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Slowing in EEG's
Wed, 08/08/2007 - 16:45Topic: Parents & Caregivers
Has anyone's child had an EEG that showed "slowing" that was do to equipment or positioning of the child?
I am getting mixed information. I was told that slowing was most likely due to positioning, but that they wanted to an MRI to be sure. Then I was told that the slowing was due to either a recent seizure and her brain was recovering in that area or that we would find something structural on the MRI.
Our pediatrician just got the report and felt that a 24 hour EEG should be done, but said that the EEG results she got were all read as normal. The neuro. when I took Hailey off of the Zonegran, due to odd behavior, said that if the MRI and EKG next week were normal that she didn't need to see us in the office unless she had another episode or if I wanted to put her on the medication again. She also at that time prescribed Diastat for us to have on end at home.
I am so confused.
Jessica
Comments
Re: Re: Slowing in EEG's
Submitted by Hope2007 on Wed, 2007-08-08 - 20:06
We don't know officially if she is having seizures, other than two grand-mal seizures she had back in April. She had had the flu three days prior and had very low blood sugar when we arrived at the ER. However, she has had some odd behavior since that made our ped. refer us to a neuro. (None of it has added up or made much sense regarding the low blood sugar and why after only having the flu for half a day did she three days later THEN have low blood sugar when she never had prior or since that day.)All follow up blood work came back looking normal.
We have only had the one half hour EEG. That is when I was told there was some slowing, but in the report it was thought to be because of positioning. (But there was enough from her history and behavior that we were given Zonegran.) Then I get told otherwise a few days later that the slowing was due to either something structural that will show up in the MRI or recovery from a recent seizure. I took my daughter off of Zonegran because of her behavior on it and wanted more testing done before I made the decision to medicate or not. When I spoke with the neuro. about my decision she prescribed diastat to have on hand. The ped. got the report today and called saying that everything looked normal, but there was slowing on the left side thought to be due to positioning. Has anyone else had this happen?
The neuro. told me that if the MRI and EKG come back normal to come back in if she has another episode or if I want to try medication. I mentioned getting a 24 hr EEG, but didn't get any response to it. Our ped. is telling me to push for a 24 hr EEG if the other tests results are normal.
I am SO confused and just want answers, so that I can care for my daughter in the best way possible.
Thank you for your thoughts.
Jessica
Re: Re: Re: Slowing in EEG's
Submitted by itsmyeviltwin on Wed, 2007-08-08 - 21:18
Jessica, low blood sugar ON ITS OWN can cause seizures, number one.I'm sure her ped will be monitoring that, doing glucose tolerance tests. Any chance she may have spiked a temp? Little ones often spike high fevers especially when dehydrated from flu.
Number two, it is impossible for lay people on a board to give you the answers you need. I am a nurse, not a doctor. Your child's doctors know her full medical history,labs, findings, we do not, and they must make determinations and judgment calls for her best care.
Lots of folks here who mean well and will give all kinds of advice. some good, some not so. Please take it with a grain of salt.
There is a super parent forum here..lots of good folks here with kids with E who you can bounce stuff off...great resource people who are experts on E too. But really? Your childs docs are your BEST resources as they have ALL the info about your child...we do not.
God bless and my heart goes out to you. I am an adult who (so far) has had one big grand mal and I can handle that, but if my child had E, I don't know if I would be so brave.
Re: Slowing in EEG's
Submitted by littlebug on Wed, 2007-08-08 - 18:01
I'm confused as well.Is your daughter still having seizures? I dont see why they would take her off meds,not schedule a follow up and then prescribe diastat just in case. EEGS and MRI'S are not always reliable.She could still have seizures and still have normal test results.