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Toddler with Benign Rolandic Epilepsy

Sun, 04/02/2017 - 21:01
My daughter will be turning 3 this week. She was diagnosed with Benign Rolandic Epilepsy. The neurologist was very confident about the diagnosis based upon my wife's description of the seizures. Daughter had an EEG (no idea if it showed anything; we were tired and may have misunderstood what he said about that). MRI was negative for problems. A little history - For the past 6 months or so, my wife has seen weekly occurrences of what she assumed was my daughter making strange faces (this involved cheek twitching and lip quivering). We did not realize it could be a serious problem until she had an obvious seizure (simple partial) last week. The ER sent us home after the ER doctor happened to witness and identify one of the minor twitching / quivering seizures. Several other cheek twitching / lip quivering episodes followed, culminating in another obvious seizure, this one involving hyper salivation and slurred words. What is troubling about my daughter's condition is that we have seen many daytime seizures, and that recently the seizures seem to cluster together. No idea if there are seizures occurring at night. We were given a prescription for Kapra, but are still weighing the risk / rewards of giving the medication to a toddler. Any comments on that? Another question. After returning from the hospital, daughter experienced a round a vomiting lasting from 3 AM to 11 AM, followed by additional vomiting the following morning at around 2 AM. Nothing sense then. She has not had an appetite, is drinking fine, and otherwise appears healthy. The hospital says it can't be a reaction to the medicine she was given. If not for the recent diagnosis, I would assume she picked up a virus at the hospital. Is it possible her vomiting is the result of a seizure? I should add she had a vomiting spell last month (1/night for 2 nights).

Comments

hypersalivation is often

Submitted by Amy Jo on Sun, 2017-04-02 - 21:20
hypersalivation is often associated with BRE. vomiting can be associated with seizures, often you might see it mentioned with Panyiotopoulos Syndrome, see basics at http://www.epilepsy.com/learn/types-epilepsy-syndromes/panayiotopoulos-syndromegenerally with BRE and PS there are not lots seizures so it is bit concerning that you've seen quite a few (in comparison). medication is really important under that situation. you may also want a second opinion with a pediatric epileptologist.

My son's epilepsy started

Submitted by mereloaded on Fri, 2017-04-14 - 10:05
My son's epilepsy started with about one and a half years of sudden vomiting episodes. When people have abnormal brain activity, they can experience vertigo and nausea, which can result in vomiting. Al, pediatricians told me that he was fine, must have been stomach bug etc. turns out he had epilepsy and we didn't know. Every time he has had or was about to have a seizure he had vomited. Now, no one EVER says that they are withholding diabetes, heart disease or cancer medication from their children to see if it goes away on its own. Epilepsy should not be any different. Epilepsy is a chronic, incurable condition and not treating it is a bad  idea. Ask your doctor about the consequences. Browse around here for posts of parents whose kids ended up in the PICU because they chose not to give their kids the medication that has been prescribed to them. The condition can get much worse, become untreatable or have irreversible cognitive problems. The good news is that BRE is a childhood exclusive syndrome. BRE can go away on its own after a while, but if the seizures are frequent or become worse, then they may be here to stay forever and BRE may not be the appropriate diagnosis. ASK for a copy of the EEG. It is your right as a patient to have a copy. Ask for a detail explanation of the results. If she was diagnosed with BRE that means that the results were abnormal, and followed a pattern typical of BRE. No one prescribes anticonvulsants to a toddler without irrefutable clinical evidence. If you don't know the results ASK.

My son's epilepsy started

Submitted by mereloaded on Fri, 2017-04-14 - 10:08
My son's epilepsy started with about one and a half years of sudden vomiting episodes. When people have abnormal brain activity, they can experience vertigo and nausea, which can result in vomiting. Al, pediatricians told me that he was fine, must have been stomach bug etc. turns out he had epilepsy and we didn't know. Every time he has had or was about to have a seizure he had vomited. Now, no one EVER says that they are withholding diabetes, heart disease or cancer medication from their children to see if it goes away on its own. Epilepsy should not be any different. Epilepsy is a chronic, incurable condition and not treating it is a bad  idea. Ask your doctor about the consequences. Browse around here for posts of parents whose kids ended up in the PICU because they chose not to give their kids the medication that has been prescribed to them. The condition can get much worse, become untreatable or have irreversible cognitive problems. The good news is that BRE is a childhood exclusive syndrome. BRE can go away on its own after a while, but if the seizures are frequent or become worse, then they may be here to stay forever and BRE may not be the appropriate diagnosis. ASK for a copy of the EEG. It is your right as a patient to have a copy. Ask for a detail explanation of the results. If she was diagnosed with BRE that means that the results were abnormal, and followed a pattern typical of BRE. No one prescribes anticonvulsants to a toddler without irrefutable clinical evidence. If you don't know the results ASK.

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