Not able to diagnose... Need help...

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I am new to this forum. My 4 years old son having seizures from past one month.we have discussed with pediatrician he asked us to take EEG.The abnormalities found in the report. It seems like primary generalized epilepsy. Pediatrician forward us to neurologist. He asked us to take MRI.It's normal result. From EEG neurologist confirmed that it would be absence seizures. He asked us to start the drug sodium valporate. But it is not controlled. Next he add the phenobarbitone drug. Not my son taking both the drug. But still have seizures. The symptoms are, eyes flickering and head shaking. Duration of the seizures is less than 6 seconds. Please guide me.

Comments

It is a very suggestion.

Submitted by kimatakim@gmail.com on Sat, 2014-11-22 - 15:07

It is a very suggestion. However, some parents who are desparate to help their children are seeking medical marijua. I have sever depression, chronic pain and migraines and cannot try it as I do security. Also, be advised that marinol is available by prescription and it is the pain reducing component of marijuana without the THC in it. I ve been all all psyche meds and anticonvulsents. Trileptal worked well to control my migraines. Look into removing cetain foods from your sons diet. Caffeine, all dyes, corn syrups, wheat, soy, corn etc as well as ALL artificial sweeteners. Nutrisweet has been shown to cause violence, seizures, and can damage the brain in phenylketonouria!!!! Going organic is an option. I am not all miss natural or gun ho for drugs. Every persons case is uniques so please keep trying

He asked us to wait for 10

Submitted by Anonymous on Sat, 2014-11-22 - 21:34

He asked us to wait for 10 more days. Increased the dosage of both drugs. After 10 days, we can repeat EEG. Will check out the improvement in EEG. Yesterday he had 13 times seizures. Second opinion - he says drugs has to take for minimum 3 years. But he told that as per EEG it's looking like jerky moment. But he is not confirmed the type of seizure.

It may sound hard but yupou

Submitted by Anonymous on Tue, 2014-11-25 - 18:01

It may sound hard but yupou need to relax some. The pediation found abnormalitis and said it was primary generalized epilepsy. The neurologist did the test and his group came up with absence seizures. A person can have more then one type of epilepsy and more then one type of seizures. Now to yor not controlled??? WHich is not controlled the seizures or the medication and what is controlled to you? If your son is having fewer seizures then the medication is starting to work. By adding the phenobarb he is adding another medication which I know works. I read what your sone does in his seizures. what I didn't read what when he started the medications and the dosages..Once a person is put on a medications it takes time for the levels to build up in the body which could be 2-3 weeks the addition of another medication takes an additional time period. after then the neurologist will generally have a visit or meeting with you and discuss how things are going and if your son is doing better. By listening to you he will then make adjustments to the dosages of the meds. If there seem to be problems and at times there are he may change the medication.There are 2 basic tests used by neurologists. The EEG and an MRI. The EEG is basically a brain wave test shwoing where in the brain the waves are comming from. In those tests the can come up with abnormalities which your son had in his. An abnormality is seizure activity. When they see that it also showes where in the brain they came from. The MRI can view anything in hte brain so the neurologiost will view all areas of the MRI so see is there is anything that grew wrong or is different. With me I had abnormalities in more then 1 lobe of my brain. Looking at the area it came from they saw scared brain tissue. With advances made in the last 15 years the know it was from a hemmorage to the brain at the age of 6-8 . The ladder rung I was standing on came out when I was 7. I hit my head hard and the hit spun my head arround which hit the bottom rail of the bed. The blow to my mouth knocked out 4 teeth and I had a gash in the insude of my jar which took 32 stiches. Back in the 1950's there was no MRI and the docs were more worried about mu mouth then the bump on my head. SO it took about 45-48 years to actually find out the date and connect the dots. Relax some and do watch him. I might also suggest you get the My Epilepsy Diary. It can be found under the get help section. Watch the video which tells you how to use it. You can give the neurolgist permission to bring it up and if he does he can look at the graphs and other information put in and he can possiably come up with dosages medications or procedures that will help your son. I do hope this helps and he gets the medications streightened out and gets seizure free Joe

