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7.5 month Old daughter Dx with Infantile Spasms

Wed, 06/20/2007 - 23:52
Im new to the group my now 8mo old was dx with IS at 7.5 months tried B6 for 2 weeks the we are now on 20 units acth its been 2 weeks. All seizure activity has stopped and no seizures for 9 days!! Tomarrow is her eeg which will know if we can start the wean. The only side affects from the acth was irritablilty and hunger. *****Is there *****Any parents out there that there kid 'had' IS and everythings back to normal? I did hear of a guy who was in his thirties but curious if any more..?

Comments

Re: 7.5 month Old daughter Dx with Infantile Spasms

Submitted by Tommysmom on Mon, 2007-06-25 - 03:42
Hello, It is a very good sign that the seizures have stopped already. My son was diagnosed with IS at 4 months old. He is now 2. We have been unable to stop the seizures and he is severely delayed. He cannot sit up on his own and is still eating pureed foods and using a bottle. He still doesn't speak but does use a few simple signs to get his point across. My son was on the ACTH for 4 months. It helped a little but didn't stop them completely. He gained alot of weight but it came back off when we stopped the med. Good luck to you.

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