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Simple partial seizures

Thu, 12/03/2015 - 23:09

I've recently been diagnosed with simple partial seizures: basically it started 3 months ago with a strong Deja vu, and auras from which I've read about. I get them every single day. I saw a neurologist and have been on gabopentin. Unfortunately it doesn't help: since then the episodes have changed and hit me any time they want. It's painful and I cannot talk for the 2 minutes I have them. My body is overwhelmed. And have to catch my breath. I've had an EEG it came back normal. Tomorrow is my MRI, I'm terrified. Does anyone experience anything similar?

Comments

Sometimes if I stare at

Submitted by Shannenk on Thu, 2015-12-03 - 23:11
Sometimes if I stare at something long enough it triggers them as well

Welcome Shannen

Submitted by just_joe on Fri, 2015-12-04 - 10:20
Welcome Shannen You are not the only one that has gone thru what you have been thru I had been having seizures for about 2 years before they saw me in a grand mal seizure. The seizures I had been having were petite mal (aka absence seizures). Along with them I was having focal seizures which affected my right hand only. Those 2 different seizures look like the person is day dreaming. I had been written up for day dreaming in class even tho I was one of the top students in class. By not getting treatment thse seizures increased in number and got stronger. EEG's are supposed to capture the electrical out put coming from your brain. I has 20-25 that all came back normal. I had been going thru a battery of tests and they were normal. The last test that week was another EEG in which I fell asleep in. The found abnormalities in that EEG and by knowing where it came from they then looked closer at the MRI of the 60's and the closer look the neurologists found scared brain tissue. There are some people that get auras but many people do not get them. Medications do work. A medication that works for one person may not work for the next. It is the same for dosages. Each person is different and they may have some of the same symptoms but their seizures are different in some ways. The way I was able to get better results was by asking questions at all visits. Keep track of your seizures and let your neurologist know about them. You can keep track of them by using the My Epilepsy Diary which can be found in this site.

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