Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Possible triggers

Tue, 04/05/2016 - 12:52
New to this. My son (16) had his first seizure in sept he started very confused not responding properly plus a strange body twitch. We believe he is hypoglycaemic so we thought his blood sugar had dropped. We decided to take him to the ER where he had a full tonic/clinic seizure. Eeg and Mri Drs app all followed they decided to call it primary generalized epliepsy (the dr stressed it was not epilepsy) nothing more till 6 months latter he showed the same confusion and muscle twitch so on Drs suggestion we gave him one of his emergency pills lorazepam and all symptoms stopped. About the same time we discovered he had a badly infected tooth that the dentist said had been infected for months. My question is could that have been the trigger for both episodes? The blood work from his first did show a low grade infection going on.

Comments

lorazepam is  a recovery

Submitted by just_joe on Wed, 2016-04-06 - 11:30
lorazepam is  a recovery medication and it stops other seizures from starting. I carry it with me when I am out. I have focal seizures that can cluster and after one I take it to keep the clustering from happening. You have 12 different things that need to be looked at . The EEG and MRI doctors said it was  primary generalized epilepsy. and following it you said another doctor stressed it was not epilepsy. Listen to the first doctors since they laid it out and looked at the tests. Did they tell you to see a specialist or neurologist. If not then ask his PCP for a referral.

One seizure can happen

Submitted by just_joe on Wed, 2016-04-06 - 20:49
One seizure can happen because of several things. Which is why they don't give a diagnosis after one seizure. If the person has 2 seizures then yes the diagnosis will come. Just as seizures are different with each person so are triggers.The EEG is a brain wave test showing the output comming from the brain. Much like the EKG showing the output from the heart. With the EKG it will show the beat and if it is wrong or irregular.All a seizure is "is an electrical impulse hitting wrong in the brain".. That impulse hitting wrong causes a chain reaction which is the seizure itself.Relax and do your research but discuss this with the neurologist. If you like him then please do yourself a favor keep a good relationship with him. I have gotten medication dosages and changes done in a call rather then a visit. If he is put on medications please make surehe takes them right. If the RX says 2 times a day those times need to be 12 hours apart. Meds for seizure control are not like aspirin where once taken it is gone in hours. It takes 4-6 weeks for the body to get used to it and the theraputic levels to buils up in the body. Please come in and let us know how he is doing.Joe

Epilepsy starting in the

Submitted by margiefox118@live.com on Mon, 2016-04-11 - 13:36
Epilepsy starting in the teens is very common. Hormone levels are fluctuating- whether a boy or girl- at this age. The proper meds will help keep seizures in check. Be thankful he does not have a much more serious prob like diabetes, stroke, heart  which could be terminal. Brain seizures can also be traced to a starting point in the brain which tells what " type" they are. This is how the proper treatment is determined and which medications will be best. It may take time to find the right one-esp if no starting point can be found.Because it was his 1st is why the doctor stressed not epilepsy, because seizures can be caused by many traumatic malfunctions in the brain or body-things much worse than chronic  epilepsy. Seizures are unique in every brain- a neurologist will determine the best for your son. You are new to this so watching a seizure is tough but you will eventually know what to expect. You would not believe how  common epilepsy is- 20% of all people. The more I mention mine the more people I meet who have it or have friends/relatives who have the same.If a child of mine had epilepsy I would be relieved it was not a much worse health problem. The more you learn the more you will feel the same.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.