Topic: Parents & Caregivers

Created By: Holly Marie | 2016-08-23 23:29 | 2 Comments

Hi everyone,

Our doctor suggested the low glycemic index diet for our 5 year old daughter. We met with the nutritionist and I left a bit confused. I think overwhelmed with this change as...

Created By: kmaness | 2016-08-23 01:47 | 1 Comment

My 45 yo brother has epilepsy and cognitive impairment as well. In recent years, when he gets sick (e.g. viral infection, etc.), he frequently loses control of his body. What I mean is that he has...

Created By: Anurodh78 | 2016-08-22 06:24 | 1 Comment

Hi All,

I deeply appreciate your inputs as I am new & entering in to the ring of the world of this forum.

My 2.6 years old daughter had a GCTS on July 6, post which she...

Created By: nicki604 | 2016-08-20 12:16 | 1 Comment

So things are still crazy but not as bad. Phoebe just had an eeg not this past week but the week before and was there from mon morning through Friday early morning. She I think has been having...

Created By: acberka | 2016-08-16 16:25 | 2 Comments

Hi everyone, I am very new to this and am not sure if I am even in the right place to ask this question. My one year old daughter has been having multiple seizures since April, they haven't...

Created By: RickU | 2016-08-15 21:51 | 0 Comments

Has anyone had any issues with a child getting hurt if they have a seizure while their arm or leg is poking through the bars of a crib or enclosed bed? Our daughter has a genetic condition that...

Created By: Iceq | 2016-08-15 07:12 | 1 Comment

My son had a first time seizure after 12 months vaccination. He was asleep peacefully and all the sudden started seizing, it lasted over 40mins and the rescue medicine applied in the ambulance and...

Created By: Cassie4488 | 2016-08-12 17:40 | 1 Comment

My son had his first seizure in April when he had some sort of a bug and had a fever. It was first dismissed by the hospital as a febrile seizure until he had two more in the hospital. They had to...

Created By: Cassie4488 | 2016-08-12 16:08 | 1 Comment

My son had his first seizure in April when he had some sort of a bug and had a fever. It was first dismissed by the hospital as a febrile seizure until he had two more in the hospital. They had to...

Created By: JBarker | 2016-08-11 12:06 | 0 Comments

So my 7yr old son has memory loss more so during the school year when he is under more stress. He has reading and writing difficulties. He only has seizures we can see and where we call 911 about...

Created By: CruzDad | 2016-08-11 10:55 | 1 Comment

My three year old son, Cruz, was diagnosed with epilepsy yesterday after having two tonic clonic seizures the day before. He first had a series of myoclonic seizures starting 03JUL2016. His EEG...

Created By: harlan.stephens | 2016-08-11 00:34 | 2 Comments

Our son has had breakout seizures lately due to non compliance with meds and lifestyle. He insists he can drive but we tell him no and he gets angry and defensive. We told him we want him safe but...

Created By: Spuds_a | 2016-08-08 13:13 | 0 Comments

Just an update on my post of daughters with epilepsy

Abbie had her first Tonic Clonic seizure in April so now all three girls have epilepsy. Abbie has had 3 eegs since then and all are...

Created By: Nsawyers | 2016-08-02 12:39 | 0 Comments

I am the mom of a 16 y/o son. He was just diagnosed with a DNET tumor, they found it after he had a seizure. They did put him on keppra and gave his diastat for a emergency. This happen why he was...

Created By: psresearchgal | 2016-07-30 02:33 | 0 Comments

Today my partner suffered 4 massive seizures. She's had them before, but never like this. From a sound sleep she started to thrash like crazy. She usually is somewhat responsive after her...

Created By: Mylittleworld | 2016-07-25 06:00 | 0 Comments

Hello. I'm from Canada and joined this group looking for advice.
My son is 21 months. He's been having seizures since he was 9 months old. First triggered because of a fever, he...

Created By: tchanoine | 2016-07-17 08:10 | 0 Comments

My daughter has had 5 status episodes beginning at 9 months. She has had to be in ICU each time for weeks at a time. We got many second opinions and surgery became an option since the EEG and PET...

Created By: HirdyGirdy | 2016-07-15 04:19 | 1 Comment

Hello newbie here!

Our 9 year old child has just been diagnosed. 5 seizures over the last 2 years (that we know about) - all have been just as awakening and lasted under 5 minutes (jerking...

Created By: Amedeiros91 | 2016-07-13 21:47 | 1 Comment

My 2 1/2 year old has been having seizures with only one abnormal eeg and others coming back normal but is still having tons of what looks like seizures. Anyone have this issue than told by...

Created By: KristenStarr | 2016-07-13 11:12 | 1 Comment

My 5 year old son abruptly started having very audible/noticeable sleep myoclonus a night in March while he was sick with a sinus infection. This included twitching and jerks in his hands, arms...

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