Anyone been through kid having lumbar puncture? (spinal tap)

sorry i know nothing about lumbar punctures or why or what they detect but we live a kind of sheltered life lol.Anyway I just wanted to say hi and welcome .My son Carson also has E . We have been dealing with it for about 2-1/2 years now . He will turn 4 next week and had his first seizure when he was 18 months.

Hi Mamma Bear! Welcome! I'm also a mother of a son(5) with E. He were diagnosed in August of this year, when he had an atonic seizure. What seizure did your child have? We've come to recognised atonic (drop attacks), absent and myoclonic seizures in our son. Previously it went unnoticed by us (which obviously add the guilt factor!). My mom used to say hindsight is not always a good thing. After numerous tests they said it's Juvenile Myoclonic Epilepsy. Though it did not include a Lumber Puncture. The MRI is extremely necessary, but I'm not sure why they need the LP for your son. I tend to trust medical experts, they may want to exclude some virus in the brain, I believe? Like encefilitis or meningitis mayby. (Excuse the spelling, I'm from South Africa and English is my second language). But if you're unsure if it's necessary, why not phone your doctor and ask him? It's not something I think you should put your son through unnessecary. Something big went wrong with my epidural, and it was EXTREMELY painful. So much so that I nearly decided to have a general aneathestetic with my second child (I had to have ceaserians with both), rather than go through that pain again. In the end, I had a wonderful experience 2nd time round. But I'll never, ever forget that pain flowing through my back. And they needed to administer it twice, with a patch (injecting blood back into the spine) 2 days later. So I had that pain 3 times. It is worse than anything I ever had. Maybe you can request they give your son something beforehand? Good luck to you. It's not an easy road, those first few weeks. Especially waiting for test results. I hope you have some answers at the end of it all. Just hold on, after a while, acceptance do start to come, and you start to deal with it all. It's tough when they're so small, they don't even understand why. Somedays it will break your heart, but in the end you'll realise that he's still your little boy, something was just added on his road, and he needs you to be there for him. My son's teacher told me yesterday, that she believe he got all his talents and intelligence as an extra gift from God, to help him cope and deal with E and the effects the medications have on him, and the impact it will have on his life and school performance in the future (his type of E is uncurable and he won't outgrow it). I'm starting to realise how much more precious my son had become to us after he were diagnosed. Take care, I hope everything will settle down and that you will find answers and help soon. Essie (mom to Nian, 5 and Meonie, 3)