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site to share

Wed, 06/27/2007 - 15:22
Hi everyone. Just looking around and seeing all the new parents to epilepsy like myself. When this all first started in April I was scared to death. I don't think I will ever forget the sight of my son's paralyzed body, his eyes rolling back or the "foaming" at the mouth. Amongst all the web serfing I did on the subject I found this link I thought I would share. It helped me put some things into perspective. Hope it will help others as well. Marla http://www.pediatricneurology.com/seizure_ok.htm

Comments

Re: site to share

Submitted by ekoorb on Wed, 2007-06-27 - 17:20
Hi Marla. My 6 year old daugther had a seizure (the first one we witnessed) back in February of 2006 which left me with the same feelings you expressed. Her seizure was different but it took me a long time to put my feet on the ground again. You are probably in the process still of understanding everything and finding the best docs/meds etc. for your son but don't forget yourself. When my daughter had the seizure I mentioned, I turned into supermom trying to "solve" everything. Once we were in a better place where we had the facts, an amazing doc and the right meds, I think I went almost in to a post traumatic stress situation. I would be driving and just start crying. Just realize that taking care of your emotions is a process just like the diagnosis of epilepsy is a process. I really had to deal head on with the emotional trauma I experienced witnessing my baby stare off for over 7 minutes when I could not snap her out of it. There is a light at the end of the tunnel-- you will learn to deal with the image you described--- just remember as moms, we forget too often to take care of our own emotions. Good luck to you and your son.

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