Topic: Parents & Caregivers

Created By: birdk | 2016-04-28 13:58 | 27 Views | 0 Comments

My husband has been experiencing seizures (or so we think they are seizures now) for two years. He was originally diagnosed with vaso-vagal syncope and was treated by cardiologists, but I have...

Created By: Adutruch | 2016-04-26 22:16 | 44 Views | 0 Comments

Hi, I have an 8 year old boy who has Complex partial seizures. He has tried keppra, trileptal, lamictal and zonsamide (sp?). He has been off seizure meds for about 8 - 9 months. During this time...

Created By: lagbfn@gmail.com | 2016-04-26 12:33 | 34 Views | 0 Comments

Asking this question for my college daughter. She will be graduating in a few weeks, and will be staying where she is currently attending college. Up until now, she has gone to the neurologist...

Created By: Suzamom | 2016-04-25 10:45 | 41 Views | 0 Comments

Hi!! Some background....I am the mom of an autistic son who was diagnosed with JAE in Oct, 2014 (aged 11) after a tonic clonic seizure upon waking. We now believe that he has been having...

Created By: Aviatornick | 2016-04-19 09:55 | 74 Views | 1 Comment

Morning. My son was recently diagnosed with epilepsy and has had complex partial or generalized seizures. His first seizure was due to a fever. His second one was not associated with a fever. He...

Created By: pathuv | 2016-04-18 21:11 | 78 Views | 1 Comment

Hi all! I have a 12 y o that has grand mal seizures & is on meds, but was wondering what he's going to do for summer. I only work part time right now so I can be home when he is....

Created By: popotitos4u | 2016-03-31 20:05 | 52 Views | 1 Comment

I am 7 weeks pregnant and want to see what my options are staying on my medication or getting off until I have my baby. Any researchers out there and options. I have not had an attack in over 3...

Created By: Dgb123 | 2016-03-25 05:43 | 103 Views | 0 Comments

Well, currently I have been up all night with my wife who suffers from partial complex seiezures. She a is scheduled for her first EEG in 8 hours, but they told her to sleep from 11pm till 5 am...

Created By: momtothree | 2016-03-24 22:38 | 113 Views | 0 Comments

I posted here just recently. My 2.5 year old son has developed new types of seizures recently (used to be only TC, but now complex partials and others). Since complex partials started, he...

Created By: Ksmama211 | 2016-03-21 22:41 | 116 Views | 0 Comments

My son, Kian, just turned 2 last month. He had his first fever seizure at 11 months old. It came out of no where and he stopped breathing during it. As I am sure other parents can imagin, it was...

Created By: momtothree | 2016-03-18 23:03 | 118 Views | 0 Comments

Hello,

I am trying to understand what simple partial seizures are. What is the difference between a simple partial and an aura? Are they the same? My 2.5 year old son showed signs of...

Created By: Aceking | 2016-03-18 08:50 | 77 Views | 0 Comments

My 18 month old son is being tested for petit mal seizures, he was asleep when they did the strobe part but from the 2nd lot of flashes his arms and legs started shaking (not like a startle reflex...

Created By: TropicalSerenade | 2016-03-17 17:02 | 111 Views | 2 Comments

Hi everyone,

My son's case is unusual and complicated, but I figured I'd post this somewhere where I have the chance of finding someone with some knowledge/experience. My 7 year...

Created By: Jule25 | 2016-03-16 18:54 | 108 Views | 0 Comments

My 3 1/2 year old son was just diagnosed with epilepsy this past Sunday. He has had 3 tonic clonic seizures since December 26 2015 so in the last 3 months. Prior to that he is/was a healthy strong...

Created By: rajkumarpb | 2016-03-16 03:10 | 109 Views | 0 Comments

My son is a month shy of his 3rd birthday. So far no milestones achieved, not even neck holding! We have been trying different drugs over past 2 years with out current neuro(before him couple of...

Created By: Spuds_a | 2016-03-06 20:12 | 142 Views | 1 Comment

I do not know how to write this but I do know that I am struggling with the uncertainty of epilepsy. I have identical twin daughters ,Allie and Abbie, and Allie started suffering from tonic...

Created By: silent04211990 | 2016-03-06 03:55 | 83 Views | 0 Comments

Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier understanding I made this video for info/recovery http://youtu.be/...

Created By: Cam's Mom | 2016-03-02 11:54 | 156 Views | 1 Comment

Hello. My son was DX with absence seizures in September 2015. He was put on Ethosuximide after they saw 9 seizures during a 45 minute EEG. After 6 weeks, he had another EEG, which was clean!...

Created By: MariaVR | 2016-03-01 16:50 | 111 Views | 0 Comments

Hello everyone,

My sister has had encephalitis when she was 1yo, which left her with a sever brain damage and a constant epilepsy. We have tried a lot of medications however they do not...

Created By: kazzy99 | 2016-03-01 12:39 | 141 Views | 1 Comment

My son was diagnosed with epilepsy at age 10. He had febrile seizures from 1-3 and also had open heart surgery as an infant. Besides all of that he is like any other kid. I started the blog,...

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