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new to the site

Wed, 08/22/2007 - 18:30
i have a 6 year old son who was DX with west syndrome at 4 months old he has never been seizure free he has various problems due to westsyndrome.i would like to get in touch with other parents who have children with epilepsy.

Comments

Re: new to the site

Submitted by littlebug on Sat, 2007-08-25 - 13:00
Hi Jensis's mom, My daughter is also six years old.She has complex partial,simple partial,absence seizures and sensory seizures. She started having seizures when she was two. Welcome to this site. You will meet alot of great people here.

Re: new to the site

Submitted by sylvia scotland on Sat, 2008-11-22 - 15:31

hi littlebugs mum my daughter is two and a half she has west syndrome and although her sezuires are under control at the moment it could change again next weekMilly seems to feel no pain so wears a protective helmet as she seems to like the sensation of pain in fact she has a suspected broken nose after finding she could she could throw herself of our high couch. She cant walk or talk and has significant development delay. The hardest thing is not knowing what the future holds she is on a lot of medicine that seems to be more added when things go a bit haywire.Milly never seems to sleep which is quite hard.She is a little fighter and amazes us with her pure determination as she over comes things but then something else will come up. There is nobody else i know with this syndrome so even talking to someonewho understands is comforting 

hi littlebugs mum my daughter is two and a half she has west syndrome and although her sezuires are under control at the moment it could change again next weekMilly seems to feel no pain so wears a protective helmet as she seems to like the sensation of pain in fact she has a suspected broken nose after finding she could she could throw herself of our high couch. She cant walk or talk and has significant development delay. The hardest thing is not knowing what the future holds she is on a lot of medicine that seems to be more added when things go a bit haywire.Milly never seems to sleep which is quite hard.She is a little fighter and amazes us with her pure determination as she over comes things but then something else will come up. There is nobody else i know with this syndrome so even talking to someonewho understands is comforting 

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