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Absence seizures in children
Fri, 05/10/2013 - 19:34Comments
Re: Absence seizures in children
Submitted by auz mum on Sat, 2013-05-11 - 16:31
hey thankyou for you feedback, interesting,,,,,, i hadnt even thought about that as we are pretty new to this whole thing, so its not a one size fits all kind of deal? is it possible she could be better on some other meds? I will be bringing this up with her specialist next visit, she has been on meds since april so about 5 weeks, in the beginning she was very tired and I must admit she isnt tired any more just very iritable, as she is one of three daughters we are all adjusting and the dynamics of the whole house have had to change, I dont want to over compensate for her as I still have the other two to think about, I just dont know how to react when she does flare up, I have told her when she is feeling anxious to tell me this secret word and at the drop of a hat we will give her space un till she is feeling less frustrated, It sounds great in theory but its the in betweens the growing her sisters and pushing the
" I didnt" when I saw her do it, she has taken on this blatent dis respect for her father and I when she is in these zones, she will answer us back and not do what she has been asked to do, which is not how I raised my kids, its such a shock to the system, in regards to her dose she was still having seizures on 5ml twice a day, the specialts recommended 10ml twice a day but I was reluctent to up it that much as she was getting so tired, we eventually agreed on 7.5 twice a day and havent gone up since, then, I know this is random but do you know of what foods could benifit her?
Thankyou so much for your insight,
hey thankyou for you feedback, interesting,,,,,, i hadnt even thought about that as we are pretty new to this whole thing, so its not a one size fits all kind of deal? is it possible she could be better on some other meds? I will be bringing this up with her specialist next visit, she has been on meds since april so about 5 weeks, in the beginning she was very tired and I must admit she isnt tired any more just very iritable, as she is one of three daughters we are all adjusting and the dynamics of the whole house have had to change, I dont want to over compensate for her as I still have the other two to think about, I just dont know how to react when she does flare up, I have told her when she is feeling anxious to tell me this secret word and at the drop of a hat we will give her space un till she is feeling less frustrated, It sounds great in theory but its the in betweens the growing her sisters and pushing the
" I didnt" when I saw her do it, she has taken on this blatent dis respect for her father and I when she is in these zones, she will answer us back and not do what she has been asked to do, which is not how I raised my kids, its such a shock to the system, in regards to her dose she was still having seizures on 5ml twice a day, the specialts recommended 10ml twice a day but I was reluctent to up it that much as she was getting so tired, we eventually agreed on 7.5 twice a day and havent gone up since, then, I know this is random but do you know of what foods could benifit her?
Thankyou so much for your insight,
Re: Absence seizures in children
Submitted by Masterjen on Sat, 2013-05-11 - 18:11
Hi
Five weeks really isn't very long. It is not a one size fits all deal with the medication, and there are others that can be tried. It might be worth hanging in there a while longer, if you can, since she is showing some signs of accomodating to the medication already. Definitely bring it up with specialist, though, and he/she can give you an idea if you should stick it out, or if a change is in order.
She should be treated just as any of your other children do if they talk back, become angry, etc. - in other words, being held accountable. Pehaps not in a punishment sort of way, but in a way that will help her learn acceptable ways to take out this frustration (running around the house,skipping, etc. - usually something physical works off the pent up energy). Some kids are good at talking things out and some aren't. Good luck!!
Hi
Five weeks really isn't very long. It is not a one size fits all deal with the medication, and there are others that can be tried. It might be worth hanging in there a while longer, if you can, since she is showing some signs of accomodating to the medication already. Definitely bring it up with specialist, though, and he/she can give you an idea if you should stick it out, or if a change is in order.
She should be treated just as any of your other children do if they talk back, become angry, etc. - in other words, being held accountable. Pehaps not in a punishment sort of way, but in a way that will help her learn acceptable ways to take out this frustration (running around the house,skipping, etc. - usually something physical works off the pent up energy). Some kids are good at talking things out and some aren't. Good luck!!
Re: Absence seizures in children
Submitted by Masterjen on Sat, 2013-05-11 - 00:16
While it is true many people can have side effects from AEDs, lots of people don't. The goal is to get the best seizure control with the least (or preferrably no) side effects. How long has she been on medication? Some people take a while to get used to the medication (weeks or even months) and in time the side effects can taper off. Or, it may be that the dose is too high, or perhaps a different medication is more suited for your daughter.