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Tonic-clonic only...?
Sun, 01/15/2017 - 21:13Topic: Parents & Caregivers
My son will be 18 soon and was diagnosed in July after his third grand mal. Medication seems to control well but he has had 5 since. Either due to forgotten medication or lack of proper sleep or for no obvious trigger. My question becomes, is it heard of for a person with epilepsy to only experience tonic clonic. He is also reporting absence seizure activity and all testing confirmed epilipsy. I am new to this and just want to keep him safe. I need a crystal ball.
My son was diagnosed at 17
Submitted by kkirk16 on Wed, 2017-01-18 - 23:12
My son was diagnosed at 17 (he's now 22). He has only ever had generalized tonic-clonic seizures, though they possibly start as focal and quickly go generalized (his MRI's and EEG's have never determined focal). He reports auras and then soon he's seizing. His are very well controlled with medication but if he misses more than 2 doses it will almost always be "go time" for him. I also have a 17 year old daughter (diagnosed at 5) with complex partial seizures. She turns 18 in a few months and I will be getting a medical power of attorney for her so that I can get her records, speak to doctors on her behalf, etc. If your son is open to this I would suggest it, particularly since this is new to him and he'll need the support of a parent who can help him learn and self advocate.