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15 month old focal seizure
Sat, 08/18/2007 - 05:00Comments
Re: 15 month old focal seizure
Submitted by julieanna30 on Sat, 2009-01-03 - 02:28
HI MY NAME IS JESSICA I HAD MY DAUGHTER JULIEANNA AT 17 ON JAN 30TH 2007 MY DAUGHTER HAD A NORMAL LIVE SHE WAS HAPPY AND EVERYTHING. IN MAY OF 2008 SHE WAS 15 MONTHS OLD SHE HAD LOSS RESPONSE TO ME SO I TOOK HER TO THE E.R AND THE DOCTOR SAID IT WAS A FEBRILE SEIZURE I WAS A RECK I DIDN'T KNOW WHAT TO THINK FOR THE SIMPLY FACT IS MY HUSBAND AND HIS FAMILY HAVE A HISTORY OF SEIZURES. ABOUT TWO WEEKS LATER I WOKE UP AT 7:OO AM AND BABY GIRL WAS TWITCHING ALL OVER HER BODY I PANICED AND CALLED 911 WHEN THEY GOT THEIR THEY SAID SHE DID NOT HAVE A FEVER I MY HEART DROPPED AND I STARTED CRYING HARDER. I JUST THOUGHT SHE IS EPILEPTIC. EVER SENSE THEN MY DAUGHTER HAS A AROUND 45-50 SEIZURES. THEY HAVE DONE 2 EEG, 3 CTSCANS. AND 1 MRI AND THEY HAVE NOT FOUND ANYTHING ABNORMAL SHE IS ON PHENOBARBITAL. IF YOUR CHILD HAS A RELATION TO MY DAUGHTER JULIEANNA PROBLEM AND TESTS RESULTS AND U FOUND THE REASON Y PLEASE LETME KNOW THANK U.
HI MY NAME IS JESSICA I HAD MY DAUGHTER JULIEANNA AT 17 ON JAN 30TH 2007 MY DAUGHTER HAD A NORMAL LIVE SHE WAS HAPPY AND EVERYTHING. IN MAY OF 2008 SHE WAS 15 MONTHS OLD SHE HAD LOSS RESPONSE TO ME SO I TOOK HER TO THE E.R AND THE DOCTOR SAID IT WAS A FEBRILE SEIZURE I WAS A RECK I DIDN'T KNOW WHAT TO THINK FOR THE SIMPLY FACT IS MY HUSBAND AND HIS FAMILY HAVE A HISTORY OF SEIZURES. ABOUT TWO WEEKS LATER I WOKE UP AT 7:OO AM AND BABY GIRL WAS TWITCHING ALL OVER HER BODY I PANICED AND CALLED 911 WHEN THEY GOT THEIR THEY SAID SHE DID NOT HAVE A FEVER I MY HEART DROPPED AND I STARTED CRYING HARDER. I JUST THOUGHT SHE IS EPILEPTIC. EVER SENSE THEN MY DAUGHTER HAS A AROUND 45-50 SEIZURES. THEY HAVE DONE 2 EEG, 3 CTSCANS. AND 1 MRI AND THEY HAVE NOT FOUND ANYTHING ABNORMAL SHE IS ON PHENOBARBITAL. IF YOUR CHILD HAS A RELATION TO MY DAUGHTER JULIEANNA PROBLEM AND TESTS RESULTS AND U FOUND THE REASON Y PLEASE LETME KNOW THANK U.
Re: 15 month old focal seizure
Submitted by xohion on Mon, 2009-09-07 - 17:44
My daughter (now 8) has been diagnosed with focal seizures as well. Her first seizure (we didn't know it was one) occurred in April 2007. She was not officially diagnosed until April 2008 when I took her to the hospital with symptoms that were similar to an adult having a stroke. She was drooling, couldn't speak, etc. She was able to walk, write, etc. Her EEG last October showed that during the test she was seizing most of the time, her CT scans came back normal as did her MRI. She was initially put on Depakote, but the seizures continued. Her neurologist then added trileptal to her medicine regime. Seizures occur about every three months with the same presentation....wakes up from sleep, extreme drooling, inability to speak, but is aware of all that is going on. From the time she comes to get us to the time she is fully recovered (talking without slurring or drooling) is usually about 15 minutes or so. She recently had Keppra added because her last seizure was inconsistent with past seizures (lost muscle control and lasted longer). Keppra changed her personality dramatically. After one month on the meds, I "pleaded" with the doctor to remove her from it. Thankfully, we have not had anothe seizure, however, if we continue on our pattern, she will be due for another one in October.
She is currently taking 750 mg of depakote at night and 9 ml of trileptal morning and night.
My daughter (now 8) has been diagnosed with focal seizures as well. Her first seizure (we didn't know it was one) occurred in April 2007. She was not officially diagnosed until April 2008 when I took her to the hospital with symptoms that were similar to an adult having a stroke. She was drooling, couldn't speak, etc. She was able to walk, write, etc. Her EEG last October showed that during the test she was seizing most of the time, her CT scans came back normal as did her MRI. She was initially put on Depakote, but the seizures continued. Her neurologist then added trileptal to her medicine regime. Seizures occur about every three months with the same presentation....wakes up from sleep, extreme drooling, inability to speak, but is aware of all that is going on. From the time she comes to get us to the time she is fully recovered (talking without slurring or drooling) is usually about 15 minutes or so. She recently had Keppra added because her last seizure was inconsistent with past seizures (lost muscle control and lasted longer). Keppra changed her personality dramatically. After one month on the meds, I "pleaded" with the doctor to remove her from it. Thankfully, we have not had anothe seizure, however, if we continue on our pattern, she will be due for another one in October.
She is currently taking 750 mg of depakote at night and 9 ml of trileptal morning and night.