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My 20 month old is having siezures....need advice

Sun, 10/22/2006 - 23:54
my twenty month old daughter began to have the type of siezure where the head is dropped forward, arms flung out, eyes rolling, and hitting the floor like a lead weight. we went to the hospital 4 days ago, and before we were even taken in she had had about 10. once inside, she had about another 10, and after blood work and urine samples, i was told that she had a viral infection and that it should stop once her fever was under control(which it already was). now, after two more trips to the hospital and about 10+ of these a day, i still have no answers. the first night we came home from the hospital she had one where she remained unconcious for about 20 seconds and was groggy when she came out of it, but since that one she comes to usually by the time she hits the floor. my husband and myself are beside ourselves with worry. this traumatizes me horribly every time i watch her eyes roll back and her thump to the floor, then begin crying. i am supposed to be seeing about a eeg tomorrow, but i find it very scary that two hospitals, one specializing in children, would send me home with her doing this over ten times a day and not want to test her further. when she was 16months old she suffered a siezure where she was unconcious and then stopped breathing for in total probably 3to 4 minutes, i dont remember exactly because i have never been so scared in my life. and that was brought on by an ear infection and fever. she hasnt had a fever in three days, and has nothing else wrong with her, yet she continues this daily. i find myself terrified of letting her go further then i can reach her for fear of seeing her fall on her face anymore(more than once now she has hit her face off furniture and has been left with big blue goose eggs. i find myself trembling, fearing when the next one will happen. i was hoping that i could find some parents whose children suffer the same symptoms as mine does. i would love to hear any suggestions that any parents have taught themselves to cope with this, or anything at all to do with this. thank u so much thegrahamsx5@aol.com

Comments

Re: My 20 month old is having siezures....need advice

Submitted by spiz on Mon, 2006-10-23 - 00:44
Sophie, I don't have a child with epilepsy (I'm the one with it) but my advice is to keep pushing for tests. Make an appointment with an epileptologist (Usually listed under Neurology) or go to: Find A Doctor to find one closest to you. My thoughts are with you! -Spiz

Re: My 20 month old is having siezures....need advice

Submitted by ScottM on Mon, 2006-10-23 - 07:55
i would keep asking for more and more and more test to be ran. it may seems that she is getting poked endlessly but at least they will be doing their jobs. i would change my family doc to a OD vice an MD. we have been seeing an OD for about 8 yrs now and if he isnt 100% sure of something he sends us to a splst that day. he gets us in as a walk in and we wait a bit longer but its worth it. i would also look for a pediatric neuro splst (not surgeon). find 2-3 if you can that way if you dont like the first one go down the list. thoughts and prayers are with your daughter and family. (i know what your going through my 14yro is getting VNS this wednesday for her epilepsy. its a long hard battle. its hard but just be patient and get them test ran. scott

Re: My 20 month old is having siezures....need advice

Submitted by angel_lts on Mon, 2006-10-23 - 10:53
I am the one with epilepsy. But have test done like, magnesium, potassium, b complex, calcium, low blood sugar, low sodium, these can cause seizures also. Just keep learning, and testing till you find out more answers. take care and stay strong Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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