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Teen daughter with juvenile epilepsy

Tue, 07/05/2016 - 11:42
Hi. I am new to this site but I am hoping to connect with others who are going through similar situations with their children as I am. My 14 yr old daughter was diagnosed with juvenile epilepsy almost 3 years ago. Recently she has been struggling with coping. She no longer feels comfortable sleeping alone. The problem is she gets inside of her own head and starts to stress herself out. She is worried she will have a grand mal. She knows if she doesn't get enough sleep she is more likely to have one, she is afraid that if she is in her room alone that no one will be there if something happens. She has not ever been alone when she has had a seizure but her worry is still there. I have told her that if she feels like one is going to happen to yell and I will come running, but that is not reassurance for her and I don't blame her. I can't imagine what she is feeling given all of the changes she has had to make. Not that it is many but for a teenage girl, it is in their mind. Does anyone have any suggestions on how I can get her to be comfortable sleeping in her room at night again? I have tried talking to her, reassuring her that her new medicine is doing what it is supposed to be doing and she will be fine, telling her she will get plenty of sleep as she does not need to be up early for anything since it is summer. But nothing I say makes a difference because she is scared and worried, which is understandable. Has anyone else gone through this or currently going through this with their child?

Comments

My 14 yo is similar. I'm

Submitted by Tracey Chambers on Fri, 2018-03-09 - 22:42
My 14 yo is similar. I'm sorry to say my solution has been to lay down with her until she falls asleep. I wish I had a better answer. I'm new to this. 

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