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Topic: Parents & Caregivers

Created By: susiep0424@verizon.net | 2015-08-01 08:33 | 38 Views | 0 Comments

3 weeks ago my daughter had her first convulsive seizure and has since been diagnosed with having absence seizures. As the days go on it is getting harder and harder to get her to take her...

Created By: LisaMarie82 | 2015-07-31 21:35 | 39 Views | 0 Comments

Here's the situation in a nutshell. We were advised to bring my 2 year old son to a pediatric neuro for an eeg and 24 hour eeg for what we thought were absence seizures. The regular eeg came out...

Created By: Lovekaden | 2015-07-30 07:46 | 74 Views | 2 Comments

Does anyone notice an increase in seizures if their child with epilepsy uses an iPad often ?

Created By: llavelle92@aim.com | 2015-07-29 09:44 | 41 Views | 0 Comments

Anyone have any experience with nocturnal events - my 19 year old daughter has Idiopathic generalized epilepsy and during her waking time has grand mal seizures,she is seizure free almost 2 years...

Created By: Rondal | 2015-07-26 19:03 | 96 Views | 1 Comment

My daughter just turned 13 and was diagnosed with Epilepsy about a year ago. Her seizures only happen at bedtime if she is really tired and it is really late, or right after he wakes up in the...

Created By: zqmyangel | 2015-07-26 04:05 | 76 Views | 1 Comment

Hi, All, I'm new to this forum. Hope I can get myself understood with my poor English.

My son was just diagnosed with Epilepsy two weeks ago, the the type is still in observation. My son is...

Created By: Lovekaden | 2015-07-24 07:43 | 80 Views | 1 Comment

Hello my son is almost four years old he was diagnosed with epilepsy in August 2014 at first he was having grand mal tonic clinic seizures and now he only has absence seizures when he's really...

Created By: khstory@att.net | 2015-07-23 18:27 | 74 Views | 0 Comments

I've searched & can't find anything like my question, so here it is: my almost 20 yr old son was diagnosed with absence seizures at age 16. Takes 500 mg Keppra. He was top 20 in his class....

Created By: JTConcordNH | 2015-07-13 19:14 | 128 Views | 0 Comments

At his next appt, we will be discussing weaning my 20-year-old son off Depakote. He has been on it, seizure free, for two years. Any suggestions how to find a watchful companion to fill the hours...

Created By: TomAggie96 | 2015-07-13 12:23 | 146 Views | 0 Comments

Hello,

 

  Im new to the chat discussion, and am in desperate need of any information anyone can help me with.  My wife (35 yrs old) is in her 4th year of having epilepsy.  She...

Created By: santosgr@att.net | 2015-07-07 08:14 | 138 Views | 2 Comments

My son (9 year old now)was diagnosed with benign rolandic epilepsy last summer when he was 8. Due to the infrequent episodes and short duration no medicines were prescribed.  During the schoo,year...

Created By: Nelson863 | 2015-07-05 01:19 | 139 Views | 0 Comments

Hi My son started having seizures when he turned 4?  But every EEG given came back clear...he is now 9 and to date they have not caught a seizure on any EEG is this common?  His seizures are...

Created By: sandy40 | 2015-07-04 00:34 | 112 Views | 0 Comments

Hello! It has been a little over two years since my 14 year old son has had a seizure! Yesterday we got the results back from his sleep deprived eeg he had last week and they came back normal. The...

Created By: KellyPopcorn | 2015-07-02 23:04 | 151 Views | 1 Comment

Hi all,

This has got to be a common issue, wondering how others handle it.  My daughter's tonic-clonic seizures were well controlled with Keppra for 1.5 years, and I felt OK about leaving...

Created By: MamaAndi13 | 2015-07-01 20:09 | 115 Views | 0 Comments

 

 

 

Hopefully this isn't too windy...hoping someone has had a similar experience.

My 6 year old daughter ended up in the ER in January of this year with a suspected...

Created By: suzer18 | 2015-06-30 02:50 | 154 Views | 0 Comments

I must be the only parent that sandiego neurology is ignoring..the only parent that watches my ten year old night after night after night...seize uncontrollably...how much longer can either one of...

Created By: Pennychild | 2015-06-24 19:26 | 115 Views | 0 Comments

 

My daughter (10) was diagnosed with absence epilepsy in 2011 and was put on zarontin.

In March, the neurologist took her off the zarontin because she had been seizure free for over...

Created By: dwallin | 2015-06-23 19:29 | 186 Views | 2 Comments

Hello Everyone,
My daughter was diagnosed 3 years ago and is some what controlled. Most of the recent ones have come from lack of sleep, exhaustion etc.. She does not have auras or any signs...

Created By: walkerry | 2015-06-18 11:02 | 196 Views | 3 Comments

 

Good morning, 

I am writing as a new mom to an epileptic child. My daughter who has had no medical issues or problems since birth all of a sudden started having tonic/clinic...

Created By: Little angels | 2015-06-15 14:03 | 138 Views | 1 Comment

My daughter is 15 months old, she has myoclonic seizures everyday. We were told by the neuro to give diastat after 5 min of cluster of seizures which include myos. If I did that though I would be...

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