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Myclonic epilepsy

Wed, 07/26/2017 - 11:11
My 17 month old was just diagnosed with myclonic epilepsy.. help!!! They started him on medicine and I am a wreck.. what should I expect?

Comments

expect to get responses from

Submitted by just_joe on Thu, 2017-07-27 - 19:18
expect to get responses from a few more people. They have researched because it was their kids that have epilepsy.For me it was "Hope for the best, expect the worst. You will land somewhere between there. Kind of like with a great Idea you shoot for the Moon. Hey if you miss the Moon you'll all ways land among the starts.You have this site to research.. Always ask his neurologist questions. What type of epilepsy does he have? What type of seizures might he have? They have a 24/7 help line to call if you your family or friends have questions. have questions   1-800-332-1000 

myoclonic seizures can occur

Submitted by Amy Jo on Thu, 2017-07-27 - 23:10
myoclonic seizures can occur in a number of syndromes so you'll want to ask if there's any more known about what kind of epilepsy your son has.

so it's normal to have a hard

Submitted by Amy Jo on Fri, 2017-07-28 - 02:38
so it's normal to have a hard time wrapping your head around things at first, know there's a different learning curve for each person's epilepsy or medication, there's just a lot to adjust to. there is info you need to have but not freak out over... but initially you won't know what info really pertains to your child so just get some general epilepsy info, info on specific medication he starts with, how meds are started and increased, how to contact your neurologist (after an emergency, after hours, etc), and things you know can help you deal with stress (exercise, sleep, eating well and so many little things can help).

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