Topic: Parents & Caregivers

Created By: Emtbennett08 | 2017-03-18 13:23 | 4 Comments

I'm going to try to keep this short... my daughter is 7. At 5 she was diagnosed with Benign Rolandic Epilepsy. Just this week we did an at home EEG due to her complaining of bad migraines a...

Created By: Nrestaino | 2017-03-15 20:57 | 0 Comments

I have a friend who has seizures and it's tough to see her post seizure. Her balance is off and she cannot drive for a certain amount of time. I feel like I can handle those feelings when she...

Created By: Jenswin2017 | 2017-03-14 18:11 | 1 Comment

My 16 year old daughter is on Keppra, Zonegran and lamotrigine. She just started the Lamotrigine two weeks ago. In the past two months her Keppra was increased as well.

Also in the past...

Created By: TJE0807 | 2017-03-11 17:06 | 13 Comments

Hello,
I am brand new here and in need of some help. Please bear with my lengthy post. My 16-year-old daughter was diagnosed with epilepsy this week. I live in the South in a small town, and...

Created By: cap_58c30661b51a5 | 2017-03-10 15:04 | 3 Comments

I am new to this. I need support

Created By: louie2024 | 2017-03-09 13:16 | 3 Comments

I am new to this site and honestly new to a blog. My wife has been having seizures for almost 13 years now and we have learned to adapt. She has been on every medication known to man and still...

Created By: Chui | 2017-03-07 20:07 | 3 Comments

My son had a seizure three days in a row at school, all happened just before lunch. He did not have any seizure next three days at home but had another one at the same time first day when he was...

Created By: crlanier | 2017-03-06 13:12 | 4 Comments

My daughter, at age 10, had seizures the entire flight from Texas to California. Here we are 4 years later and I am terrified to get back on a plane with her. Has anybody out there had a similar...

Created By: hofmanza | 2017-03-01 10:37 | 4 Comments

My twenty year old daughter has been seizure free for many years. At almost every yearly Neuro visit, they have offered her the option of weaning off her meds to see if seizures occur. She has...

Created By: greenlizard | 2017-02-06 14:19 | 0 Comments

My 6-yr-old had a bullying situation at school, and developed a lot of anxious behaviors, including wetting himself. We changed some circumstances, and he has been doing better, no more wetting,...

Created By: janeses | 2017-02-01 00:44 | 0 Comments

Hi, I'm seeking out suggestions and advice. We have a 3 year old son that we have had since he was 3 weeks old. He was drug exposed for multiple drugs and alcohol. He has had several...

Created By: littleguppyjax0118 | 2017-01-31 15:59 | 0 Comments

My son has been like this since yesterday. Not sure what is causing this except maybe overstimulation watching cartoons on his tablet,but he wasn't watching anything in the car and it...

Created By: BriBird | 2017-01-30 12:42 | 0 Comments

Hello. I am from Maine and looking to find support and or advice and or experiences of others that may have a child that has this condition. My daughter has high functioning autism that she was...

Created By: Ecardenas16 | 2017-01-27 05:40 | 2 Comments

Hi everyone, I'm new here my son was diagnosed with epilepsy one year ago!! He hasn't had a seizure since last year (Jan 2016) but then on Christmas Day he had a seizure and then he had...

Created By: Cheddar | 2017-01-24 00:46 | 1 Comment

My 3 year old was recently diagnosed with partial complex seizures and prescribed Keppra for them. The last few days we have been noticing him drooling a lot and putting his fingers in his mouth...

Created By: JessXX68 | 2017-01-23 23:46 | 0 Comments

Hi! I have been waiting to hear back from neurologist and pediatricians that just seem to take a ton of time off and rely on systems that glitch way to much. Can anyone help me with what the...

Created By: eperk84 | 2017-01-21 21:24 | 0 Comments

Sorry, this is going to be a long post, but we are at the end of our rope. My daughter is 4 years old. She is TPN dependent and has mild CP. The CP only causes left side muscle weakness. She...

Created By: Mommy4 | 2017-01-20 02:27 | 0 Comments

Hi. I was shocked last spring when the school called me to say my daughter was having a seizure. She started at trileptal all the way just slightly beyond her max dose (her blood levels were...

Created By: ajaynen | 2017-01-19 21:50 | 2 Comments

New to this group and looking for some support. It has been really good to read some of the posts and not feel alone. My 4 year old daughter had four seizures on Christmas Day (prior to this she...

Created By: Cheddar | 2017-01-18 21:27 | 8 Comments

Hi

My 3yo son was just diagnosed with Complex Partial Seizures. We are waiting on an MRI and a 72 hour EEG. We have had a really hard time catching the seizures and usually only see them...

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