Topic: Parents & Caregivers

Created By: Hanbanan | 2016-11-16 10:27 | 0 Comments

My six year old has been switching from Trileptal to Keppra. He is almost completely on Keppra now, but he has constant stomach pain. It is hard to distract him from it. It I should also...

Created By: notmyly | 2016-11-15 16:01 | 1 Comment

My son is almost 15 and his seizures started almost two and a half years ago and was first diagnosed with partials. Now it's generalized seizures. He is currently on 2000 mg of Xr Keppra. Up...

Created By: Christinap1921 | 2016-11-15 10:31 | 0 Comments

My name is christina and I've just been diagnosed with epilepsy in my adulthood. I had 2 back to back grand mal and a bunch of petit mals in between and while I slept. On the ambulance ride I...

Created By: Amedeiros91 | 2016-11-11 23:53 | 1 Comment

So my daughter had been diagnosed by a neurologist with right sided temporal lobe epilepsy and since we switched to a epilepsy specialist in Boston there some confusion about if she really is...

Created By: rwolfe618 | 2016-11-11 11:46 | 0 Comments

Hi there. We are new to the group, as my daughter (6 months old) was just diagnosed with epilepsy last week after two focal onset seizures. I was wondering if anyone has experience with the...

Created By: Amedeiros91 | 2016-11-09 22:07 | 1 Comment

So my 3 year old daughter was diagnosed with temporal lobe epilepsy at 2 by a neurologist and since then we switched to a epilepsy dr in Boston. Since the seizures started they worsened when we...

Created By: jj_b32 | 2016-11-08 19:08 | 1 Comment

My 2.5 yo has about 5-15 genrealized myoclonic seizures a day. The past few days we have started noticing that she covers both of her ears with her hands after she has one and sort of retreats...

Created By: Hanbanan | 2016-11-07 11:31 | 1 Comment

My six year old son has epilepsy, and has been on Trileptal for a month and a half. His EEG results while on meds showed no improvement over the one when he was not on meds. He also had horrible...

Created By: Shanna J | 2016-11-05 22:50 | 1 Comment

This is our first time change to experience while on keppra. If my son normally takes his medicine at 7:15 am/pm, is it important that I give it to him at 6:15 in the morning?

Created By: Andrew JB | 2016-11-03 15:27 | 0 Comments

Our 9 year old son's tonic/clonic seizures have stopped. He is having symptoms of terribly irritability, agitation, is hitting and pinching, can't concentrate and doesn't want to...

Created By: KKemp | 2016-10-31 12:31 | 1 Comment

Hello,
My son is three years old and was diagnosed with myoclonic epilepsy. He does not lose consciousness but bangs his face and head off of everything. He constantly has nose bleeds,...

Created By: TJP1214 | 2016-10-24 12:12 | 19 Comments

Hello all. My son is almost 16, has had seizures for over 10 years now starting when he was 5. He was on Trileptal and seizure free for years. Puberty hit and there were some breakthroughs, and...

Created By: clmiller3 | 2016-10-21 20:10 | 0 Comments

We've had a rough road for past 1 1/2 yrs since my daughter's temporal lobe epilepsy became intractable. She's a soph in HS, great student, but struggling more this year - sclerosis...

Created By: tobin | 2016-10-21 13:00 | 1 Comment

my son who has grande mal seizures is on 30 mg of onfi..it makes him groggy and depressed > he is also on a small amount of lamictal. He is 21 years old. we have added 25 mg of cbd oil per...

Created By: Holly Marie | 2016-10-11 19:43 | 1 Comment

Hi there,

Has anyone tried acupuncture for the treatment of epilepsy? I have a five year old with absence and myoclonic seizures currently taking five meds twice a day without seizure...

Created By: josiern11 | 2016-10-08 01:10 | 0 Comments

Hello, my 9 year old has had 3 seizures since august all about 4 weeks apart. Its completely new as there is no family history, she doesn't have any medical issues, and they were not...

Created By: moffitt.laura@gmail.com | 2016-10-05 13:41 | 2 Comments

My daughter had her first big seizure a month ago. Yesterday she had an eeg to help us try to determine what was going on. During the eeg she was blowing on a pin wheel. She seemed to zone out...

Created By: joanna_ID | 2016-09-29 22:43 | 0 Comments

Hi. My brother has epilepsy, and I saw everything he was going through when he was having seizures. I'm trying to design a product to increase safety for epilepsy and prevent injuries during...

Created By: Evelyn Rangel | 2016-09-28 16:42 | 2 Comments

My daughter is 16 years old and she was diagnosed with Juvenile Myoclonic Epilepsy almost one year ago. She is taking Keppra.

She had one grand mal seizure in November 2015, another in...

Created By: AudreyCallahan | 2016-09-25 06:34 | 4 Comments

Hello,

I have a 12 year old daughter who was diagnosed 2 years ago with Absence Juvenile Epilepsy. She has tried 7 different medications over the past 2 years and is currently on a...

Pages