Save my sanity, please

I, honestly, don't know what I'm doing. For the first time in my life, I feel completely and utterly lost. I don't even know if this is going to make sense to anyone out there. My son, otherwise completely healthy, currently 5, was just diagnosed with Benign Occipital Epilepsy last Monday. While napping- that afternoon, he started convulsing, with his eyes rolled into the back of his head- he was blue, and not breathing (though, I've been told that's not possible- even though I checked. I thought he was dying. It was the first thing I did). It lasted about a minute (maybe longer, I didn't know to time them), before he started breathing again and his eyes rolled forward and to the left. His mouth drooped, like he was about to cry, and he was non-responsive. About a minute later, he mumbled, and I knew that even though he couldn't move his mouth or eyes, he could hear me. I sat with him for about 5 minutes before he was able to respond to me, fully. He was confused, dizzy, and disoriented. He could not stand properly. He was rushed to our local Children's Hospital via ambulance. They diagnosed it as a Grand Mal, admitted him to the hospital, and performed an EEG and MRI the next morning. The MRI came back clear, but the EEG apparently showed spikes in his Occipital lobe that is conducive to epilepsy. The doctor told us that he needed another EEG, to determine his brainwaves during sleep, but that he wouldn't need it for weeks. My son was immediately placed on Keppra in the hospital (2.5ml 2x a day for 1 week, 3.5ml 2x a day for 1 week, finally 5ml 2x a day ad infinitum) and released that day. We were not shown his EEG, just told that he had spikes in the Occipital Lobe while fully awake. When I asked about it, I was told that I wouldn't understand it, that it was just a bunch of squiggly lines- and that the doctor had read it, so that's that. Now, a week and two days later, I'm noticing terrible side-effects from this medicine. And, I'm overwhelmed and confused. Honestly, part of me is in denial, too. He was fine, now he's not. Everything I've read points to Panayiotopoulos syndrome (the eyes tracking, the drooped lip, the happening while he was asleep, etc), which doesn't require medication, but I don't know why the would have immediately medicated him; however, I can find nothing conclusive on anything. Then, I read that most children who have been diagnosed with BOCE have been given a prescription for Diastat, in case of an emergency (i.e. seizure lasting more than 5 minutes). My son was not sent home with that. If it's so bad that he has to be medicated, why would I not be given the anti-seizure emergency meds? He's never had a seizure during the day, only while sleeping. And, ever since the diagnosis (and subsequent medication), he's had several small "shivers" in the night. I am a terribly light sleeper, and have never seen or noticed this before the medicine. Night before last, he had over 30 in an 8-hour span. Last night, he had over 100. One hundred seizures. At one point, he was having them once a minute. The doctor is telling me not to worry, that he was probably having that many and I just didn't notice. They're not lasting 5 minutes or more, so again, don't worry. When I tell them, no, he wasn't- I've been purposefully watching him now for an entire week- they tell me that I had to have missed them. He's five, and he's developed anxiety, extreme insomnia, diarrhea, increased aggravation and anger. He's made comments that he's never made before, leaving me to believe he might also be suffering depression. This is all within 9 days of taking this medication, which just got upped as of Monday of this week. I'm angry, I know that, but I'm also confused. I feel like they just put him on meds, and let him go home, just to get us out (our insurance is negligible). I wasn't allowed to see his scans, which is weird- when I've been allowed to see all his other medical information up until this point. The seizures are not as bad (obviously, having the first be a GMal) but they ARE way more frequent. And, I seem to be the only one who is seeing a correlation between that and the medicine. I'm frustrated, because we were just told a diagnosis and given meds. But, everything I've read says that's not necessary. He hasn't suffered hallucinations, or day time seizures of any kind. I just need someone who's been through this, someone who cares about their child like I do, to tell me I'm not crazy. I need someone who has experience with this, because I don't- no one I know does- to tell me that I'm okay to be concerned...or that I am an idiot, and I don't need to be. He has a 60% chance of outgrowing this in a couple years. Do I bite my lip, let them medicate him into oblivion without questioning it? I just need someone to tell me everything is going to be okay. Because right now, I feel like I'm drowning in the dark with no one to save me. I can't let him know I'm worried, and I can't treat him any different, because I refuse to let this be something that defines him. I talk to my husband, but he's just as worried as I am- it's new and confusing. So, I just need a veteran who isn't a doctor being paid to supply meds to children. Someone, please, save my sanity. Thank you for reading.