over protective mother

My daughter is 9 y.o. and was diagnosed last July. It is very difficult to loosen the reigns. At first I was almost obsessed with it, scared to let her go anywhere with out me. Now I am honest with adults that will be around her when I am not there, and I will have to say, the responses have been positive. They much rather know, than to be caught off guard if something should happen. I think if you treat it like any other problem (asthma, diabetes, etc) with the other parents, they also don't get overwhelmed with it. My daughter has a medic-alert bracelet, and I feel much better knowing if I am not around, her medical information is right there for emergencies. This actually has eased my mind a lot. She also feels safer knowing people will know what to do if a seizures should happen. She tells me she would rather have people know, so she will feel she is safe. She has no problem wearing the bracelet, of course her attitude may change as she gets older. She carries a purse with her that has her seizure action plan, diastat, emergency numbers, and a photo ID of her. I have now been able to let her go by herself to friends houses, sleep overs, etc. However, loud over stimulating places seem to set her seizure activity off, so I usually go with her if going to a place that is really loud. My thoughts and prayers are with you. I am not sure as a mother we will ever stop worrying, but it does get better. You may want to get a medic-alert bracelet, or have a purse with all of her information in it to help ease your mind. It is difficult to let them go, but they have to be kids, and go on with their lives. best of luck, Lori

Hi! My 7yr old son was diagnosed when he was 6mths old. I don't think I ever relax about it but I don't let it run our lives either. He goes on trips with my parents (without me since I usually have to work). He plays baseball, soccer and basketball. I don't let him do sleep-overs though since most of his seizures have been during the night. He does wear a medic alert necklace.