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Topic: Parents & Caregivers

Created By: kadenlove | 2015-05-11 16:44 | 191 Views | 1 Comment

Lately my three year old son has been waking up from naps and going right into a seizure it starts off as a focal seizure lasting as long as ten minutes and sometimes transitioning into twitching:...

Created By: Ellyn Newman | 2015-05-11 15:16 | 160 Views | 0 Comments

Hello, my 16 yr old Autisitc son has been seizure free for 2 yrs while on Trileptol.  Our Dr. wants to start tapering his med.  We are terrified to start this.  Any advice?

 

Created By: whitneyaliceon@hotmail.com | 2015-05-11 11:42 | 187 Views | 1 Comment

My 22 month old daughter has always, always had her seizures in the evening, before bed time. As far as we know, she has never had one in her sleep, until this past week. It has always been a fear...

Created By: robertsjad@hotmail.com | 2015-05-11 01:58 | 195 Views | 0 Comments

My son is 6 yrs old and when the school year started he was doing well. I had his medication changed from a liquid that he had been taking for yrs to a pill  started having seizures add any pill...

Created By: lauralove5 | 2015-05-09 20:52 | 163 Views | 1 Comment

Hi, I did the modified Atkins diet with my eldest son 7 years ago.  He had absence seizures that were not typical and they started when he was 11.  He ended up having terrible reactions to EVERY...

Created By: arcraft0326 | 2015-05-09 19:56 | 193 Views | 1 Comment

My now 15-yr old son had an MRI done Feb 2014 because he had been suffering from frequent headaches.  The MRI showed he has Cortical Dysplasia of the left frontal lobe involving the superior and...

Created By: Toastita | 2015-05-07 15:10 | 207 Views | 0 Comments

I have a new positions called Pediatric Epilepsy Patient Navigator.  I work with parents who's children have been recently diagnosed with seizures.  I would appreciate any suggestions or...

Created By: mommyLeBay | 2015-05-06 18:28 | 172 Views | 1 Comment

My daughter is 14 months old. She had an eeg that showed seizure activity on the right side of her brain and since she was admitted for having possible seizures they put her on keppra immediately...

Created By: kerausmommy | 2015-05-06 02:35 | 180 Views | 0 Comments

I am interested in hearing experiences with infants. What kind of seizures did he/she have? If  they were more subtle seizures, how did they act? Crying, jerking, etc.? Did it affect their overall...

Created By: Dinessa1013 | 2015-05-05 22:03 | 150 Views | 0 Comments

Hello I am new to this website my four year old son was diagnosed with epilepsy at age 1 after a 45 min long seizure I am concerned its been three days he's been complaining of headaches an waking...

Created By: Laughandluv@q.com | 2015-05-05 17:53 | 140 Views | 0 Comments

My daughter just fractured her wrist. Last year she fractured her other wrist. She has been seizure free with Depakote for almost 6 years now. Should I be concerned about bone density problems or...

Created By: kerausmommy | 2015-05-03 23:05 | 236 Views | 3 Comments

Hi everybody!

I am new here. Our son started having seizures at 5 days old. He had an abnormal EEG and was put on medication until he was 6 months old after a normal EEG. At 8 months he...

Created By: Lovley44 | 2015-04-30 12:26 | 173 Views | 2 Comments

Hello my daughter was diagnosed with absence, drop, and just recently shes been partial full on seizures that last about 3mins. When she was first diagnosed it was just the absence seizures she...

Created By: marialenar | 2015-04-28 19:05 | 195 Views | 1 Comment

This is all new to me.  My four year old for the past year has had daily numerous "events", although which were suspected to be seizures, were not diagnosed until yesterday on her EEG during a...

Created By: motian77 | 2015-04-27 16:26 | 228 Views | 1 Comment

My 10 year old daughter was recently diagnosed with Complex Partial Seizures. For the last year she was have "anxiety" attacks at odd random times. She also has mild ADHD and I thought maybe this...

Created By: momof2girls | 2015-04-26 22:41 | 190 Views | 0 Comments

My 8 year old was diagnosis with Absence seizures 3 years ago, also ADHD, and hypothyroidism. Since kindergarten she has struggled in school, so after a lot of test they...

Created By: Lixina | 2015-04-24 22:09 | 131 Views | 0 Comments

I'm doing a survey on how IQ is related to a child's temperament, and I'm looking for kids at both extremes of IQ - gifted and cognitively impaired. Parents are welcome to participate regardless...

Created By: tobins_mom | 2015-04-21 22:28 | 303 Views | 4 Comments

My son had his first seizure in November 2014 and we were eventually sent home told that it was most likely a fluke. When his seizures continued he was eventualy started on Keppra but they still...

Created By: zion_hazel | 2015-04-18 18:56 | 211 Views | 2 Comments

hi my son zion had a seizure 8 weeks ago and they didnt put him on any medicine .they just gave him ipubrofen bc he gained a fever while having a seizure .HE DID NOT HAVE ONE BEFORE THE...

Created By: Jenny P | 2015-04-18 07:30 | 163 Views | 2 Comments

Hi, my 4 yr. old son doesn't talk at this time due to ADEM, lesions in the brain.  Before ADEM, he was articulate and spoke very well. 

Currently, he's on Topomax and is drowsy, sluggish...

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