 3mins. When she was first diagnosed it was just the absence seizures she...

Created By: marialenar | 2015-04-28 19:05 | 235 Views | 1 Comment

This is all new to me.  My four year old for the past year has had daily numerous "events", although which were suspected to be seizures, were not diagnosed until yesterday on her EEG during a...

Created By: motian77 | 2015-04-27 16:26 | 264 Views | 1 Comment

My 10 year old daughter was recently diagnosed with Complex Partial Seizures. For the last year she was have "anxiety" attacks at odd random times. She also has mild ADHD and I thought maybe this...

Created By: momof2girls | 2015-04-26 22:41 | 222 Views | 0 Comments

My 8 year old was diagnosis with Absence seizures 3 years ago, also ADHD, and hypothyroidism. Since kindergarten she has struggled in school, so after a lot of test they...

Created By: Lixina | 2015-04-24 22:09 | 166 Views | 0 Comments

I'm doing a survey on how IQ is related to a child's temperament, and I'm looking for kids at both extremes of IQ - gifted and cognitively impaired. Parents are welcome to participate regardless...

Created By: tobins_mom | 2015-04-21 22:28 | 344 Views | 4 Comments

My son had his first seizure in November 2014 and we were eventually sent home told that it was most likely a fluke. When his seizures continued he was eventualy started on Keppra but they still...

Created By: zion_hazel | 2015-04-18 18:56 | 234 Views | 2 Comments

hi my son zion had a seizure 8 weeks ago and they didnt put him on any medicine .they just gave him ipubrofen bc he gained a fever while having a seizure .HE DID NOT HAVE ONE BEFORE THE...

Created By: Jenny P | 2015-04-18 07:30 | 194 Views | 2 Comments

Hi, my 4 yr. old son doesn't talk at this time due to ADEM, lesions in the brain.  Before ADEM, he was articulate and spoke very well. 

Currently, he's on Topomax and is drowsy, sluggish...

Created By: Adutruch | 2015-04-16 23:53 | 299 Views | 1 Comment

 

Hi, I am new so please be patient. My 7 year old was diagnosed with epilepsy a few months ago and he is taking lamictal. He is developmentally delayed and has also been diagnosed with...

Created By: AngelaVA | 2015-04-16 17:32 | 247 Views | 1 Comment

My daughter has complex partial and secondary generalized seizures.  Twice in the last week she has asked me "Did I just have a seizure?" and she does seem very sleepy afterwards which is her...

Created By: Cbbaylis | 2015-04-14 22:15 | 281 Views | 3 Comments

My son 9 months old. He weighs 14 lbs. He's been on keppra since he was 4 1/2 months old. He started at 1ml then was upped to 1.5, 2, 2.5, and now 3ml. We went to the pharmacy today to pick up...

Created By: BlueSky87 | 2015-04-14 15:00 | 262 Views | 3 Comments

My 3.5 year old has been really scaring me lately, and I just don't know what to think about it. I know it could maybe be night terrors...but I am also worried it might be some form of seizures. I...

Created By: lesliekay81 | 2015-04-13 17:31 | 313 Views | 1 Comment

My son is 19 months old and started having complex partial seizures at 11 months (August 2014).  His seizures are the result of a stroke he suffered very early on in utero.  He has mild muscle...

Created By: Brenden06 | 2015-04-13 16:21 | 218 Views | 0 Comments

 

My 8 year old son has a generized seizure disorder.   He currently takes 150 mg of lamictal twice daily and 2ml of keppra twice daily ( was originally 3.5ml twice daily).    He has been...

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