Topic: Parents & Caregivers

Created By: RickU | 2016-08-15 21:51 | 0 Comments

Has anyone had any issues with a child getting hurt if they have a seizure while their arm or leg is poking through the bars of a crib or enclosed bed? Our daughter has a genetic condition that...

Created By: Iceq | 2016-08-15 07:12 | 1 Comment

My son had a first time seizure after 12 months vaccination. He was asleep peacefully and all the sudden started seizing, it lasted over 40mins and the rescue medicine applied in the ambulance and...

Created By: Cassie4488 | 2016-08-12 17:40 | 1 Comment

My son had his first seizure in April when he had some sort of a bug and had a fever. It was first dismissed by the hospital as a febrile seizure until he had two more in the hospital. They had to...

Created By: Cassie4488 | 2016-08-12 16:08 | 1 Comment

My son had his first seizure in April when he had some sort of a bug and had a fever. It was first dismissed by the hospital as a febrile seizure until he had two more in the hospital. They had to...

Created By: JBarker | 2016-08-11 12:06 | 0 Comments

So my 7yr old son has memory loss more so during the school year when he is under more stress. He has reading and writing difficulties. He only has seizures we can see and where we call 911 about...

Created By: CruzDad | 2016-08-11 10:55 | 1 Comment

My three year old son, Cruz, was diagnosed with epilepsy yesterday after having two tonic clonic seizures the day before. He first had a series of myoclonic seizures starting 03JUL2016. His EEG...

Created By: harlan.stephens | 2016-08-11 00:34 | 2 Comments

Our son has had breakout seizures lately due to non compliance with meds and lifestyle. He insists he can drive but we tell him no and he gets angry and defensive. We told him we want him safe but...

Created By: Spuds_a | 2016-08-08 13:13 | 0 Comments

Just an update on my post of daughters with epilepsy

Abbie had her first Tonic Clonic seizure in April so now all three girls have epilepsy. Abbie has had 3 eegs since then and all are...

Created By: Nsawyers | 2016-08-02 12:39 | 0 Comments

I am the mom of a 16 y/o son. He was just diagnosed with a DNET tumor, they found it after he had a seizure. They did put him on keppra and gave his diastat for a emergency. This happen why he was...

Created By: psresearchgal | 2016-07-30 02:33 | 0 Comments

Today my partner suffered 4 massive seizures. She's had them before, but never like this. From a sound sleep she started to thrash like crazy. She usually is somewhat responsive after her...

Created By: Mylittleworld | 2016-07-25 06:00 | 0 Comments

Hello. I'm from Canada and joined this group looking for advice.
My son is 21 months. He's been having seizures since he was 9 months old. First triggered because of a fever, he...

Created By: tchanoine | 2016-07-17 08:10 | 0 Comments

My daughter has had 5 status episodes beginning at 9 months. She has had to be in ICU each time for weeks at a time. We got many second opinions and surgery became an option since the EEG and PET...

Created By: HirdyGirdy | 2016-07-15 04:19 | 1 Comment

Hello newbie here!

Our 9 year old child has just been diagnosed. 5 seizures over the last 2 years (that we know about) - all have been just as awakening and lasted under 5 minutes (jerking...

Created By: Amedeiros91 | 2016-07-13 21:47 | 1 Comment

My 2 1/2 year old has been having seizures with only one abnormal eeg and others coming back normal but is still having tons of what looks like seizures. Anyone have this issue than told by...

Created By: KristenStarr | 2016-07-13 11:12 | 1 Comment

My 5 year old son abruptly started having very audible/noticeable sleep myoclonus a night in March while he was sick with a sinus infection. This included twitching and jerks in his hands, arms...

Created By: Amedeiros91 | 2016-07-11 21:39 | 1 Comment

HELP!! My 2 1/2 year old daughter had her first seizure in February 2016 she started with the rapid blinking staring off wouldn't respond when I talked then fell asleep and woke very confused...

Created By: csawilkens | 2016-07-11 15:22 | 0 Comments

Hi folks,
Our son is 7 months old and has been having seizures for at least two months. At first, we were only seeing tonic-clonics that were suppressed, but not stopped, with Trileptal. He...

Created By: rysmom8821 | 2016-07-08 13:50 | 1 Comment

Does anyone have the name of a good Epileptogist in Newport News, Virginia?

Created By: sroach10 | 2016-07-08 10:53 | 0 Comments

Our 6 year old son (going into 1st grade this coming Fall) was diagnosed with right frontal lobe cortical dysplasia epilepsy when he was 19 months old. His seizures have been controlled off and...

Created By: JessieHornyak | 2016-07-08 07:15 | 2 Comments

Recently a new neurologist looked over our daughter's EEGs and changed her from focal to generalized seizures. She had been on trileptal with no problems but new neuro explained that...

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