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Tuning out Simple Partial Seizures?

Fri, 06/30/2017 - 14:42
Hi, I'm just wondering if anyone officially diagnosed has ever had this issue? I've been having phantosmia (I smell exhaust fumes briefly when there's no source and no one else can smell it) for about a year or so now and my neurologist thinks I'm having simple partial seizures. What I'm wondering is if anyone who has similar symptoms has found themselves just not noticing them happening until they purposely pay attention. I'm having an EEG on Monday to see if they can actually identify seizures but prior to my recent visit it seemed like I wasn't really experiencing them very often anymore. Since I'm going to have a follow up soon, I've started tracking them again and they're actually occurring pretty much daily with many days having multiple occurrences. So my question, is it likely I've just learned to ignore them when I don't have a specific reason to keep track or is it probable something else is going on? Thanks for any feedback!

Comments

Hi mm difficult to know?I've

Submitted by mariet_5926de5df37df on Mon, 2017-07-03 - 12:05
Hi mm difficult to know?I've only had one definite a couple possible smell auras/thingies. The first was in casualty within the bay I was smelling cigarette smoke which I hate, which did not seem likely that it was real; earlier I'd smelt it by an entrance as I was in a queue waiting to be seen so presumed it was coming from a smoker by the door.More recently I have noticed an occasionally sulphur/matches type smell and on occasion perfume. All these I would never really have taken much notice of, its only really on reflection reading other peoples' experiences. But I don't find I have any type of usual aura/warning before seizures. Main thing is do what your doing and log everything.Good luck,

I would not try to figure out

Submitted by whatitisepilepsy on Wed, 2017-07-19 - 20:47
I would not try to figure out your body, the darn thing is too complicated. Just keep paying attention to what happens. Your doing what you can that is what is important. This next part might not help you but I Tell everyone. May I suggest talking to your doctor about a med called Lamotrging. I'm also taking VIMPACT with that, and I have the most control I've ever had. We are trying to wing off the vimpact. If that dose not work, I went a whole year without arua or seizures taking a martial arts class. It was not so much what I learned, the over 100 jumping jack, stretching, working my body at least 5 days a week.  You have heard it before," use it or lose it". Exercise make sense. As soon as I stopped everything came back with in a week. Good luck, life with out seizures can be amazing, always try new things don't let it win.   

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