Community Forum

Topic: Parents & Caregivers

Created By: swmama | 2017-09-18 13:37 | 5 Comments

My 6 y/o was referred for an EEG because of staring spells from her teacher. Her 1 hour EEG was abnormal with TIRDA and spikes and waves. MRI was normal and a follow up 6 hour EEG was normal....

Created By: PDSmith | 2017-08-22 17:44 | 0 Comments

What visiting my grandson of 3 month old last night he had just had a bath and I was feeding him his bottle, when I Noticed that milk was pooling on his neck I took the bottle out his mouth, it...

Created By: White4524 | 2017-08-19 18:31 | 4 Comments

I am wondering if there's anyone out there that has opted to go a more natural route for preventing seizures vs the typical medication prescribed. I'm having a difficult time wrapping my...

Created By: Graciesmum_599224a697404 | 2017-08-14 18:59 | 1 Comment

My 22 month old started having seizures on Friday morning then proceeded to have 6 more all in less than 24hrs. We where admitted to children's hospital, had an eeg and MRI with normal...

Created By: JCunni | 2017-08-14 18:08 | 0 Comments

I haven't posted here in years. This place was a lifeline to me when my daughter was first diagnosed.

Looking for advice on nocturnal seizure monitors. We previously used the Emfit...

Created By: Kristy25 | 2017-08-11 13:45 | 1 Comment

I am in dire need of help or advice. My 5 year old has been on depakote for about 5 months now after taking him off and on other different meds. (Trileptal, keppra). While it seems to be helping...

Created By: mymoonbeam | 2017-08-09 14:18 | 4 Comments

Hi, My 14 y.o. daughter passed out on the beach this past Sunday and was unresponsive. One minute she was standing and the next I turn to speak to her and she was on the ground unresponsive. When...

Created By: mmwinget | 2017-07-28 06:14 | 2 Comments

Hi! My daughter is 6 and was diagnosed with cyclic vomiting syndrome at 2 years old. We have lived with that diagnosis for
Years. She worsened about 8 months ago and the meds that had been...

Created By: genericusername | 2017-07-26 15:25 | 2 Comments

Hello, I am new to the forums. Hoping I can find a support group for caregivers.

My wife has had undiagnosed epilepsy since head trauma sustained when she was in high school. Let me start...

Created By: Russlynn | 2017-07-26 11:11 | 3 Comments

My 17 month old was just diagnosed with myclonic epilepsy.. help!!! They started him on medicine and I am a wreck.. what should I expect?

Created By: Smarie1011 | 2017-07-25 22:16 | 2 Comments

Hey all, first I will start by telling you a little about my son. He is 18 months old he was born 1 month premature at 4.5 lbs.due to low amniotic fluid. He has knot on his head and bruises. I was...

Created By: JanetJennyStarr | 2017-07-25 18:46 | 1 Comment

Hi Everyone,
I'm new to this group. My son has had Juvenile Myoclonic Epilepsy since March 1997. He almost 35 and he usually has a seizure one or twice a month if he hasn...

Created By: sheila7000 | 2017-07-24 14:17 | 0 Comments

Please does anyone happen to have a Keppie dog's green velcro vest? There is another harness like thing under the vest that advertises Keppra, and we do still have that. The dog was given...

Created By: Crmn0724 | 2017-07-13 23:51 | 8 Comments

Hello,

My son developed a fever Tuesday around noon and had a seizure around 6, it has been hell for us since. I called 911 and hospital wanted to keep him overnight as his seizure was...

Created By: LauraL_59639f94d0d27 | 2017-07-10 12:12 | 5 Comments

I am constantly worried. My son is 16. He has a grand mal seizure seems like every 4 months not sure what triggers them. I'm an er nurse and have had many patients with seizures but when it...

Created By: Lwid510 | 2017-06-22 13:29 | 5 Comments

My son had an eEG a few weeks ago, dr said the eeg is abnormal but no seizures. He had several sharp spike and wave episodes generalized. Mainly in his sleep. I understand these are not actual...

Created By: Crrosier08 | 2017-06-19 23:46 | 3 Comments

My daughter turned 14 on May 20. A week later she collapsed on the kitchen floor while doing dishes. We ran in and found her convulsing on floor and called 911. She had never had a seizure before...

Created By: finleyla | 2017-06-12 11:11 | 0 Comments

My son was diagnosed last year with photosensitive epilepsy - but it's only triggered with Natural Sunlight (video games, strobe lights, etc don't affect him). He is on depakote and...

Created By: JoyfulMommy_5931cf3a3cb56 | 2017-06-02 16:58 | 1 Comment

My baby girl was born with HIE (oxygen deprivation prior to birth, and resulting brain damage). Because of that, she has seizures. However, lately I've begun to wonder if some of what I'...

Created By: kathastwin | 2017-05-31 04:00 | 2 Comments

I am a single mom with 13 yo son who began having seizures in January. We live in a small town in southeast Georgia. We are seeing a pediatric neurologist in Brunswick, Ga and currently trying to...

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