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Topic: Parents & Caregivers

Created By: TomAggie96 | 2015-07-13 12:23 | 198 Views | 0 Comments

Hello,

 

  Im new to the chat discussion, and am in desperate need of any information anyone can help me with.  My wife (35 yrs old) is in her 4th year of having epilepsy.  She...

Created By: santosgr@att.net | 2015-07-07 08:14 | 178 Views | 2 Comments

My son (9 year old now)was diagnosed with benign rolandic epilepsy last summer when he was 8. Due to the infrequent episodes and short duration no medicines were prescribed.  During the schoo,year...

Created By: Nelson863 | 2015-07-05 01:19 | 175 Views | 0 Comments

Hi My son started having seizures when he turned 4?  But every EEG given came back clear...he is now 9 and to date they have not caught a seizure on any EEG is this common?  His seizures are...

Created By: sandy40 | 2015-07-04 00:34 | 157 Views | 1 Comment

Hello! It has been a little over two years since my 14 year old son has had a seizure! Yesterday we got the results back from his sleep deprived eeg he had last week and they came back normal. The...

Created By: KellyPopcorn | 2015-07-02 23:04 | 210 Views | 1 Comment

Hi all,

This has got to be a common issue, wondering how others handle it.  My daughter's tonic-clonic seizures were well controlled with Keppra for 1.5 years, and I felt OK about leaving...

Created By: MamaAndi13 | 2015-07-01 20:09 | 152 Views | 0 Comments

 

 

 

Hopefully this isn't too windy...hoping someone has had a similar experience.

My 6 year old daughter ended up in the ER in January of this year with a suspected...

Created By: suzer18 | 2015-06-30 02:50 | 202 Views | 0 Comments

I must be the only parent that sandiego neurology is ignoring..the only parent that watches my ten year old night after night after night...seize uncontrollably...how much longer can either one of...

Created By: Pennychild | 2015-06-24 19:26 | 159 Views | 0 Comments

 

My daughter (10) was diagnosed with absence epilepsy in 2011 and was put on zarontin.

In March, the neurologist took her off the zarontin because she had been seizure free for over...

Created By: dwallin | 2015-06-23 19:29 | 239 Views | 2 Comments

Hello Everyone,
My daughter was diagnosed 3 years ago and is some what controlled. Most of the recent ones have come from lack of sleep, exhaustion etc.. She does not have auras or any signs...

Created By: walkerry | 2015-06-18 11:02 | 236 Views | 3 Comments

 

Good morning, 

I am writing as a new mom to an epileptic child. My daughter who has had no medical issues or problems since birth all of a sudden started having tonic/clinic...

Created By: Little angels | 2015-06-15 14:03 | 164 Views | 1 Comment

My daughter is 15 months old, she has myoclonic seizures everyday. We were told by the neuro to give diastat after 5 min of cluster of seizures which include myos. If I did that though I would be...

Created By: nanthuis@hotmail.com | 2015-06-14 17:51 | 183 Views | 1 Comment

My 7 month old daughter was just diagnosed with epilepsy.  On Monday night (6/8) we took our baby to the ER because she was "frozen" in one position, pupils dilated and wasn't responding to us.  ...

Created By: Maksmoma | 2015-06-11 19:34 | 146 Views | 2 Comments

I was just told by my 3yo's neuro that he wants to admit her to the EMU for a few dahays. I am very nervous and worried about this. Has anyone had this experience with a their toddler? How did...

Created By: suzer18 | 2015-06-05 14:47 | 223 Views | 2 Comments

Hello, my son has seizures at night and they have never been under control.  However I thought we were beginning to get them a little bit under control because he was having maybe 1-2 or 3 at the...

Created By: Moondrop | 2015-05-28 19:55 | 291 Views | 0 Comments

Hi,

We just got back our genetic test results for our 4 year old son. He has a gene variation in KCNT1 gene that causes Nocturnal Frontal Lobe Epilepsy/ (EIEE). 

He hasn't had any...

Created By: Ginjam | 2015-05-28 04:52 | 271 Views | 1 Comment

Hi My 20 year old son was diagnosed with Epilepsy in February this year, and has been prescribed 200mg Lamotrigine which makes him feel sick, he isn't eating properly and he has no appetite and...

Created By: Riley's Dad | 2015-05-25 19:05 | 302 Views | 1 Comment

Hi Everyone.

My daughter is Riley.  This is her story:

When Riley was about 5 weeks old she began having a seizure like episode where she would space out, her hands and feet would...

Created By: Chanchan | 2015-05-25 15:42 | 259 Views | 2 Comments

Please help. My son (almost 14) has been diagnosed with idiopathic generalized epilepsy with random tonic clonic seizures. We started him on Keppra and his seizures have continued despite repeated...

Created By: karbhari | 2015-05-19 19:10 | 266 Views | 1 Comment

My daughter is 13, she has uncontrolled epilepsy, has 3-4 seizures a day , out of which one is a long duration one where we need to give her the midazolam puff to control it. He is on 4...

Created By: IsMiseTommy | 2015-05-19 02:26 | 208 Views | 0 Comments

I am the caregiver of a 28 Non-Speaking Autistic female, She has a history of a seizure disorder in infancy through early childhood her last mentioned grandmal  seizure was when she was about 5 to...

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