Topic: Parents & Caregivers

Created By: Cheddar | 2017-01-18 21:27 | 8 Comments

Hi

My 3yo son was just diagnosed with Complex Partial Seizures. We are waiting on an MRI and a 72 hour EEG. We have had a really hard time catching the seizures and usually only see them...

Created By: cambee0513 | 2017-01-18 14:38 | 0 Comments

My 13 year old daughter was diagnosed with JME following an hour long repetitive episode on Christmas day. She was started on Keppra on January 4th. She has been on the full dose for a week now...

Created By: eveyaden | 2017-01-16 15:54 | 0 Comments

Hello,

I'm new here and new to this in general. My niece and nephew recently moved in with me. I became aware of my niece's situation last June. We had gone to the beach for the...

Created By: IamCeci | 2017-01-16 10:04 | 0 Comments

What are the rules regarding the Americans with Disabilities Act and strobe lights? My daughter, who has photosensitive epilepsy, wanted to go roller skating with her Girl Scout troop. The roller...

Created By: trinityrfrano | 2017-01-15 21:13 | 1 Comment

My son will be 18 soon and was diagnosed in July after his third grand mal. Medication seems to control well but he has had 5 since. Either due to forgotten medication or lack of proper sleep or...

Created By: REH214 | 2017-01-07 23:55 | 1 Comment

I brought my 4 year old daughter home from the hospital today. She had three grand mal seizures on Thursday. She had a previous history of absence seizures from March of 2015, right after she...

Created By: Lost1983 | 2017-01-05 14:34 | 1 Comment

Hi,

New to the forum but I need some help.
My other half suffers from epilepsy and when he has seizures my anxiety levels shoot through the roof.
I lose my appetite any small...

Created By: akmals02 | 2017-01-05 11:42 | 0 Comments

my daughter Maddy, 12 was diagnosed with Absence epilepsy two years ago. For years we just thought she wasn't paying attention and wasn't focused. When we found out she had epilepsy and...

Created By: Kbaer | 2016-12-29 03:38 | 0 Comments

My son (3) has been on keppra for 10 months now for febrile seizures. Since starting the medication he does not sleep through the night he will wake at 2 or 3 in the morning and seems fully awake...

New
Created By: Cedwards12 | 2016-12-19 22:24 | 1 Comment

HI, my 12 year old daughter was recently diagnosed with Simple Partial Epilepsy. I'm nervous all of her EEG's have not shown significant activity only slowing of the brain waves in her...

Created By: Grod | 2016-12-19 01:37 | 0 Comments

Hi,
I'm new to this site and just a father looking for answers. Recently my 15 year old son had his first seizure doing a workout for football at his high school. At first the...

Created By: scoseg | 2016-12-18 21:07 | 0 Comments

Hello,
First post and sincerely appreciate any thoughts, recommendations and advice. I know a formal diagnosis is not possible for a forum but know that many of you are going through the...

Created By: makiyas_mom | 2016-12-15 20:36 | 0 Comments

Hello. my 8 yr old daughter suffers from grand mal seizures that don't occur often but when they due they are very severe and lasts close to an hour. She is currently taking trileptal, keppra...

Created By: Hopefloats75 | 2016-12-14 20:54 | 1 Comment

I haven't been here in years. 10 years ago, I spent a lot of time here when I found my 14 year old daughter having a seizure. I was beyond devastated and here I am again. We have a history...

Created By: mfraterr | 2016-12-12 12:46 | 0 Comments

I am a published author at work on a young adult novel about an epileptic twelve-year-old boy who takes Keppra to prevent seizures and I have several questions regarding this. Can anyone describe...

Created By: Louis-m08 | 2016-12-09 11:58 | 0 Comments

My son has his left occipital lobe missing and has seizures they were partial and have him in keppra he had not had a siezure in two months then suddenly had a seizure that lasted 2 hours started...

Created By: Mama_A_2016 | 2016-12-09 01:54 | 0 Comments

My baby boy Zander was born 11/24 (2 weeks old) and we are currently in NICCU. We have been here 1 week He has burst suppression brain pattern, normal MRI, hypotonia, and tonic seizures. They are...

Created By: vcorp | 2016-11-29 21:06 | 1 Comment

Hello all,

Our toddler (29 months, boy) was diagnosed with borderline ASD, while it left us devastated and overwhelmed, we're trying to cope to the best of our capacity in every...

Created By: hopeful33 | 2016-11-26 15:46 | 0 Comments

I've been searching the forums, but can't seem to find anything recent. I am newly married. My husband has TC seizures, which were "under control" (meaning ever few years he...

Created By: crs | 2016-11-24 05:11 | 2 Comments

My daughter was recently diagnosed with epilepsy. Does any one have recommendations for monitoring seizure activity, especially during sleep, with smart watch devices? There seem to be a few on...

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