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Daughter diagnosed with JME

Wed, 01/18/2017 - 14:38
My 13 year old daughter was diagnosed with JME following an hour long repetitive episode on Christmas day. She was started on Keppra on January 4th. She has been on the full dose for a week now. She was diagnosed with ADHD in 3rd grade and now they are questioning the attention piece to that diagnosis. The docs think she is having upwards of 100 absence seizures per day. Her Myoclonic jerks seem to only happen in the morning or when she is stressed out. My question is this, how can I tell if she has had a seizure at night? She has never been a morning person and this morning when I went down stairs to her room to wake her up she started crying that I had startled her by walking down the stairs. When she came upstairs she was complaining about being more tired then usual and that her arms and legs were really sore and stomach feels crampy (by her belly button). She was on the verge of tears talking about how badly it hurt. She was over all in a good mood but seemed very distracted. Is it possible that she had a seizure while she was sleeping? Could the aches just be from the meds? Am I just being a paranoid mom? The docs warned me that she will most likely have a tonic clonic seizure at some point but we are hoping to minimize that chance by getting the right meds working. She has not gotten her period yet (sorry for the TMI) and the neurologist is afraid that might be what triggers the next progression of seizures with her.

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