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Atonic (drop seziures) my son is barley 2 years old....

Wed, 12/09/2015 - 10:49
My son will be 2 in march. He was diagnosed with Atonic seziures (drop seziures) earlier this year. He was put on Keppra, which made his seziures happen almost every 5 minutes one day and each seziure lasted about 15 minutes.. it was scary. I felt helpless, I didn't know what to do. I work with people with disabilities so I deal with seziures on a day to day basis. But this time it was different, I did not know what to do. It pained me to see my little boy going through this. He was admitted to AMC back in april for 1 week. Constant EKG. All those wires, made it even more real. They finally found out that he was having 2 different kinds of seziures. Ones we can see and ones we cannot see. My heartbroke. They did an MRI which came back normal, the doctors still don't know why this is happening. He is currently on Topamax and Phenobarbital, and ever since he hasn't had any we can see.. but I still feel like I did something wrong, like I could have prevented this somehow. I still reck my brain trying to think of things I did while I was pregnant. Only thing I can think of is that I got pregnant while on birth control. I feel like I ruined his life. I'm hoping he will be able to live a normal life. Play sports. Have fun. And not have to worry about him having a seziure. I want him to be a little boy and do what other little boys do.

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