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BRE (Benign Rolandic Epilepsy) and seizures worsen at puberty
Tue, 05/20/2014 - 00:04hello,
I am wondering if anyone else with a BRE child has experienced a worsening of siezures at the onset of puberty.
My daughter is 10 1/2, and was diagnosed at age 4 1/2 with BRE after having one tonic clonic seizure which we witnessed. She spent the first 3 years on Trileptal, then 3 years off meds. And for all those 6 years she was seizure-free. The neuro also said her EEG's were improving over time.
Then, 3 months ago, she started to get seizures again --partial complex and tonic clonic. The EEG showed worsened activity. And so the neuro put her back on Trileptal about 2 months ago, but she has had 2 break-through seizures since. (Most of her seizures these last 3 months have occurred during the day, too, although that's an issue for a different thread.)
We are of course disappointed and feel blind-sided by the return of the seizures after being free of them for 6 years. I had also read that BRE can disappear at the time of puberty. But I'm wondering if the onset of puberty can, alternatively, bring about a worsening of the seizures. If anyone else has experienced the latter, I would be grateful if you would share your experience.
thanks in advance!
Hi. My daughter is 14 and has
Submitted by Anonymous on Fri, 2015-08-28 - 06:11
Hi. My daughter is 14 and has BRE. She was first diagnosed at 6 and had been seizure free from 71/2. 10 months ago the seizures returned and has had them roughly every 6 to 8 weeks since that time. She has had and MRI which thankfully came back with clear results. No lesions or abnormalities were found. Last week she had an EEG and we are currently awaiting the results from that. It is a very upsetting anxious time. Any advise or info would be gratefully appreciated.