Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
disability benefits for kids with Epilepsy
Tue, 03/06/2007 - 09:27Topic: Parents & Caregivers
Does anyone know of disability benefits for kids with Epilepsy? Our daughter has fallen soooooooooooooooooo far behind in her algebra that she'll have to go to summer school just to get the credit to stay on track for 10th grade next year. I'll looked and looked on the internet and have come up short. my doctor was no help in this matter either. We have no support groups down here in Charleston. Go figure. Im not looking for a full ride but close if not half of the tuition for the sylvan learning center which by the way is $3000 for 65 of instruction. so if anyone knows of grants or anything that helps parents in this matter please pass it on... Im not up here that often so please place it here so other parents will know and also please email it to me at
mahansc@bellsouth.net.
thanks.
Scott & Kellie M.
Comments
SSI
Submitted by mommy2threenow on Tue, 2007-11-27 - 09:38
Have you tried applying for SSI for your children? My son is 2 years old and has atonic "drop" seizures daily. He also has alot of developmental delays and has OT and ST Therapy weekly. We applied for SSI for him and just found out we were approved. He will now recieve a monthly check to help pay for these things that he needs. It only took about 2 1/2 months for his application to go through. I would definetly recommend applying for SSI. You can do it on their website ssa.gov or go to your local social security office.
Take care,
Michelle
(Hayden's mom)
Re: disability benefits for kids with Epilepsy
Submitted by emsmom on Tue, 2007-03-06 - 11:30
Scott,
Have you checked with your daughters school about hooking up with the social system. A social worker may be able to help find funding for your daughter. I dont know what state your in but all states must adhere to the Americans with disabilities act. Maybe there is funding through your county as well.
My son is 5 years old. He
Submitted by sydney665 on Sun, 2018-01-28 - 12:23
My son is 5 years old. He suffered from myoclonic seizure for over a year, uncontrollably with meds. When he has one it starts where he rolls his eyes back or his eyes are staring off to nowhere, seeing he arms jerk every single night His breathing gets very shallow and his heart rate speeds up, now his not sleeping. I don't think there's any changing he started experiencing one horrible serious side effect of the medicine. I could not get an appointment with a neurologist for 5 weeks. I was filled with worry. Thank God for a wonderful doctor, i read a testimonial of someone on a website her daughter was cure from seizure using herbal medicine. I called the number that was retain at the website, i explain to doctor Lawson about my son symptom and I ordered his medicine. my son used the medicine for month now, his health has change the meds worked without any trace of side effects. For over 1 year now seizure free if you don't have this herbal product it is available. It works, wonderfully. Call him at 979 475-5130 or email dr.lawson52@gmail.com. I'm so grateful that he was able to SURVIVE it