Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Not coping well. Worry and frustration.

Fri, 01/06/2017 - 09:48
Hi, I'm a 31 year old female who is believed to be having complex partial seizures. This is not confirmed yet, as at the time of eeg I was feeling fine. This all started a few weeks ago, I had a few unexplainable episodes and went to my doctor fully expecting them to tell me I was crazy, only for them to send me straight to a neurologist. I knew very little about epilepsy, and had no idea that's what it could be. Since then I have had an mri, but have not been told any results yet, and I haven't been given another appointment with the neurologist yet, so I am not currently on medication. I have had numerous episodes and am now dealing with a constant headache and general confusion. I just want to know how everyone copes with this condition? I feel so frustrated, I can't fully explain to anyone what I experience, or how I feel. I sometimes struggle to understand normal conversation, and I feel like my partner doesn't want to be around me. I feel so alone. On top of this I am concerned that a lot of people's epilepsy develops further into worse seizures. I am a single mum to 2 young children and I'm not sure what they would do if I had any kind of seizure where I became completely unconscious. Sorry for the long post. Just looking for general reassurance I guess.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.