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Topic: Parents & Caregivers

Created By: karbhari | 2015-05-19 19:10 | 72 Views | 1 Comment

My daughter is 13, she has uncontrolled epilepsy, has 3-4 seizures a day , out of which one is a long duration one where we need to give her the midazolam puff to control it. He is on 4...

Created By: IsMiseTommy | 2015-05-19 02:26 | 61 Views | 0 Comments

I am the caregiver of a 28 Non-Speaking Autistic female, She has a history of a seizure disorder in infancy through early childhood her last mentioned grandmal  seizure was when she was about 5 to...

Created By: kerausmommy | 2015-05-16 13:44 | 103 Views | 1 Comment

Our son was started on Keppra exactly one month ago when he was about 10 months old. He wasn't gaining weight, babbling, chewing, crawling, trying to stand. After started the medication he is...

Created By: amanda.lewis@buzzfeed.com | 2015-05-15 21:07 | 47 Views | 0 Comments

Have you ordered CBD hemp oil online and found it ineffective? I'm a journalist, and I'm looking into companies that sell CBD Oil online that actually contains little to no CBD, as the...

Created By: Little angels | 2015-05-12 09:19 | 105 Views | 1 Comment

My daughter was just diagnosed with Dravet syndrome. She is 14 months old and when we go outside she has myoclonic seizures. My Dr. told me about these special sunglasses parents use on their...

Created By: kadenlove | 2015-05-11 16:44 | 86 Views | 1 Comment

Lately my three year old son has been waking up from naps and going right into a seizure it starts off as a focal seizure lasting as long as ten minutes and sometimes transitioning into twitching:...

Created By: Ellyn Newman | 2015-05-11 15:16 | 77 Views | 0 Comments

Hello, my 16 yr old Autisitc son has been seizure free for 2 yrs while on Trileptol.  Our Dr. wants to start tapering his med.  We are terrified to start this.  Any advice?

 

Created By: whitneyaliceon@hotmail.com | 2015-05-11 11:42 | 83 Views | 1 Comment

My 22 month old daughter has always, always had her seizures in the evening, before bed time. As far as we know, she has never had one in her sleep, until this past week. It has always been a fear...

Created By: robertsjad@hotmail.com | 2015-05-11 01:58 | 91 Views | 0 Comments

My son is 6 yrs old and when the school year started he was doing well. I had his medication changed from a liquid that he had been taking for yrs to a pill  started having seizures add any pill...

Created By: lauralove5 | 2015-05-09 20:52 | 77 Views | 1 Comment

Hi, I did the modified Atkins diet with my eldest son 7 years ago.  He had absence seizures that were not typical and they started when he was 11.  He ended up having terrible reactions to EVERY...

Created By: arcraft0326 | 2015-05-09 19:56 | 98 Views | 1 Comment

My now 15-yr old son had an MRI done Feb 2014 because he had been suffering from frequent headaches.  The MRI showed he has Cortical Dysplasia of the left frontal lobe involving the superior and...

Created By: Toastita | 2015-05-07 15:10 | 101 Views | 0 Comments

I have a new positions called Pediatric Epilepsy Patient Navigator.  I work with parents who's children have been recently diagnosed with seizures.  I would appreciate any suggestions or...

Created By: mommyLeBay | 2015-05-06 18:28 | 93 Views | 1 Comment

My daughter is 14 months old. She had an eeg that showed seizure activity on the right side of her brain and since she was admitted for having possible seizures they put her on keppra immediately...

Created By: kerausmommy | 2015-05-06 02:35 | 102 Views | 0 Comments

I am interested in hearing experiences with infants. What kind of seizures did he/she have? If  they were more subtle seizures, how did they act? Crying, jerking, etc.? Did it affect their overall...

Created By: Dinessa1013 | 2015-05-05 22:03 | 78 Views | 0 Comments

Hello I am new to this website my four year old son was diagnosed with epilepsy at age 1 after a 45 min long seizure I am concerned its been three days he's been complaining of headaches an waking...

Created By: Laughandluv@q.com | 2015-05-05 17:53 | 67 Views | 0 Comments

My daughter just fractured her wrist. Last year she fractured her other wrist. She has been seizure free with Depakote for almost 6 years now. Should I be concerned about bone density problems or...

Created By: kerausmommy | 2015-05-03 23:05 | 157 Views | 3 Comments

Hi everybody!

I am new here. Our son started having seizures at 5 days old. He had an abnormal EEG and was put on medication until he was 6 months old after a normal EEG. At 8 months he...

Created By: Lovley44 | 2015-04-30 12:26 | 111 Views | 2 Comments

Hello my daughter was diagnosed with absence, drop, and just recently shes been partial full on seizures that last about 3mins. When she was first diagnosed it was just the absence seizures she...

Created By: marialenar | 2015-04-28 19:05 | 120 Views | 1 Comment

This is all new to me.  My four year old for the past year has had daily numerous "events", although which were suspected to be seizures, were not diagnosed until yesterday on her EEG during a...

Created By: motian77 | 2015-04-27 16:26 | 150 Views | 1 Comment

My 10 year old daughter was recently diagnosed with Complex Partial Seizures. For the last year she was have "anxiety" attacks at odd random times. She also has mild ADHD and I thought maybe this...

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