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SUDEP ?

Fri, 09/29/2006 - 12:02

Topic: New to Epilepsy.com

I had posted 2 questions earlier in the week but figured out the answer to one by just reading other posts. This one I am still wondering about: Can someone with simple partial's be at risk for SUDEP? Or does this rare phenomenon pertain only to other types of Epilepsy?

Comments

Re: SUDEP ?

Submitted by DixieLee on Sun, 2006-10-01 - 02:02

Hi, I also have simple partial seizures. I was told by my neuro that I could be at risk for SUDEP. Though very rare it's still scary. He referred to it as SUDEC however. I guess anyone who has Epilepsy is at risk. Interesting you should bring this up. I never heard of it until a month ago. Hope I helped a little bit. DixieLee

Re: Re: SUDEP ?

Submitted by wldhrt13 on Mon, 2006-10-02 - 15:22

Hi Dixie!!! I actually "heard" of this phenomenon in a non-medical context. I was simply watching "Dr. G- Medical Examiner" on Discovery Health and there was an episode where this was the cause of death for one patient who suffered from Epilepsy. I googled the term SUDEP the next day after watching the show and came up with this link: http://www.emedicine.com/neuro/topic659.htm In the scheme of things though, I suppose we could all buy the farm at any moment from any number of self-perceived "benign" situtions. While on the way to get a gallon of milk at the market, get in a car accident, lightening striking while running into house from rain, eating McDonalds hamburger + getting Mad Cow disease. It sure is dissettling though, perhaps because it lacks predictabilty.

Re: Re: Re: SUDEP ?

Submitted by Anonymous on Tue, 2006-10-03 - 00:07

Have any of you seen the book on SUDEP? Epilepsy.com has some of the content on this site - here's the link.

www.epilepsy.com/epilepsy/sudep_epilepsy.html"

www.epilepsy.com/epilepsy/sudep_risk.html

There is no one way to identify risk but the severity of seizures, and whether uncontrolled or not is likelyh key factor. I attached section on risk as well.

Thanks to everyone for bringing this up. Hard to talk about but a real one for so many.

Take care,

Epi_help