Topic: Parents & Caregivers

Created By: Wendy_Larson | 2016-08-30 20:13 | 0 Comments

My mom rocks! I had a rough time in high school when I was seizing often. I almost gave up. Here's our story, and a message to parents and caregivers alike. You can make a difference! Be...

Created By: seidelna | 2016-08-28 23:37 | 1 Comment

Hello, I am new to this site and am trying to grasp as much knowledge as I can about my daughter's new prognosis with Frontal Lobe Epilepsy. Our daughter began having febrile seizures just...

Created By: KittinBee | 2016-08-28 21:23 | 0 Comments

My son is 4, Not exactly sure what type of seizure he has either Atypical Absent mixed with complex partial? They are still figuring it out.
He has been getting treated for about a year now...

Created By: zarir.karbhari | 2016-08-26 07:17 | 1 Comment

Hello

My daughter is 15 yrs old, has 2-3 seizures a day (complex partials lasting 1-2 minutes) BUT we have to use the midazolam nasal puff on her every 3-4 days to sedate her when her...

Created By: angorasunday | 2016-08-25 16:36 | 0 Comments

Good Afternoon - My daughter is 5 years old and was diagnosed with myoclonic epliepsy in March. She takes Keppra, which makes her aggressive and violent. We have been working with her...

Created By: nbodwell | 2016-08-25 00:52 | 1 Comment

My daughter is almost two. She was born with a grade 3 IVH (intraventricular hemorrhage). Her neurosurgeon said that seizures would be possible, but not guaranteed in the future. As toddlers do...

Created By: deltadime10 | 2016-08-24 00:24 | 1 Comment

i have a 3 year old who has epilepsy from a stroke at birth. she has been somewhat resistant to AED's. We are considering a vagal nerve stimulator. Anyone have opinions or experiences with...

Created By: Holly Marie | 2016-08-23 23:29 | 2 Comments

Hi everyone,

Our doctor suggested the low glycemic index diet for our 5 year old daughter. We met with the nutritionist and I left a bit confused. I think overwhelmed with this change as...

Created By: kmaness | 2016-08-23 01:47 | 1 Comment

My 45 yo brother has epilepsy and cognitive impairment as well. In recent years, when he gets sick (e.g. viral infection, etc.), he frequently loses control of his body. What I mean is that he has...

Created By: Anurodh78 | 2016-08-22 06:24 | 1 Comment

Hi All,

I deeply appreciate your inputs as I am new & entering in to the ring of the world of this forum.

My 2.6 years old daughter had a GCTS on July 6, post which she...

Created By: nicki604 | 2016-08-20 12:16 | 1 Comment

So things are still crazy but not as bad. Phoebe just had an eeg not this past week but the week before and was there from mon morning through Friday early morning. She I think has been having...

Created By: acberka | 2016-08-16 16:25 | 2 Comments

Hi everyone, I am very new to this and am not sure if I am even in the right place to ask this question. My one year old daughter has been having multiple seizures since April, they haven't...

Created By: RickU | 2016-08-15 21:51 | 0 Comments

Has anyone had any issues with a child getting hurt if they have a seizure while their arm or leg is poking through the bars of a crib or enclosed bed? Our daughter has a genetic condition that...

Created By: Iceq | 2016-08-15 07:12 | 1 Comment

My son had a first time seizure after 12 months vaccination. He was asleep peacefully and all the sudden started seizing, it lasted over 40mins and the rescue medicine applied in the ambulance and...

Created By: Cassie4488 | 2016-08-12 17:40 | 1 Comment

My son had his first seizure in April when he had some sort of a bug and had a fever. It was first dismissed by the hospital as a febrile seizure until he had two more in the hospital. They had to...

Created By: Cassie4488 | 2016-08-12 16:08 | 1 Comment

My son had his first seizure in April when he had some sort of a bug and had a fever. It was first dismissed by the hospital as a febrile seizure until he had two more in the hospital. They had to...

Created By: JBarker | 2016-08-11 12:06 | 0 Comments

So my 7yr old son has memory loss more so during the school year when he is under more stress. He has reading and writing difficulties. He only has seizures we can see and where we call 911 about...

Created By: CruzDad | 2016-08-11 10:55 | 1 Comment

My three year old son, Cruz, was diagnosed with epilepsy yesterday after having two tonic clonic seizures the day before. He first had a series of myoclonic seizures starting 03JUL2016. His EEG...

Created By: harlan.stephens | 2016-08-11 00:34 | 2 Comments

Our son has had breakout seizures lately due to non compliance with meds and lifestyle. He insists he can drive but we tell him no and he gets angry and defensive. We told him we want him safe but...

Created By: Spuds_a | 2016-08-08 13:13 | 0 Comments

Just an update on my post of daughters with epilepsy

Abbie had her first Tonic Clonic seizure in April so now all three girls have epilepsy. Abbie has had 3 eegs since then and all are...

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