Topic: Parents & Caregivers

Created By: kazzy99 | 2016-03-01 12:39 | 146 Views | 1 Comment

My son was diagnosed with epilepsy at age 10. He had febrile seizures from 1-3 and also had open heart surgery as an infant. Besides all of that he is like any other kid. I started the blog,...

Created By: maf | 2016-02-27 10:19 | 165 Views | 0 Comments

First post here. If I've missed good info already in the forums on my searches I apologize.

Background:
Our son is 2.5 yr old.
* First grand mal seizure at 2yr2mo in...

Created By: thesunrisesetsatnoon513 | 2016-02-24 12:10 | 119 Views | 6 Comments

hi! I'm new here and though I don't personally have epilepsy, my Dad does... I'm really concerned and confused and I'm just trying to learn a bit about all of this. I have read...

Created By: Lerner | 2016-02-17 14:02 | 146 Views | 1 Comment

So my nephew (15) has recently been getting these flashes of lights in his eyes lasting maybe a minute or so and then he just moves along tp whatever he was doing.    He was recently at the...

Created By: Tracey Lumley | 2016-02-13 04:34 | 144 Views | 1 Comment

Thanks for reading firstly. I am a mum from the UK with 4children. My eldest daughter (14) has been suffering hugely for over a year with 'headache/migraines' and after a long wait finally got to...

Created By: Love_My_Boxer_Girls | 2016-02-11 18:49 | 150 Views | 0 Comments

I am a new to epilepsy momma. I have three children, and one has epilepsy, another has multiple special needs. I am getting ready to do a training forum for first reponders, about what to expect...

Created By: kurehahime | 2016-02-07 14:34 | 464 Views | 0 Comments

Since my son's last seizure during his sleep, we purchased basis(like fitbit) to monitor or better understand his sleep pattern.
My son is 7 but also has CP. Although he is verbal and can...

Created By: mereloaded | 2016-02-07 09:04 | 221 Views | 2 Comments

 

 

Hello fellow parents, contributors and patients. Just wanted to provide an update for everyone that is so kind to read and ask about my son. My son was eligible for med....

Created By: FeelSunny | 2016-02-02 16:10 | 163 Views | 0 Comments

Hello, My name is Yena and I have a six years old girl with epilepsy. She had six episodes so far since she was two and a half years old. Every time when her seizure kicks in, it interferes with...

Created By: agattka5 | 2016-02-02 04:10 | 116 Views | 0 Comments

Hi, my 9 years old son has dnet.He is after a surgery, with seizures. I'm from Poland. Is there anyone with experience with dnet? 

Created By: PBS99 | 2016-01-31 17:38 | 179 Views | 0 Comments

Hi everyone! I am not new to this forum, I am here a lot reading everyone's posts, but this is my first time posting for information and/or advice.

My son is 10.5 and was dx with absence...

Created By: amysueholloway | 2016-01-31 17:27 | 157 Views | 0 Comments

I have twin daughters who are 13.  One has just been diagnosed with juveline myoclonic epilepsy:  in the past year, she has had 2 clonic seizures.  We weren't sure the first one was a seizure as...

Created By: Kmonahan | 2016-01-31 09:41 | 132 Views | 0 Comments

Hi, 

Im new to this forum, my 9 year old son has generalized epilepsy. He also has high functioning Autism and is a sleep walker with parasanomas. We have a camera in his room because he...

Created By: Kmonahan | 2016-01-31 09:41 | 107 Views | 0 Comments

Hi, 

Im new to this forum, my 9 year old son has generalized epilepsy. He also has high functioning Autism and is a sleep walker with parasanomas. We have a camera in his room because he...

Created By: kazzy99 | 2016-01-30 01:14 | 132 Views | 0 Comments

We start weaning my son's Zonisimide tomorrow. He has been on 100mg a day + 3000mg a day of Keppra for almost 4yrs. And has been seizure free with it :) He wants to try and wean again. We got him...

Created By: looking for support | 2016-01-29 15:40 | 166 Views | 0 Comments

Good afternoon,

I'm very new to this group and forum.  I am hoping to find someone who has experienced what we have, although I know there are so many different types of seizures.  My...

Created By: Mcarm | 2016-01-29 15:40 | 120 Views | 0 Comments

my 3 yr old was diagnosed with myoclonic seizures. I that treatment rarely controls it fully. Does anyone else have a child diagnosed with this? What is their quality of life?

Created By: mammak | 2016-01-26 09:39 | 163 Views | 0 Comments

Hi all,

It has been a while since last I posted, but I would like to get more involved if this forum is active.

I need some insight. I would like to know if others' children have...

Created By: kurehahime | 2016-01-24 14:16 | 181 Views | 1 Comment

I am new t this.  My son is 7 and has been diagnosed with Epilepsy since he was a baby.

His seizures had been well controlled by Keppra until about 2 years ago.  He started having...

Created By: HBOZ89 | 2016-01-23 11:03 | 181 Views | 1 Comment

Hello.  My 40 year old son (unmarrried, lives at home) had been seizure free for 15 years on Neurontin and phenobarb.  He lived an active life, driving, MA degree, thesis work in England...started...

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