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Thank you Keppra

Sun, 02/07/2016 - 09:04

 

 

Hello fellow parents, contributors and patients. Just wanted to provide an update for everyone that is so kind to read and ask about my son. My son was eligible for med. withdrawal last July. After slowly weaning off Keppra, he took his last pill in October. In match he would be consider seizure free for good. Well, just days before the deadline, he started to get small twitches, tics etc. and his grades started to take a toll. I was not going to wait until he suffered a castastrophic seizure, so called the doctor and put him back on meds.  At least we know now that he is to be on meds forever. At least we know that he can go on for 7 months without meds. At least we know that his symptoms are not too bad and that he will be ok. We did not win the war, but win a huge battle: my son is now on only 500 mg a day of Keppra instead of 1000 mg a day which made him sluggish. He will only need to take one pill a day, instead of two which can be annoying for a teenager. We are in a good place and thankful for his medicine and very thankful and humbled by all of your support and prayers. I could NOT have dealt with this alone, and you guys have been my moral support. thank you so very much for your kind words, your data and links, for sharing your stories and give us all hope. We are thriving and happy with the outcome, even though it was not a total victory, we have the consolation that he will be ok after all, and go on to college without me worrying to death. He can start to drive too, which was the most demoralizing thing of all. Thank you again for your support.

 

 

 

 

 

 

 

 

Comments

It was good not to wait. I

Submitted by just_joe on Sun, 2016-02-07 - 11:15
It was good not to wait. I was really hoping he would get off meds and stay seizure free. He will do fine. But I also know you will still worry as most mothers do. Who knows he might be able to get off the meds later. I loved seeing this and sure hope and pray he stays seizure free. Joe

I know about trips and not

Submitted by just_joe on Tue, 2016-02-09 - 12:30
I know about trips and not sleeping. It took time for me to learn but today they have this forum and computers so I do believe he will do fine especially with a mother like you. Believe me I know I drove Mom nuts at times. When we were kids mom's had their imagination. Yes it was a haha but hten she was right in most cases. My problem was how much sleep did I need. I got to bed about 10-11 woke up at 430 to deliver papers which went on for years. All my life I have slept about 5 hours because of work and other things. Even today I hit the sack at 12 and am awake before 7. Triggers are different with each person. But we do need to look at them and use common sense. Just keep him out of a college that drives the common sense out of the young kids,

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