Topic: Parents & Caregivers

Created By: Shanna J | 2016-11-05 22:50 | 1 Comment

This is our first time change to experience while on keppra. If my son normally takes his medicine at 7:15 am/pm, is it important that I give it to him at 6:15 in the morning?

Created By: Andrew JB | 2016-11-03 15:27 | 0 Comments

Our 9 year old son's tonic/clonic seizures have stopped. He is having symptoms of terribly irritability, agitation, is hitting and pinching, can't concentrate and doesn't want to...

Created By: KKemp | 2016-10-31 12:31 | 1 Comment

Hello,
My son is three years old and was diagnosed with myoclonic epilepsy. He does not lose consciousness but bangs his face and head off of everything. He constantly has nose bleeds,...

Created By: TJP1214 | 2016-10-24 12:12 | 19 Comments

Hello all. My son is almost 16, has had seizures for over 10 years now starting when he was 5. He was on Trileptal and seizure free for years. Puberty hit and there were some breakthroughs, and...

Created By: clmiller3 | 2016-10-21 20:10 | 0 Comments

We've had a rough road for past 1 1/2 yrs since my daughter's temporal lobe epilepsy became intractable. She's a soph in HS, great student, but struggling more this year - sclerosis...

Created By: tobin | 2016-10-21 13:00 | 1 Comment

my son who has grande mal seizures is on 30 mg of onfi..it makes him groggy and depressed > he is also on a small amount of lamictal. He is 21 years old. we have added 25 mg of cbd oil per...

Created By: Holly Marie | 2016-10-11 19:43 | 1 Comment

Hi there,

Has anyone tried acupuncture for the treatment of epilepsy? I have a five year old with absence and myoclonic seizures currently taking five meds twice a day without seizure...

Created By: josiern11 | 2016-10-08 01:10 | 0 Comments

Hello, my 9 year old has had 3 seizures since august all about 4 weeks apart. Its completely new as there is no family history, she doesn't have any medical issues, and they were not...

Created By: moffitt.laura@gmail.com | 2016-10-05 13:41 | 2 Comments

My daughter had her first big seizure a month ago. Yesterday she had an eeg to help us try to determine what was going on. During the eeg she was blowing on a pin wheel. She seemed to zone out...

Created By: joanna_ID | 2016-09-29 22:43 | 0 Comments

Hi. My brother has epilepsy, and I saw everything he was going through when he was having seizures. I'm trying to design a product to increase safety for epilepsy and prevent injuries during...

Created By: Evelyn Rangel | 2016-09-28 16:42 | 2 Comments

My daughter is 16 years old and she was diagnosed with Juvenile Myoclonic Epilepsy almost one year ago. She is taking Keppra.

She had one grand mal seizure in November 2015, another in...

Created By: AudreyCallahan | 2016-09-25 06:34 | 4 Comments

Hello,

I have a 12 year old daughter who was diagnosed 2 years ago with Absence Juvenile Epilepsy. She has tried 7 different medications over the past 2 years and is currently on a...

Created By: Albertamom | 2016-09-24 10:58 | 0 Comments

My six year old son had his first seizure at 4. After trying tegretol (caused more seizures), clobazam, valproic acid and lamotrigine with no long term results (no more than a few months seizure...

Created By: JmomOP | 2016-09-21 16:32 | 0 Comments

My daughter's neurologist said she was having generalized spike and wave discharges but not seizures on the EEG. She has a history of absence seizures. The EEG states:

Dysrhythmia...

Created By: littleguppyjax0118 | 2016-09-20 23:02 | 3 Comments

Hi everyone. So my son doesn't have an official diagnosis as of yet but the doctors seem headed that way. So yesterday he had a very bad migraine and said he couldn't walk and would lay...

Created By: ckiekens85@yahoo.com | 2016-09-20 22:39 | 2 Comments

ok so almost a year ago in October I found out my oldest who was 8 now 9 was having absence seizures. In November of last year I then found out that my youngest daughter who was 5 now 6 is having...

Created By: AngelicRose | 2016-09-20 18:54 | 1 Comment

Hello,
I have written here before but every time I make a account it say's password wrong/email don't exist so sorry If I don't reply but I am reading them and hopefully this...

Created By: purple4myson | 2016-09-17 18:32 | 1 Comment

My 11 yr old son says that he feels like an earthquake is in his brain and that he feels like his brain is "playing tricks on him" when he has a seizure. Has anyone ever heard of this?...

Created By: sandy flores m | 2016-08-31 10:19 | 0 Comments

Hello First time posting,I have a 4 year old boy that started having SZ. 3 years ago.

He has been drug resistance ,so far we have tried over 10 meds.
he is on lamictal 100mg morning...

Created By: Wendy_Larson | 2016-08-30 20:13 | 0 Comments

My mom rocks! I had a rough time in high school when I was seizing often. I almost gave up. Here's our story, and a message to parents and caregivers alike. You can make a difference! Be...

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