Community Forum

Topic: Parents & Caregivers

Created By: magpie8680 | 2017-05-29 15:57 | 1 Comment

My brother was diagnosed with epilepsy at 9. He is now 31. He has always had a tough time in school, was far behind the other kids. Even pronouncing words wrong like a young child would up until...

Created By: slkday06@gmail.com | 2017-05-29 02:33 | 1 Comment

A couple of years ago, my now 11 year old daughter woke in the night, ran downstairs looking back and to her left, dropped to the floor, and tensed up and shook as though she was having a seizure...

Created By: colestafford89@gmail.com | 2017-05-23 10:33 | 1 Comment

Hello everyone. New to this forum. My husband and I recently adopted a 4 year old boy who has been having seizures. We have a consultation with a pediatric neurologist in a few months, but until...

Created By: SamanthaAimee | 2017-05-18 15:23 | 1 Comment

My daughter is 11 years old, she was on Keppra for 23 months. Her last dosage was 1000mg twice a day from October 2016 until 11 May 2017. Her neurologist stopped the Keppra "cold turkey...

Created By: adora1822 | 2017-05-17 21:15 | 0 Comments

My 10 month old son was just diagnosed with water immersion reflex epilepsy. Apparently its very rare so there isn't a lot of information out there. He doesn't need to be on medicine as...

Created By: Gracie88 | 2017-05-06 07:41 | 1 Comment

My son is 7 years old. As a 9 month old, he had meningitis followed by a stroke and partial seizures. At one he had surgery due to a subdural empyema. So he has lots of medical brain trauma....

Created By: Tessie | 2017-05-06 01:38 | 4 Comments

42 yr old daughter-living @ home f/2 yrs. 1st seizure @ work. Passed out-bumped head-few seconds. Month later(on the 8th) 2nd seizure-few seconds-passed out but caught by friends before hitting...

Created By: Elljen | 2017-05-01 23:12 | 1 Comment

My 12-year-old started Zarontin on Friday morning for juvenile absence epilepsy, so he's on day 4 of beginning meds. The plan is 10 days of a once-daily dose, then begin twice-daily. I know...

Created By: LuvMyBoys91 | 2017-05-01 00:08 | 3 Comments

Hi all,

I am somewhat new (5 year old son was diagnosed with partial epilepsy a couple of weeks ago.

My son had his first seizure at 14 months, accompanied by a fever. The second was...

Created By: Elljen | 2017-04-29 15:11 | 8 Comments

I'm wondering about, well, a lot since my 12-year-old was diagnosed with juvenile absence epilepsy a couple of days ago. But today, two items have been on my mind.

First is swimming...

Created By: tiggerae | 2017-04-27 16:00 | 4 Comments

My stepdaughter was diagnosed with benign rolandic epilepsy 3 yeras ago. She has only had 2 seizures. She is in 3rd grade with an early 2nd grade learning level. Her father and I are...

Created By: CoZyBear | 2017-04-24 11:25 | 0 Comments

Does anyone has experience with this and care to share? Thanks!

Created By: Worriedmom_58fcb49422d56 | 2017-04-23 11:19 | 4 Comments

My daughter is 21 months old. She had her 18 month vaccines on Wednesday. She had a low grade fever all day Thursday. I noticed her fever rise around 5 pm and gave her Tylenol. About 15 minutes...

Created By: jjchart | 2017-04-23 00:01 | 3 Comments

I'm very new to this, so fair warning. We just found out this week that my son, 7, is having seizures. It seems to me like they're increasing in frequency just in a week. It may honestly...

Created By: Elljen | 2017-04-22 19:30 | 60 Comments

Hello. I'm very concerned and found this site. I have a 12-year old son. Over the past maybe 3-4 months, we've noticed a few occasions (maybe 4-5, although I'm not sure), in...

Created By: mckennas | 2017-04-14 21:20 | 3 Comments

HI
Our 15 y/o son was recently diagnosed with Absence seizures. I am worried about starting him on medication due to risk of personality change/depression, etc. Is anyone doing any kind of...

Created By: Syanamal | 2017-04-13 23:59 | 6 Comments

The first time he had, he stopped responding. Went to couch and just slept for an hour to 2. Happened about 4 times on same day and finally had a vomiting. Took him to ER and had one more. They...

Created By: Calvin17 | 2017-04-13 15:05 | 3 Comments

Our Son (first child) had his first seizure on day 2 of life, it included apnea (labored breathing and his skin turned dusky). Doctors gave him every test, and never found anything out of the...

Created By: Sweetpea4 | 2017-04-07 11:20 | 8 Comments

Feeling overwhelmed with emotion. My daughter had another seizure 2nd one this morning. Really wish I could make this better for her. We have a trip planned on Sunday. I am getting more nervous...

Created By: MFlores78 | 2017-04-03 16:56 | 2 Comments

My 16 year old son was recently diagnosed with juvenile epilepsy in Sept. 2016. He had 7 seizures in almost as many weeks. A variety of medication cocktails were tried and he went from 6 pills, to...

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