Topic: Parents & Caregivers

Created By: Mylittleworld | 2016-07-25 06:00 | 43 Views | 0 Comments

Hello. I'm from Canada and joined this group looking for advice.
My son is 21 months. He's been having seizures since he was 9 months old. First triggered because of a fever, he...

Created By: tchanoine | 2016-07-17 08:10 | 70 Views | 0 Comments

My daughter has had 5 status episodes beginning at 9 months. She has had to be in ICU each time for weeks at a time. We got many second opinions and surgery became an option since the EEG and PET...

Created By: HirdyGirdy | 2016-07-15 04:19 | 83 Views | 1 Comment

Hello newbie here!

Our 9 year old child has just been diagnosed. 5 seizures over the last 2 years (that we know about) - all have been just as awakening and lasted under 5 minutes (jerking...

Created By: Amedeiros91 | 2016-07-13 21:47 | 106 Views | 1 Comment

My 2 1/2 year old has been having seizures with only one abnormal eeg and others coming back normal but is still having tons of what looks like seizures. Anyone have this issue than told by...

Created By: KristenStarr | 2016-07-13 11:12 | 94 Views | 1 Comment

My 5 year old son abruptly started having very audible/noticeable sleep myoclonus a night in March while he was sick with a sinus infection. This included twitching and jerks in his hands, arms...

Created By: Amedeiros91 | 2016-07-11 21:39 | 115 Views | 1 Comment

HELP!! My 2 1/2 year old daughter had her first seizure in February 2016 she started with the rapid blinking staring off wouldn't respond when I talked then fell asleep and woke very confused...

Created By: csawilkens | 2016-07-11 15:22 | 80 Views | 0 Comments

Hi folks,
Our son is 7 months old and has been having seizures for at least two months. At first, we were only seeing tonic-clonics that were suppressed, but not stopped, with Trileptal. He...

Created By: rysmom8821 | 2016-07-08 13:50 | 56 Views | 1 Comment

Does anyone have the name of a good Epileptogist in Newport News, Virginia?

Created By: sroach10 | 2016-07-08 10:53 | 59 Views | 0 Comments

Our 6 year old son (going into 1st grade this coming Fall) was diagnosed with right frontal lobe cortical dysplasia epilepsy when he was 19 months old. His seizures have been controlled off and...

Created By: JessieHornyak | 2016-07-08 07:15 | 89 Views | 2 Comments

Recently a new neurologist looked over our daughter's EEGs and changed her from focal to generalized seizures. She had been on trileptal with no problems but new neuro explained that...

Created By: kmynar | 2016-07-05 11:42 | 125 Views | 0 Comments

Hi. I am new to this site but I am hoping to connect with others who are going through similar situations with their children as I am. My 14 yr old daughter was diagnosed with juvenile epilepsy...

Created By: kaysarv | 2016-06-30 23:25 | 94 Views | 1 Comment

Hi! Im new here. At 7 months old (dec 2015) my daughter had her first seizure which lasted 15 minutes long after being brought to the hospital they told us it was a febrile seizure. March 24th she...

Created By: Joybop | 2016-06-28 21:09 | 86 Views | 0 Comments

I'm new around here. My 10 year old was diagnosed with temporal lobe epilepsy in May during an inpatient EEG. He was having several seizures a day for several days then not again for several...

Created By: Stella16 | 2016-06-22 20:45 | 142 Views | 0 Comments

Hi. I have a question, but here's the background:
My 12 y.o. son had what I think we're 2 seizures a couple weeks ago. None since. He awoke with a headache that morning and said...

Created By: Stella16 | 2016-06-22 20:37 | 79 Views | 0 Comments

Hi. I have a question, but here's the background:
My 12 y.o. son had what I think we're 2 seizures a couple weeks ago. None since. He awoke with a headache that morning and said...

Created By: Dee_an | 2016-06-22 02:28 | 104 Views | 0 Comments

Hi everyone.
I'm a mom of a daughter. She is 19 years old now.
I'm very new with epilepsy. Last night my daugter fainted and still not wake up yet until today. It's been...

Created By: French Rose | 2016-06-21 01:44 | 84 Views | 0 Comments

Hello everyone,

My son is 11. He does not have a dx of seizures, but I may be talking to our ped at his next appointment. He has adhd, and with the way his attention comes and goes, I have...

Created By: Jordynsmom | 2016-06-19 07:24 | 123 Views | 1 Comment

Hello! Im new to this forum. My name is Renee and I have a beautiful 5 year old little girl.

She started showing odd symproms a year ago. Staring spells and odd behavior in her sleep. I...

Created By: Kshirola | 2016-06-13 17:02 | 97 Views | 1 Comment

Hi! I'm new to a lot of this and have a few questions. My eldest son has benign Rolando epilepsy and has for at least 5 years. He is 8 and has partial brain seizures. My 10 month old son had...

Created By: sydverne | 2016-06-01 21:26 | 89 Views | 0 Comments

Hi all. Any ideas besides baby gates for making stairs in your home safer?

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