It may sound hard but yupou need to relax some. The pediation found abnormalitis and said it was primary generalized epilepsy. The neurologist did the test and his group came up with absence seizures. A person can have more then one type of epilepsy and more then one type of seizures.  Now to yor not controlled??? WHich is not controlled the seizures or the medication and what is controlled to you? If your son is having fewer seizures then the medication is starting to work. By adding the phenobarb he is adding another medication which I know works.  I read what your sone does in his seizures. what I didn't read what when he started the medications  and the dosages..Once a person is put on a medications it takes time for the levels to build up in the body which could be 2-3 weeks the addition of another medication takes an additional time period. after then the neurologist will generally have a visit or meeting with you and discuss how things are going and if your son is doing better. By listening to you he will then make adjustments to the dosages of the meds. If there seem to be problems and at times there are he may change the medication.There are 2 basic tests used by neurologists. The EEG and an MRI. The EEG is basically a brain wave test shwoing where in the brain the waves are comming from. In those tests the can come up with abnormalities which your son had in his. An abnormality is seizure activity. When they see that it also showes where in the brain they came from. The MRI can view anything in hte brain so the neurologiost will view all areas of the MRI so see is there is anything that grew wrong or is different. With me I had abnormalities in more then 1 lobe of my brain. Looking at the area it came from they saw scared brain tissue. With advances made in the last 15 years the know it was from a hemmorage to the brain at the age of 6-8 . The ladder rung I was standing on came out when I was 7. I hit my head hard and the hit spun my head arround which hit the bottom rail of the bed. The blow to my mouth knocked out 4 teeth and I had a gash in the insude of my jar which took 32 stiches. Back in the 1950's there was no MRI and the docs were more worried about mu mouth then the bump on my head. SO it took about 45-48 years to actually find out the date and connect the dots. Relax some and do watch him. I might also suggest you get the My Epilepsy Diary. It can be found under the get help section. Watch the video which tells you how to use it. You can give the neurolgist permission to bring it up and if he does he can look at the graphs and other information put in and he can possiably come up with dosages medications or procedures that will help your son. I do hope this helps and he gets the medications streightened out and gets seizure free Joe

It may sound hard but yupou need to relax some. The pediation found abnormalitis and said it was primary generalized epilepsy. The neurologist did the test and his group came up with absence seizures. A person can have more then one type of epilepsy and more then one type of seizures. Now to yor not controlled??? WHich is not controlled the seizures or the medication and what is controlled to you? If your son is having fewer seizures then the medication is starting to work. By adding the phenobarb he is adding another medication which I know works. I read what your sone does in his seizures. what I didn't read what when he started the medications and the dosages..Once a person is put on a medications it takes time for the levels to build up in the body which could be 2-3 weeks the addition of another medication takes an additional time period. after then the neurologist will generally have a visit or meeting with you and discuss how things are going and if your son is doing better. By listening to you he will then make adjustments to the dosages of the meds. If there seem to be problems and at times there are he may change the medication.There are 2 basic tests used by neurologists. The EEG and an MRI. The EEG is basically a brain wave test shwoing where in the brain the waves are comming from. In those tests the can come up with abnormalities which your son had in his. An abnormality is seizure activity. When they see that it also showes where in the brain they came from. The MRI can view anything in hte brain so the neurologiost will view all areas of the MRI so see is there is anything that grew wrong or is different. With me I had abnormalities in more then 1 lobe of my brain. Looking at the area it came from they saw scared brain tissue. With advances made in the last 15 years the know it was from a hemmorage to the brain at the age of 6-8 . The ladder rung I was standing on came out when I was 7. I hit my head hard and the hit spun my head arround which hit the bottom rail of the bed. The blow to my mouth knocked out 4 teeth and I had a gash in the insude of my jar which took 32 stiches. Back in the 1950's there was no MRI and the docs were more worried about mu mouth then the bump on my head. SO it took about 45-48 years to actually find out the date and connect the dots. Relax some and do watch him. I might also suggest you get the My Epilepsy Diary. It can be found under the get help section. Watch the video which tells you how to use it. You can give the neurolgist permission to bring it up and if he does he can look at the graphs and other information put in and he can possiably come up with dosages medications or procedures that will help your son. I do hope this helps and he gets the medications streightened out and gets seizure free Joe