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Topic: Parents & Caregivers

Created By: cm.lt.am | 2016-01-12 12:09 | 87 Views | 0 Comments

Hi all. Our daughter was diagnosed with epilepsy at 1.5 years old. She is now 3 years old. Her doctor is recommending to put her on phenytoin (Dilantin). My question is... Has any parents had a...

Created By: cdian | 2016-01-09 20:48 | 96 Views | 0 Comments

Hi- my son is 8. He had his first seizure at 5. His MRI shows slight brain damage in the visual correct. He had a knot in his cord and was slow to take his first breath. Although the neuro said...

Created By: Wterry | 2016-01-08 08:57 | 76 Views | 1 Comment

Has anyone ever experienced an allergic reaction or anaphylaxis to the EEG? 

Created By: Dgb123 | 2016-01-03 19:24 | 117 Views | 1 Comment

She began to have multiple seizures, but this time they where nothing I have wittnessed over the many she has had. After the third of the 9 she had last night she began to growl at me while making...

Created By: Dgb123 | 2016-01-03 19:07 | 86 Views | 0 Comments

Hello, everyone, I am new to sharing my thoughts and feelings, so please bare with me. Today I am writing because of image of my wifes most recent seizure. She is currently on disability and has...

Created By: TryingToCope | 2015-12-28 13:04 | 145 Views | 0 Comments

My girlfriend was diagnosed with Epilepsy a few years ago. She has had issues for most of her life but they were always passed off as panic attacks. We have been together for 4 1/2 years. We both...

Created By: krmalewicz | 2015-12-26 12:54 | 144 Views | 4 Comments

Hello, I am new to this forum. I need some advice plz. I have a 7 yr old who was diagnosed a year ago with absence seizures. She has been on Zarontin 3.5 ml in am and 3.5 ml in pm. She is a bit...

Created By: laura.day | 2015-12-23 15:24 | 140 Views | 1 Comment

My son (6 year old) was diagnosed with generalized epilepsy last May. He started out having absense seizures, and was put on depakote 2X a day.  Over the summer his seizures got seemingly worse...

Created By: momofboyz | 2015-12-23 11:09 | 100 Views | 0 Comments

My son's etho dose was recently increased to 6ml twice per day by his neurologist due to his 10ml per day dose not helping his seizure activity.  His doctor wanted to add Depakote, but we were...

Created By: kgrosser | 2015-12-18 13:56 | 72 Views | 0 Comments

Hello.

My nephew is 9 years old.

Brief history:

When he was 21 months old, he was diagnosed with stage IV/high risk Neuroblastoma.

He was NED in 2009.

He...

Created By: abhilasha | 2015-12-16 09:17 | 77 Views | 0 Comments

We are moving to Austin in the summer. I wanted to know who is the best neurologist for epilepsy in Austin Area. My daughter's had a complicated case since the last 5 years, and would like to see...

Created By: Concerned friend 12 | 2015-12-14 17:18 | 102 Views | 0 Comments

My best friends 3 year old was diagnosed 18 months ago. Originally her meds worked but caused serious side effects so a few months ago they started trying new meds. It has been hell for mom and...

Created By: momtothree | 2015-12-12 22:54 | 114 Views | 0 Comments

Hello,

My 2 1/2-year-old son has epilepsy (associated with SCN1A mutation, but controlled with medication). We are planning a trip overseas, and I am concerned about air travel. Does anyone...

Created By: momtothree | 2015-12-12 22:41 | 92 Views | 0 Comments

My 2 1/2-year-old son tested positive for SCN1A mutation associated with Dravet syndrome. He is diagnosed with epilepsy but not Dravet because he doesn't fit the profile. 

Are there any...

Created By: Nmarino022 | 2015-12-09 10:49 | 178 Views | 0 Comments

My son will be 2 in march. He was diagnosed with Atonic seziures (drop seziures) earlier this year. He was put on Keppra, which made his seziures happen almost every 5 minutes one day and each...

Created By: mperez405 | 2015-12-02 08:43 | 157 Views | 3 Comments

Has any one had genetic testing done on there children my son is 13 we just got his results and it should he had the gene DEPDC5,MPTPS2,TRIM37 THE DOCTORS WERE ABLE TO GIVE ME SOME ANSWERS but...

Created By: momofboyz | 2015-11-30 09:42 | 123 Views | 1 Comment

My 6 year old son was diagnosed with absence seizures in the Spring of this year.  We received a second opinion in September and he began taking ethosuximde.  He is currently taking 8ml per day, 4...

Created By: erin_gray1 | 2015-11-16 11:48 | 169 Views | 0 Comments

I am new to this forum and really any kind of support. I have hesitated to reach out as my daughter does not have grand mal seizures and others seem to struggle so much more. I am reaching our to...

Created By: Shirley ASRN | 2015-11-16 04:34 | 118 Views | 0 Comments

I have been fighting for legislation to legalize CBD oil in Indiana.  I have been very disappointed with our senate as they will not let a bill be heard or voted on for it.  I happen to find it at...

Created By: crlanier | 2015-11-14 07:20 | 119 Views | 0 Comments

My daughter (12) has been taken to the ER twice with severe abdominal pain but the Drs cannot find a cause for the pain.  Sonogram, XRay and blood work have been done but revealing nothing.  This...

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