Weird incident the other night.

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My son was out side and I went to get him to come in after being out side for 15 minutes on his bike. The neuro said it was okay as long as he wore a helmet and wasn't in traffic areas. Where we live is a very desolate area. Anyway, my son comes down to me and starts complaining about his friend going all the way out to McDonald's on such and such a road. I asked him what the problem was about that, and he said why did he have to go so far away. It seems, my son couldn't remember where the road was. The road is actually about 2 minutes away by car, and it is the only road we have to take to go any where around here. He looked so confused. And then afterwards when he came inside and played a game of Life with me, he seemed to be having a hard time concentrating on the game. Was this what they call an absence seizure? I am so new to this, and in fact don't even know what is going on. My son hasn't even been diagnosed with Epilepsy yet. Yes he had a major grand mal seizure on May 30, and has been to the neuro and had some minor things checked out. he goes for a sleep deprived EEG on July 31. Thanks for listening.

Comments

I'm so sorry for what you

Submitted by itsmyeviltwin on Thu, 2007-07-05 - 13:56

I'm so sorry for what you are going through...as a mother myself I know we would rather suffer through these things ourself than watch our children go through them. But kids are tough and they look to us to be strong so be strong for him and he will be too. :) I am newly diagnosed myself with epilepsy and am here on this website to learn..you've come to the right place for support too!! It sounds to me(I'm a nurse, not a doc) like your son may have jamais vu which I also have...familiar places suddenly become very unfamilar to him. It is a hallmark of temporal lobe epilepsy which is what I have. I get confused following these spells have trouble concentrating awhile too. I will not be surprised if this is the diagnoses his docs give him but wait and see what they say as they are the experts, not me. Just know you are not alone...all of us here have E or are famiy members of E. He may be embarassed to admit this, but ask him if he forgot his way or lost his way on the familar road. Ask his friend if he saw anything out of the ordinary, or if your son remembers anything else. I had jamais vu episodes quite a few times and thought I was going crazy, so never told anybody (to my own detriment)He may have got upset at his friend as 'cover' because he forgot his way. Little guys are so macho. :) If it was jamais vu, (or an absence seizure)it is a partial seizure...when he has a tonic clonic it generalizes to a full seizure. Just be comforting to him when these smaller seizures happen. Medications can help control this. Since my diagnoses several months ago, I have started Topamax and I have had no further major seizures, and if I get enough rest I do OK. Was he out in the bright sunlight? Was he overheated or dehydrated? these are 'triggers' for seizures and you will learn what his triggers are and control them in time...I have too. :) The most important thing is that he not have a major grand mal and hit his head..that is what happened to me and I now have problems from a head injury. You will want to avoid this. This is an excellent website and I have learned more here about my epilepsy than I have from my neurologist. Keep in touch and let us know what you find out, OK? In the meantime give your litle guy lots of hugs and keep him safe.You will find lots of parents here who have a strong support system for each other. Hugs to YOU too!

Re: I'm so sorry for what you

Submitted by mjcolenc on Thu, 2007-07-05 - 15:25

My son didn't go with this other kid. My son was simply sitting on his bike, he said looking at the garbage dumpster, and then came down to me when I called him, and that's when he seemed agitated over that they went to such a faraway road to eat. And this happened after my son had eaten a cheeseburger here for dinner. He had finished eating and went down to go play with the other kid and they were just leaving. This is a normal thing for this other kid to do. He and his younger brother stay with the grna father after school and on the weekends and the go to McDonald's every meal. It was about 80 outside and still sunny.

Re: Re: I'm so sorry for what you

Submitted by mjcolenc on Thu, 2007-07-05 - 16:39

Son's nurse called back. She said the doctor said keep everything written down in the journal for a record, but he doesn't need to be called unless son actually has a seizure. He doesn't want to put him on anything till after the EEG gets done.