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7 year old daughter
Thu, 04/30/2015 - 12:26Topic: Parents & Caregivers
Hello my daughter was diagnosed with absence, drop, and just recently shes been partial full on seizures that last about 3mins. When she was first diagnosed it was just the absence seizures she was having they did prob testing back in october showing she has 6-10 acute seizures a day! They prescribed her Limictamal which has controlled them, shortly after they were controlled she started to have drop seizures multiple times a day, her dr prescribed a liquid medicine called Kepri to her which stoped the drop seizures but then again shortly after she started to have the partial full on seizures at least once a day. Her nurologist increased the kepri a ml. So my daughter takes 3pills of Limictamal and 5ml of kepri 2times a day. This past week and a half yet again she is having these partial seizures almost everynight, i cant even let herbathe by herself recently because she has had a couple while taking a bath luckily I was right there with her. Being 20 and having a step daughter with all this going on gets real stressful I just want her to be better and it seems like the meds work for a little then her body gets used to them and they wont help her no more seems like the seizures are getting worse, will it be like this the rest of her life? Along with the seizures she also has tremors that effect her daily the dr says with age it will get better but is there anything qe can do to help her stop being so shaky? I just want more answers more advice I feel so helpless when she has her episodes and it seems like drs just wanna keep feeding her medicine
Comments
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Submitted by just_joe on Thu, 2015-04-30 - 16:30
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so she has been diagnosed
Submitted by just_joe on Thu, 2015-04-30 - 16:29
so she has been diagnosed with different seizures. She was put on a medication. Another medication was added because of the other types of seizure she was having. Fine. Without knowing WHEN this all started I couldn't tell you much other then the doctor is wanting therapeutic levels to get set in her body. By adding another medication the time period will start again. It takes 4-6 weeks for the person taking the meds to get their body used to them. If the new medication was added before that period then it will take 4-6 weeks again along with the other time period for the old medication. As she grows the med levels will need to be adjusted. When I was first put on meds I was taken off one of then in 2 day because the dosage was too high. @ days later Iwas put back on it at another dosage and it did well. As I changed from a kids to a teen I had to have my dosage increased 4-5 times in about 9 months. I was growing like a weed. I grew almost a foot in height and gained a little over 50 lbs. I just want more answers more advice I feel so helpless when she has her episodes and it seems like drs just wanna keep feeding her medicine While many people think most doctors want to push pills some may but the majority will prescribe a medications they have a patient on that has worked with themNow understand that seizure medications are nothing like aspirin where one sixe fits all. If they are prescribed to be taken 2 times a day then those times should be 12 hours apart. I take mine at 8 am & pm. If I take my evening medication at 12 the I might have a breakthrough seizure.I hope this helpsJoe