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Carbamazepine/Tegretol - 15month old ??

Sun, 08/26/2007 - 16:52
Hi, Our daughter is nearly 15 months old and has started taking Carbamazepine approx 1 month ago, she doesnt get any of the side effects like sleepiness, infact thats the problem, she doesnt sleep anymore at night, well she wakes up every hour and wont settle....spoke to the docs who said to change the times we give her her medicine, she used to have 2.5ml at breakfast, lunch and before bed whereas now she has 2.5ml at breakfast, teatime and before bed (which can sometimes only be 3hours apart !!!)....not sure this is working either but dont know what to do....for obvious reasons we dont want to change drugs but cant go on like this either....!!! anyone else had this trouble or have any suggestions??? I feel like i am the only parent of a little one who has epilepsy, after reading other peoples stories i guess we are lucky in that the fits are sometimes weeks apart but having said that they are severe and uncontrollable, usually lasting over 40 mins..... thanks

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