Topic: Parents & Caregivers

Created By: KeeKee | 2016-05-29 09:14 | 23 Views | 0 Comments

My son is 19 and was just diagnosed a year ago with Epilepsy. He had been experiencing "zoning out" during school and was having weird occurrences during his sleep that he had told me...

Created By: GregsMom | 2016-05-27 15:58 | 41 Views | 1 Comment

My son developed epilepsy at age 20. All seizures have been during his sleep and all are grand mal seizures. There is no known cause. He has THANKFULLY now gone 13 months seizure free!! He lives...

Created By: iMurray.92 | 2016-05-26 05:02 | 51 Views | 0 Comments

Hey there! I'm a carer for a teenager with pecial needs including epilepsy and brain damage.
The strange issue we face daily is that my client can hace seizures (from head drops to full...

Created By: kcram12 | 2016-05-25 12:04 | 50 Views | 0 Comments

My 6 yr old son was diagnosed with epilepsy last year and has been on zonisamide since. He has done well with the meds until recently. We have noticed he seems to have a lot of anxiety around...

Created By: MKBoyd | 2016-05-20 17:49 | 98 Views | 1 Comment

I have a 22 year old son who was diagnosed with epilepsy at 11 months old. He is on multiple meds and has a VNS, but his seizures have never been controlled. In the past 9 months he has started...

Created By: KimAnn | 2016-05-19 00:17 | 114 Views | 1 Comment

Hello everyone. My name is Kim. I'm in my forties and I have had migraines since I was a child. I would come in from playing in the snow and the contrast from bright to dark would...

Created By: Lcpresser | 2016-05-17 20:44 | 92 Views | 3 Comments

My husband is epileptic with grand mal
Seizures. We are very lucky. His seizures are
well controlled. He has only had about 8 since he was 12 years old (33 yo old now). Last one was a...

Created By: beccap86 | 2016-05-16 14:57 | 82 Views | 0 Comments

HI,
I have a 16 month old who started 2.5mL of Keppra a day approx 8 months ago. He was having approx 50-100 absence seizures, or "upgazes" a day. Since starting the generic of...

Created By: Happycl8 | 2016-05-14 13:34 | 66 Views | 0 Comments

I have two kids with seizures 3 . 5 yrs and 14yrs. 3.5 yrs has complex seizures and my 14 yrs has juvenile Myoclonic epilepsy. Only my daughter is taking meds topamax. Looking to meet other...

Created By: Kaigirl08 | 2016-05-08 03:26 | 75 Views | 0 Comments

Hi my son sustained a head injury and frontal lobe damage 4 years ago he is now epileptic and having more than usual seizures where he is getting physically injured recently a broken nose this is...

Created By: caseysmommy109 | 2016-05-01 06:41 | 80 Views | 0 Comments

Hi everyone my son had tetralogy of ballot heart repair at one month old then suffered a stroke. he was left with complex partial seizures. He has been on Keppra since then and is now 12 years...

Created By: birdk | 2016-04-28 13:58 | 106 Views | 0 Comments

My husband has been experiencing seizures (or so we think they are seizures now) for two years. He was originally diagnosed with vaso-vagal syncope and was treated by cardiologists, but I have...

Created By: Adutruch | 2016-04-26 22:16 | 126 Views | 0 Comments

Hi, I have an 8 year old boy who has Complex partial seizures. He has tried keppra, trileptal, lamictal and zonsamide (sp?). He has been off seizure meds for about 8 - 9 months. During this time...

Created By: lagbfn@gmail.com | 2016-04-26 12:33 | 113 Views | 0 Comments

Asking this question for my college daughter. She will be graduating in a few weeks, and will be staying where she is currently attending college. Up until now, she has gone to the neurologist...

Created By: Suzamom | 2016-04-25 10:45 | 109 Views | 0 Comments

Hi!! Some background....I am the mom of an autistic son who was diagnosed with JAE in Oct, 2014 (aged 11) after a tonic clonic seizure upon waking. We now believe that he has been having...

Created By: Aviatornick | 2016-04-19 09:55 | 146 Views | 1 Comment

Morning. My son was recently diagnosed with epilepsy and has had complex partial or generalized seizures. His first seizure was due to a fever. His second one was not associated with a fever. He...

Created By: pathuv | 2016-04-18 21:11 | 138 Views | 1 Comment

Hi all! I have a 12 y o that has grand mal seizures & is on meds, but was wondering what he's going to do for summer. I only work part time right now so I can be home when he is....

Created By: popotitos4u | 2016-03-31 20:05 | 115 Views | 1 Comment

I am 7 weeks pregnant and want to see what my options are staying on my medication or getting off until I have my baby. Any researchers out there and options. I have not had an attack in over 3...

Created By: Dgb123 | 2016-03-25 05:43 | 167 Views | 0 Comments

Well, currently I have been up all night with my wife who suffers from partial complex seiezures. She a is scheduled for her first EEG in 8 hours, but they told her to sleep from 11pm till 5 am...

Created By: momtothree | 2016-03-24 22:38 | 190 Views | 0 Comments

I posted here just recently. My 2.5 year old son has developed new types of seizures recently (used to be only TC, but now complex partials and others). Since complex partials started, he...

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