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3 month old with seizures

Wed, 01/17/2007 - 16:01
I am new to the website and have really learned a lot in just a few days. My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand mal seizures a day. We are currently on Phenobarb and Keppra. We are currently in the process of scheduling an appointment with an Epileptologist. She is so young that some of the new medication has not been approved for infants her age. Keppra is one of those drugs, but they have found that it works great in older kids. The past 2 weeks have been constant seizures throughout the day. The past few days she has had only facial twitches. Does this mean the medication is working, but need to adjust it to get those to stop? She is also really tired and not wanting to eat. I have also found that her diaper in the morning is hardly wet ( I expect for it to be soaked after 8-10 hours), is this normal? So many questions to answer? Praying daily for her and other families because this is so scary. JBishop

Comments

Re: 3 month old with seizures TRY GABA! IT WORKS FOR ME

Submitted by B. A. Miracle on Mon, 2010-01-11 - 00:07
is this your first baby? being a first time parent is exhausting enough without something terrifying like seizures to worry about. I'm praying for you. Please read my profile to learn why I am so convinced GABA is the answer to your prayers. I now control my seizures with TAURINE and a multivitamin alone, and no meds, because Taurine, Zinc and B-6 help your body make GABA, space Read "Dr, Atkin's Vita-Nutrient Solution"... . On page 177 Dr Atkins states "When the brain is confronted with a lack of its most widely distributed neurotransmitter, several GABA-related disorders may develop... (including) ANXIETY... etc. ,etc. DEPRESSION, etc, etc. CONVULSIONS. Especially in children, seizure disorders frequently coincide with a low GABA level. TAURINE'S seizure-controlling ability probably stems from its ability to raise GABA levels in the brain. The anticonvulsant drug valporic acid works through the same mechanism. But GABA itself has been shown to be useful in seizure control. In other theraputic areas 2 grams of GABA per day have helped to improve speech and restore memory loss in people who have had a stroke. The same amount has been found to decrease high blood sugar, while a daily 3 gram dosage appeared to reduce blood pressure and bolster overall heart function." space Of course the dosages he mentions are for adults:(a gram is 1,000 mgs.) But GABA IS VERY FAST ACTING, and is produced in sublingual tablets so you can place one under your tongue so the big blood vessels under the tongue can absorb the GABA and rush it into your bloodstream to stop a seizure as its starting. Of course you would NEVER put a tablet under a baby's tongue... space if your baby is on a formula that lacks GABA or if you're breast feeding and you're low on protein, zinc, and B-6. that could be the cause of your baby's seizures. Get the Atkins book from Amazon (there's more on controlling seizures in it); andbuy GABA (its an amino acid (protein) from a health food store. GABA is such a successful seizure, and stress controller that there are hundreds of thousands of us who take it so you can find many varieties of it in almost every health food store... space The little orange flavored 125 mg sublingual tablets by SOURCE NATURALS can be crushed easily and added to formula or water Their peppermint sublingual tablets are terribly strong, worse than Altoids, look for the orange flavored ones. space GABA powder by NOW in 750 mg capsules can be opened up , poured out, divided if you think a whole cap is too much, and mixed with liquid. It has a slight citrus flavor. At least read their label, which is very informative... space. And Stress-Relax PharmaGABA BY NATURAL FACTORS 200mg crushable tablets have a yummy vanilla flavor. space I haven't included Atkin's references and foot notes but they're in the book. GABA's side effects include a tranquil, peaceful feeling, clear thinking, cessation of Anxiety and Depression, lowered blood pressure, (mine runs 90 over 60) and heart support. It is non habit forming. space ASPARTAME AND MSG DECREASE GABA IN THE BRAIN READ LABELS! space I've found Vitamin Cottage has good prices on their web-site, and they ship quickly. If your order is large enough shipping is free ALL BEST wishes for you, stressed-out parents and poor, exhausted little babies... B. A. Miracle

Re: 3 month old with seizures

Submitted by ajean77 on Fri, 2009-10-30 - 12:46

Hi there parents,

I just wanted to say that I to am a parent of a child with epilepsy. I wanted to give some words of strength, and also to inform you of what lies ahead in the up coming years.

My story is: My son is now 15 years old and is a sophmore in High School with a 3.50 GPA and has been in special education classes since he started school.

