Topic: Parents & Caregivers

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Created By: Cedwards12 | 2016-12-19 22:24 | 1 Comment

HI, my 12 year old daughter was recently diagnosed with Simple Partial Epilepsy. I'm nervous all of her EEG's have not shown significant activity only slowing of the brain waves in her...

Created By: Grod | 2016-12-19 01:37 | 0 Comments

Hi,
I'm new to this site and just a father looking for answers. Recently my 15 year old son had his first seizure doing a workout for football at his high school. At first the...

Created By: scoseg | 2016-12-18 21:07 | 0 Comments

Hello,
First post and sincerely appreciate any thoughts, recommendations and advice. I know a formal diagnosis is not possible for a forum but know that many of you are going through the...

Created By: makiyas_mom | 2016-12-15 20:36 | 0 Comments

Hello. my 8 yr old daughter suffers from grand mal seizures that don't occur often but when they due they are very severe and lasts close to an hour. She is currently taking trileptal, keppra...

Created By: Hopefloats75 | 2016-12-14 20:54 | 1 Comment

I haven't been here in years. 10 years ago, I spent a lot of time here when I found my 14 year old daughter having a seizure. I was beyond devastated and here I am again. We have a history...

Created By: mfraterr | 2016-12-12 12:46 | 0 Comments

I am a published author at work on a young adult novel about an epileptic twelve-year-old boy who takes Keppra to prevent seizures and I have several questions regarding this. Can anyone describe...

Created By: Louis-m08 | 2016-12-09 11:58 | 0 Comments

My son has his left occipital lobe missing and has seizures they were partial and have him in keppra he had not had a siezure in two months then suddenly had a seizure that lasted 2 hours started...

Created By: Mama_A_2016 | 2016-12-09 01:54 | 0 Comments

My baby boy Zander was born 11/24 (2 weeks old) and we are currently in NICCU. We have been here 1 week He has burst suppression brain pattern, normal MRI, hypotonia, and tonic seizures. They are...

Created By: vcorp | 2016-11-29 21:06 | 1 Comment

Hello all,

Our toddler (29 months, boy) was diagnosed with borderline ASD, while it left us devastated and overwhelmed, we're trying to cope to the best of our capacity in every...

Created By: hopeful33 | 2016-11-26 15:46 | 0 Comments

I've been searching the forums, but can't seem to find anything recent. I am newly married. My husband has TC seizures, which were "under control" (meaning ever few years he...

Created By: crs | 2016-11-24 05:11 | 2 Comments

My daughter was recently diagnosed with epilepsy. Does any one have recommendations for monitoring seizure activity, especially during sleep, with smart watch devices? There seem to be a few on...

Created By: sandy flores m | 2016-11-16 20:52 | 0 Comments

Hello my almost 5 year old son is about too start 3 days of Ivig infusions tonight ,he has refractory epilepsy ,everynight he has tonic clonic seizure.

His team at CHLA is starting him on...

Created By: Hanbanan | 2016-11-16 10:27 | 0 Comments

My six year old has been switching from Trileptal to Keppra. He is almost completely on Keppra now, but he has constant stomach pain. It is hard to distract him from it. It I should also...

Created By: notmyly | 2016-11-15 16:01 | 1 Comment

My son is almost 15 and his seizures started almost two and a half years ago and was first diagnosed with partials. Now it's generalized seizures. He is currently on 2000 mg of Xr Keppra. Up...

Created By: Christinap1921 | 2016-11-15 10:31 | 0 Comments

My name is christina and I've just been diagnosed with epilepsy in my adulthood. I had 2 back to back grand mal and a bunch of petit mals in between and while I slept. On the ambulance ride I...

Created By: Amedeiros91 | 2016-11-11 23:53 | 1 Comment

So my daughter had been diagnosed by a neurologist with right sided temporal lobe epilepsy and since we switched to a epilepsy specialist in Boston there some confusion about if she really is...

Created By: rwolfe618 | 2016-11-11 11:46 | 0 Comments

Hi there. We are new to the group, as my daughter (6 months old) was just diagnosed with epilepsy last week after two focal onset seizures. I was wondering if anyone has experience with the...

Created By: Amedeiros91 | 2016-11-09 22:07 | 1 Comment

So my 3 year old daughter was diagnosed with temporal lobe epilepsy at 2 by a neurologist and since then we switched to a epilepsy dr in Boston. Since the seizures started they worsened when we...

Created By: jj_b32 | 2016-11-08 19:08 | 1 Comment

My 2.5 yo has about 5-15 genrealized myoclonic seizures a day. The past few days we have started noticing that she covers both of her ears with her hands after she has one and sort of retreats...

Created By: Hanbanan | 2016-11-07 11:31 | 1 Comment

My six year old son has epilepsy, and has been on Trileptal for a month and a half. His EEG results while on meds showed no improvement over the one when he was not on meds. He also had horrible...

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