Tips for caregivers?

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My boyfriend, 26 years old, was recently diagnosed with epilepsy. I found him having a convulsive seizure during his sleep one morning, and he had another seizure in the ER a few hours later. When I found him seizing in bed, I tried desperately to turn him onto his side, but he seemed to be at his strongest, and I found it extremely difficult. I myself have 7 herniated discs, and do not have the strength to handle him while he is convulsing.

He has been doing well with Keppra 500mg twice a day. However, I am very nervous as to how I will handle it if he continues to have seizures while on the medication.

Does anyone have any suggestions, such as physical tips as to how I can successfuly get him on his side without hurting him (and myself) in the process? For example, are there certain areas that I can grab him to try and turn him? Or should I leave him alone, let him have the seizure on his back, and then afterwards turn him over? He gets extremely agitated after his seizures, and it appears all he wants to do is lay facing down and go to sleep. Can I let him sleep on his stomach?

If anyone knows of any resources in New York, perhaps someone who can physically show me what to do, that would be a great help as well.

Thanks to all!

Comments

When a person is in a

Submitted by just_joe on Sat, 2014-07-26 - 15:00

When a person is in a convulsion try tp roll them over into their side. But don't try and hold them down just move things out of the way and put pillows under or close to his head. I know what I did when my step father tried holding me down rather then moving the coffee table. If sounds wierd but on bing my back and in a seizure with 1 hand I picked him up and tossed him over my body. This site has thnigs that can be helpful and you can find many things on it. Just go to the get help section. You might also be able to find the EFA office in NY. If yo ufind the office you can call them and they will be happy to discuss issues with you. Or better yet use the 24/7 hot line. Since they can tell you where to go and what can be done.. You posted he was recently diagnosed and is taking keppra. If he just stareted taking keppra then he might need the dosage raised or lowered. Check with his neurologist . It does take time to adjust medications and get them set. As for being on medications and still having seizures. That would depend on the seizures he has wouldn't it??? Are you aware that there are 40+ types of seizures? Some so slight you wouldn't know someone had one even if they were standing next to you. I have seizures still mine last seconds. I have been on calls with clients and resolved their issues while having a seizure during the conversation. If it was a ofcal seizure I finished the call and had to get focused. In those I can't use my rioght hand for a few minutes. So the conversation and issue was resolved, It just took time to enter the resolution into the computer. If it was a partial seizure everything got done. As for keppra.... It is the best medication I have ever used to control seizures. I have taken many different meds in the 50+ years I have been living and dealing with epilepsy. It has not only reduced the number of seizures I was having ut the time in the seizure and time to focus. Call the 24/7 hotline a nd discuss what to do and where you can go

When a person is in a convulsion try tp roll them over into their side. But don't try and hold them down just move things out of the way and put pillows under  or close to his head. I know what I did when my step father tried holding me down rather then moving the coffee table. If sounds wierd but on bing my back and in a seizure with 1 hand I picked him up and tossed him over my body.  This site has thnigs that can be helpful and you can find many things on it. Just go to the get help section. You might also be able to find the EFA office in NY.  If yo ufind the office you can call them and they will be happy to discuss issues with you. Or better yet use the 24/7 hot line. Since they can tell you where to go and what can be done.. You posted he was recently diagnosed and is taking keppra. If he just stareted taking keppra then he might need the dosage raised or lowered. Check with his neurologist . It does take time to adjust medications and get them set. As for being on medications and still having seizures. That would depend on the seizures he has wouldn't it???  Are you aware that there are 40+ types of seizures? Some so slight you wouldn't know someone had one even if they were standing next to you. I have seizures still mine last seconds. I have been on calls with clients and resolved their issues while having a seizure during the conversation. If it was a ofcal seizure I finished the call and had to get focused. In those I can't use my rioght hand for a few minutes. So the conversation and issue was resolved, It just took time to enter the resolution into the computer. If it was a partial seizure everything got done. As for keppra.... It is the best medication I have ever used to control seizures. I have taken many different meds in the 50+ years I have been living and dealing with epilepsy. It has not only reduced the number of seizures I was having ut the time in the seizure and time to focus. Call the 24/7 hotline a nd discuss what to do and where you can go 

When a person is in a convulsion try tp roll them over into their side. But don't try and hold them down just move things out of the way and put pillows under or close to his head. I know what I did when my step father tried holding me down rather then moving the coffee table. If sounds wierd but on bing my back and in a seizure with 1 hand I picked him up and tossed him over my body. This site has thnigs that can be helpful and you can find many things on it. Just go to the get help section. You might also be able to find the EFA office in NY. If yo ufind the office you can call them and they will be happy to discuss issues with you. Or better yet use the 24/7 hot line. Since they can tell you where to go and what can be done.. You posted he was recently diagnosed and is taking keppra. If he just stareted taking keppra then he might need the dosage raised or lowered. Check with his neurologist . It does take time to adjust medications and get them set. As for being on medications and still having seizures. That would depend on the seizures he has wouldn't it??? Are you aware that there are 40+ types of seizures? Some so slight you wouldn't know someone had one even if they were standing next to you. I have seizures still mine last seconds. I have been on calls with clients and resolved their issues while having a seizure during the conversation. If it was a ofcal seizure I finished the call and had to get focused. In those I can't use my rioght hand for a few minutes. So the conversation and issue was resolved, It just took time to enter the resolution into the computer. If it was a partial seizure everything got done. As for keppra.... It is the best medication I have ever used to control seizures. I have taken many different meds in the 50+ years I have been living and dealing with epilepsy. It has not only reduced the number of seizures I was having ut the time in the seizure and time to focus. Call the 24/7 hotline a nd discuss what to do and where you can go

Tips for caregivers?

Comments

When a person is in a

Submitted by just_joe on Sat, 2014-07-26 - 15:00

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