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Unsure if my daughter has epilepsy

Fri, 10/20/2006 - 08:53
My 18 year old daughter was just diagnosed with E and put on Lamictal. Her first known seizure was July 3rd 2006. It was while she was at work. She had numbness on the right side of her body ( that is the last thing she remembers). People who witnessed the seizure state that she fell to the ground and started convulsing, then blood trickled from her mouth(from biting her tongue) then foam. Her muscles all tightened up and she started twitching violently. I am unsure how long the seizure lasted, everyone was pretty nervous when I arrived on the scene. When I arrived they had her in the ambulance and she didn't know who I was. She doesn't remember anything until we arrived in the emergency room. She had a severe headache, chewed up tongue, scrapes on her hands and bodyaches all over. We have had several test run, 3 EEG, 2 MRI, 1 MRA, catscan, lots of bloodwork all have come back normal. Tilt table was positive for vasovagul syncope and holter monitor showed some erythmias but nothing to be concerned about according to the doctors. We have been seeing a Nuerologist that specializes in seizures. He didn't want to put her on meds just yet. We agreed. Then last Saturday morning she woke up with a sore jaw and broken blood vessels on the sides of her face. I called the doctor and he wanted us in immediately on Monday. He is convinced that she is having nocturnal seizures. He described to me how dangerous the night seizures are and strongly recommended we put her on meds. I have heard so many horror story's about meds and am hoping that I have done the right thing. By the way my daughter is 18 and really doesn't care if she is on meds or not. I guess she is a normal 18 year old whose only concern is when can I drive again? lol. She just started college this past September at University of Michigan and is more into her social life than to let any of this concern her. lol. I guess I am glad that she hasn't become depressed or angry about the situation. I hope I can learn as much as possible from all of you out there. If anyone has any help or advice to offer I would greatly appreciate it. Thanks for reading.

Comments

Re: Unsure if my daughter has epilepsy

Submitted by Averysmom on Tue, 2006-10-24 - 14:18
HI rose, I am answering to try and bump your question back up to the top, I know how worried you are and maybe someone can get you some answers/advice. Talk to you later. Arika

Re: Re: Unsure if my daughter has epilepsy

Submitted by amrose66 on Wed, 2006-10-25 - 08:08
Thanks, Arika, you are a sweetheart. I know I haven't received any feedback here in the forums but I have obtained some information in the chat room and reading some blogs. If anyone does have information or just a story to share, I would appreciate it.

Re: Unsure if my daughter has epilepsy

Submitted by michelhead on Wed, 2006-10-25 - 12:33
I too started Lamictal about 4 weeks ago. It is suppose to be one of the medicines with less side effects although it is known to cause headaches and insomnia. It sounds like your daughter is having seizures and there is a lot of information on the types of seizures on this website. I'm not sure what happened at night, but it sounds like a grand mal/tonic-clonic or something similar the first time. It's definitely not abnormal to not remember anything after a seizure. I know it can be scary for you and your daughter, but try to stay positive. Even if the first med doesn't work, don't give up. I think almost everyone here has tried multiple meds and multiple combinations. As far as driving, it differs state to state, but usually you have to be controlled for 6 months without a seizure. I have also had a couple EEG's, an MRI, tilt table test, a miriade of of blood work and a CT scan. However, my EEG is did come back abnormal as did my tilt table test. Good luck, I hope your daughter gets her E under control.

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