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Topic: Parents & Caregivers

Created By: jlewinthal | 2015-08-31 18:59 | 17 Views | 0 Comments

Have any of you had a history of Colic or Prolonged Crying as an infant? To the parents, did your epileptic child have or had colice or prolonged crying? 

 

 

Created By: Rjhsteel | 2015-08-28 03:59 | 51 Views | 0 Comments

Edward was born 2 weeks ago. It was supposed to be a time of joy. We, are children and friends and family were looking forward to seeing him.
Now, after 14 days, (we are still here in Great...

Created By: Chasingpirates | 2015-08-16 23:15 | 100 Views | 1 Comment

I hope some of you can provide insight to a worried mama! It's long so bear with me!

My daughter was recently seen at ACH through the ER. Her pediatrician sent her there for an MRI to rule...

Created By: lauralove5 | 2015-08-16 12:45 | 84 Views | 0 Comments

Hi,

 

I hope that somebody might have an idea as to why my daughter keeps dropping out of "large" ketosis (per keto sticks) and into "small" ketosis.  

 

She is 5 and...

Created By: aarchie21 | 2015-08-14 00:46 | 70 Views | 0 Comments

It's so hard watching my daughter go through this! She started having seizures when she was 2 days old. She is now almost 5 months and the doctors still have no answers for me or a way to control...

Created By: mykal_t45@yahoo.com | 2015-08-12 14:52 | 119 Views | 0 Comments

Dear all,

Just wanted to see if any other parents' have had a similar experience. Our daughter has had 4 episodes in the last 10 months. Basically, every time it has happened it's been when...

Created By: Lovekaden | 2015-08-12 08:04 | 63 Views | 0 Comments

Does anyone do anything specific or have a certain machine to help your child during a seizure to keep them from losing oxygen during the seizure   or while waiting for the ambulance to come

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Created By: momofboyz | 2015-08-07 10:26 | 116 Views | 2 Comments

Looking for some input.  My 6 year old son was recently diagnosed with absence seizures, our neuro believes they are genetic since my husband had them growing up.  My husband was never propery...

Created By: momtothree | 2015-08-05 11:21 | 129 Views | 2 Comments

My two-year-old son had his first unprovoked tonic-clonic seizure in April, then he had a febrile (clonic) in June, and another unprovoked clonic just a few days ago. We made an appointment with a...

Created By: LJS | 2015-08-04 00:15 | 106 Views | 1 Comment

My 8 year old daughter is on Depakote. It makes her very emotional & lately, very hormonal. She seems obsessed with boys & kissing (not acting on it, just thinking & talking about it...

Created By: mbarkl03 | 2015-08-03 12:15 | 120 Views | 0 Comments

My 6 year old grandson was just diagnosed with Epilepsy a few months ago. He has been on Valproic Acid, but was still having seizures so his Neurologist wants to add Lamotigine. After doing some...

Created By: susiep0424@verizon.net | 2015-08-01 08:33 | 99 Views | 0 Comments

3 weeks ago my daughter had her first convulsive seizure and has since been diagnosed with having absence seizures. As the days go on it is getting harder and harder to get her to take her...

Created By: LisaMarie82 | 2015-07-31 21:35 | 112 Views | 1 Comment

Here's the situation in a nutshell. We were advised to bring my 2 year old son to a pediatric neuro for an eeg and 24 hour eeg for what we thought were absence seizures. The regular eeg came out...

Created By: Lovekaden | 2015-07-30 07:46 | 136 Views | 2 Comments

Does anyone notice an increase in seizures if their child with epilepsy uses an iPad often ?

Created By: llavelle92@aim.com | 2015-07-29 09:44 | 82 Views | 0 Comments

Anyone have any experience with nocturnal events - my 19 year old daughter has Idiopathic generalized epilepsy and during her waking time has grand mal seizures,she is seizure free almost 2 years...

Created By: Rondal | 2015-07-26 19:03 | 153 Views | 1 Comment

My daughter just turned 13 and was diagnosed with Epilepsy about a year ago. Her seizures only happen at bedtime if she is really tired and it is really late, or right after he wakes up in the...

Created By: zqmyangel | 2015-07-26 04:05 | 119 Views | 1 Comment

Hi, All, I'm new to this forum. Hope I can get myself understood with my poor English.

My son was just diagnosed with Epilepsy two weeks ago, the the type is still in observation. My son is...

Created By: Lovekaden | 2015-07-24 07:43 | 121 Views | 1 Comment

Hello my son is almost four years old he was diagnosed with epilepsy in August 2014 at first he was having grand mal tonic clinic seizures and now he only has absence seizures when he's really...

Created By: khstory@att.net | 2015-07-23 18:27 | 131 Views | 0 Comments

I've searched & can't find anything like my question, so here it is: my almost 20 yr old son was diagnosed with absence seizures at age 16. Takes 500 mg Keppra. He was top 20 in his class....

Created By: JTConcordNH | 2015-07-13 19:14 | 180 Views | 0 Comments

At his next appt, we will be discussing weaning my 20-year-old son off Depakote. He has been on it, seizure free, for two years. Any suggestions how to find a watchful companion to fill the hours...

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