Topic: Parents & Caregivers

Created By: moffitt.laura@gmail.com | 2016-10-05 13:41 | 2 Comments

My daughter had her first big seizure a month ago. Yesterday she had an eeg to help us try to determine what was going on. During the eeg she was blowing on a pin wheel. She seemed to zone out...

Created By: joanna_ID | 2016-09-29 22:43 | 0 Comments

Hi. My brother has epilepsy, and I saw everything he was going through when he was having seizures. I'm trying to design a product to increase safety for epilepsy and prevent injuries during...

Created By: Evelyn Rangel | 2016-09-28 16:42 | 2 Comments

My daughter is 16 years old and she was diagnosed with Juvenile Myoclonic Epilepsy almost one year ago. She is taking Keppra.

She had one grand mal seizure in November 2015, another in...

Created By: AudreyCallahan | 2016-09-25 06:34 | 4 Comments

Hello,

I have a 12 year old daughter who was diagnosed 2 years ago with Absence Juvenile Epilepsy. She has tried 7 different medications over the past 2 years and is currently on a...

Created By: Albertamom | 2016-09-24 10:58 | 0 Comments

My six year old son had his first seizure at 4. After trying tegretol (caused more seizures), clobazam, valproic acid and lamotrigine with no long term results (no more than a few months seizure...

Created By: JmomOP | 2016-09-21 16:32 | 0 Comments

My daughter's neurologist said she was having generalized spike and wave discharges but not seizures on the EEG. She has a history of absence seizures. The EEG states:

Dysrhythmia...

Created By: littleguppyjax0118 | 2016-09-20 23:02 | 3 Comments

Hi everyone. So my son doesn't have an official diagnosis as of yet but the doctors seem headed that way. So yesterday he had a very bad migraine and said he couldn't walk and would lay...

Created By: ckiekens85@yahoo.com | 2016-09-20 22:39 | 2 Comments

ok so almost a year ago in October I found out my oldest who was 8 now 9 was having absence seizures. In November of last year I then found out that my youngest daughter who was 5 now 6 is having...

Created By: AngelicRose | 2016-09-20 18:54 | 1 Comment

Hello,
I have written here before but every time I make a account it say's password wrong/email don't exist so sorry If I don't reply but I am reading them and hopefully this...

Created By: purple4myson | 2016-09-17 18:32 | 1 Comment

My 11 yr old son says that he feels like an earthquake is in his brain and that he feels like his brain is "playing tricks on him" when he has a seizure. Has anyone ever heard of this?...

Created By: sandy flores m | 2016-08-31 10:19 | 0 Comments

Hello First time posting,I have a 4 year old boy that started having SZ. 3 years ago.

He has been drug resistance ,so far we have tried over 10 meds.
he is on lamictal 100mg morning...

Created By: Wendy_Larson | 2016-08-30 20:13 | 0 Comments

My mom rocks! I had a rough time in high school when I was seizing often. I almost gave up. Here's our story, and a message to parents and caregivers alike. You can make a difference! Be...

Created By: seidelna | 2016-08-28 23:37 | 1 Comment

Hello, I am new to this site and am trying to grasp as much knowledge as I can about my daughter's new prognosis with Frontal Lobe Epilepsy. Our daughter began having febrile seizures just...

Created By: KittinBee | 2016-08-28 21:23 | 0 Comments

My son is 4, Not exactly sure what type of seizure he has either Atypical Absent mixed with complex partial? They are still figuring it out.
He has been getting treated for about a year now...

Created By: zarir.karbhari | 2016-08-26 07:17 | 1 Comment

Hello

My daughter is 15 yrs old, has 2-3 seizures a day (complex partials lasting 1-2 minutes) BUT we have to use the midazolam nasal puff on her every 3-4 days to sedate her when her...

Created By: angorasunday | 2016-08-25 16:36 | 0 Comments

Good Afternoon - My daughter is 5 years old and was diagnosed with myoclonic epliepsy in March. She takes Keppra, which makes her aggressive and violent. We have been working with her...

Created By: nbodwell | 2016-08-25 00:52 | 1 Comment

My daughter is almost two. She was born with a grade 3 IVH (intraventricular hemorrhage). Her neurosurgeon said that seizures would be possible, but not guaranteed in the future. As toddlers do...

Created By: deltadime10 | 2016-08-24 00:24 | 1 Comment

i have a 3 year old who has epilepsy from a stroke at birth. she has been somewhat resistant to AED's. We are considering a vagal nerve stimulator. Anyone have opinions or experiences with...

Created By: Holly Marie | 2016-08-23 23:29 | 2 Comments

Hi everyone,

Our doctor suggested the low glycemic index diet for our 5 year old daughter. We met with the nutritionist and I left a bit confused. I think overwhelmed with this change as...

Created By: kmaness | 2016-08-23 01:47 | 1 Comment

My 45 yo brother has epilepsy and cognitive impairment as well. In recent years, when he gets sick (e.g. viral infection, etc.), he frequently loses control of his body. What I mean is that he has...

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