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Struggling with epilepsy and cant deal with it
Sun, 12/18/2016 - 14:11Topic: New to Epilepsy.com
Hey all. I'm new here. 36 years old on Thursday (12-22) Its been tough since before and after I found out about me having epilepsy. Just wondering if anyone else has the same issues and how they deal with the stress of everyday life.
Hey TStafford80. You are for
Submitted by Robert White on Sun, 2017-01-15 - 00:08
Hey TStafford80. You are for sure not the only one that has or still does feel as you do. That doesn't change the way you feel about your situation but just know others will understand. I started having seizures when I was 12 and didn't know what was happening. All I was knew was I would wake up in the nurses office; she would tell me the time and what class to go to ( I was in the seventh grade). Then between classes people would laugh at me having "Fits"; ie: seizures. I had no idea what they were talking about. Needless to say I was i a lot of fights. I tried to deny what I knew was happening; at least the mockery of my fits. But it didn't help trying to run from reality. Then, trying to accept limitations because of "maybe" having a seizure. Not having friends was another aspect. I was so insecure and had little if any self-confidence. I also felt like such an emotional and financial burden to my parents. Because of those feelings I didn't talk to my parents about what was happening and how I felt or try to get ideas from them of what to do. Relatives would try to help by saying "just ignore what people say or think of you". That didn't work. I kept on and am where I am today. I'm nearly 61 (in 3 weeks). I would suggest trying to see if your family will let you talk about your feelings, fears, doubts, worries, or whatever you are dealing with. Don't know the relationship you have with your family, that includes brother(s) and/or sister(s). I never talked to my family because I alrready felt like a burden and telling them the things I was dealing with would only compound the burden I felt like I was causing them. Good luck with your understanding epilepsy and learning to accept yourself as no less of a person than if you didn't have seizures. I'm not saying it will necessarily easy but it will be a lot better to not run//deny the facts of what epilepsy is causing. I hope this helped a little bit even. >>>>>>Robert