Topic: Parents & Caregivers

Created By: crlanier | 2017-03-06 13:12 | 4 Comments

My daughter, at age 10, had seizures the entire flight from Texas to California. Here we are 4 years later and I am terrified to get back on a plane with her. Has anybody out there had a similar...

Created By: hofmanza | 2017-03-01 10:37 | 5 Comments

My twenty year old daughter has been seizure free for many years. At almost every yearly Neuro visit, they have offered her the option of weaning off her meds to see if seizures occur. She has...

Created By: greenlizard | 2017-02-06 14:19 | 0 Comments

My 6-yr-old had a bullying situation at school, and developed a lot of anxious behaviors, including wetting himself. We changed some circumstances, and he has been doing better, no more wetting,...

Created By: janeses | 2017-02-01 00:44 | 0 Comments

Hi, I'm seeking out suggestions and advice. We have a 3 year old son that we have had since he was 3 weeks old. He was drug exposed for multiple drugs and alcohol. He has had several...

Created By: littleguppyjax0118 | 2017-01-31 15:59 | 0 Comments

My son has been like this since yesterday. Not sure what is causing this except maybe overstimulation watching cartoons on his tablet,but he wasn't watching anything in the car and it...

Created By: BriBird | 2017-01-30 12:42 | 0 Comments

Hello. I am from Maine and looking to find support and or advice and or experiences of others that may have a child that has this condition. My daughter has high functioning autism that she was...

Created By: Ecardenas16 | 2017-01-27 05:40 | 2 Comments

Hi everyone, I'm new here my son was diagnosed with epilepsy one year ago!! He hasn't had a seizure since last year (Jan 2016) but then on Christmas Day he had a seizure and then he had...

Created By: Cheddar | 2017-01-24 00:46 | 1 Comment

My 3 year old was recently diagnosed with partial complex seizures and prescribed Keppra for them. The last few days we have been noticing him drooling a lot and putting his fingers in his mouth...

Created By: JessXX68 | 2017-01-23 23:46 | 0 Comments

Hi! I have been waiting to hear back from neurologist and pediatricians that just seem to take a ton of time off and rely on systems that glitch way to much. Can anyone help me with what the...

Created By: eperk84 | 2017-01-21 21:24 | 1 Comment

Sorry, this is going to be a long post, but we are at the end of our rope. My daughter is 4 years old. She is TPN dependent and has mild CP. The CP only causes left side muscle weakness. She...

Created By: Mommy4 | 2017-01-20 02:27 | 0 Comments

Hi. I was shocked last spring when the school called me to say my daughter was having a seizure. She started at trileptal all the way just slightly beyond her max dose (her blood levels were...

Created By: ajaynen | 2017-01-19 21:50 | 2 Comments

New to this group and looking for some support. It has been really good to read some of the posts and not feel alone. My 4 year old daughter had four seizures on Christmas Day (prior to this she...

Created By: Cheddar | 2017-01-18 21:27 | 8 Comments

Hi

My 3yo son was just diagnosed with Complex Partial Seizures. We are waiting on an MRI and a 72 hour EEG. We have had a really hard time catching the seizures and usually only see them...

Created By: cambee0513 | 2017-01-18 14:38 | 0 Comments

My 13 year old daughter was diagnosed with JME following an hour long repetitive episode on Christmas day. She was started on Keppra on January 4th. She has been on the full dose for a week now...

Created By: eveyaden | 2017-01-16 15:54 | 0 Comments

Hello,

I'm new here and new to this in general. My niece and nephew recently moved in with me. I became aware of my niece's situation last June. We had gone to the beach for the...

Created By: IamCeci | 2017-01-16 10:04 | 0 Comments

What are the rules regarding the Americans with Disabilities Act and strobe lights? My daughter, who has photosensitive epilepsy, wanted to go roller skating with her Girl Scout troop. The roller...

Created By: trinityrfrano | 2017-01-15 21:13 | 1 Comment

My son will be 18 soon and was diagnosed in July after his third grand mal. Medication seems to control well but he has had 5 since. Either due to forgotten medication or lack of proper sleep or...

Created By: REH214 | 2017-01-07 23:55 | 1 Comment

I brought my 4 year old daughter home from the hospital today. She had three grand mal seizures on Thursday. She had a previous history of absence seizures from March of 2015, right after she...

Created By: Lost1983 | 2017-01-05 14:34 | 1 Comment

Hi,

New to the forum but I need some help.
My other half suffers from epilepsy and when he has seizures my anxiety levels shoot through the roof.
I lose my appetite any small...

Created By: akmals02 | 2017-01-05 11:42 | 0 Comments

my daughter Maddy, 12 was diagnosed with Absence epilepsy two years ago. For years we just thought she wasn't paying attention and wasn't focused. When we found out she had epilepsy and...

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