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New to this...9 year old daughter

Sat, 05/12/2007 - 01:34
Hi there, I am desparate to talk to anyone in a similar circumstance. Our daughter is quite dramatic, and I have not, I guess, taken things as seriously as I should. But, I didn't know we were dealing w/seizure issues! She's been moody and spacy for years. Thought it was hormones. At night and at homework time, she "has a headache, is hot, is dehydrated" etc. Againk, I thought, Drama Queen!!! Well, the poor girl... Tuesday morning I heard a clunk and went running up to her room to see what looked like my daughter being electrocuted. I'm sure you know...it was the most horrifying thing ever. She stopped after a minute, but was out of it for a while. Had a cat scan...nothing. EEG this morning, and I'm thinking it recorded some activity. She said she felt the "tingles" with the strobe light and the "heavy breathing" part. She was scared, felt like she was going to die, felt like she was "sucked up in a tube and we were far away." I feel soooo terrible and sick about this. We honestly just had her evaluated for depression, something I (mom) deal with too. Were wondering about ADD, etc. I knew something wasn't right, but really figured it was due to drama, hormones, etc. I had no idea. But now we do. 2 months ago she probably had one at a friend's house, but they didn't see the jerking. ONly saw the aftermath where she walked into 2 walls and was out of it. After 10-15 minutes on the couch, they said she snapped out of it and was normal. We figured she was sleepwalking, and obviously hadn't slept enough and was in a new house! Anyway, I feel horrible and specifically would love to talk to a mom of a 9-13 ish year girl. Did you ever misdiagnose your daughter...well, until you saw that grand mal! I cannot believe this and feel terrible for her. Even this afternoon I saw her sitting on the couch staring, which I always attributed to boredom...she started in on what I've always thought was 'drama'..."I don't feel good...I'm hot, I have a headache" etc. I asked more probing questions, I guess, and she said "I feel the tinglies in my feet right now". My gosh...could she have been having a seizure as we were talking? She sat there for probably a half hour, then suddenly felt better and started dancing. She told me that dancing helps her feel better. We often have to have her stop dancing to do homework or go to bed and that makes her so agitated. Please email or reply here...I'd be happy/thrilled/ecstatic to call you if you didn't mind. I don't know how many years of frustration are bottled up here...and to think she may have been having seizures. I'm sick about it, but also relieved to think there might be a reason and it could be treatable. Thank you!

Comments

Re: New to this...9 year old daughter

Submitted by ekoorb on Mon, 2007-05-14 - 23:40
My daugther is 6. I know you are looking for 9 to 13 but I wanted to respond. Don't blame yourself. Unless you are a doctor, how would you know. Some of her behavior could be attributed to the seizure activity but some really could be drama considering she is a 9 year old girl. Take the energy you have to find the right docs/meds instead of using that energy to blame yourself. The diagnosis of E is process and the beginning is an emotional rollercoaster but you will eventually get your feet back on the ground. If I can answer any questions for you, please write back. Take care.

Re: Re: New to this...9 year old daughter

Submitted by Julie Leischner on Tue, 2007-05-15 - 00:53
Thank you! Would love to talk. Is this going to your email directly?

Re: Re: Re: New to this...9 year old daughter

Submitted by ekoorb on Tue, 2007-05-15 - 09:47
Hi Julie. This does not go to the email. I am going to add you to my buddy list and we can try to connect through the IM. when you sign in, go to your profile and the computer will ask you if you want to add me to your list. Neither of us have our email in our profile. Does your daugther have a E specialist or a general neurologist? Our daughter was diagnosed in Feb. 2006 and we started out with a general neurologist and then we switched to an E specialist who changed our lives.

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