Topic: Parents & Caregivers

Created By: Crmn0724 | 2017-07-13 23:51 | 6 Comments

Hello,

My son developed a fever Tuesday around noon and had a seizure around 6, it has been hell for us since. I called 911 and hospital wanted to keep him overnight as his seizure was...

Created By: LauraL_59639f94d0d27 | 2017-07-10 12:12 | 1 Comment

I am constantly worried. My son is 16. He has a grand mal seizure seems like every 4 months not sure what triggers them. I'm an er nurse and have had many patients with seizures but when it...

Created By: Lwid510 | 2017-06-22 13:29 | 5 Comments

My son had an eEG a few weeks ago, dr said the eeg is abnormal but no seizures. He had several sharp spike and wave episodes generalized. Mainly in his sleep. I understand these are not actual...

Created By: Crrosier08 | 2017-06-19 23:46 | 3 Comments

My daughter turned 14 on May 20. A week later she collapsed on the kitchen floor while doing dishes. We ran in and found her convulsing on floor and called 911. She had never had a seizure before...

Created By: finleyla | 2017-06-12 11:11 | 0 Comments

My son was diagnosed last year with photosensitive epilepsy - but it's only triggered with Natural Sunlight (video games, strobe lights, etc don't affect him). He is on depakote and...

Created By: JoyfulMommy_5931cf3a3cb56 | 2017-06-02 16:58 | 1 Comment

My baby girl was born with HIE (oxygen deprivation prior to birth, and resulting brain damage). Because of that, she has seizures. However, lately I've begun to wonder if some of what I'...

Created By: kathastwin | 2017-05-31 04:00 | 2 Comments

I am a single mom with 13 yo son who began having seizures in January. We live in a small town in southeast Georgia. We are seeing a pediatric neurologist in Brunswick, Ga and currently trying to...

Created By: magpie8680 | 2017-05-29 15:57 | 0 Comments

My brother was diagnosed with epilepsy at 9. He is now 31. He has always had a tough time in school, was far behind the other kids. Even pronouncing words wrong like a young child would up until...

Created By: slkday06@gmail.com | 2017-05-29 02:33 | 1 Comment

A couple of years ago, my now 11 year old daughter woke in the night, ran downstairs looking back and to her left, dropped to the floor, and tensed up and shook as though she was having a seizure...

Created By: colestafford89@gmail.com | 2017-05-23 10:33 | 1 Comment

Hello everyone. New to this forum. My husband and I recently adopted a 4 year old boy who has been having seizures. We have a consultation with a pediatric neurologist in a few months, but until...

Created By: SamanthaAimee | 2017-05-18 15:23 | 1 Comment

My daughter is 11 years old, she was on Keppra for 23 months. Her last dosage was 1000mg twice a day from October 2016 until 11 May 2017. Her neurologist stopped the Keppra "cold turkey...

Created By: adora1822 | 2017-05-17 21:15 | 0 Comments

My 10 month old son was just diagnosed with water immersion reflex epilepsy. Apparently its very rare so there isn't a lot of information out there. He doesn't need to be on medicine as...

Created By: Gracie88 | 2017-05-06 07:41 | 1 Comment

My son is 7 years old. As a 9 month old, he had meningitis followed by a stroke and partial seizures. At one he had surgery due to a subdural empyema. So he has lots of medical brain trauma....

Created By: Tessie | 2017-05-06 01:38 | 4 Comments

42 yr old daughter-living @ home f/2 yrs. 1st seizure @ work. Passed out-bumped head-few seconds. Month later(on the 8th) 2nd seizure-few seconds-passed out but caught by friends before hitting...

Created By: Elljen | 2017-05-01 23:12 | 1 Comment

My 12-year-old started Zarontin on Friday morning for juvenile absence epilepsy, so he's on day 4 of beginning meds. The plan is 10 days of a once-daily dose, then begin twice-daily. I know...

Created By: LuvMyBoys91 | 2017-05-01 00:08 | 3 Comments

Hi all,

I am somewhat new (5 year old son was diagnosed with partial epilepsy a couple of weeks ago.

My son had his first seizure at 14 months, accompanied by a fever. The second was...

Created By: Elljen | 2017-04-29 15:11 | 8 Comments

I'm wondering about, well, a lot since my 12-year-old was diagnosed with juvenile absence epilepsy a couple of days ago. But today, two items have been on my mind.

First is swimming...

Created By: tiggerae | 2017-04-27 16:00 | 4 Comments

My stepdaughter was diagnosed with benign rolandic epilepsy 3 yeras ago. She has only had 2 seizures. She is in 3rd grade with an early 2nd grade learning level. Her father and I are...

Created By: CoZyBear | 2017-04-24 11:25 | 0 Comments

Does anyone has experience with this and care to share? Thanks!

Created By: Worriedmom_58fcb49422d56 | 2017-04-23 11:19 | 4 Comments

My daughter is 21 months old. She had her 18 month vaccines on Wednesday. She had a low grade fever all day Thursday. I noticed her fever rise around 5 pm and gave her Tylenol. About 15 minutes...

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