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12 year old with complex febrile seizures
Wed, 09/09/2009 - 09:25Comments
Re: 12 year old with complex febrile seizures
Submitted by lesevonnne on Wed, 2009-10-07 - 23:53
Thank you. I have had many battles with school nurses over the years regarding just this same problem. Is your son school age? Physical education has posed quite a problem for us, as my son's body temperature rises quickly as well. I had a school nurse tell me one time that physical activity can NOT cause a rise in body temperature. This from a woman who has a masters degree in nursing. And although he has not had a diagnosed seizure during physical activity, his face is always extremely flushed and he is always at the point where a seizure seems probable.....and also to the point of teachers telling me and the nurse that they don't feel comfortable with my son being in the class. He has been told to sit out (by the decent p.e. teachers) to the point where teachers tell us that there is nothing wrong and that he has to participate or flunk. I have had people tell me to check his blood pressure due to the intense coloring on his face.....and we have done just that. Blood pressure and everything is just fine. We can not be the only few that are going through this......Thank you all so much....For the first time, I truly feel....not alone.
Thank you. I have had many battles with school nurses over the years regarding just this same problem. Is your son school age? Physical education has posed quite a problem for us, as my son's body temperature rises quickly as well. I had a school nurse tell me one time that physical activity can NOT cause a rise in body temperature. This from a woman who has a masters degree in nursing. And although he has not had a diagnosed seizure during physical activity, his face is always extremely flushed and he is always at the point where a seizure seems probable.....and also to the point of teachers telling me and the nurse that they don't feel comfortable with my son being in the class. He has been told to sit out (by the decent p.e. teachers) to the point where teachers tell us that there is nothing wrong and that he has to participate or flunk. I have had people tell me to check his blood pressure due to the intense coloring on his face.....and we have done just that. Blood pressure and everything is just fine. We can not be the only few that are going through this......Thank you all so much....For the first time, I truly feel....not alone.
Re: 12 year old with complex febrile seizures
Submitted by carmenk on Wed, 2009-10-07 - 15:52
A major trigger for my son is temperature, either fever due to illness or elevated temperature from a bath that is too hot or from the heat of the summer. His internal temperature guage is also very sensitive and his body temperature goes up very easily and quickly. When he is really sick and it is hard to keep his temperature down, I stagger IB and tylenol, alternating every 3 hours. That way he is always covered with something to keep his temperature down but is not overdosing on anything. We have to really watch the summer heat and the hot sun, it triggers a seizure very quickly. So you are not alone that is for sure.
I don't know, there must be a point in which the word febrile must be replaced with trigger?
A major trigger for my son is temperature, either fever due to illness or elevated temperature from a bath that is too hot or from the heat of the summer. His internal temperature guage is also very sensitive and his body temperature goes up very easily and quickly. When he is really sick and it is hard to keep his temperature down, I stagger IB and tylenol, alternating every 3 hours. That way he is always covered with something to keep his temperature down but is not overdosing on anything. We have to really watch the summer heat and the hot sun, it triggers a seizure very quickly. So you are not alone that is for sure.
I don't know, there must be a point in which the word febrile must be replaced with trigger?