Partner with epilepsy

I've been searching the forums, but can't seem to find anything recent. I am newly married. My husband has TC seizures, which were "under control" (meaning ever few years he had one) before we married, but he was on Dilantin and has been going through change of meds and neurologists. Since we've been married, he's had 5 seizures, one resulted in ER open head injury. One burst compression fracture. He has had to have back surgery. I think he had myoclonic night seizures last night. I have witnessed a couple of these. The first time, I was, surprisingly in control. Not so much the last time. Now I have become paranoid. I can't get the image of his face when he's having seizures out of my mind, and every time he looks up "funny" or yawns, or does something perfectly normal, I think he's having a seizure. I'm driving him at the moment, for six months, and have started realising how this affects our lives in numerable small ways. I'm sure he understands this, too, but he finds it difficult to talk about (I guess there is a lot of shame involved). I would really love to connect with people in similar situations. I have no family around, they don't live nearby. Don't really have any friends, because I moved here for him, we live quite far from ER help, and some days, it feels quite lonely. I am mostly able to "let it go", but there are times, I just have this horrible anxiety about witnessing the next seizure. I prefer this "paranoia" is normal, and I am not the only one going through this battle of keeping sane/dealing with insurance companies/medications etc.,