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Diagnosis procedure
Fri, 10/09/2015 - 10:50Hi all,
I have temporal lobe epilepsy with complex partial seizures (with the odd grand mal) and lots of auras.
It took around 10 years to get properly diagnosed and I was misdiagnosed twice during that time. In 2010 I was finally diagnosed when the EEG came up with something.
We (my parents and I) found the diagnosis process particularly difficult. I was 10 years old and all the consultant had to go on was my parents' description of what I looked like ('she sits still for about 1 minute and doesn't like noise') and my attempt, as a 10 year old, to describe what my auras felt like. This subjective description of the auras was not enough for a diagnosis.
Has anyone else experienced long-winded diagnosis like this? I'm just interested to know whether this is a common occurrence for young children in the diagnosis process.
Thanks
Jenny