Topic: Parents & Caregivers

Created By: vcorp | 2016-11-29 21:06 | 1 Comment

Hello all,

Our toddler (29 months, boy) was diagnosed with borderline ASD, while it left us devastated and overwhelmed, we're trying to cope to the best of our capacity in every...

Created By: hopeful33 | 2016-11-26 15:46 | 0 Comments

I've been searching the forums, but can't seem to find anything recent. I am newly married. My husband has TC seizures, which were "under control" (meaning ever few years he...

Created By: crs | 2016-11-24 05:11 | 1 Comment

My daughter was recently diagnosed with epilepsy. Does any one have recommendations for monitoring seizure activity, especially during sleep, with smart watch devices? There seem to be a few on...

Created By: sandy flores m | 2016-11-16 20:52 | 0 Comments

Hello my almost 5 year old son is about too start 3 days of Ivig infusions tonight ,he has refractory epilepsy ,everynight he has tonic clonic seizure.

His team at CHLA is starting him on...

Created By: Hanbanan | 2016-11-16 10:27 | 0 Comments

My six year old has been switching from Trileptal to Keppra. He is almost completely on Keppra now, but he has constant stomach pain. It is hard to distract him from it. It I should also...

Created By: notmyly | 2016-11-15 16:01 | 1 Comment

My son is almost 15 and his seizures started almost two and a half years ago and was first diagnosed with partials. Now it's generalized seizures. He is currently on 2000 mg of Xr Keppra. Up...

Created By: Christinap1921 | 2016-11-15 10:31 | 0 Comments

My name is christina and I've just been diagnosed with epilepsy in my adulthood. I had 2 back to back grand mal and a bunch of petit mals in between and while I slept. On the ambulance ride I...

Created By: Amedeiros91 | 2016-11-11 23:53 | 1 Comment

So my daughter had been diagnosed by a neurologist with right sided temporal lobe epilepsy and since we switched to a epilepsy specialist in Boston there some confusion about if she really is...

Created By: rwolfe618 | 2016-11-11 11:46 | 0 Comments

Hi there. We are new to the group, as my daughter (6 months old) was just diagnosed with epilepsy last week after two focal onset seizures. I was wondering if anyone has experience with the...

Created By: Amedeiros91 | 2016-11-09 22:07 | 1 Comment

So my 3 year old daughter was diagnosed with temporal lobe epilepsy at 2 by a neurologist and since then we switched to a epilepsy dr in Boston. Since the seizures started they worsened when we...

Created By: jj_b32 | 2016-11-08 19:08 | 1 Comment

My 2.5 yo has about 5-15 genrealized myoclonic seizures a day. The past few days we have started noticing that she covers both of her ears with her hands after she has one and sort of retreats...

Created By: Hanbanan | 2016-11-07 11:31 | 1 Comment

My six year old son has epilepsy, and has been on Trileptal for a month and a half. His EEG results while on meds showed no improvement over the one when he was not on meds. He also had horrible...

Created By: Shanna J | 2016-11-05 22:50 | 1 Comment

This is our first time change to experience while on keppra. If my son normally takes his medicine at 7:15 am/pm, is it important that I give it to him at 6:15 in the morning?

Created By: Andrew JB | 2016-11-03 15:27 | 0 Comments

Our 9 year old son's tonic/clonic seizures have stopped. He is having symptoms of terribly irritability, agitation, is hitting and pinching, can't concentrate and doesn't want to...

Created By: KKemp | 2016-10-31 12:31 | 1 Comment

Hello,
My son is three years old and was diagnosed with myoclonic epilepsy. He does not lose consciousness but bangs his face and head off of everything. He constantly has nose bleeds,...

Created By: TJP1214 | 2016-10-24 12:12 | 17 Comments

Hello all. My son is almost 16, has had seizures for over 10 years now starting when he was 5. He was on Trileptal and seizure free for years. Puberty hit and there were some breakthroughs, and...

Created By: clmiller3 | 2016-10-21 20:10 | 0 Comments

We've had a rough road for past 1 1/2 yrs since my daughter's temporal lobe epilepsy became intractable. She's a soph in HS, great student, but struggling more this year - sclerosis...

Created By: tobin | 2016-10-21 13:00 | 1 Comment

my son who has grande mal seizures is on 30 mg of onfi..it makes him groggy and depressed > he is also on a small amount of lamictal. He is 21 years old. we have added 25 mg of cbd oil per...

Created By: Holly Marie | 2016-10-11 19:43 | 1 Comment

Hi there,

Has anyone tried acupuncture for the treatment of epilepsy? I have a five year old with absence and myoclonic seizures currently taking five meds twice a day without seizure...

Created By: josiern11 | 2016-10-08 01:10 | 0 Comments

Hello, my 9 year old has had 3 seizures since august all about 4 weeks apart. Its completely new as there is no family history, she doesn't have any medical issues, and they were not...

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