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We are back

Tue, 01/13/2015 - 20:02

Well, I am back. Cannot remember my user name or password. So now this is who I am LOL. Have a son named Matthew who is 13. We started the journey of Epilepsy when he was 1. At first febrile seizures. Took a whole year to come to a diagnoses and seizure form changing to come to Epilepsy. If I had known what I know now I would have insisted on medicine immediately stated. A family history and just one to many types of seizures. In the worst of our journey Atonic, Myoclonic's, Tonic-Clonic's, and Absence seizures were all going on at any given moment. Lamectical was our worst nightmare and Depakote our miracle but it took almost 2 1/2 years to come to that point. For Matthew with so many seizures that he had in such a short time and during developmental time truly believe damage was done. He is Mildly Cognitive Impaired, SPD, PDD,ADHD, plus a few others. It all started with Epilepsy. Posting to reintroduce ourselves. Matthew has been seizure free since 2008 but we suspect something might be brewing. Nothing full out again yet but there have been some nighttime things happening and a few stares that worry me. Hoping the hormonal teenage thing does not send us back to long ago. Best advice I can say to newbies. 1. Read everything you can get your hands on. 2. Spend time researching. 3 Remember that no child is like any other child. What works for one does not mean it will work for your child. 4. Always follow you intuition . It is always ok to error on the safe side and know that you did everything you are able to do for your child. 5. This forum is awesome to investigate Epilepsy and get ideas. 6. To know you are never alone in this disease. Ok so I am back. Not sure anyone would remember me its been so long. So Hello and nice to meet you all . 

Melissa 

Comments

welcome back Melissasomething

Submitted by just_joe on Thu, 2015-01-15 - 11:12
welcome back Melissasomething might be brewing. Nothing full out again yet but there have been some nighttime things happening and a few stares that worry me. Hoping the hormonal teenage thing does not send us back to long ago  I do hope he stays seizure free Joe

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