My son was diagnosed with myoclonic seizures when he was 2 months old, I thought that day was the worst day of my life. I did not know what lied ahead. Throughout my sons first year of life was a nightmare for me, during a childs first year of life this time is supposed to be precious and priceless memorable but not for us I love my son with all my heart and always wished that there was some way he could do it all over again without having to endure all that he did. No baby or child should have to go through that and it's hard for a parent to go through and feel helpless not being able to protect and help your baby. So I can understand all that you guys are going through believe me, we are still going through the effects to this day.

after being diagnosed at 2 months old my son continued with countless episodes daily throughout the entire day, my son was always in and out of the hospital to the point that all the nurses knew us by name and we became like family from always being there and he was constantly being put on different meds. from phenobarb, etc. nothing was working by 6 months he was finally put on prednisone yes the steroid! that helped but of course that was a temporary fix until they could find something else to control it. after 1 1/2 months he gained alot of weight and had to see a dietician to help him lose the weight caused by the prednisone. They started him on Klonophin by the time he was 8 mths. which started to slow down his episodes daily so it was working but it took some time finding the right dose to completly control them the day before his 1st bday was the last day he had a seizure and since then has been seizure free. Stevens (my son) was on Klonophin until he was about 8 and was then taken off, he has continued to do well with no recurrence of episodes. AMEN!!!!

Developmentally we were left with developmental delays. Stevens was behind in reaching all his milestones i.e. turning over, sitting, crawling, walking,Talking. On top of his regular Dr. appts. he also had his appt. with the OT, PT and speech therapist every week. It was hard and took alot of patience but we made it and we are here.

So I say to all of you stay strong and love you r little one like you never loved before and show all the support you possibly  can. I am my sons biggest fan. because of all that we went through we are very close but just like I have been there for him he also helped me to. Stevens showed me that I am strong. I have the strength in me to deal and the strength to move forward and think positive. Stevens truly is my sunshine!

 

Hi there parents,

I just wanted to say that I to am a parent of a child with epilepsy. I wanted to give some words of strength, and also to inform you of what lies ahead in the up coming years.

My story is: My son is now 15 years old and is a sophmore in High School with a 3.50 GPA and has been in special education classes since he started school.

My son was diagnosed with myoclonic seizures when he was 2 months old, I thought that day was the worst day of my life. I did not know what lied ahead. Throughout my sons first year of life was a nightmare for me, during a childs first year of life this time is supposed to be precious and priceless memorable but not for us I love my son with all my heart and always wished that there was some way he could do it all over again without having to endure all that he did. No baby or child should have to go through that and it's hard for a parent to go through and feel helpless not being able to protect and help your baby. So I can understand all that you guys are going through believe me, we are still going through the effects to this day.

after being diagnosed at 2 months old my son continued with countless episodes daily throughout the entire day, my son was always in and out of the hospital to the point that all the nurses knew us by name and we became like family from always being there and he was constantly being put on different meds. from phenobarb, etc. nothing was working by 6 months he was finally put on prednisone yes the steroid! that helped but of course that was a temporary fix until they could find something else to control it. after 1 1/2 months he gained alot of weight and had to see a dietician to help him lose the weight caused by the prednisone. They started him on Klonophin by the time he was 8 mths. which started to slow down his episodes daily so it was working but it took some time finding the right dose to completly control them the day before his 1st bday was the last day he had a seizure and since then has been seizure free. Stevens (my son) was on Klonophin until he was about 8 and was then taken off, he has continued to do well with no recurrence of episodes. AMEN!!!!

Developmentally we were left with developmental delays. Stevens was behind in reaching all his milestones i.e. turning over, sitting, crawling, walking,Talking. On top of his regular Dr. appts. he also had his appt. with the OT, PT and speech therapist every week. It was hard and took alot of patience but we made it and we are here.

So I say to all of you stay strong and love you r little one like you never loved before and show all the support you possibly  can. I am my sons biggest fan. because of all that we went through we are very close but just like I have been there for him he also helped me to. Stevens showed me that I am strong. I have the strength in me to deal and the strength to move forward and think positive. Stevens truly is my sunshine!

 

Hi there, my prayers go out

Submitted by Anonymous on Sat, 2014-08-16 - 17:07
Hi there, my prayers go out to you and your little one, I have epilepsy, i've had it scents i was 2 months out and im 23 now, with my own little one, I've been looking up signs of  infint's that have epilepsy in case my little one ends up with it, it runs n my family and i thought with me having it she could possibly have it, and i'm hoping she don't cause i don't want my little girl to go through what i went through, i was n in outta hospitals my entire life, and still am going, I'm on a really high does of Kepptra, works for me, but the other one they have me on just makes me sleepy, Dear Parents what ever you do,Don't put your childern on Depokote, it just makes things worse. 

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