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Topic: Parents & Caregivers

Created By: Adutruch | 2015-04-16 23:53 | 51 Views | 1 Comment

 

Hi, I am new so please be patient. My 7 year old was diagnosed with epilepsy a few months ago and he is taking lamictal. He is developmentally delayed and has also been diagnosed with...

Created By: AngelaVA | 2015-04-16 17:32 | 49 Views | 1 Comment

My daughter has complex partial and secondary generalized seizures.  Twice in the last week she has asked me "Did I just have a seizure?" and she does seem very sleepy afterwards which is her...

Created By: Cbbaylis | 2015-04-14 22:15 | 73 Views | 2 Comments

My son 9 months old. He weighs 14 lbs. He's been on keppra since he was 4 1/2 months old. He started at 1ml then was upped to 1.5, 2, 2.5, and now 3ml. We went to the pharmacy today to pick up...

Created By: BlueSky87 | 2015-04-14 15:00 | 77 Views | 1 Comment

My 3.5 year old has been really scaring me lately, and I just don't know what to think about it. I know it could maybe be night terrors...but I am also worried it might be some form of seizures. I...

Created By: lesliekay81 | 2015-04-13 17:31 | 44 Views | 1 Comment

My son is 19 months old and started having complex partial seizures at 11 months (August 2014).  His seizures are the result of a stroke he suffered very early on in utero.  He has mild muscle...

Created By: Brenden06 | 2015-04-13 16:21 | 53 Views | 0 Comments

 

My 8 year old son has a generized seizure disorder.   He currently takes 150 mg of lamictal twice daily and 2ml of keppra twice daily ( was originally 3.5ml twice daily).    He has been...

Created By: Holly Marie | 2015-04-12 20:52 | 41 Views | 1 Comment

Hi everyone,

We are looking for advice/experiences with myoclonic absence epilepsy especially in children under 5.  Our daughter who is a twin and almost four years old experienced her...

Created By: jmoffitt09 | 2015-04-10 15:39 | 81 Views | 1 Comment

Hello all,

I am new to learning about seizures.  My daughter who is 23 months old had her first and only seizure on 2/28.  She woke up early in the morning seizing, unresponsive, rigid body...

Created By: nycmom | 2015-04-09 12:58 | 43 Views | 0 Comments

I am the parent of a 23 year old daughter who was recently diagnosed with MEAK after 13 years of rigorous testing, consultations with some of the top doctors in the country and many unsuccessful...

Created By: nycmom | 2015-04-09 11:01 | 30 Views | 0 Comments
Created By: brittandkailee@gmail.com | 2015-04-08 17:57 | 93 Views | 0 Comments

I have daughter about to turn two.  She was diagnosed with epilepsy after having many seizures and stopping breathing.  We have noticed a pattern in her seizures; her heart rate goes up really...

Created By: cnwll88 | 2015-04-08 15:15 | 69 Views | 4 Comments

Hi. I was just wanting to share our story and see if anyone can give some advice, or insight that a doctor wouldn't neccessarily think about telling parents that are just having to start dealing...

Created By: smriti22 | 2015-04-02 21:09 | 95 Views | 1 Comment

Hi. I live in the Los Angeles area and was wondering if anyone knew of a pediatric neuropsychologist familar with kids with epilepsy. My son's preschool is insisting I see a developmental...

Created By: tiffany_soergel@yahoo.com | 2015-04-01 17:10 | 73 Views | 0 Comments

Hello, I have a three year old son with epilepsy and CP, immune compromised, and a feeding tube..I live in Ohio and I have contacted everyone that I can think of. The state is telling me that I'm...

Created By: lagbfn@gmail.com | 2015-04-01 15:20 | 108 Views | 1 Comment

My 16 year old daughter was diagnosed late last summer with generalized epilepsy.  She has never had a tonic clonic seizure, only has had myoclonic episodes.  After being on meds for a short time...

Created By: crlanier | 2015-03-31 05:05 | 101 Views | 1 Comment

My 12 yr old daughter is taking Lamictal for her seizures.  She suddenly has become very moody and agitated, which is not her normal personality.  Also, I might add that she had been complaining...

Created By: rgh718 | 2015-03-30 09:56 | 85 Views | 0 Comments

Having some computer issues today please forgive my multiple post. My wife has had epilepsy for about 12 years now at the age of 38(no head trauma). I honestly believe they came about 2 years...

Created By: rgh718 | 2015-03-30 09:09 | 31 Views | 0 Comments
Created By: rgh718 | 2015-03-30 09:09 | 31 Views | 0 Comments
Created By: lisastaubly | 2015-03-30 00:49 | 137 Views | 1 Comment

Help! my son mri says he has cortical dysplaisa 2b with ballon cells. he's 2 1/2. what is prognois for this. he hasn't had seziues to my knowledge. 

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