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Child with language delay and Epilepsy

Thu, 04/16/2015 - 23:53

 

Hi, I am new so please be patient. My 7 year old was diagnosed with epilepsy a few months ago and he is taking lamictal. He is developmentally delayed and has also been diagnosed with mild hypotonia, moderate verbal apraxia and abnormal white matter from his last MRI, he also had a 30 minute EEG that showed frequent abnormal activity associated with complex partial seizures. He has had a few episodes that I am now assuming are seizures. These happen at school most of the time. My question is this, can anyone tell me what a complex partial seizure feels like in words a child can understand? Maybe what an aura feels like? Due to the language delay he has a very hard time telling me or describing to me how he feels before, during or after his siezures. I would like to be able to recognize the siezures more, educate his teachers and educate my child on how his epilepsy affects him. I have tried phrases such as "does your head feel funny or weird?" But he simply answers yes or no and tells me his tummy hurts and can't describe it any more than that. Normally after a siezure he is mildly nauseated and very sleepy and confused. I believe he had a siezure today because his teacher said he was confused, sad and withdrawn for a couple of hours today, then said his tummy hurt and wanted to go home to sleep. So I am assuming he had a siezure but not 100% positive. Help. I feel like if I could help him with the words to describe what he feels then he could feel better about what is going on and not so withdrawn and scared. 

Amy

Comments

welcome Amy I understand what

Submitted by just_joe on Fri, 2015-04-17 - 14:56
welcome Amy I understand what you are wanting. However I also know that each persons seizure if different from others having the same seizure. I also think other people will be posting to your post with their answers.I don't have a kid with epilepsy. I do know that this site has information of types of seizures. To find out about the main things is those seizures all you have to do is go to the learn section and click on the types of seizures section. Then you can read about the different kinds of seizures your son can have .Many of the symptoms are there so you can read them and put them in your own words, You might also call the 24/7 help line where people will answer your questions or have someone answer them. That line is for anybody to call wanting information be they family, friends or the next door neighbor. I hope this helps and your son gets the assistance he needs Joe

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