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Topic: Parents & Caregivers

Created By: kurehahime | 2016-02-07 14:34 | 47 Views | 0 Comments

Since my son's last seizure during his sleep, we purchased basis(like fitbit) to monitor or better understand his sleep pattern.
My son is 7 but also has CP. Although he is verbal and can...

Created By: mereloaded | 2016-02-07 09:04 | 33 Views | 1 Comment

 

 

Hello fellow parents, contributors and patients. Just wanted to provide an update for everyone that is so kind to read and ask about my son. My son was eligible for med....

Created By: FeelSunny | 2016-02-02 16:10 | 24 Views | 0 Comments

Hello, My name is Yena and I have a six years old girl with epilepsy. She had six episodes so far since she was two and a half years old. Every time when her seizure kicks in, it interferes with...

Created By: agattka5 | 2016-02-02 04:10 | 17 Views | 0 Comments

Hi, my 9 years old son has dnet.He is after a surgery, with seizures. I'm from Poland. Is there anyone with experience with dnet? 

Created By: PBS99 | 2016-01-31 17:38 | 51 Views | 0 Comments

Hi everyone! I am not new to this forum, I am here a lot reading everyone's posts, but this is my first time posting for information and/or advice.

My son is 10.5 and was dx with absence...

Created By: amysueholloway | 2016-01-31 17:27 | 41 Views | 0 Comments

I have twin daughters who are 13.  One has just been diagnosed with juveline myoclonic epilepsy:  in the past year, she has had 2 clonic seizures.  We weren't sure the first one was a seizure as...

Created By: Kmonahan | 2016-01-31 09:41 | 41 Views | 0 Comments

Hi, 

Im new to this forum, my 9 year old son has generalized epilepsy. He also has high functioning Autism and is a sleep walker with parasanomas. We have a camera in his room because he...

Created By: Kmonahan | 2016-01-31 09:41 | 26 Views | 0 Comments

Hi, 

Im new to this forum, my 9 year old son has generalized epilepsy. He also has high functioning Autism and is a sleep walker with parasanomas. We have a camera in his room because he...

Created By: kazzy99 | 2016-01-30 01:14 | 32 Views | 0 Comments

We start weaning my son's Zonisimide tomorrow. He has been on 100mg a day + 3000mg a day of Keppra for almost 4yrs. And has been seizure free with it :) He wants to try and wean again. We got him...

Created By: looking for support | 2016-01-29 15:40 | 43 Views | 0 Comments

Good afternoon,

I'm very new to this group and forum.  I am hoping to find someone who has experienced what we have, although I know there are so many different types of seizures.  My...

Created By: Mcarm | 2016-01-29 15:40 | 29 Views | 0 Comments

my 3 yr old was diagnosed with myoclonic seizures. I that treatment rarely controls it fully. Does anyone else have a child diagnosed with this? What is their quality of life?

Created By: mammak | 2016-01-26 09:39 | 54 Views | 0 Comments

Hi all,

It has been a while since last I posted, but I would like to get more involved if this forum is active.

I need some insight. I would like to know if others' children have...

Created By: kurehahime | 2016-01-24 14:16 | 55 Views | 1 Comment

I am new t this.  My son is 7 and has been diagnosed with Epilepsy since he was a baby.

His seizures had been well controlled by Keppra until about 2 years ago.  He started having...

Created By: HBOZ89 | 2016-01-23 11:03 | 77 Views | 1 Comment

Hello.  My 40 year old son (unmarrried, lives at home) had been seizure free for 15 years on Neurontin and phenobarb.  He lived an active life, driving, MA degree, thesis work in England...started...

Created By: kiley37g | 2016-01-22 18:58 | 45 Views | 1 Comment

Hi. My son is 8 and has autism. Last year his doctor referred us to a pediatric neurologist at Akron Children's Hospital. It's the best hospital in our area. They asked me if my son had staring...

Created By: StallionHeart | 2016-01-21 00:06 | 50 Views | 1 Comment

Hello, everyone!  

I'm new here.  Father of 3 beautiful children.  A 12 year old little man, a 29 month old baby boy, and a 2 month old baby girl. 

Two Sundays ago at around 10pm I...

Created By: ChereeO | 2016-01-20 04:33 | 75 Views | 2 Comments

Hi everyone, 

This is my first post and I am desperate to hear from anyone else who has experienced an extended Tonic Clonic Seizure. 

3 months ago my son returned from a trip away...

Created By: DinaHB | 2016-01-16 18:40 | 86 Views | 2 Comments

My son, 18, was diagnosed three years ago.  He started on 500 mg of Keppra and over time iincreased his dosage to 3000 mg.  He had a med. increase with every seizure.  Five neurologist told us...

Created By: cm.lt.am | 2016-01-12 12:09 | 80 Views | 0 Comments

Hi all. Our daughter was diagnosed with epilepsy at 1.5 years old. She is now 3 years old. Her doctor is recommending to put her on phenytoin (Dilantin). My question is... Has any parents had a...

Created By: cdian | 2016-01-09 20:48 | 92 Views | 0 Comments

Hi- my son is 8. He had his first seizure at 5. His MRI shows slight brain damage in the visual correct. He had a knot in his cord and was slow to take his first breath. Although the neuro said...

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