Atypical Febrile Seizures....or is it more??

Hello, My daughter had her first Febrile Seizure when she was 10 months old in 2005. She spent a few days in the PICU because of the severity of the seizure. Not more than 5 weeks later, same thing only worse. In that first year of seizures she had 5 seizures within 6 months. We finally started giving her Lorazepam at the onset of a fever which helped pretty much stopped the seizures. In 2006, she had one Febrile Seizure. We didn't know she had a temp until she started seizing. She has been on Tegretol since July 2005 but since she has had three seizures after that, I am not convinced that it does anything for her. My latest concern is in the last several months I have noticed that ocassionally, she will be looking at me and I will see her eyes go out of focus and then she will be back within a second or two. I don't know for sure how often she is having these episodes or if they are happening daily. I have two concerns....is it the Tegretol that is causing this reaction, or is it seizure activity. I have talked to her neurologist about this and we have discussed doing the Video EEG to determine what is going on. Has anyone else ever seen anything like this before?? My daughter has only had one EEG and that was after her first seizure so of course it was abnormal. SHe did have an MRI in between seizures and that was completely normal. I am trying to not worry too much but it is so frustrating when her doctor wants to keep increasing her daily medication her diagnosis is still Febrile Seizures....never have they said she has a Seizure Disorder. But it is always in the back of my mind.....especially with the "eye" thing I keep seeing. I would appreciate any feedback I can get. Stacy