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Seizures or not....
Tue, 06/09/2015 - 15:52Hello everyone. I'm very new to this site. I've recently had a fit at work and than fainted afterwards. It was a normal day. I did have caffeine that morning. I felt uneasy the day prior, but the morning of my accident I did not have any uneasiness. I was talking to a co-worker and her voice started to change (like I wanted her to stop talking). I started to have an uneasy feeling. My stomach stated to hurt and then I felt "weird". I excused myself and went to sit down. I though maybe it's hunger and asked a coworker for a snack. She provided a snack and than I woke up with EMS on site. I was able to hear people but it felt like a dream. I was taken to the ER and the dr states it was syncope. My sugar was normal when they did it on site I was pale, and my pulse was low 40-60. The next day I felt that I had a really sore neck. I asked my coworker if I hit my head. That's when my coworker explained that I had a fit for a couple of seconds than responded that I was okay and I wanted to go home. After that comment I blacked out. I have no memory of my fit.
I've always had "faint" spells which included sometime lost of bladder.But no one ever seen me till now. They are not frequent because I have them every 1 to 2 years. This is in a 10 year span. It has happen while sitting too.
I saw my PCP and he referred me to a nuerologist. He quickly did and MRI and a EEG. All were normal. He started me on lamitrigen and diagnosed me with complex partial epilepsy. Of course I was shock bc of no medical proof. I got a second opinion and he felt that my nuero was on the right path but he wanted me on stronger meds. (no way)
I'm frustrated because I don't agree with this diagnosis without proof. I've asked my pcp and he feels this is something medicine can help. I asked about low blood sugar/ pressure being an issue. They disregarded all my concerns. I feel helpless and I do not want to take meds for nothing. Has anyone ever experience this?
I had a really hard time
Submitted by ashespaige on Wed, 2015-06-10 - 10:56
I had a really hard time accepting my diagnosis bc I also had no medical proof. My MRI and EEG (only 10 minutes long) came back normal but my symptoms pointed to epilepsy. The Neuro I saw was still pretty confident I had Temporal Lobe Epilepsy so he started me on Trileptal. It actually triggered more episodes so he switched me to Keppra. It was after the short time on Trileptal that I noticed he officially diagnosed me with TLE. A girl I went to college with became a Neuro so I called her. She said when it doesn't show up on EEG/MRI, they will try medicine to see if it helps. If it has any effect on the episodes (in my case the Trileptal triggered and the Keppra stopped them) she said that, along with my symptoms, were proof that I have epilepsy. If you have an epilepsy center near you, your Neuro might send you for a VEEG over night for monitoring to see if you have any activity. Where I live, we don't have an adult epilepsy center near us. You might not have Epilepsy but if your neuro started you on a medicine, trust him and keep a log of any strange episodes or feelings you have while taking the medicine. If you don't have any episodes, that is a good indicator that the medicine is working and you do, in fact, have epilepsy.