Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
overwhelmed
Sat, 05/31/2014 - 23:08My 5 year old daughter was recently diagnosed with having what her pediatrician considered to be absense seizures. After reading the results to a pediatric neurologist, the neurologist does not feel this is the type of seizure my daughter is having and wants her to be seen. However, there does not appear to be any real urgency to see her. The first neurologist could not see her until September and now again we are playing a waiting game with another one. I am fairly frustrated, scared, stressed, you name it, I have it as the mother of my wonderful little girl. My concern is that she is having over 15 on a daily basis which at this time are lasting no more than 30 seconds. Is this normal? Is there anyone that can offer some comforting advice ?
Can you get them to do an EEG
Submitted by Anonymous on Sun, 2014-06-01 - 00:59
Can you get them to do an EEG (& other initial diagnostic tests)? Our pediatrician initially thought the staring we saw would be absence and the short EEG didn't show anything (so they thought I was wrong) but our child has simple & complex partials (CPs are not frequent, second EEG was longer & sleep deprived and showed something during sleep). Typical absence has a distinctive EEG pattern, would be easy for them to see. And she might be having many more seizures than you notice if they are absence. The appts are scheduled three to four months out for the pediatric neurologists at our hospital, but the pediatric epileptologists are much harder to get in to see. Get them moving along on figuring this out where possible, a good history is sufficient for many a diagnosis but they can do a few things in the meanwhile.