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Topic: Parents & Caregivers

Created By: lisastaubly | 2015-03-30 00:49 | 6 Views | 0 Comments

Help! my son mri says he has cortical dysplaisa 2b with ballon cells. he's 2 1/2. what is prognois for this. he hasn't had seziues to my knowledge. 

Created By: andie.ballard@gmail.com | 2015-03-29 19:49 | 21 Views | 0 Comments

My daughter is 5, and caught the stomach virus. Apparently this was the "perfect storm" and on the second day she had a seizure. I was able to record just under 2 minutes (of more than 5) of it...

Created By: srubin81 | 2015-03-27 19:50 | 89 Views | 1 Comment

I am a pre-school teacher who has grand mal seizure that come on with very little or no notice. I have a very supportive administration. However, I am looking for suggestions where I would be able...

Created By: Rnole84 | 2015-03-27 13:54 | 66 Views | 0 Comments

Hi, my 6 week old daughter was recently diagnosed with focal seizures, she is currently on Topamax.  I am just learning about epilepsy.  We are unsure if she has any cognitive delays as of now,...

Created By: paffsew@yahoo.com | 2015-03-17 14:01 | 70 Views | 1 Comment

 

When caring for family members with epilepsy this is always a concern. I have to become a house hold investigator in a way. Always test to see witch chemical are right to bring into the...

Created By: paffsew@yahoo.com | 2015-03-17 13:36 | 43 Views | 0 Comments

When caring for family members with epilepsy this is always a concern. I have to become a house hold investigator in a way. Always test to see witch chemical are right to bring into the household...

Created By: christy1982 | 2015-03-16 22:02 | 126 Views | 0 Comments

My son is in 1st grade and he has primary generalized epilepsy and he has a 3 year old sister with autism.  He has had epilepsy since he was 4 months old.  It really didnt "effect" his life much...

Created By: milwrite | 2015-03-16 17:24 | 70 Views | 0 Comments

Hi everyone.

I am the mother of a 22 year old young man who was born with Early Myoclonic Encephalopathy Syndrome. It is a catastrophic infantile epilepsy with an average lifespan of 2...

Created By: crlanier | 2015-03-14 06:48 | 71 Views | 1 Comment

My 12 yr old daughter has complex partial seizures.  She has many symptoms of Aspergers.  Is it necessary to seek a professional diagnosis?  I realize getting a diagnosis for Aspergers would not...

Created By: M.A.Barry | 2015-03-13 15:00 | 120 Views | 0 Comments

My 31 yr. old son has had anger issues his entire life. I don't think they are caused caused by his medication as much my the epilepsy itself. They have been progressively worse over time. I am...

Created By: Karenx47 | 2015-03-11 19:20 | 131 Views | 0 Comments

My 7 year old son was diagnosed with benign rolandic epilepsy in February 2014. He had a seizure in late January (drooling, couldn't communicate, face twitching, arm was also seizing - sorry if...

Created By: JoyHaik | 2015-03-10 13:45 | 70 Views | 0 Comments

My 15 yr old daughter has JME. She has been on a plethora of medications and combos of meds. I have watched her  slowly transform over the last few years from a completely normal, healthy,...

Created By: Fiveten | 2015-03-08 20:22 | 98 Views | 0 Comments

 

 

My son is 18 months old, and has been doing this a few times a day for a couple of months.  It never lasts more than a second, and this is a very typical episode - they are all...

Created By: kaycecompton@gmail.com | 2015-03-05 21:06 | 157 Views | 2 Comments

My 11 yo son was recently diagnosed with generalized Seizure disorder. He is on meds but continues to have breakthroughs every few weeks. He loves video games and TV. He has never had a seizure...

Created By: Ske1107 | 2015-03-03 19:04 | 161 Views | 0 Comments

My son, who is 17, had a left temporal lobectomy and hippocampectomy almost three years ago after living with auras and a few large seizures all of his life.  The auras were very short but made...

Created By: Drama Therapy Project | 2015-03-02 15:29 | 72 Views | 1 Comment

To all Caregivers:

Let me begin by sharing that I have epilepsy. I had brain surgery in 2011 (part of my front, left temporal lobe removed), as well as a VNS (Vagus Nerve Stimulator)...

Created By: Mal_Johnson | 2015-03-01 19:20 | 81 Views | 1 Comment

My name is Mallory Johnson and I am studying Medical Choice as a Predictor of Self-Efficacy in parents of children with a chronic illness.

When your child is diagnosed with...

Created By: psygirl44 | 2015-02-26 19:20 | 167 Views | 1 Comment

Hi everyone.

I had dated someone with epilepsy for almost three years. Recently, we broke up, and it was awful. For the first two years of our relationship, we were happy, loving, mutually...

Created By: mochicrunch | 2015-02-20 13:18 | 166 Views | 1 Comment

Hi,

Our son, age 5, has been having tonic clonic and possibly complex partial with secondary generalization since being 11 months old. They are related to infection, so the timing is...

Created By: AngelaVA | 2015-02-20 11:03 | 87 Views | 0 Comments

Has anyone ordered one of these for their child https://www.indiegogo.com/projects/embrace-a-gorgeous-...

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